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Continuing to improve...

Posted by wendyn on 7/08/00 at 11:50 (023028)

I continue to have steady improvement...just thought I'd post my progress for those of you who think that things will never improve...anything is possible.

5 months ago I could barely walk 2 blocks to the gym and back.

Yesterday, over the course of about 12 hours I walked (let me add em up) _over_ 40 city blocks on pavement. Plus I went dancing (just a little) _and_ I was standing for a good part of the evening. My right foot is a little tight today, and feels slightly swollen - but nothing that is indicating a major set back. (Are you having a good Stampede too Mike W?)

I can't walk quickly like I used to (I used to walk twice as fast as people with legs twice as long as me). And my foot does not move the same way that it should (my ankle is not real flexible anymore) - but I at least have a life again.

I attribute my slow but definite recovery to getting rid of my orthotics, using Birks, acupuncture, B12, lots of rest, stopping aerobics and running, lots of time, yoga for stretching and relaxation, and massage for releasing trigger points.

I ran (so to speak) into sports med doctor 1 from last year, he was extremely pleased with my recovery.. somewhat mystified but happy that I was doing better.

I will take it easy over the weekend and keep my feet up lots, but I'm so grateful that I can be out there living like a 'normal' person again. I will never take little things for granted.

Laurie how are you doing? I know you had a bad week and I'm thiking about you....


Re: Continuing to improve...

Beverly on 7/08/00 at 13:51 (023032)

Wendyn,

It is so wonderful to hear you are doing this well. 40 blocks! Way to go girl!

This is encouraging to me, because as I recall, you have been one of the most wounded among us.

Wendyn, did you do your massage yourself or get it done by a pro? Did you use your hand or a tennis ball or other gadget?

Also, was acupunture covered by insurance and did you go the Chinese Medicine Doctor route or go to an MD? Did the acupunture hurt?

I too have ditched custom orthodics. I really think they made me worse.
In trying to rotate my shoes, I am not in Birks exclusively, but I wear my Arizona's more than anything else. I am thinking about trying the Milano's since they are so similar to the Arizona's. Do you have any Milano's? If so, do you like them? I can tell it makes a difference when I rotate shoes and don't wear the same pair for days on end. If only I could find something I like as well as the Arizona.

Glad you're doing so well,
Beverly


Re: Continuing to improve...

alan k on 7/08/00 at 13:57 (023033)

That's great news and I take great heart in it. I've been to yoga 4 times now (with spaces of 2-3 days rest between), and It is not making me worse. That can only mean it will make me better. Anyway, just to be back in yoga class after one year is just so great and I am so happy about that.

I am very hopeful about my acupuncture, and massage and strengthening continue to work wonders, and are what have let me get back to yoga. I secretly watch my doctor as he does the acupuncture and he has a sincerely concerned look on his face and even looks a little frustrated and dissappointed that there is no progress yet. I take that as a sign of a good doctor and it makes me even more hopeful that he is actually pulling for me. The first time I have ever felt that from a doctor.

Well, congratulations Wendy!

alan


Re: Continuing to improve...

wendyn on 7/08/00 at 14:51 (023034)

I'm happy that I'm doing well, but bear in mind that my condition is chronic and degenerative...it will only get bettter to a point...but I'm pleased to have reached the point I am at.

I should have been more specific about the massage Beverly, I've actually never had anyone massage my foot itself. I do a gentle massage on my feet every other day or so as part of yoga. The massage I was referring to was the rather painful kind from a massage therapist or physio therapist. Because my walk is so weird, I have a lot of lower back discomfort and really tight sore trigger points in my butt and legs. I think that at least some of my pain from my feet is related to the problems in my back and legs. I could go for a massage that didn't touch my feet - but my feet would feel better afterwards.

I have two pairs of the softer soled birks, one is Monteray and I can't remember what the other is. I live in them exclusively and they are starting to look pretty beat up. I'll get them resoled, and I'd like to try a pair of the harder Birks since I don't seem to need the extra cushioning any more. I used to wear padded thick socks in my Birks to help, now I usually just wear my bare feet in them. I need to find something more practical for outdoor weather before fall - I went through this last winter in my Birks and believe me they are not good for walking on ice or in two feet of snow.


