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Would a trip to Mayo Center or other top hospital be worth it?

Posted by Beverly on 6/04/00 at 23:32 (021327)

I may be really jumping the gun, because I'm not even sure if my insurance will let me go out-of-state. It's a PPO, and so I think I can go out-of-network anywhere.

Anyway, years ago my father had his cancer cured at Mayo Center, and he has sung its praise ever since. He says if I don't get better soon, he'd be willing to send me there.

I live in Texas. Mayo is a long way away, and although my father can afford it, I can't see the point in putting him or me through that trip if I could find just as good a hospital or team of doctors closer to home. His point is that in a top hospital, a bunch of different doctors examine you all at once, confer, and they use a 'team approach.'

Has anyone gone the hospital route? I hate to even think about how much it might cost, but as Daddy put it, 'I'm 78. I can afford it. All you're spending is part of your inheritance. What good is it with disabled feet?' Well, Daddy is funny, and he is a saint. So what do you all think? I'm considering trying doctors here for another month or two, but if I'm not alot better, consider the hospital route.

If money and insurance allowed it and you could go anywhere, where would you go?

Beverly


Re: Would a trip to Mayo Center or other top hospital be worth it?

Bob G. on 6/05/00 at 00:23 (021329)

Yes, Beverly. Whatever it takes. And your Father would be happy if you were cured. Permission granted. Go for it!

Re: Would a trip to Mayo Center or other top hospital be worth it?

Pauline on 6/05/00 at 07:43 (021333)

Beverly,
Yes Yes Yes, I too am considering the Mayo route. I believe there is a branch in or near Scottsdale Arizona as well as Rochester Minn.
The fact that you see all the Drs in usually one day is a plus. They
send you home with their solution and a Dr connection. I think it is well worth it and because they are so well run the costs are actually lower than playing around with several Dr. in your home state. The other factor is that they probably take Pf seriously. I find that
the biggest negative at home. Dr's do not know the extend of disability it causes. I think we as patients fall short in this area.
Since Scott is a great organizer maybe he would help us get our message out. I would love to see some the the cries for help that are posted reach the newspapers. I think we owe that much to ourselves. It would certainly be a positive move. Does anyone posting have any ideas on which direction to move???? We're all kind of fighting our own individual battles, its time to unite and go public.

I will have surgery for another problem later this year in Georgia, because the expert in that field is there. It took me months to find him but he is the best. No problem going out of state.


Re: Mayo Clinic info

Steve P on 6/05/00 at 09:27 (021335)

Folks --- I happen to have some experience with Mayo Clinic, having recently arranged a trip for my aunt. Their website is http://www.MAYO.EDU & is full of good info.
They have campuses in Ariz. & Fla. in addition to their main campus in Minn. Typical evaluations take a day to a few days. You can refer yourself....i.e., they do not require a doctor's referral; however, it's possible that your particular insurance policy might require it. In any case, a dr.'s referral is no big deal & should be easy to get.
The Mayo general info number in Minn is (507) 284-2511. I recommend visiting their website before calling.
Steve P

Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 11:21 (021337)

if you can afford it i would go for it beverly. i do not know that there are any breakthrough treatments for PF but a complete check of the body would rule out most other disease processes which is important. i sometimes wonder if those of us with difficult cases of PF could not in fact be dealing with some other disease process. last night on the national news they were discussing a woman with deabilitating burning feet. they gave a name for her condition which i never heard of. a pain clinic was treating her with a new treatment that allowed her to walk all day.

Re: Would a trip to Mayo Center or other top hospital be worth it?

IreneM on 6/05/00 at 12:20 (021341)

Hi Beverly,

Nice to meet a fellow Texan pf-er.

I hate to be a nay-sayer, but I went to Mayo some years ago, and I didn't think it lived up to the hype. My symptoms were not taken seriously at all, and the doctor basically ridiculed me for whining about the pain. I have met a number of other people with similar experiences. The Mayo has a great reputation, but I think like anywhere else, it has good doctors and not-so-good doctors. I wouldn't break the bank to go there, especially if you haven't yet checked out some of the leading docs here in TX, such as Dr. Baxter in Houston.

Good luck to you.
IreneM


Re: Foot treatment John mentioned and TVeyes site.

