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ankylosing spondylosis

Posted by cpb on 11/17/99 at 00:00 (012806)

having been suffering with what i thought was pf had a bone scan last week and been diagnosed with having ankylosing spondylosis ,just wondered if any one knows anything about this condition!

Re: ankylosing spondylosis

wendyn on 11/17/99 at 00:00 (012807)

Back in September my new specialist gave me an initial diagnosis of this (God, how many things have they thought this was!) Mine was ruled out by bone scan. From my reading I recall that it is a form of arthritis that typically affects young men (15 to 30). It is progressive, and involves deterioration and stiffening of the spine. It can really vary in severity, but can be controlled - get a good doctor and start doing lots of research now.



Re: ankylosing spondylosis

Lee H on 11/17/99 at 00:00 (012812)

Wendyn, You obviously have been through everything imaginable with this PF. Mabey you should think about med school after this is over. I did my research on RSDS and your right on the money. Pretty good considering you came up with it off the top of your head. What is your current diagnosis for your feet. Are they now considering it PF?

As far as ankylosing spondylosis, I have never heard of it. So many possibilities. It's rather depressing isn't it.


Re: ankylosing spondylosis

Gordon on 11/17/99 at 00:00 (012813)

I was told I had this because of the genetic marker for it and had this PF thing, however the doctors at Mayo said I did not have it because my spine showed OK.
After seeing several docs on this isssue and hearing a couple different opinions I got the impression that they really don't understand arthtritic problems much better than my dog. For example,if you read the fine print on cortisone cream it states that the mechanism by which it reduces inflamation is not totaly understood but the therory is bla...bla bla. Hoperfully recent research will funnel its way down to the docs and they'll start understanding this stuff better. Best thing to do is become your own research person if you have anything other than something they can cut out or stitch up.

Re: ankylosing spondylosis

wendyn on 11/17/99 at 00:00 (012818)

Actually, I've always had an interest in Science and Medicine - always had my highest marks there. So where do end up? Accounting. Yes, I hate it - my doctor and I have a running joke that between the bizarre things my kids come up with, and the unusual things I seem to develop - that I'll be lecturing soon at the medical schools.

The powers that be currently still believe that I have TTS. From everything I've read, I'd have to agree with them. It isn't very common though, and they don't always know what causes it or what to do about it. Because I also have structural problems with one leg, and some discomfort in my lower back (I think from walking funny) they always are much more fascinated with these problems. I guess because they can see them. It's hard to get them to stay focused on my feet - had the same problem with physio.

I have had two bouts of PF - both lasted 6 weeks roughly, and the pain was distinctly different from what I have now.



Re: ankylosing spondylosis

wendyn on 11/17/99 at 00:00 (012807)

Back in September my new specialist gave me an initial diagnosis of this (God, how many things have they thought this was!) Mine was ruled out by bone scan. From my reading I recall that it is a form of arthritis that typically affects young men (15 to 30). It is progressive, and involves deterioration and stiffening of the spine. It can really vary in severity, but can be controlled - get a good doctor and start doing lots of research now.



Re: ankylosing spondylosis

Lee H on 11/17/99 at 00:00 (012812)

Wendyn, You obviously have been through everything imaginable with this PF. Mabey you should think about med school after this is over. I did my research on RSDS and your right on the money. Pretty good considering you came up with it off the top of your head. What is your current diagnosis for your feet. Are they now considering it PF?

As far as ankylosing spondylosis, I have never heard of it. So many possibilities. It's rather depressing isn't it.


Re: ankylosing spondylosis

Gordon on 11/17/99 at 00:00 (012813)

I was told I had this because of the genetic marker for it and had this PF thing, however the doctors at Mayo said I did not have it because my spine showed OK.
After seeing several docs on this isssue and hearing a couple different opinions I got the impression that they really don't understand arthtritic problems much better than my dog. For example,if you read the fine print on cortisone cream it states that the mechanism by which it reduces inflamation is not totaly understood but the therory is bla...bla bla. Hoperfully recent research will funnel its way down to the docs and they'll start understanding this stuff better. Best thing to do is become your own research person if you have anything other than something they can cut out or stitch up.

Re: ankylosing spondylosis

wendyn on 11/17/99 at 00:00 (012818)

Actually, I've always had an interest in Science and Medicine - always had my highest marks there. So where do end up? Accounting. Yes, I hate it - my doctor and I have a running joke that between the bizarre things my kids come up with, and the unusual things I seem to develop - that I'll be lecturing soon at the medical schools.

The powers that be currently still believe that I have TTS. From everything I've read, I'd have to agree with them. It isn't very common though, and they don't always know what causes it or what to do about it. Because I also have structural problems with one leg, and some discomfort in my lower back (I think from walking funny) they always are much more fascinated with these problems. I guess because they can see them. It's hard to get them to stay focused on my feet - had the same problem with physio.

I have had two bouts of PF - both lasted 6 weeks roughly, and the pain was distinctly different from what I have now.