I really think that if folks like me can improve - then there's the potential for improvement in pretty much anyone.


Re: To Beverly and Alan

wendyn on 7/08/00 at 14:59 (023035)

Sorry Beverly, I forgot you asked a question about acupuncture.

I went to a physio therapist that does acupuncture as part of physio. She is trained in medical acupuncture as well as traditional chinese medicine. Best of both worlds. The acpuncture was covered as part of my physio. I have separate health care that pays a portion of my physio costs - up to a maximum of about $300.00 a year. I would pay for it all out of pocket though if I had to.

I only went for about 6 or 7 visits, I can get portions of about 6 more paid for this year so I will probably go back for another series.

No, I don't think acupuncture hurts. I had one visit where it did, but I was very tense and didn't want to have it done. Once the needles are in you really can't feel them. I complained one time about a partiular needle hurting me - and when I looked there wasn't actually one there....guess it must have been phantom pain but I could have sworn there was one there that I felt.

Whether or not it hurts probably depends a lot on the location of the needle, the skill of the practitioner and the stress level of the patient.

Alan, how many treatments have you had? I did not really notice much until right after I think the 3rd or 4th one. They told me to give it 6 to 8 tries and if no improvement by then - I probably wouldn't have any benefit.

Is your doctor doing the medical or traditional kind?


Re: Continuing to improve...Re Wendy (long)

Laurie R on 7/08/00 at 16:20 (023037)

Hi Wendy,
I would like to tell you I am SO HAPPY you are doing better I know what a hard time you were having.I was not even going to post about my self because I am so tired of complaining about my foot and my pain. But since you asked I will tell you ,I did think hard on whether or not I should post this.....

It all started again when I went to the mall last Monday night ,I wore my walking cast and I had my foot wraped up in a ace bandage for extra support, I was on my feet for about 2 hours and I felt the pain coming on so I went home iced and stayed off of it.The next day when I got up the pain was pretty bad that was the 4 th so I did not do anything that day just laid in the sun and iced my foot the next day the pain was still bad I went to PT which he only did a light therapy ,Thursday came I was still in bad pain I called my doctor he said come in I did ,he said just going to the mall and walking a little bit was fine but it did cause all of this pain again.So he numb my TTS nerve up real good and my foot was very numb with no pain,it was more of a block it lasted for about 8 hours. He did say if I was still in pain the next day to call him again and he wanted me to still go to therapy.I went to therapy yesterday Friday and all the pain was back again just light therapy ,I was so upset because of the pain I had my husband call my Pod ,well for one thing it was 4:00pm on a Friday ,My Pod told him to bring me in .When my Pod came in the room he said I had 2 options 1. He could give me a shot in my hip for the pain or he could put me in the hospital for a few days for pain control. At that point I just wanted to get rid of the pain so we deceided to go with putting me in the hospital ,he left the room to go call the hospital to set everything up and he comes back in and says they don't do pain control their so now he says you can go to Stanford hospital (I am sure alot of you know where this is) Or other hospital which was to far and Stanford is about 1 hour from me,So at this point we said lets try the shot.My Pod siad they use this for people right after surgery to help with the pain and it should last for 24 to 48 hours,he gave me Toradal .And he also gave me it in pill form but he did say you can only take it for 5 days no longer.

It did not help me at all last night ,and plus above everything else my ankle is so sore from the first shot I got on Thursday to numb my foot.That's why he said he could not numb my TTS area yesterday .So today my PF is doing better but my TTS is still real painful ,but when I got up today I said I am not going to let the pain control me I will be in control of it ,even with all of this pain and it is bad attitude has something to do with it and mine is better today .He said I should feel better in a few days it is a bad pain cycle ,I think the first shot I got on Thursday aggravated my ankle and TTS area more ,so I am back on crutches and no weight at all on my foot till things get better. Rest Rest Rest ........Ok Wendy are you sorry you asked how I was doing yet???????

When I read you post today it made me feel real good ,Why??? Because I do understand that one day I will be doing the same ,And I refuse to feel sorry for my self.Tonight hubby and the kids are going to a concert they were not gonna go because of my foot so I told them you better go and have fun and I ment it ,I am looking forward to the peace and quiet.

next step for me is my Pod I think has done all he can do ,he gave me a name of a pain doctor he wants me to go and see,I will but I know I don't want to be dope up all the time I feel with rest and a good attitude and this board I can beat this or at least deal with it and I will get the pain down ........