Kim B. on 6/05/00 at 12:35 (021342)

I read something about that John. It is a red chilli pepper treatment for feet. Like Capsasin I guess, but much more advanced I'll bet. They called it fighting fire with fire. I got an email regarding it from 'TVeyes'.

I've been meaing to tell you guys about 'TVeyes'. The site address is http://www.tveyes.com . This site allows you to use a personalized key word or phrase list, and anytime those keywords are used on television, you get an email telling you about where and when it was mentioned. It can be about any person, place or thing that is of interest to you. One of mine is 'chronic pain' another is 'Fibromyagia' for example. That way, if there is a break through treatment for my FM, I will know. I haven't gotten around to including 'Plantar Faciitis' or 'heel pain'. Some use it to keep up with business and investments, i.e 'Microsoft' for example. Some use it to keep up with their favorite celebraties. It's a helpful site. Check it out.

Regards, Kim B.


Re: On Getting the word out about PF/What I'm learning.

Beverly on 6/05/00 at 12:46 (021343)

Pauline,

Thank you for your post. I hope I get resolution/answers soon, but I am going to see if my insurance will let me go out-of-state. I think I will give myself a two month deadline on getting answers locally and a treatment plan that helps me towards healing. After that, if I don't see dramatic improvement, I'm going to take my Dad up on his answer provided my insurance will let me do it.

In answer to your suggestion about getting the word out about PF. I may be a good candidate. You all probably can't tell this since I can't spell worth a flip, and we don't have spell check on our board here, but my original field is news editorial journalism.

But I did my undergraduate degree in news editorial journalism. I want to get better before I write my story (or anyone else's) so I can add a happier ending, but I am seriously thinking about writing a freelance article on PF geared towards the general public. I'm not a medical person. I don't understand medical words well. I'm thinking 'human interest/what it's like to live with PF' angle.

I've had to resign my ministry job (associate pastor) due to my PF. It was just too much on my feet all the time, and as I said, fortunately, my secular career has always been my financial support. I made that decision several weeks ago. My church has been very supportive. Emotionally, it has been devistating to me. But I see good things that can come out of this. I'm going to stay on as a volunteer, preaching on the senior pastor's day off and directing our drama department and teaching occassional classes. Those are the three things I like best.

In a depressed moment, I decided to go the whole nine yards, and I resigned my clergy credentials with my denomination as well. I cried for weeks over that. In a way, PF has given me permission to return to the laity (For nonchurch people, this means the regular folks). I have always felt that as clergy I was separated from other people. Everyone is always on their best behavior when the preacher comes over, and it is almost impossible for me to let my hair down. I realized that my ego did not need the collar or the vestments, and most of the things I like to do, don't really require being active clergy. So, I'm back in the pews.

I am also thinking about writing a Christian devotional geared towards women coping chronic illnesses. I have now read everything I can get my hands on related to 'why bad things happen and where is God in all of this and how do you keep your faith when your life falls apart.' If anyone would like some of those book titles, just let me know. One devotional book I have found (actually the only one related to women's health I am aware of) is: 'Women at the Well: Meditations on Healing and Wholeness' edited by Mary L. Mild, Judson Press. All the entries are written by women who are dealing or have dealt with illness either as patients or as nurses, pastors, ect., and it uses everyday illustrations that would appeal to people from various backgrounds - more spiritual than biblical. Most of the entries are by women from the mainline/more liberal or moderate churches. I have found great comfort in this book. I read it everyday.



Re: Would a trip to Mayo Center or other top hospital be worth it?

Dr. Zuckerman on 6/05/00 at 12:55 (021344)

I think I read somewhere that they( mayo clinic )has a web site where you
discuss your problems and they will repond to you. My aunt goes to the mayo clinic. She loves the place.

Re: Would a trip to Mayo Center or other top hospital be worth it?

Laurie R on 6/05/00 at 12:55 (021345)

Hi Beverly,
Yes you if you have a chance to go I say go for it.You have the right attitude never give up keep trying what ever it takes to get better.You sound like you have a wonderful father ,I lost my father 9 years ago ,I loved him so much if he was still here I know he would do whatever it takes to help me too.My best to you.....Laurie R

Re: Would a trip to Mayo Center or other top hospital be worth it?

