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update

Posted by Lee H on 12/16/99 at 00:00 (013818)

Hi everyone, Went to a pain specialist today. He thought the RDS diagnosis was possible. He gave me a prescription for vioxx and I will see him again in another week. He was shocked that no other Dr. has prescribed that as of yet. (He is the 9th or 10th Doctor I have seen). This Dr was a bit on the arrogant side. Had a bone scan yesterday and when I asked if he would call for the results he pooh-poohed it and said a 'bone scan won't show anything', I hate Drs.!!! If he was so sure a bone scan wouldn't show anything then why did the reumotologist I seen last week feel it was so necessary to waste close to an entire day having this test done, not to mention the cost of it. I guess I'll call the reumotologist or my primary care in a few days to see if the bone scan showed anything.

This pain Doc is also setting up a cat scan for me. Anyone have this done? He thinks there is a speck of possibility the pain is comming from my back not the opposite, which seems way off to me since the pain always starts in my feet and when it gets really bad will go all the way up to my lower back.

Anyways, I did a search on Vioxx on this board and it seems to be a miracle drug for many so maybe it will be for me. It also sounds a lot better then the prednisone (which my primary care Dr. vetoed) or the nerve block they were talking about last week. The problem with vioxx is it has to be approved by my insurance first and if approved it will have to be ordered. I guess I won't get my miracle relief in time to prepare for the holidays.

I also have an appointment with my primary care Dr. who is searching for a specialist in RSD outside of my local health plan. I now have 3 Drs saying RSD and 2 saying maybe, they all agree on the Pf though. At least someone who specializes in RSD may be able to tell me if it is definately that or not, it seems like all the Drs. are just guessing.

I personally think I have a severe case of PF that is causing me to walk funny and therefore throwing off the rest of my alignment and causing all the other pain up the back of my legs. Possibly a touch of RSD, but not bad and if I could get rid of the PF then I would get rid of the RSD. That makes sense doesn't it.

Maybe Santa could bring us all a new pair of feet for Christmas. That would be nice, wouldn't it?


Re: update

wendyn on 12/16/99 at 00:00 (013832)

Don't you just hate arrogant doctors?? It seems the more they specialize in something, the more they think of themselves and the less they think of the other doctors (and you).

I would suspect that he didn't think a bone scan would show anything, because it really wouldn't show RSD, but it would show arthritis or deterioration so I can't understand why he'd get bent out of shape about it...he's not paying for it anyway!

What a weenie.

My mom just started on Vioxx...it's not approved here by insureance but it is available. From everything on this board, it seems that people find it better than Celebrex or anything else. I hope it works for you! Let us know....

ps. I've never had a CAT scan but several doctors have been concerned that my back may actually be the source of my problem because I do have some lower back pain. Even my PT after a year is not totally convinced that it goes from my feet up and not the other way round....I don't dwell on it anymore - I hope that the specialist I see next year will have some answers.

Those of you who can get in to see a specialist right away should be thankful!!!Oh well, got lots of time to heal myself I suppose...


Re: update

alan k on 12/17/99 at 00:00 (013840)

Get the scan on your back!

I am frustrated by the lack of testing being done on me. Lord knows there has been plenty of time.

All my doctors have done is try one conservative treatment after another, finally saying well it can't be PF if you are not better yet.

What a great testing procedure: treat a patient with a false diagnosis and see if he doesn't get better, thus disconfirming it.

That's science.

I want MRI's on my feet and ankles and back and everything else at the same time.

You should definitely pursue all these avenues of testing.

alan k


Re: update

wendyn on 12/17/99 at 00:00 (013863)

i cannot remember but think you are in canada? thank god i can walk into any specialist i want to and will usually see one within a week. you guys that have to wait months i sympathize with.

Re: update

wendyn on 12/16/99 at 00:00 (013832)

Don't you just hate arrogant doctors?? It seems the more they specialize in something, the more they think of themselves and the less they think of the other doctors (and you).

I would suspect that he didn't think a bone scan would show anything, because it really wouldn't show RSD, but it would show arthritis or deterioration so I can't understand why he'd get bent out of shape about it...he's not paying for it anyway!

What a weenie.

My mom just started on Vioxx...it's not approved here by insureance but it is available. From everything on this board, it seems that people find it better than Celebrex or anything else. I hope it works for you! Let us know....

ps. I've never had a CAT scan but several doctors have been concerned that my back may actually be the source of my problem because I do have some lower back pain. Even my PT after a year is not totally convinced that it goes from my feet up and not the other way round....I don't dwell on it anymore - I hope that the specialist I see next year will have some answers.

Those of you who can get in to see a specialist right away should be thankful!!!Oh well, got lots of time to heal myself I suppose...


Re: update

alan k on 12/17/99 at 00:00 (013840)

Get the scan on your back!

I am frustrated by the lack of testing being done on me. Lord knows there has been plenty of time.

All my doctors have done is try one conservative treatment after another, finally saying well it can't be PF if you are not better yet.

What a great testing procedure: treat a patient with a false diagnosis and see if he doesn't get better, thus disconfirming it.

That's science.

I want MRI's on my feet and ankles and back and everything else at the same time.

You should definitely pursue all these avenues of testing.

alan k


Re: update

wendyn on 12/17/99 at 00:00 (013863)

i cannot remember but think you are in canada? thank god i can walk into any specialist i want to and will usually see one within a week. you guys that have to wait months i sympathize with.