Thanks again for asking about me Wendy and my very very best to you .

Laurie R


Re: Back to Laurie

wendyn on 7/08/00 at 17:04 (023038)

No, I am not sorry I asked, I am sorry that things are going the way they are for you.

I think that going with the pain doctor is a really good step at this point, and possibly even pursuing the hospital route. From my very basic absolutely non-medical understanding of nerves and injury it sounds as though your doctor is right about the pain cycle thing. For whatever reason the nerve(s) is super sensitive and is relaying all kinds of weird 'I'm in terrible pain' signals.

Laurie, is your doctor sure this isn't RSD or at least some type of sympathetic nervous system response? I know we've talked about this before. That's basically the same thing as what he's describing and it can be triggered by TTS. Sometimes the only way to stop it is with something like the nerve blocks that Lee was having where they put your foot to sleep for hours at a time to try to get the pain cycle to stop. In retrospect, this is likely what was happening to me, and it fits with everyones explanation.

I injured my foot, but the nerve became super sensitive and caused pain way out of proportion to what the initial injury may have been. I think it was the B12 and the acupuncture that stopped it. Acupuncture can be very successful with weird pain syndromes, but I'd be reluctant to have them stick pins in your sore foot. They should be able to avoid that (my Pt only stuck them in my right foot the very first time).

Please consider the hospital route, and go see the pain specialist ASAP he/she may be able to help you stop this terrible cycle and it may not involve drugs that will make you feel dopey.

I couldn't take Toradol cause it made my stomach very sore - just something to watch out for but I know it can be very effective.

Your situation with the concert sounds familiar. Last summer some friends called and invited us to a concert they had extra tickets for. My feet were so sore, I couldn't bear the thought of going. I insisted that my husband go without me. When they came to pick him up I had to stay in the kitchen because I was sure I'd burst into tears. As soon as they got there I started to cry (hard) because I couldn't stand the fact that I had to give up some of the most basic things in life. I cried and cried, I will never forget how I felt - so I can really empathize with what you're going through tonight.

Take care of yourself, and try to find the energy to get aggresive and find a way to get this under control.


Re: Continuing to improve... -- Great gains and pains

Nancy S. on 7/08/00 at 19:34 (023041)

Wendy, thanks for your uplifting post. When I first found this board last December, you were really struggling, and like Alan I gather hope from your improvement, despite your prognosis. I still feel your great spirit will see you through any further hard times ahead, and I always believe in the possibility of beating of the odds, especially with your attitude.
And then we see you, Laurie, at the opposite end of the pain and hardship scale For Now and my heart goes out to you; yet despite your traumatic week you are working hard to gain control over your situation.
I find both your situations uplifting in different ways, because of what you face and the courage you show in handling it. We can all learn from this, and I'm very glad you're both on the board.
--Nancy

Re: Continuing to improve... -- Great gains and pains

Laurie R on 7/08/00 at 21:00 (023047)

Hi,
A BIG thank you to Nancy and Wendy !!!!!!!!!

You both are very sweet now this really made me feel better no it will not take my pain away but it is so nice to know that people do care. I so understand what you are talking about Wendy about when your husband went to the concert and you cried,that happened to me last time I had a set back and I was in the hard cast they all went out (I told them to go ) and as soon as the door closed I started to cry ,but this time I really wanted them to go I think I needed some time to my self and it does feel good tonight to be here by my self.

I do think now the hospital would of been good for a few days ,but the one thats near me my Pod tried to get me in to said they do not have a pain dept ,that is real hard for me to believe but I guess it is true.I was thinking why couldn't a nurse just put the IV and drugs in it? I sure their is a good reason.

Wendy you know the picture of TTS on Scotts main page the one you down loaded under mis? Well their is a picture of a ankle with TTS and in the picture you can see the tarsel tunnel it is red I think well the way it looks is the way my ankle is feeling the red part is blinking. My TT nerve is jumping also so I know this all has to do with TTS ....Oh and you are right the Toradol did mess with my stomach last night I can not take anti imflam.And it did not help with the pain anyways.