VickiJ on 6/05/00 at 14:12 (021346)

If it were me and I had cancer I'd head straight to Mayo...but, if I had somebody willing to 'foot the bill' (couldn't resist the pun) I would find the best sports clinic in the whole country and go there...if it's still Mayo then that's where I would head...but I would first find out where professional athletes go to get back on their feet. Sports specialists seem to be the only ones (at least I've had better luck with sports medicine folks) who understand that we want to WALK again in addition to being pain free, and not be addicted to pain killers, etc. If the mayo has a reputation for being the best in the sports medicine business,and my father was offering to pay the bills, then I'd fly there as fast as I could. but I would also first research for specific doctors who have had success with my specific complaint. I wouldn't just call and ask to 'see someone' about my pf.

Re: On Getting the word out about PF/What I'm learning.

Nancy S. on 6/05/00 at 14:12 (021347)

Big life changes, Beverly. I hope they eventually take you to new, and newly uplifting, ground.
When you get around to writing that PF article, let me know if I can help. I was a full-time freelance book editor for 16 years before drifting happily into antiquing five years ago, and I'm still editing occasionally when necessary (like now!). I would do anything to help get the word out. I remain stunned by the lack of attention to this affliction. My improvement continues, sort of two steps forward and one step back, but I'll never stop caring about what happens to people who live with this, whether it's for one year or twenty or more.
--Nancy

Re: Would a trip to Mayo Center or other top hospital be worth it?

Nancy S. on 6/05/00 at 14:26 (021349)

Hi, Vicki -- Sounds like good advice to me. Could you elaborate on your experiences with sports medicine people? In your experience, do they take more of an interest in PF (esp. the 'recalcitrant' kind) than the average foot doc? Do they educate you, and do they give you more specific guidelines for treating and then continuing to take care of your feet? As you've no doubt read from me before, I had a pathetically lackadaisical pod (well thought of around here, too!), left him, and then lost my insurance. I'm interested in the type of dr. I should have in mind if the need arises, and who knows when it might. Since January, when the insurance bit the dust, I've pretty much mucked around on my own and basically done ok with it, thanks to this board, but I want to be prepared mentally if something suddenly goes more wrong (like happened to Beverly). Thanks --Nancy

Re: Foot treatment John mentioned and TVeyes site.

alan k on 6/05/00 at 14:47 (021350)

My mother-in-law in Thailand is urging me to use their remedy: roasting hot thai chilis then putting them in a compress you step on.

I did not have much luck with capsiacin cremes so I never did try this, but she swears by it.

My doctor warned me capsiacin needs to be consistently applied or you just keep re-irritating the condition. Consistent application results in the positive benefits. He is an idiot, though. He would have best served me if he did not let me go about my business with no precautions when I first came to him with foot pain.


alan k


Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 17:17 (021362)

i take the Mayo Clinic Health Letter and you can write them and they will respond. I have not written them about PF.

Re: How do I find the best sports medicine facility?

Beverly on 6/05/00 at 17:21 (021363)

The sports medicine facility sounds like a good idea. How do I find out which hospital has the best sports medicine facility? Does anyone have an opinion?

Thanks,
Beverly


Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 17:21 (021364)

you would think that millionaire sports stars would head for the big name clinics but you will be supprised to find them at everyday places. I have run into a couple of NBA players and NFL players at the University of Arkansas Medical Center here in Little Rock (orthopedic dept).

Re: Would a trip to Mayo Center or other top hospital be worth it?

caryne on 6/05/00 at 17:24 (021365)

I had surgery done March 30th at University Hospital. My podiatrist is head guy at the U.T. Science Health Center (med school) very pleased after a year and a half of pain. In San Antonio, I don't know what part of Texas you're from.

Re: How do I find the best sports medicine facility?

john h on 6/05/00 at 17:29 (021366)

no one sports medicine clinic has the best department in all areas. for instance, the University Hospital in Little Rock had its orthopedic dept rated very highly nationally as was there nuero surgery dept. they have one neuro surgeon that is the only man in the world that performs a particular type of surgery on children. dr weil said he perfomed some procedures on some chicago white sox players. i just do not think there is a magic bullet for PF. your best bet IMO is to rule out all other possible reasons for your pain and go with what is available. ruling out all other reasons may entail a vist to Mayo or some other such clinic.those of us that have had this for years must have some special underlying problem.

