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need to explore more options

Posted by alan k on 1/20/00 at 00:00 (014966)

I think some of us have become minor experts on pf and tts, while we may indeed be subject to some other condition or an important extra factor. I am going to try for a neurologist. I think a lot of us chronic sufferers, especially with atypical symptoms, should be more aggressive in our search outside of pf.

I have pain in my hands that feels so eerily similar to that in my feet, only much milder. I describe it as a 'raw' feeling. Yesterday I did a 'present-wrapping' type mistake and re-arranged some furniture. Now my feet are really raw. I was holding a pen today and-- there it was-- that same raw feeling. It wasn't 'like' it, it WAS the very same feeling (only milder).

I really think I might not be the only one here with some other mitigating condition at work. I hope chronic sufferers will explore other options (And the tell me about it, which is why I am saying this).

If anyone has any ideas of where to start beyond a neurologist, I would appreciate it greatly.


alan k


Re: need to explore more options

Gordon on 1/20/00 at 00:00 (014967)

Did you ever do the Leaky Gut test. I used to get burning sensations on the sides of my knees where they rub each other when I slept and on my elbows where they rest on a desk. Also, the base of my hands where they rest on the desk/keyboard sometimes gets a burning sensation.
I rub vit E oil on these area and it keeps it under control but they seem to occur when ever my digestive system is out of wack.
I don't know if it is leaky gut but it definitely is related to digestion in some way.

Re: need to explore more options

alan k on 1/20/00 at 00:00 (014972)

Have you seen anyone about this? Perhaps there is another explanation than leaky gut, or another contributing factor.

alan


Re: need to explore more options

Gordon on 1/20/00 at 00:00 (014973)

Yes, I have seen a doc for this and I tested positive for intestinal candida and as well as having two type of unwanted instestianl bacteria or parasites. This was quite a while ago . I have not been retested since I went on the diet becasue I am doing fine by sticking with it. I still experiment with diet though just to see if I got rid of the bugs but I don't think I have.

Gordon


Re: need to explore more options

Robin B. on 1/21/00 at 00:00 (014980)

Alan, I currently have osteoarthritis in both my hands and my feet, and I have had a wicked case of CTS in both hands in the past. So, at least I have SOME experience with both conditions.

Whether you see a neurologist or orthopod or rheumatologist or GP, please get some blood work done if you haven't already. Have a SED test among others and determine whether arthritis (or lupus) or another DIAGNOSABLE medical condition is causing your hand pain.

Carpal tunnel syndrome is extremely easy to diagnose and also fairly easy to treat and be rid of, whether you have surgery or use a more conservative treatment. See a respectable orthopod who specializes in hands and wrists.

As much as I love this board, sometimes I think there is a little too much self-diagnosing and other-diagnosing here. Guessing at what the condition may be or saying 'try this, try that' isn't going to determine that the condition is. For my own PF, I have had three medical diagnoses (all PF), two from podiatrists and one from an orthopedic surgeon. For my capral tunnel, I had two diagnoses, both from orthopods. I haven't followed prescribed treatment plans very well; I haven't bought $400 orthotics, I haven't had injections or swallowed pills -- but in both cases I pursued conservative treatments but my own self-directed treatments that resulted in: 1) a complete cure of the CTS; 2) a recovering from PF that is about 50% right now. I have also learned to become aware that when my feet hurt, it isn't necessarily the PF. I do have osteoarthritis and that isn't going to go away; it can be moderated for minimal pain.

Please do see a specialist, get your hands and wrists evaluated -- and maybe do it twice if you have insurance that will pay. Once you have a reasonable diagnosis, self-directed treatment is fine. But there are lots of things (even leaky gut) you may need to rule out before you apply the treatments that will work.



Re: need to explore more options

john h on 1/21/00 at 00:00 (014985)

well put robin!

Re: need to explore more options

Gordon on 1/20/00 at 00:00 (014967)

Did you ever do the Leaky Gut test. I used to get burning sensations on the sides of my knees where they rub each other when I slept and on my elbows where they rest on a desk. Also, the base of my hands where they rest on the desk/keyboard sometimes gets a burning sensation.
I rub vit E oil on these area and it keeps it under control but they seem to occur when ever my digestive system is out of wack.
I don't know if it is leaky gut but it definitely is related to digestion in some way.

Re: need to explore more options

alan k on 1/20/00 at 00:00 (014972)

Have you seen anyone about this? Perhaps there is another explanation than leaky gut, or another contributing factor.

alan


Re: need to explore more options

Gordon on 1/20/00 at 00:00 (014973)

Yes, I have seen a doc for this and I tested positive for intestinal candida and as well as having two type of unwanted instestianl bacteria or parasites. This was quite a while ago . I have not been retested since I went on the diet becasue I am doing fine by sticking with it. I still experiment with diet though just to see if I got rid of the bugs but I don't think I have.

Gordon


Re: need to explore more options

Robin B. on 1/21/00 at 00:00 (014980)

Alan, I currently have osteoarthritis in both my hands and my feet, and I have had a wicked case of CTS in both hands in the past. So, at least I have SOME experience with both conditions.

Whether you see a neurologist or orthopod or rheumatologist or GP, please get some blood work done if you haven't already. Have a SED test among others and determine whether arthritis (or lupus) or another DIAGNOSABLE medical condition is causing your hand pain.

Carpal tunnel syndrome is extremely easy to diagnose and also fairly easy to treat and be rid of, whether you have surgery or use a more conservative treatment. See a respectable orthopod who specializes in hands and wrists.

As much as I love this board, sometimes I think there is a little too much self-diagnosing and other-diagnosing here. Guessing at what the condition may be or saying 'try this, try that' isn't going to determine that the condition is. For my own PF, I have had three medical diagnoses (all PF), two from podiatrists and one from an orthopedic surgeon. For my capral tunnel, I had two diagnoses, both from orthopods. I haven't followed prescribed treatment plans very well; I haven't bought $400 orthotics, I haven't had injections or swallowed pills -- but in both cases I pursued conservative treatments but my own self-directed treatments that resulted in: 1) a complete cure of the CTS; 2) a recovering from PF that is about 50% right now. I have also learned to become aware that when my feet hurt, it isn't necessarily the PF. I do have osteoarthritis and that isn't going to go away; it can be moderated for minimal pain.

Please do see a specialist, get your hands and wrists evaluated -- and maybe do it twice if you have insurance that will pay. Once you have a reasonable diagnosis, self-directed treatment is fine. But there are lots of things (even leaky gut) you may need to rule out before you apply the treatments that will work.



Re: need to explore more options

john h on 1/21/00 at 00:00 (014985)

well put robin!