I will call the pain doctor on Monday ,I just hope they can help me .I am trying hard to rest and stay off my foot thank God for my computer .

Thanks again ladies ......Your PF Friend ,Laurie R


Re: To Laurie

Beverly on 7/08/00 at 21:58 (023049)

Dear Laurie,

Laurie, you are in my prayers. It's time for me to send in a new Novena petition to the Sisters I communicate with. I will be sure to include you in that petition. (That's Catholic lingo for a prayer request.) I am so sorry to hear about what a hard time you are having. It must be so discouraging to try to resume a halfway normal life and do something simple like go to the Mall and pay for it so dearly. I hope the pain center helps you. In the meantime,
perhaps those heavy pain meds will knock you out. I have a hunch one reason doctors give heavy pain meds for severe pain is that it knocks one out and thus, leads to rest & sleep.

I can relate to how depressing it is watching friends and family do things we can't. I have passed up so many invitations I've lost track.

Hang in there. I hope tomorrow is better.
Beverly


Re: Continuing to improve... -- Great gains and pains

Steve P on 7/09/00 at 11:32 (023073)

Laurie -- I can tell from your posts that you're serious about getting treatment & getting better. We all know how discouraging this can be, but with your determination I know you'll keep plugging away at it until you get results. So please take heart & hang in there!

Re: Continuing to improve... -- Great gains and pains To Wendy and laurie

dfeet on 7/09/00 at 12:42 (023076)

Wendy, I know your condition is a difficult one. I'm so glad to see that you have improvement ,and I hope it continues.
Laurie, please,hang in there. I'm glad you posted your situation as it's going. Although, I wish you were doing better. Sometimes just letting others know about how you're feeling can help with recovery. I know I'm famous for the 'downer' posts, but it always makes me feel better that someone is listening. I wish I had more helpful advice for you to ease your pain. Like others, I too think you're on the right track with the pain management route. Your Doc seems to be really trying to help you. TTS is awful(so is PF). I had such a bad day on Thurs. that I could barely crawl upstairs to bed. I am facing a decision about surgery for my TTS, and if days like Thurs. continue, I may go with it. Like yourself I am trying to keep things in perspective and be positive about the hope of recovery. I think what is so frustrating is that some days I feel like I am making significant progress, and then a day like Thurs. comes. I know this is the nature of the beast, but it doesn't make it any easier. Please, try to hang in there. Best wishes . Feel better-dfeet

Re: To Beverly and Alan

alan k on 7/09/00 at 13:38 (023077)

I went four times. My wife went for six weeks and didn't notice any improvement until she stopped going, after which she immediately was completely cured. This makes some sense from the standpoint of traditional theories of acupuncutre. For this reason, I will continue with my self treatment but also continue with acupuncture come hell or high water. Probably I will do it for 2-3 months. My doctor is an md, but is kind of new-agey in orientation and has a lot of faith in traditional chinese medicine. He is from India so I don't know that it is fair to say he is new-agey. In any case, there is a lot to gain from alternative medicine and I don't mind one bit about how he is willing to try such things. I know acupuncture can help tts, so I am not going to give up. Are you still doing it?


alan


Re: Continuing to improve... -- Great gains and pains To Wendy and laurie

Laurie R on 7/09/00 at 13:47 (023080)

Thank you to all of you,
Thanks for all your kind words,they mean alot to me.This is the only place I can go to get peace of mind to deal with all of this.

Good news Today the pain has gone down ,I put on my night splint and I slept all night and it was still on when I got up.I never have been able to keep it on all night.

I do know now that the shot I got on Thursday aggravated my TT nerve the shot is good to numb the foot but I have heard that if you have to many it can aggravate the nerve and it did big time,I think that is when the pain kick in worse than whwn it first started.Hey the way I look at it live and learn, all I know I an very happy today .I think the bad pain is over this time,don't get me wrong my foot still has pain but nothing like it was the last few days.Does this make sence to you guys ? See the shot goes right in the Tarsel Tunnel nerve which is already aggravated.

