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Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Posted by Marie on 1/10/01 at 18:24 (036351)

I have been dealing with severe pain in my left foot for over 8 months now. I had an Endoscopic Plantar Fasciotomy on it back in August but have continued to go downhill.

I went in for a second opinion and today I was diagnosed with RSD. The specialist feels that he may be able to help me. He is going to do several lumbar sympathetic blocks starting next week. I will have one every other week. I am also on Neurotin, Lortab & Celebrex.

What do you think about this doctor's plan of treatment? Do you know of any other cases where someone had EPF and then found out they have RSD? Any info on this would be appreciated. Is there a cure for this?

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Dr. Zuckerman on 1/10/01 at 20:17 (036362)

Early treatment and aggressive treatment especially the lumbar sympathetic nerve blocks and very aggressive physical therapy is the best approach to this very serious and painful condition.

I just treated a patient with RSD that was going on for about four months . She was very young in her twenties. Doing alot better and will make a very good recovery. complete recovery I don't know. RSD when caught and treated early can resolve. The prognosis depends on the early treatment and at what stage of this disease it was identified. Go quickly ahead with your doctor's plan of treatment. It is standard and the best approach to help your severe foot pain.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Chris B. on 1/13/01 at 13:55 (036558)

Good luck with your treatment. I also was diagnosed with RSD from a fall that I had early Nov. It is in my legs though and basically I am taking Vioxx, go to PT 3x's a week and I swim as much as possible. The burning and sensations in my legs are driving me nuts. How have you been dealing with it for all of this time? I wore a pair of slacks to work yesterday that about drove me crazy!

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Connie T. on 1/15/01 at 17:40 (036647)

Can you give me a definition of RSD? What treatments are used? How successful are they? Thank you.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Marie on 1/15/01 at 18:14 (036650)

Yes, I have been dealing with it for about 7 months now. I go in tomorrow to have my first set of lumbar sympathetic blocks. I am also on a lot of medicine which I don't like but it has helped a little. I am constantly sleeping which is what my doctor wanted so that my nerves would settle down a bit.

Has your doctor recommended taking Neurotin or having the blocks done? I'll keep you posted as to the outcome of these. I wish you best of luck as well as I totally understand what you are going through.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

wendyn on 1/15/01 at 22:10 (036658)

Marie - RSD is Reflex Sympathetic Dystrophy. It is more commonly known now as Complex regional pain syndrome. It is essentially an 'over reaction' of the sympathetic nervous system - usually following an initial injury or surgery. The symptoms usually include pain that is out of proporation to the injury, and usually color changes in the extremety (mottled blue - low circulation). There are a number of other symptoms.

In the later stages it will eventually cause osteoporosis. It is a serious condition and difficult to diagnose. Please do a search on this board for RSD. I'm sure one of the doctors will answer too.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Dr. Zuckerman on 1/10/01 at 20:17 (036362)

Early treatment and aggressive treatment especially the lumbar sympathetic nerve blocks and very aggressive physical therapy is the best approach to this very serious and painful condition.

I just treated a patient with RSD that was going on for about four months . She was very young in her twenties. Doing alot better and will make a very good recovery. complete recovery I don't know. RSD when caught and treated early can resolve. The prognosis depends on the early treatment and at what stage of this disease it was identified. Go quickly ahead with your doctor's plan of treatment. It is standard and the best approach to help your severe foot pain.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Chris B. on 1/13/01 at 13:55 (036558)

Good luck with your treatment. I also was diagnosed with RSD from a fall that I had early Nov. It is in my legs though and basically I am taking Vioxx, go to PT 3x's a week and I swim as much as possible. The burning and sensations in my legs are driving me nuts. How have you been dealing with it for all of this time? I wore a pair of slacks to work yesterday that about drove me crazy!

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Connie T. on 1/15/01 at 17:40 (036647)

Can you give me a definition of RSD? What treatments are used? How successful are they? Thank you.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

Marie on 1/15/01 at 18:14 (036650)

Yes, I have been dealing with it for about 7 months now. I go in tomorrow to have my first set of lumbar sympathetic blocks. I am also on a lot of medicine which I don't like but it has helped a little. I am constantly sleeping which is what my doctor wanted so that my nerves would settle down a bit.

Has your doctor recommended taking Neurotin or having the blocks done? I'll keep you posted as to the outcome of these. I wish you best of luck as well as I totally understand what you are going through.

Re: Recently diagnosed with RSD - Reflex Sympathetic Dystrophy

wendyn on 1/15/01 at 22:10 (036658)

Marie - RSD is Reflex Sympathetic Dystrophy. It is more commonly known now as Complex regional pain syndrome. It is essentially an 'over reaction' of the sympathetic nervous system - usually following an initial injury or surgery. The symptoms usually include pain that is out of proporation to the injury, and usually color changes in the extremety (mottled blue - low circulation). There are a number of other symptoms.

In the later stages it will eventually cause osteoporosis. It is a serious condition and difficult to diagnose. Please do a search on this board for RSD. I'm sure one of the doctors will answer too.