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Anyone ever have doctor trouble??, Please talk to me.

Posted by Paula on 2/09/01 at 11:57 (038537)

I was diagnosed with heel spurs and PF on both feet a year ago. Since, I have been to more than one doctor. The last time I went was horrible. I was looked down upon. I was looked at and treated like I was whiney and exagerating my pain.
I had something 'pull' in my left foot and I have been afraid the fascia has pulled away from my heel. The ortho doctor never even answered that for me. In fact, when I walked in his nurse said she had reading material for me. DAH!! That is all I have been doing. Reading anything I can get my hands on.
I am planning to see a podiatrist. Does anyone out there have any idea how I should approach this? I have thought about night splints? I don't know. I just know the pain is horrible. I am depressed, mean, grouchy to my kids the more pain I am in. I cannot stand to cook, do dishes, or anything. I do believe that we as patients are still the customer. Why do some doctors treat a person so bad? I did everything but sit and bawl my eyes out last week at my appointment. I have had the cortisone shots, that worked for about 5 weeks. I have taken anti-inflammatories that no longer touch the pain.
I am new at this board and would really like to talk to others who have faced this problem. I guess I don't know what is next. I have the right to have input with my own treatment and would like to know where to go now..
I am at the point I would just like to have someone cut off both of my feet so I could go just one day pain free. Get my life back. Go shopping at the store. Thank God they have those handicap 'scooters' I am about to begin using those!
Please someone....talk to me.

Re: Anyone ever have doctor trouble??, Please talk to me.

Donna SL on 2/09/01 at 12:42 (038540)

Paula,

Try to find a podiatrist (DPM) that's part of a sports medicine facility, preferably associated with a large university hospital. They see a lot of PF, and most should be knowlegeable, and sympathic to this ailment. Most ortho docs training is more sugery oriented. I went to an ortho foot and ankle specialist once, and got the same reaction. All he said was that it will go away in 12 to 18 months, and offered no suggestions for treatment.

More than likely the pulling sensation is from tendonitis in reaction to your injuries. The pod should check you out either through a physcial exam of your feet, xrays, mri's if necessary, etc. Also get into a physical therapy program ASCP. This will help tremendously. Also, night splints are excellent. When I started using them it was a major turning point in my recovery, combined with the PT. Insurance usually pays for the splints too. I like the ones from Royce Medical. They are adjustable, and have a soft removable liner.

Donna

Re: Board members, this gal is in dyer straights! Help!!

Kim B. on 2/09/01 at 12:56 (038541)

Paula,

Doctor Bashing? count me in. (You came to the right place too)! We stongly dislike Doctors with that kind of attitude! I feel so stongly about them that I could easily use the word 'hate' instead. But, I won't, because I beleive it is bad for my karma to use such a word toward another one of God's creatures. I'm not going to allow the doctor you described have an effect on me (and my karma), and neither should you! Do not allow that 'waste of flesh' to have any affect you. Don't give him that much power! Simply use him as a learning tool, and then, dump him and his memory in the trash.

I have SO been where you are. I feel for you and barely know where to start. A lot of folks have posted on simular experiences, so don't feel alone. Sadly, the scenario you described happens way too often.

Your pain is real, and you'll have to find ways to manage it, until you find the cure that is right for you. This doesn't happen over night, but like I said, you've come to the right place.

Use Scott's powerful 'Search' feature located at the top of each page to find more information about any topic that interest you here. If you are new to this site, I suggest you read Scott's book for one thing, and then, use the 'search' to look up certian words. 'Newbie' or 'Newbies' is a good one for starters. That will bring up a lot of good information that the old-timers around here have posted regarding what things can be helpful for newbies to get started trying to get a handle on the pain side of things. Look up 'depression' and you're sure to relate to some of those posts. Look up 'amputation or amputate', and you'll see that many of us have felt that way before too.

There is so much to tell you, but it takes a while. So, start reading, asking questions, and researching. A lot of small successes add up when your feet are messed up. Hopefully, others here, will be along soon to give you even more advice.

The people here can enlighten you on ways that will help you be able to take charge of your health condition, instead of feeling like the docs and nurses are steam-rolling over you. Your doctor seems to have a bad dispostion (burn out, alcoholism, divorce, whatever the root of HIS problem is.) It's not your fault and I think you'll have to dump that 'zero' and find one that respects you and your situation.

After so much experience with Doctors, (I have another illness that keeps me in their offices, btw) these days, I am usually able to present myself as an educated patient, who is willing to allow THEM a chance at helping me. If, for some reason, they are not up to the challenge, I pretty much move on. I don't waste much time or money with a dipstick like you described. It is a privilege for them to get to work on YOUR body parts. YOU are the master of your situation. Do not hand that power over to someone just be cause they have a white coat and a fancy degree on the wall. Make THEM earn your respect, trust and business!

I'd better stop, I'm out of control again. You definately pressed one of my hot buttons! Ick and shame on BAD doctors!!

Good luck and hang on tight! The calvary is coming. You will have to do the real work, but this gang knows a lot of short-cuts you can try, and we learn more every day from each other!

Regards, Kim B.

Re: We're here for you, don't worry, we've been there

Cynthia D on 2/09/01 at 13:14 (038548)

Paula, I suffered off and on this way for four years. I was pregnant when I first went to a pod and he wouldn't touch me with a ten foot pole. Guess he thought if he touched my foot, I would miscarry and sue or something! So I suffered for another year. Another year wasted and in pain. I finally went to another doc who was more aggressive, shots, (ouch) Vioxx (which helps alot). Night splints are a good thing if you can keep them on.

