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I Need Input

Posted by Teresa on 2/19/99 at 00:00 (004938)

I have been following this web site and all the postings here and the guestbook for several months now. I have had PF on and off for 7 years. The last flair up has been for 2 years. I thought I had tried everything, 3 or 4 Cordison shots, orthotics (which hurt my ankles) anti inflammatory treatments, Aleve, icing, until I read this web site. I went for a second opinion and was told surgery would be the only thing to cure this. I went for a third opinion and was told (by a chiropractor) that they need to re-injure the facia by ripping it with their hands and I would need to stay off them for 6-8 weeks and get adjustments on them at least 3 days a week. This procedure would cause excruciating pain for 15 to 20 minutes per foot and they may have to repeat it. NO THANKS
! That is when I started surfing the web.

I am now under the treatment of a podiatrist who seems to think he can cure this no problem. I have shoe inserts and heel lifts with a good shoe. I am doing PT 2 times a week including Ultrasound and ice with stretching and strengthening excercises I do 2x a day plus ice and a topical anti inflammatory plus Lodine. I have been religiously doing everything I'm suppose to. I am in a wheelchair so I am doing full body stretching, stomach and leg strenthening excercises plus the stationary bike 45 minutes per day to get in shape and loose weight. I wear nite splints but I am having trouble with them staying on. They are a new kind and are not working. The doctor will replace these next week. I have been doing all of this new treatment for 1 month plus I have stayed off my feet for 6 weeks. Prior to this the pain was in both feet entirely and they throbbed every time I was on them. My big toes I could not move without excruciating pain and just recently my little toes started to go numb. I now do not have the throbbing or much toe pain but if I walk on them for 5 minutes or more they start to hurt. The pain was gone for a while but it is now coming back even when I'm not walking.

The PT does not know why and thinks I need to cutback on excercises. They say my problem is from lack of range of motion in my ankles. I am feeling incredibly discouraged because I have three small children and I'm 36 and I dont have much time for this. It has been very hard on my family (husband) and we do not have much help and we are a one income family so we dont have an abundance of money either. Ihave just run across GORDON's entry and wondered if anyone is trying this with success? I am doing some of the aerobic activity and I can add vitamin C but it all seems like a full time job and I already have 3 full time jobs in my kids.I'm sorry I wrote so much but I don't know what else to do. My life has stopped and I want it back.


Re: I Need Input

Gordon on 2/19/99 at 00:00 (004953)

Teresa
I'm very sorry about your condition.
I know you read my stuff, so I'll give you some more info. First, I'll tell you a little story about my experience last summer.

I started my Vit C, 5-HTP and excersise last May and was in pretty good shape by the end of August but one thing that really helped was a 3 week vacation of sailing. When I first started this vacation I could walk about 1/2 mile and by then end I could go for about an hour staight. My point is that I believe your mind and mental state have a much bigger impact than people give it credit. There is a strong link between ones mental state and ones biochemical state. Depression screws up your bodies hormones and chemical balance. So if there is anyway of fixing this do it. And that is why I strongly advocate fun dance music. It realy can ease your mind. When ever I'm home alone (I work from home because of my problem)I crank up the music and do excercise and dance. How embarrasing to be telling someone this....

My feet can do this but at first I just did floor excersices.

Try swimming.

I also was in a wheelchair and I don't think it was the greatest idea because then the legs get weak and it's hard to go back. I purchased a TENS unit from my acupuncture guy for $140 (cheap) and that helped numb the pain and get the blood flowing in order to start walking again. I know a lot of people claimed it didn't do any good for them but maybe it only is significant for the extreme cases. It is not a cure, just an aid.

I think that even though mechanical type devices such as arch supports releive the stress they do not cure the real cause.

Given that a) Many people say they don't have relatives with this it can't be hereditary
b)Mechanical devices only cure a portion of the people
c)Many people suffer more than just the feet (carpal tunnel, neck shoulder etc.)
It must be that the problem is biochemical. And since these type of problems are highly on the rise it must be something in the food or air or water.

When I had a toxcicity test done they found very high amounts of copper (way off the scale) in my hair.My blood showed ok though. Doctors don't know what to make of the hair thing.

Anyhow, I searched for an anwer to the source of copper and called the local Water engineer in Kent WA. He said that there was a known problem with the water and that it had been anounced in the NEWs paper. THey are fixing it.

The water did not have copper but the PH was so far off that it was causing the copper tubing in houses to dissolve into solution. In fact both tubes going to my hot water tank broke (only ten yr old house). He said to make sure you run the water for a minute before using it for drinking. Well (I do hydraulics engineering) and I figured it would take about two minutes to really flush the system all the way back to meter with any kind of confidence.