Like I said I refuse to give up,I do want my life back and I know someday I will have it .

dfeet,I like you am also thinking about surgery but I still come back to 38% it will help,but on the other hand I feel a good doctor can make that percentage go up.My Pod will not do this kind of surgery and I am glad he told me he will not do it ,I would hate to have this done and than be worse after it.It is not a easy surgery because of all the nerves. dfeet have you talked to your doctor about this kind of surgery a TTS release?? If so what did he or she say? I have talked to my Pod every visit about this .He did tell me he knows of one doctor that does it ,but he still says I should not have it done,and my Pod is a ankle and foot surgeon as well as a MD.

Friday they could of gave me surgery right their in the office I would not of cared thats how bad the pain was,I think it was the worse of all pain sence this all started.

I am just happy for today and I can't tell you what tomarrow will bring ,I guess one day at a time is ok for now it feels good.

I wish you all well and I am glad we are PF buddies.........

My very best to all.Laurie R


Re: Continuing to improve...

Beverly on 7/08/00 at 13:51 (023032)

Wendyn,

It is so wonderful to hear you are doing this well. 40 blocks! Way to go girl!

This is encouraging to me, because as I recall, you have been one of the most wounded among us.

Wendyn, did you do your massage yourself or get it done by a pro? Did you use your hand or a tennis ball or other gadget?

Also, was acupunture covered by insurance and did you go the Chinese Medicine Doctor route or go to an MD? Did the acupunture hurt?

I too have ditched custom orthodics. I really think they made me worse.
In trying to rotate my shoes, I am not in Birks exclusively, but I wear my Arizona's more than anything else. I am thinking about trying the Milano's since they are so similar to the Arizona's. Do you have any Milano's? If so, do you like them? I can tell it makes a difference when I rotate shoes and don't wear the same pair for days on end. If only I could find something I like as well as the Arizona.

Glad you're doing so well,
Beverly


Re: Continuing to improve...

alan k on 7/08/00 at 13:57 (023033)

That's great news and I take great heart in it. I've been to yoga 4 times now (with spaces of 2-3 days rest between), and It is not making me worse. That can only mean it will make me better. Anyway, just to be back in yoga class after one year is just so great and I am so happy about that.

I am very hopeful about my acupuncture, and massage and strengthening continue to work wonders, and are what have let me get back to yoga. I secretly watch my doctor as he does the acupuncture and he has a sincerely concerned look on his face and even looks a little frustrated and dissappointed that there is no progress yet. I take that as a sign of a good doctor and it makes me even more hopeful that he is actually pulling for me. The first time I have ever felt that from a doctor.

Well, congratulations Wendy!

alan


Re: Continuing to improve...

wendyn on 7/08/00 at 14:51 (023034)

I'm happy that I'm doing well, but bear in mind that my condition is chronic and degenerative...it will only get bettter to a point...but I'm pleased to have reached the point I am at.

I should have been more specific about the massage Beverly, I've actually never had anyone massage my foot itself. I do a gentle massage on my feet every other day or so as part of yoga. The massage I was referring to was the rather painful kind from a massage therapist or physio therapist. Because my walk is so weird, I have a lot of lower back discomfort and really tight sore trigger points in my butt and legs. I think that at least some of my pain from my feet is related to the problems in my back and legs. I could go for a massage that didn't touch my feet - but my feet would feel better afterwards.

I have two pairs of the softer soled birks, one is Monteray and I can't remember what the other is. I live in them exclusively and they are starting to look pretty beat up. I'll get them resoled, and I'd like to try a pair of the harder Birks since I don't seem to need the extra cushioning any more. I used to wear padded thick socks in my Birks to help, now I usually just wear my bare feet in them. I need to find something more practical for outdoor weather before fall - I went through this last winter in my Birks and believe me they are not good for walking on ice or in two feet of snow.


I really think that if folks like me can improve - then there's the potential for improvement in pretty much anyone.


Re: To Beverly and Alan

wendyn on 7/08/00 at 14:59 (023035)

Sorry Beverly, I forgot you asked a question about acupuncture.

I went to a physio therapist that does acupuncture as part of physio. She is trained in medical acupuncture as well as traditional chinese medicine. Best of both worlds. The acpuncture was covered as part of my physio. I have separate health care that pays a portion of my physio costs - up to a maximum of about $300.00 a year. I would pay for it all out of pocket though if I had to.

I only went for about 6 or 7 visits, I can get portions of about 6 more paid for this year so I will probably go back for another series.