Re: Thanks Caryne

Beverly on 6/05/00 at 18:01 (021369)

Thanks Caryne, San Antonio is not too far away. That is a thought.
You know, Texas is a big state, but San Antonio is kinda in the middle; so that would work. I've heard good things about the UT Health Science Center. I thought I'd mostly get med students; so I never even considered it.

The best hospital in Texas used to be Scott & White, 'the mayo of the South,' but I don't think they have as good a reputation anymore.

Beverly


Re: I spent two weeks at MAYO.........

Gordon on 6/05/00 at 19:35 (021379)

Sorry to say this but my stay at MAYO did me no good. They tested me for everything under the sun and it wasn't until I went after the low carb diet and daily exercise that I got better.

Re: Thanks Caryne

Dr. Zuckerman on 6/05/00 at 20:37 (021385)

I know a Dr. Harkless who is a diabetic expert. He is in San Antonia . I believe he is head of podiatry at the UT Health Science Center. Beverly I want to send you a present . It is called Gel socks. Give me your address and and size and try it out. It is a gel siliposis built right into the socks. If you have a lack of shock absorbing problem in your plantar fasica or no fat padding left in your foot this may help you. In addition I know a doctor that if you lack fat in the bottom of your foot they replace the padding. So email me with your address ((email removed)) and I will send you the socks. They come in black or white. Take your pick.

Re: to Nancy and Beverly

VickiJ on 6/06/00 at 07:54 (021418)

Hi Nancy and Beverly,
Nancy,I lost my insurance and income too...way early on...and couldn't afford to 'go the rounds'. A physical therapist friend who was of 'sports medicine' mentality (i.e. the goal is to be active again, in addition to being pain free) was extremely helpful. And when my sister had the problem she asked friends who had kids in soccer, etc who they went to locally for injuries and my sister got alot of good help from that orthopod....so after the doctor's diagnosis my pt friend was very helpful as we (he and I, not my pod) experimented with different stretches and massage techniques...which got me off crutches. I didn't go to him a lot...since he was not charging me anything...and the local sports doc gave me that exact adivce: see a pt about stretches and massage.
Beverly, If I had the money or insurance to pay for it I would call every university athletic trainer/physician in my area (and professional teams as well) and ask them if any of their players ever had the problem (the answer will beyes) and what doctors they went to. I would start by calling all university and pro team trainers and physicians in my area and then expand from there to see if there was a specific doctor/clinic that got mentioned more than once. I would also see if those athletic trainers would help me get in direct contact with athletes who had the problem so I could discuss pf histories, etc. I might even be inclined to call the Nike place in Oregon where olympic track athletes train...in an attempt to find a specific doctor who could help with specific issues (your torn facia for example)The phone bill would be outrageous and you'd have to keep detailed notes (you did say you were a journalist, right?), but that's how I would do it....poll everyone I could find and then tally the results. I'm a 'research junkie' and actually enjoy the process...it does give me a sense of having a little control...if only the control over who I will eventually pay to visit....and once I have a reasonable income again and if I'm still in pain (I'm using Mike W's pft and have great hopes)I will do what I just described. But since the stretching and massaging and Mike's pft have put me on a road where I am gradually becoming more and more mobile I don't feel I have to go that far. Yes, if I stay in pain I would consider ESWT but only after I see some research data that indicates how many people get results and how long they stay pain free. So far, I'm not convinced that the ESWT by itself is any more effective (for my pf pain) than the patient process of healing using the rest/stretching/exercising methods with the pft. I have put together a couple of income bearing activities but I'm not quite independent yet, nor insured, or I would have gone through everything I described....because I was getting steadily better I decided my energies needed to go into changing my career and earning a living...which is taking a long time.

I'm not suggesting you have to do what I described, I'm simply saying how I would go about finding 'the best' if I had experienced no help or relief.