In the past I always made a fresh jug of orange juice from tap water every morning without flushing the system(to get my dose of copper).

Anyhow,I don't know if this is really the problem because I never went back to check my copper levels since, but I got better using the Vit C to take out the copper.

Here is the name of a lab that does it.'Trace Elements, Inc. 4901 Keller Springs Rd. Dallas Texas 75248 USA. 1-800-824-2314. They may advise you of a local doc or nutritionalist that can order the test. It cost me $47. Demand to get a copy of the doctors and patients report.They are different.

Tell me what your levels are and I'll be a happy man.

Anti-depresents help because when your less depressed your body can do a much better job of healing.

Because your toe is going numb I highly suspect you have poor circulation in your foot (inspite of what the doc may say)and this is the casue (but what caused the bad circulation). Mdeciation that helps circulation might be a consideration (I think Ginko does this) and supposedly 5-HTP (the good stuff) does this.

If you have poor circulation in your foot be careful with too much icing. A friend of mine has a daughter with that circulation disesase and she went in for minor foot surgery. Well, her foot never recoverd in the big toe because she over-iced after the surgery.

Ice helps but it can hurt.

Anyhow good cardivascular excersice is the best thing for circulation.

My hurt the most when I sit around so i massage them with a fork while I'm on teh computer. Couldn't do that when they were real bad.

Another thing, If I go for a hike and then don't do anything the next day then they get sore. So I always do some mat work after I ice them and then first thing the next day.

Check some of my other tips on other answers to see if anything helps.

I would like to get Scott to submit a more clinical survery to get to the route cause of this thing. Then we can let our doctors know how to fix it.

Good luck


Re: I Need Input

Cheryl R. on 2/20/99 at 00:00 (004968)

My advice would be to have the surgery. Make sure you have the 'full release' surgery, though. Also, no matter what the surgeon advises, do not walk on the foot right away. Let it rest for at least 48 hours. It's not a miracle cure. You will still have to have PT after surgery and continue stretching at home. It takes alot of work after the surgery to rebuild your muscles and get your movement and flexability back, but, eventually it happens. I had the 'full release' surgery in November. I still have some pain, but only after I've been on my feet for a long period of time. I've had one really bad day in the past 3 weeks. That, to me, makes the surgery worth it. I'm back to working both of my jobs and can get out of bed every morning with no pain. Good luck in whatever you decide and I hope you get some relief.

Re: I Need Input

Teresa on 2/27/99 at 00:00 (005106)

Thank you for all your information. I am going to be doing all of it. I have already established a pretty good aerobic, stretch and strengthening routine. I will get the hair test and start on vitamins. The diet is something I am working up to. Tell me, in your opinion, do I need to stop drinking coffee too?? I'll let you know when I get the test results from the hair sample. My mood has also improved considerably since the last e-mail even though my condition is still the same. Thank you again.

Re: I Need Input

Gordon on 3/01/99 at 00:00 (005147)

I can only guess about which foods are best but I think that stimulants, such as coffee, tend to make our muscles more tense and sensitive to pain. Back on the Heelspurs homepage Scott has an updated report on all the methods and there is some good stuff on Vit C. The funny thing is for me that the only thing that really helped were thoses things that none of the doctors mentioned (aerobic activity, Vit V, massage etc.)

Re: I Need Input

Gordon on 2/19/99 at 00:00 (004953)

Teresa
I'm very sorry about your condition.
I know you read my stuff, so I'll give you some more info. First, I'll tell you a little story about my experience last summer.

I started my Vit C, 5-HTP and excersise last May and was in pretty good shape by the end of August but one thing that really helped was a 3 week vacation of sailing. When I first started this vacation I could walk about 1/2 mile and by then end I could go for about an hour staight. My point is that I believe your mind and mental state have a much bigger impact than people give it credit. There is a strong link between ones mental state and ones biochemical state. Depression screws up your bodies hormones and chemical balance. So if there is anyway of fixing this do it. And that is why I strongly advocate fun dance music. It realy can ease your mind. When ever I'm home alone (I work from home because of my problem)I crank up the music and do excercise and dance. How embarrasing to be telling someone this....

My feet can do this but at first I just did floor excersices.

Try swimming.