No, I don't think acupuncture hurts. I had one visit where it did, but I was very tense and didn't want to have it done. Once the needles are in you really can't feel them. I complained one time about a partiular needle hurting me - and when I looked there wasn't actually one there....guess it must have been phantom pain but I could have sworn there was one there that I felt.

Whether or not it hurts probably depends a lot on the location of the needle, the skill of the practitioner and the stress level of the patient.

Alan, how many treatments have you had? I did not really notice much until right after I think the 3rd or 4th one. They told me to give it 6 to 8 tries and if no improvement by then - I probably wouldn't have any benefit.

Is your doctor doing the medical or traditional kind?


Re: Continuing to improve...Re Wendy (long)

Laurie R on 7/08/00 at 16:20 (023037)

Hi Wendy,
I would like to tell you I am SO HAPPY you are doing better I know what a hard time you were having.I was not even going to post about my self because I am so tired of complaining about my foot and my pain. But since you asked I will tell you ,I did think hard on whether or not I should post this.....

It all started again when I went to the mall last Monday night ,I wore my walking cast and I had my foot wraped up in a ace bandage for extra support, I was on my feet for about 2 hours and I felt the pain coming on so I went home iced and stayed off of it.The next day when I got up the pain was pretty bad that was the 4 th so I did not do anything that day just laid in the sun and iced my foot the next day the pain was still bad I went to PT which he only did a light therapy ,Thursday came I was still in bad pain I called my doctor he said come in I did ,he said just going to the mall and walking a little bit was fine but it did cause all of this pain again.So he numb my TTS nerve up real good and my foot was very numb with no pain,it was more of a block it lasted for about 8 hours. He did say if I was still in pain the next day to call him again and he wanted me to still go to therapy.I went to therapy yesterday Friday and all the pain was back again just light therapy ,I was so upset because of the pain I had my husband call my Pod ,well for one thing it was 4:00pm on a Friday ,My Pod told him to bring me in .When my Pod came in the room he said I had 2 options 1. He could give me a shot in my hip for the pain or he could put me in the hospital for a few days for pain control. At that point I just wanted to get rid of the pain so we deceided to go with putting me in the hospital ,he left the room to go call the hospital to set everything up and he comes back in and says they don't do pain control their so now he says you can go to Stanford hospital (I am sure alot of you know where this is) Or other hospital which was to far and Stanford is about 1 hour from me,So at this point we said lets try the shot.My Pod siad they use this for people right after surgery to help with the pain and it should last for 24 to 48 hours,he gave me Toradal .And he also gave me it in pill form but he did say you can only take it for 5 days no longer.

It did not help me at all last night ,and plus above everything else my ankle is so sore from the first shot I got on Thursday to numb my foot.That's why he said he could not numb my TTS area yesterday .So today my PF is doing better but my TTS is still real painful ,but when I got up today I said I am not going to let the pain control me I will be in control of it ,even with all of this pain and it is bad attitude has something to do with it and mine is better today .He said I should feel better in a few days it is a bad pain cycle ,I think the first shot I got on Thursday aggravated my ankle and TTS area more ,so I am back on crutches and no weight at all on my foot till things get better. Rest Rest Rest ........Ok Wendy are you sorry you asked how I was doing yet???????

When I read you post today it made me feel real good ,Why??? Because I do understand that one day I will be doing the same ,And I refuse to feel sorry for my self.Tonight hubby and the kids are going to a concert they were not gonna go because of my foot so I told them you better go and have fun and I ment it ,I am looking forward to the peace and quiet.

next step for me is my Pod I think has done all he can do ,he gave me a name of a pain doctor he wants me to go and see,I will but I know I don't want to be dope up all the time I feel with rest and a good attitude and this board I can beat this or at least deal with it and I will get the pain down ........

Thanks again for asking about me Wendy and my very very best to you .

Laurie R


Re: Back to Laurie

wendyn on 7/08/00 at 17:04 (023038)

No, I am not sorry I asked, I am sorry that things are going the way they are for you.

I think that going with the pain doctor is a really good step at this point, and possibly even pursuing the hospital route. From my very basic absolutely non-medical understanding of nerves and injury it sounds as though your doctor is right about the pain cycle thing. For whatever reason the nerve(s) is super sensitive and is relaying all kinds of weird 'I'm in terrible pain' signals.

