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Polyneuropathy

Posted by wendyn on 4/11/00 at 00:00 (018590)

Went to see the GP today about getting night splints for my wrists (am waiting for NCV tests to see if I have carpal tunnel as well). He thinks it is more likely my ulnar nerve causing the problems (the one by my baby finger) because it's my baby fingers that go numb at night.

Because I am having problems with my both my wrists now as well as my feet - he thinks it's more likely a polyneuropathy problem. In other words - he thinks there is more to it than 'just' a localized nerve compression problem. He gave me the form for the splints but wasn't overly optimistic they would help. He said that's why he's sending me to a neurologist (forgetting of course that the only reason I am seeing a neurologist is because I specifically asked to see one).


*&%$#@#$!@ @@$###$! I've had about enough of this @#$%@#$!

There - that was me venting. I get so tired of being diagnosed with every icky condition that they can find in the medical book. The bottom line is that no one knows what's wrong and no one knows what to do about it.

If I hadn't taken control of the situation - I would have had cortisone shots and possibly surgery from the podiatrist...and who knows how long it would have taken to get the suggestion to see a neurologist.

Now he acts like this has been the plan all along?

I'm finished now - just needed to vent to some folks who understand this type of FRUSTRATION. No wonder I've gotten to the point where I hate going to the doctor for anything. My faith (what's left of it) in the medical profession has taken quite a beating.

You know in the last 18 months - these are the 'possible' diagnosis I have heard

PF
TTS
Posterior Tibial Tendonitis
Sprain
MS
RSD
Ankolosying Spondilytis
and now 'Polyneuropathy'.

That's the few that come to mind anyway.

Thanks for listening, I can probably get back to work now!


Re: PolyneuropathyRe Wendyn

Laurie R on 4/11/00 at 00:00 (018591)

Hi Wendy,
You vent all you want lord knows you have listen to us enough.I am so sorry to hear this but it does not surprise me some doctors take one symptom and diagnose you ,my goodness Wendy just think if you belived all your diagnosis you would be in a fine mess.When can you see the Neurologist? I hope soon .What is Polyneuropathy?I know it has to do with nerves right?Hang in there and PLEASE VENT all you want we are here for you.My very best to you.Laurie R

Re: Polyneuropathy

Beth D. on 4/11/00 at 00:00 (018592)

Hi Wendyn,

Sorry I aged you a bit in my last post. I'm amazed at all the diagnoses you've received. I know medicine isn't an exact science, but geez! I'm glad you're going to a neurologist. She (mine was a woman), can tell you if you have nerve or muscle damage. Make sure you get everything tested (wrists, ankles, feet, etc.) so you know. The testing hurt a bit, but it was worth it for the information. I think specialists are the way to go-the orthopedic surgeon I was going to see wanted an MRI-that's why I got it and found out my condition is similar, but is not PF. The neurologist ruled out tarsal tunnel for me. So specialists just might be the ticket!

Have you read any good books lately? I get stacks out at the library for three weeks at a time to occupy my time on the bike or when I feel like taking a walk and know I shouldn't! My four year old is about sick of staying in and playing games all day-he'd rather be out practicing his soccer!

It's not easy for anyone here dealing with these chronic conditions. Take care and put your feet up!

Beth D.


Re: Polyneuropathy

john h on 4/11/00 at 00:00 (018598)

wendy: i had a case of what was probably carpel tunnel about 3 months ago. i had pain in my wrist and thumb and occasionally all the way up my arm to my shoulder. the dr prescribe a regimen of steriod pills for 12 days. it cleared up and has not returned. probably caused by the death grip i put on the bike handles 4 or 5 times a week. i also seem to sleep with my wrist curled in an awkward position.

Re: Polyneuropathy

dfeet on 4/11/00 at 00:00 (018602)

Hi, wendyn. Please vent . I know I've done the same. Many of the conditions you've named can be ruled out by blood testing. You should also be tested for hypothyroidism. There has been research to suggest that with multiple neuropathies, that a deficiency in thyroid could be the cause. I sought out an orthopaedic surgeon who specializes in the foot and ankle. He tested me for many of the conditions you listed by ordering blood work. I also had a nerve condution test(EMG) and MRI's. I hope things get better for you. I know my week has been horrendous with pain. I am in the Northeast , and the weather has been terrible. take care.-dfeet

Re: Polyneuropathy

alan k on 4/12/00 at 00:00 (018620)

Sounds exactly like my experience-- whatever I diagnose he dismisses and diagnosis the next time. keep up the b-12!

alan k


Re: PolyneuropathyRe Wendyn

Laurie R on 4/11/00 at 00:00 (018591)

Hi Wendy,
You vent all you want lord knows you have listen to us enough.I am so sorry to hear this but it does not surprise me some doctors take one symptom and diagnose you ,my goodness Wendy just think if you belived all your diagnosis you would be in a fine mess.When can you see the Neurologist? I hope soon .What is Polyneuropathy?I know it has to do with nerves right?Hang in there and PLEASE VENT all you want we are here for you.My very best to you.Laurie R

Re: Polyneuropathy

Beth D. on 4/11/00 at 00:00 (018592)

Hi Wendyn,

Sorry I aged you a bit in my last post. I'm amazed at all the diagnoses you've received. I know medicine isn't an exact science, but geez! I'm glad you're going to a neurologist. She (mine was a woman), can tell you if you have nerve or muscle damage. Make sure you get everything tested (wrists, ankles, feet, etc.) so you know. The testing hurt a bit, but it was worth it for the information. I think specialists are the way to go-the orthopedic surgeon I was going to see wanted an MRI-that's why I got it and found out my condition is similar, but is not PF. The neurologist ruled out tarsal tunnel for me. So specialists just might be the ticket!

Have you read any good books lately? I get stacks out at the library for three weeks at a time to occupy my time on the bike or when I feel like taking a walk and know I shouldn't! My four year old is about sick of staying in and playing games all day-he'd rather be out practicing his soccer!

It's not easy for anyone here dealing with these chronic conditions. Take care and put your feet up!

Beth D.


Re: Polyneuropathy

john h on 4/11/00 at 00:00 (018598)

wendy: i had a case of what was probably carpel tunnel about 3 months ago. i had pain in my wrist and thumb and occasionally all the way up my arm to my shoulder. the dr prescribe a regimen of steriod pills for 12 days. it cleared up and has not returned. probably caused by the death grip i put on the bike handles 4 or 5 times a week. i also seem to sleep with my wrist curled in an awkward position.

Re: Polyneuropathy

dfeet on 4/11/00 at 00:00 (018602)

Hi, wendyn. Please vent . I know I've done the same. Many of the conditions you've named can be ruled out by blood testing. You should also be tested for hypothyroidism. There has been research to suggest that with multiple neuropathies, that a deficiency in thyroid could be the cause. I sought out an orthopaedic surgeon who specializes in the foot and ankle. He tested me for many of the conditions you listed by ordering blood work. I also had a nerve condution test(EMG) and MRI's. I hope things get better for you. I know my week has been horrendous with pain. I am in the Northeast , and the weather has been terrible. take care.-dfeet

Re: Polyneuropathy

alan k on 4/12/00 at 00:00 (018620)

Sounds exactly like my experience-- whatever I diagnose he dismisses and diagnosis the next time. keep up the b-12!

alan k