Re: to Nancy and Beverly --Thank you, Vicki (eom)

Nancy S. on 6/06/00 at 08:39 (021422)



Re: Thanks Caryne

john h on 6/06/00 at 09:37 (021426)

southwest hospital in plano is a mecca for back problems and spine problems with the texas back institute. lots of orthopods and neurosurgons there. people from all over the world visit there. cutting edge (great pun) facility.

Re: Vicki

Beverly on 6/06/00 at 10:20 (021427)

Dear Vicki,

Those are very good ideas. Thank you. I am a research junkie too.
But yes, I am having to watch my phone bill these days.

Beverly


Re: Would a trip to Mayo Center or other top hospital be worth it?

Bob G. on 6/05/00 at 00:23 (021329)

Yes, Beverly. Whatever it takes. And your Father would be happy if you were cured. Permission granted. Go for it!

Re: Would a trip to Mayo Center or other top hospital be worth it?

Pauline on 6/05/00 at 07:43 (021333)

Beverly,
Yes Yes Yes, I too am considering the Mayo route. I believe there is a branch in or near Scottsdale Arizona as well as Rochester Minn.
The fact that you see all the Drs in usually one day is a plus. They
send you home with their solution and a Dr connection. I think it is well worth it and because they are so well run the costs are actually lower than playing around with several Dr. in your home state. The other factor is that they probably take Pf seriously. I find that
the biggest negative at home. Dr's do not know the extend of disability it causes. I think we as patients fall short in this area.
Since Scott is a great organizer maybe he would help us get our message out. I would love to see some the the cries for help that are posted reach the newspapers. I think we owe that much to ourselves. It would certainly be a positive move. Does anyone posting have any ideas on which direction to move???? We're all kind of fighting our own individual battles, its time to unite and go public.

I will have surgery for another problem later this year in Georgia, because the expert in that field is there. It took me months to find him but he is the best. No problem going out of state.


Re: Mayo Clinic info

Steve P on 6/05/00 at 09:27 (021335)

Folks --- I happen to have some experience with Mayo Clinic, having recently arranged a trip for my aunt. Their website is http://www.MAYO.EDU & is full of good info.
They have campuses in Ariz. & Fla. in addition to their main campus in Minn. Typical evaluations take a day to a few days. You can refer yourself....i.e., they do not require a doctor's referral; however, it's possible that your particular insurance policy might require it. In any case, a dr.'s referral is no big deal & should be easy to get.
The Mayo general info number in Minn is (507) 284-2511. I recommend visiting their website before calling.
Steve P

Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 11:21 (021337)

if you can afford it i would go for it beverly. i do not know that there are any breakthrough treatments for PF but a complete check of the body would rule out most other disease processes which is important. i sometimes wonder if those of us with difficult cases of PF could not in fact be dealing with some other disease process. last night on the national news they were discussing a woman with deabilitating burning feet. they gave a name for her condition which i never heard of. a pain clinic was treating her with a new treatment that allowed her to walk all day.

Re: Would a trip to Mayo Center or other top hospital be worth it?

IreneM on 6/05/00 at 12:20 (021341)

Hi Beverly,

Nice to meet a fellow Texan pf-er.

I hate to be a nay-sayer, but I went to Mayo some years ago, and I didn't think it lived up to the hype. My symptoms were not taken seriously at all, and the doctor basically ridiculed me for whining about the pain. I have met a number of other people with similar experiences. The Mayo has a great reputation, but I think like anywhere else, it has good doctors and not-so-good doctors. I wouldn't break the bank to go there, especially if you haven't yet checked out some of the leading docs here in TX, such as Dr. Baxter in Houston.

Good luck to you.
IreneM


Re: Foot treatment John mentioned and TVeyes site.

Kim B. on 6/05/00 at 12:35 (021342)

I read something about that John. It is a red chilli pepper treatment for feet. Like Capsasin I guess, but much more advanced I'll bet. They called it fighting fire with fire. I got an email regarding it from 'TVeyes'.