Laurie, is your doctor sure this isn't RSD or at least some type of sympathetic nervous system response? I know we've talked about this before. That's basically the same thing as what he's describing and it can be triggered by TTS. Sometimes the only way to stop it is with something like the nerve blocks that Lee was having where they put your foot to sleep for hours at a time to try to get the pain cycle to stop. In retrospect, this is likely what was happening to me, and it fits with everyones explanation.

I injured my foot, but the nerve became super sensitive and caused pain way out of proportion to what the initial injury may have been. I think it was the B12 and the acupuncture that stopped it. Acupuncture can be very successful with weird pain syndromes, but I'd be reluctant to have them stick pins in your sore foot. They should be able to avoid that (my Pt only stuck them in my right foot the very first time).

Please consider the hospital route, and go see the pain specialist ASAP he/she may be able to help you stop this terrible cycle and it may not involve drugs that will make you feel dopey.

I couldn't take Toradol cause it made my stomach very sore - just something to watch out for but I know it can be very effective.

Your situation with the concert sounds familiar. Last summer some friends called and invited us to a concert they had extra tickets for. My feet were so sore, I couldn't bear the thought of going. I insisted that my husband go without me. When they came to pick him up I had to stay in the kitchen because I was sure I'd burst into tears. As soon as they got there I started to cry (hard) because I couldn't stand the fact that I had to give up some of the most basic things in life. I cried and cried, I will never forget how I felt - so I can really empathize with what you're going through tonight.

Take care of yourself, and try to find the energy to get aggresive and find a way to get this under control.


Re: Continuing to improve... -- Great gains and pains

Nancy S. on 7/08/00 at 19:34 (023041)

Wendy, thanks for your uplifting post. When I first found this board last December, you were really struggling, and like Alan I gather hope from your improvement, despite your prognosis. I still feel your great spirit will see you through any further hard times ahead, and I always believe in the possibility of beating of the odds, especially with your attitude.
And then we see you, Laurie, at the opposite end of the pain and hardship scale For Now and my heart goes out to you; yet despite your traumatic week you are working hard to gain control over your situation.
I find both your situations uplifting in different ways, because of what you face and the courage you show in handling it. We can all learn from this, and I'm very glad you're both on the board.
--Nancy

Re: Continuing to improve... -- Great gains and pains

Laurie R on 7/08/00 at 21:00 (023047)

Hi,
A BIG thank you to Nancy and Wendy !!!!!!!!!

You both are very sweet now this really made me feel better no it will not take my pain away but it is so nice to know that people do care. I so understand what you are talking about Wendy about when your husband went to the concert and you cried,that happened to me last time I had a set back and I was in the hard cast they all went out (I told them to go ) and as soon as the door closed I started to cry ,but this time I really wanted them to go I think I needed some time to my self and it does feel good tonight to be here by my self.

I do think now the hospital would of been good for a few days ,but the one thats near me my Pod tried to get me in to said they do not have a pain dept ,that is real hard for me to believe but I guess it is true.I was thinking why couldn't a nurse just put the IV and drugs in it? I sure their is a good reason.

Wendy you know the picture of TTS on Scotts main page the one you down loaded under mis? Well their is a picture of a ankle with TTS and in the picture you can see the tarsel tunnel it is red I think well the way it looks is the way my ankle is feeling the red part is blinking. My TT nerve is jumping also so I know this all has to do with TTS ....Oh and you are right the Toradol did mess with my stomach last night I can not take anti imflam.And it did not help with the pain anyways.

I will call the pain doctor on Monday ,I just hope they can help me .I am trying hard to rest and stay off my foot thank God for my computer .

Thanks again ladies ......Your PF Friend ,Laurie R


Re: To Laurie

Beverly on 7/08/00 at 21:58 (023049)

Dear Laurie,

Laurie, you are in my prayers. It's time for me to send in a new Novena petition to the Sisters I communicate with. I will be sure to include you in that petition. (That's Catholic lingo for a prayer request.) I am so sorry to hear about what a hard time you are having. It must be so discouraging to try to resume a halfway normal life and do something simple like go to the Mall and pay for it so dearly. I hope the pain center helps you. In the meantime,
perhaps those heavy pain meds will knock you out. I have a hunch one reason doctors give heavy pain meds for severe pain is that it knocks one out and thus, leads to rest & sleep.