I also was in a wheelchair and I don't think it was the greatest idea because then the legs get weak and it's hard to go back. I purchased a TENS unit from my acupuncture guy for $140 (cheap) and that helped numb the pain and get the blood flowing in order to start walking again. I know a lot of people claimed it didn't do any good for them but maybe it only is significant for the extreme cases. It is not a cure, just an aid.

I think that even though mechanical type devices such as arch supports releive the stress they do not cure the real cause.

Given that a) Many people say they don't have relatives with this it can't be hereditary
b)Mechanical devices only cure a portion of the people
c)Many people suffer more than just the feet (carpal tunnel, neck shoulder etc.)
It must be that the problem is biochemical. And since these type of problems are highly on the rise it must be something in the food or air or water.

When I had a toxcicity test done they found very high amounts of copper (way off the scale) in my hair.My blood showed ok though. Doctors don't know what to make of the hair thing.

Anyhow, I searched for an anwer to the source of copper and called the local Water engineer in Kent WA. He said that there was a known problem with the water and that it had been anounced in the NEWs paper. THey are fixing it.

The water did not have copper but the PH was so far off that it was causing the copper tubing in houses to dissolve into solution. In fact both tubes going to my hot water tank broke (only ten yr old house). He said to make sure you run the water for a minute before using it for drinking. Well (I do hydraulics engineering) and I figured it would take about two minutes to really flush the system all the way back to meter with any kind of confidence.

In the past I always made a fresh jug of orange juice from tap water every morning without flushing the system(to get my dose of copper).

Anyhow,I don't know if this is really the problem because I never went back to check my copper levels since, but I got better using the Vit C to take out the copper.

Here is the name of a lab that does it.'Trace Elements, Inc. 4901 Keller Springs Rd. Dallas Texas 75248 USA. 1-800-824-2314. They may advise you of a local doc or nutritionalist that can order the test. It cost me $47. Demand to get a copy of the doctors and patients report.They are different.

Tell me what your levels are and I'll be a happy man.

Anti-depresents help because when your less depressed your body can do a much better job of healing.

Because your toe is going numb I highly suspect you have poor circulation in your foot (inspite of what the doc may say)and this is the casue (but what caused the bad circulation). Mdeciation that helps circulation might be a consideration (I think Ginko does this) and supposedly 5-HTP (the good stuff) does this.

If you have poor circulation in your foot be careful with too much icing. A friend of mine has a daughter with that circulation disesase and she went in for minor foot surgery. Well, her foot never recoverd in the big toe because she over-iced after the surgery.

Ice helps but it can hurt.

Anyhow good cardivascular excersice is the best thing for circulation.

My hurt the most when I sit around so i massage them with a fork while I'm on teh computer. Couldn't do that when they were real bad.

Another thing, If I go for a hike and then don't do anything the next day then they get sore. So I always do some mat work after I ice them and then first thing the next day.

Check some of my other tips on other answers to see if anything helps.

I would like to get Scott to submit a more clinical survery to get to the route cause of this thing. Then we can let our doctors know how to fix it.

Good luck


Re: I Need Input

Cheryl R. on 2/20/99 at 00:00 (004968)

My advice would be to have the surgery. Make sure you have the 'full release' surgery, though. Also, no matter what the surgeon advises, do not walk on the foot right away. Let it rest for at least 48 hours. It's not a miracle cure. You will still have to have PT after surgery and continue stretching at home. It takes alot of work after the surgery to rebuild your muscles and get your movement and flexability back, but, eventually it happens. I had the 'full release' surgery in November. I still have some pain, but only after I've been on my feet for a long period of time. I've had one really bad day in the past 3 weeks. That, to me, makes the surgery worth it. I'm back to working both of my jobs and can get out of bed every morning with no pain. Good luck in whatever you decide and I hope you get some relief.

Re: I Need Input

Teresa on 2/27/99 at 00:00 (005106)

Thank you for all your information. I am going to be doing all of it. I have already established a pretty good aerobic, stretch and strengthening routine. I will get the hair test and start on vitamins. The diet is something I am working up to. Tell me, in your opinion, do I need to stop drinking coffee too?? I'll let you know when I get the test results from the hair sample. My mood has also improved considerably since the last e-mail even though my condition is still the same. Thank you again.

Re: I Need Input

Gordon on 3/01/99 at 00:00 (005147)

I can only guess about which foods are best but I think that stimulants, such as coffee, tend to make our muscles more tense and sensitive to pain. Back on the Heelspurs homepage Scott has an updated report on all the methods and there is some good stuff on Vit C. The funny thing is for me that the only thing that really helped were thoses things that none of the doctors mentioned (aerobic activity, Vit V, massage etc.)