I've been meaing to tell you guys about 'TVeyes'. The site address is http://www.tveyes.com . This site allows you to use a personalized key word or phrase list, and anytime those keywords are used on television, you get an email telling you about where and when it was mentioned. It can be about any person, place or thing that is of interest to you. One of mine is 'chronic pain' another is 'Fibromyagia' for example. That way, if there is a break through treatment for my FM, I will know. I haven't gotten around to including 'Plantar Faciitis' or 'heel pain'. Some use it to keep up with business and investments, i.e 'Microsoft' for example. Some use it to keep up with their favorite celebraties. It's a helpful site. Check it out.

Regards, Kim B.


Re: On Getting the word out about PF/What I'm learning.

Beverly on 6/05/00 at 12:46 (021343)

Pauline,

Thank you for your post. I hope I get resolution/answers soon, but I am going to see if my insurance will let me go out-of-state. I think I will give myself a two month deadline on getting answers locally and a treatment plan that helps me towards healing. After that, if I don't see dramatic improvement, I'm going to take my Dad up on his answer provided my insurance will let me do it.

In answer to your suggestion about getting the word out about PF. I may be a good candidate. You all probably can't tell this since I can't spell worth a flip, and we don't have spell check on our board here, but my original field is news editorial journalism.

But I did my undergraduate degree in news editorial journalism. I want to get better before I write my story (or anyone else's) so I can add a happier ending, but I am seriously thinking about writing a freelance article on PF geared towards the general public. I'm not a medical person. I don't understand medical words well. I'm thinking 'human interest/what it's like to live with PF' angle.

I've had to resign my ministry job (associate pastor) due to my PF. It was just too much on my feet all the time, and as I said, fortunately, my secular career has always been my financial support. I made that decision several weeks ago. My church has been very supportive. Emotionally, it has been devistating to me. But I see good things that can come out of this. I'm going to stay on as a volunteer, preaching on the senior pastor's day off and directing our drama department and teaching occassional classes. Those are the three things I like best.

In a depressed moment, I decided to go the whole nine yards, and I resigned my clergy credentials with my denomination as well. I cried for weeks over that. In a way, PF has given me permission to return to the laity (For nonchurch people, this means the regular folks). I have always felt that as clergy I was separated from other people. Everyone is always on their best behavior when the preacher comes over, and it is almost impossible for me to let my hair down. I realized that my ego did not need the collar or the vestments, and most of the things I like to do, don't really require being active clergy. So, I'm back in the pews.

I am also thinking about writing a Christian devotional geared towards women coping chronic illnesses. I have now read everything I can get my hands on related to 'why bad things happen and where is God in all of this and how do you keep your faith when your life falls apart.' If anyone would like some of those book titles, just let me know. One devotional book I have found (actually the only one related to women's health I am aware of) is: 'Women at the Well: Meditations on Healing and Wholeness' edited by Mary L. Mild, Judson Press. All the entries are written by women who are dealing or have dealt with illness either as patients or as nurses, pastors, ect., and it uses everyday illustrations that would appeal to people from various backgrounds - more spiritual than biblical. Most of the entries are by women from the mainline/more liberal or moderate churches. I have found great comfort in this book. I read it everyday.



Re: Would a trip to Mayo Center or other top hospital be worth it?

Dr. Zuckerman on 6/05/00 at 12:55 (021344)

I think I read somewhere that they( mayo clinic )has a web site where you
discuss your problems and they will repond to you. My aunt goes to the mayo clinic. She loves the place.

Re: Would a trip to Mayo Center or other top hospital be worth it?

Laurie R on 6/05/00 at 12:55 (021345)

Hi Beverly,
Yes you if you have a chance to go I say go for it.You have the right attitude never give up keep trying what ever it takes to get better.You sound like you have a wonderful father ,I lost my father 9 years ago ,I loved him so much if he was still here I know he would do whatever it takes to help me too.My best to you.....Laurie R

Re: Would a trip to Mayo Center or other top hospital be worth it?

VickiJ on 6/05/00 at 14:12 (021346)

If it were me and I had cancer I'd head straight to Mayo...but, if I had somebody willing to 'foot the bill' (couldn't resist the pun) I would find the best sports clinic in the whole country and go there...if it's still Mayo then that's where I would head...but I would first find out where professional athletes go to get back on their feet. Sports specialists seem to be the only ones (at least I've had better luck with sports medicine folks) who understand that we want to WALK again in addition to being pain free, and not be addicted to pain killers, etc. If the mayo has a reputation for being the best in the sports medicine business,and my father was offering to pay the bills, then I'd fly there as fast as I could. but I would also first research for specific doctors who have had success with my specific complaint. I wouldn't just call and ask to 'see someone' about my pf.