I can relate to how depressing it is watching friends and family do things we can't. I have passed up so many invitations I've lost track.

Hang in there. I hope tomorrow is better.
Beverly


Re: Continuing to improve... -- Great gains and pains

Steve P on 7/09/00 at 11:32 (023073)

Laurie -- I can tell from your posts that you're serious about getting treatment & getting better. We all know how discouraging this can be, but with your determination I know you'll keep plugging away at it until you get results. So please take heart & hang in there!

Re: Continuing to improve... -- Great gains and pains To Wendy and laurie

dfeet on 7/09/00 at 12:42 (023076)

Wendy, I know your condition is a difficult one. I'm so glad to see that you have improvement ,and I hope it continues.
Laurie, please,hang in there. I'm glad you posted your situation as it's going. Although, I wish you were doing better. Sometimes just letting others know about how you're feeling can help with recovery. I know I'm famous for the 'downer' posts, but it always makes me feel better that someone is listening. I wish I had more helpful advice for you to ease your pain. Like others, I too think you're on the right track with the pain management route. Your Doc seems to be really trying to help you. TTS is awful(so is PF). I had such a bad day on Thurs. that I could barely crawl upstairs to bed. I am facing a decision about surgery for my TTS, and if days like Thurs. continue, I may go with it. Like yourself I am trying to keep things in perspective and be positive about the hope of recovery. I think what is so frustrating is that some days I feel like I am making significant progress, and then a day like Thurs. comes. I know this is the nature of the beast, but it doesn't make it any easier. Please, try to hang in there. Best wishes . Feel better-dfeet

Re: To Beverly and Alan

alan k on 7/09/00 at 13:38 (023077)

I went four times. My wife went for six weeks and didn't notice any improvement until she stopped going, after which she immediately was completely cured. This makes some sense from the standpoint of traditional theories of acupuncutre. For this reason, I will continue with my self treatment but also continue with acupuncture come hell or high water. Probably I will do it for 2-3 months. My doctor is an md, but is kind of new-agey in orientation and has a lot of faith in traditional chinese medicine. He is from India so I don't know that it is fair to say he is new-agey. In any case, there is a lot to gain from alternative medicine and I don't mind one bit about how he is willing to try such things. I know acupuncture can help tts, so I am not going to give up. Are you still doing it?


alan


Re: Continuing to improve... -- Great gains and pains To Wendy and laurie

Laurie R on 7/09/00 at 13:47 (023080)

Thank you to all of you,
Thanks for all your kind words,they mean alot to me.This is the only place I can go to get peace of mind to deal with all of this.

Good news Today the pain has gone down ,I put on my night splint and I slept all night and it was still on when I got up.I never have been able to keep it on all night.

I do know now that the shot I got on Thursday aggravated my TT nerve the shot is good to numb the foot but I have heard that if you have to many it can aggravate the nerve and it did big time,I think that is when the pain kick in worse than whwn it first started.Hey the way I look at it live and learn, all I know I an very happy today .I think the bad pain is over this time,don't get me wrong my foot still has pain but nothing like it was the last few days.Does this make sence to you guys ? See the shot goes right in the Tarsel Tunnel nerve which is already aggravated.

Like I said I refuse to give up,I do want my life back and I know someday I will have it .

dfeet,I like you am also thinking about surgery but I still come back to 38% it will help,but on the other hand I feel a good doctor can make that percentage go up.My Pod will not do this kind of surgery and I am glad he told me he will not do it ,I would hate to have this done and than be worse after it.It is not a easy surgery because of all the nerves. dfeet have you talked to your doctor about this kind of surgery a TTS release?? If so what did he or she say? I have talked to my Pod every visit about this .He did tell me he knows of one doctor that does it ,but he still says I should not have it done,and my Pod is a ankle and foot surgeon as well as a MD.

Friday they could of gave me surgery right their in the office I would not of cared thats how bad the pain was,I think it was the worse of all pain sence this all started.

I am just happy for today and I can't tell you what tomarrow will bring ,I guess one day at a time is ok for now it feels good.

I wish you all well and I am glad we are PF buddies.........

My very best to all.Laurie R