Re: On Getting the word out about PF/What I'm learning.

Nancy S. on 6/05/00 at 14:12 (021347)

Big life changes, Beverly. I hope they eventually take you to new, and newly uplifting, ground.
When you get around to writing that PF article, let me know if I can help. I was a full-time freelance book editor for 16 years before drifting happily into antiquing five years ago, and I'm still editing occasionally when necessary (like now!). I would do anything to help get the word out. I remain stunned by the lack of attention to this affliction. My improvement continues, sort of two steps forward and one step back, but I'll never stop caring about what happens to people who live with this, whether it's for one year or twenty or more.
--Nancy

Re: Would a trip to Mayo Center or other top hospital be worth it?

Nancy S. on 6/05/00 at 14:26 (021349)

Hi, Vicki -- Sounds like good advice to me. Could you elaborate on your experiences with sports medicine people? In your experience, do they take more of an interest in PF (esp. the 'recalcitrant' kind) than the average foot doc? Do they educate you, and do they give you more specific guidelines for treating and then continuing to take care of your feet? As you've no doubt read from me before, I had a pathetically lackadaisical pod (well thought of around here, too!), left him, and then lost my insurance. I'm interested in the type of dr. I should have in mind if the need arises, and who knows when it might. Since January, when the insurance bit the dust, I've pretty much mucked around on my own and basically done ok with it, thanks to this board, but I want to be prepared mentally if something suddenly goes more wrong (like happened to Beverly). Thanks --Nancy

Re: Foot treatment John mentioned and TVeyes site.

alan k on 6/05/00 at 14:47 (021350)

My mother-in-law in Thailand is urging me to use their remedy: roasting hot thai chilis then putting them in a compress you step on.

I did not have much luck with capsiacin cremes so I never did try this, but she swears by it.

My doctor warned me capsiacin needs to be consistently applied or you just keep re-irritating the condition. Consistent application results in the positive benefits. He is an idiot, though. He would have best served me if he did not let me go about my business with no precautions when I first came to him with foot pain.


alan k


Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 17:17 (021362)

i take the Mayo Clinic Health Letter and you can write them and they will respond. I have not written them about PF.

Re: How do I find the best sports medicine facility?

Beverly on 6/05/00 at 17:21 (021363)

The sports medicine facility sounds like a good idea. How do I find out which hospital has the best sports medicine facility? Does anyone have an opinion?

Thanks,
Beverly


Re: Would a trip to Mayo Center or other top hospital be worth it?

john h on 6/05/00 at 17:21 (021364)

you would think that millionaire sports stars would head for the big name clinics but you will be supprised to find them at everyday places. I have run into a couple of NBA players and NFL players at the University of Arkansas Medical Center here in Little Rock (orthopedic dept).

Re: Would a trip to Mayo Center or other top hospital be worth it?

caryne on 6/05/00 at 17:24 (021365)

I had surgery done March 30th at University Hospital. My podiatrist is head guy at the U.T. Science Health Center (med school) very pleased after a year and a half of pain. In San Antonio, I don't know what part of Texas you're from.

Re: How do I find the best sports medicine facility?

john h on 6/05/00 at 17:29 (021366)

no one sports medicine clinic has the best department in all areas. for instance, the University Hospital in Little Rock had its orthopedic dept rated very highly nationally as was there nuero surgery dept. they have one neuro surgeon that is the only man in the world that performs a particular type of surgery on children. dr weil said he perfomed some procedures on some chicago white sox players. i just do not think there is a magic bullet for PF. your best bet IMO is to rule out all other possible reasons for your pain and go with what is available. ruling out all other reasons may entail a vist to Mayo or some other such clinic.those of us that have had this for years must have some special underlying problem.

Re: Thanks Caryne

Beverly on 6/05/00 at 18:01 (021369)

Thanks Caryne, San Antonio is not too far away. That is a thought.
You know, Texas is a big state, but San Antonio is kinda in the middle; so that would work. I've heard good things about the UT Health Science Center. I thought I'd mostly get med students; so I never even considered it.

The best hospital in Texas used to be Scott & White, 'the mayo of the South,' but I don't think they have as good a reputation anymore.

Beverly


Re: I spent two weeks at MAYO.........

Gordon on 6/05/00 at 19:35 (021379)

Sorry to say this but my stay at MAYO did me no good. They tested me for everything under the sun and it wasn't until I went after the low carb diet and daily exercise that I got better.

Re: Thanks Caryne

Dr. Zuckerman on 6/05/00 at 20:37 (021385)

I know a Dr. Harkless who is a diabetic expert. He is in San Antonia . I believe he is head of podiatry at the UT Health Science Center. Beverly I want to send you a present . It is called Gel socks. Give me your address and and size and try it out. It is a gel siliposis built right into the socks. If you have a lack of shock absorbing problem in your plantar fasica or no fat padding left in your foot this may help you. In addition I know a doctor that if you lack fat in the bottom of your foot they replace the padding. So email me with your address ((email removed)) and I will send you the socks. They come in black or white. Take your pick.

Re: to Nancy and Beverly

VickiJ on 6/06/00 at 07:54 (021418)

Hi Nancy and Beverly,
Nancy,I lost my insurance and income too...way early on...and couldn't afford to 'go the rounds'. A physical therapist friend who was of 'sports medicine' mentality (i.e. the goal is to be active again, in addition to being pain free) was extremely helpful. And when my sister had the problem she asked friends who had kids in soccer, etc who they went to locally for injuries and my sister got alot of good help from that orthopod....so after the doctor's diagnosis my pt friend was very helpful as we (he and I, not my pod) experimented with different stretches and massage techniques...which got me off crutches. I didn't go to him a lot...since he was not charging me anything...and the local sports doc gave me that exact adivce: see a pt about stretches and massage.
Beverly, If I had the money or insurance to pay for it I would call every university athletic trainer/physician in my area (and professional teams as well) and ask them if any of their players ever had the problem (the answer will beyes) and what doctors they went to. I would start by calling all university and pro team trainers and physicians in my area and then expand from there to see if there was a specific doctor/clinic that got mentioned more than once. I would also see if those athletic trainers would help me get in direct contact with athletes who had the problem so I could discuss pf histories, etc. I might even be inclined to call the Nike place in Oregon where olympic track athletes train...in an attempt to find a specific doctor who could help with specific issues (your torn facia for example)The phone bill would be outrageous and you'd have to keep detailed notes (you did say you were a journalist, right?), but that's how I would do it....poll everyone I could find and then tally the results. I'm a 'research junkie' and actually enjoy the process...it does give me a sense of having a little control...if only the control over who I will eventually pay to visit....and once I have a reasonable income again and if I'm still in pain (I'm using Mike W's pft and have great hopes)I will do what I just described. But since the stretching and massaging and Mike's pft have put me on a road where I am gradually becoming more and more mobile I don't feel I have to go that far. Yes, if I stay in pain I would consider ESWT but only after I see some research data that indicates how many people get results and how long they stay pain free. So far, I'm not convinced that the ESWT by itself is any more effective (for my pf pain) than the patient process of healing using the rest/stretching/exercising methods with the pft. I have put together a couple of income bearing activities but I'm not quite independent yet, nor insured, or I would have gone through everything I described....because I was getting steadily better I decided my energies needed to go into changing my career and earning a living...which is taking a long time.

I'm not suggesting you have to do what I described, I'm simply saying how I would go about finding 'the best' if I had experienced no help or relief.



Re: to Nancy and Beverly --Thank you, Vicki (eom)

Nancy S. on 6/06/00 at 08:39 (021422)



Re: Thanks Caryne

john h on 6/06/00 at 09:37 (021426)

southwest hospital in plano is a mecca for back problems and spine problems with the texas back institute. lots of orthopods and neurosurgons there. people from all over the world visit there. cutting edge (great pun) facility.

Re: Vicki

Beverly on 6/06/00 at 10:20 (021427)

Dear Vicki,

Those are very good ideas. Thank you. I am a research junkie too.
But yes, I am having to watch my phone bill these days.

Beverly