But nothing has helped me more than this website. I never talked to anyone on the internet until this January. Maybe you could do a search on Cynthia D and see if you can find useful some of the suggestions everyone had for me. I also found it helpful to search people's names who seemed to have the same symptoms I did to see what responses they got. There was a patient named Wanda who wrote Dreams and Hopes that Fall. No one can understand this condition because we aren't bleeding or in a cast (most times). I commisserated with her and was at a low point in my life over this pain and decided on the spot to do something. Sounds like you are at that place now. I't hard but you are in the right place. I had already tried everything but walking on my hands. Within a matter of days, I was learning about ESWT and Dr. Zuckerman in NJ. I went Monday for treatment and while I am tender and sore, I have less pain now than I have for four years! I am extremely optimistic that this will work for me permanently!

In the meantime, do whatever you can to try all the suggestions here, and like Kim said, shake off this guy and his negative energy, take charge of your situation. Get a new doctor. What city do you live in? I bet someone can recommend a new doc for you pronto.

You can beat this ugly monster and we will help you. You are not alone any more. Best wishes.

Re: Thank you SO MUCH!

Paula on 2/09/01 at 14:14 (038555)

Thank you all so much. Know what I thought about doing? When the bill comes from this 'doctor' I thought I would send him what I thought his appointment was worth to me...along with a letter of explanation and the bill back. Yes, I believe I will.
I have made an appt. with a podiatrist. The poor receptionist at that office got my whole problem in a nutshell. It is hard because husbands/spouses get to where they do not understand. Not deliberately...just because it is so chronic.
Yes, we MUST be our own patient advocate. I am taking notes on what to 'tell' this podiatrist when I see him. I have tried Vioxx and it makes me sick. I was taking Motrin 800 mg three times a day for awhile and that helped but then was not effective.
I am sitting here actually smiling...Reading these messages. I feel so unalone.. You understand when I tell you that I cannot walk across the room without walking like I had to go BM really bad. You know, bent over and shuffling mostly. LOL.
I found myself talking to the cashier at the store the other day. She has the problem too. Her doctor will do nothing. I told her some of my problem and who to go to.
So, I will ask him about night splints, a new different medication for the inflammation. And other things. Has anyone ever tried a temporary cast?
I know I have heard total immobilization for several weeks helps also.

Re: Thank you SO MUCH!

Laurie R on 2/09/01 at 14:25 (038557)

Hi Paula,
I really feel for you. I have been where you are right now. Remeber you are in charge of your treatment. For every bad doctor their is a good one. It took me a while to find the right doctor. I have a wonderufl caring and compassionate Pod now. I am feel very lucky to have him.PLEASE let us know how your visit with your new doctor goes.Hang in there. We are here for each other .....Laurei R

Re: Paula, this is all too familiar

Beverly on 2/09/01 at 15:38 (038563)

Paula,

My heart goes out to you right now. Your story is all too familiar to me.
I could tell you doctor horror stories. (Old board members will remember me ranting and raving about two nightmarish pods back last Spring.)

First, don't give up. It is true many doctors don't take heel pain seriously. But there are some who do. The suggestion to get to a sports med. specialist was a good one. I tried several doctors before I found a helpful one through a sports med. clinic that specialized in the foot/ankle. But the most helpful thing for me was the perscription he wrote for physical therapy. There again, it took several tries to find a PT who was both compassionate, took the pain seriously, and knew something. There are good pods and bad pods. Good orthopedic specialists and bad ones. I've come to believe it is not so important whether one goes the ortho or pod route, but to get someone who knows what he's doing and cares!

Please don't give up. This board has helped me lots. Scott's book is very informative. Remember, we are all in different stages of heeling. What I can do now, I could not do six months ago. And I still can't do weight bearing exercises. I wish there were some universal cure for PF, but unfortantely, there isn't. I tried lots of things. And many of us, myself included, are 'dual diagnosed.' In my case, I have PF and PTT (and for awhile a torn hamstring).

I too had that pulling sensation in my left foot. It came several months into PF. It set me back alot. I still don't know what it was.

Finally, have you had:
x-rays
MRI
I had to push hard to get the MRI. It did not tell me anything I didn't already know, but it gave me much peace of mind knowing I didn't have something worse. If you have not had an MRI, I'd push hard to get one.

Best wishes. Don't give up!
Beverly

Re: Paula, this is all too familiar

Ellen W on 2/09/01 at 16:28 (038564)

I agree very much with Beverly's post. Paula, if your problem is tendonitis, PT should really help. The 'pulling' sensation that you describe is what my doctor said can be one of the hallmarks of the start of a problem with the achilles tendon. My physical therapist started me off with really gentle stretching and movement exercises, along with deep tissue massage. She said she could literally feel knots all up and down my calves. The massage hurt while she was doing it, but the pain didn't extend beyond the immediate massage session, and it really helped. On the one day when she was out, a substitute therapist did the massage, and though her touch was gentler, it didn't help nearly as much. So finding a good therapist that listens to you and works with you is key.

Ellen

Re: Amen, Donna! Sports Medicine is the way to go. Good luck, Paula. eom.

Steve P on 2/09/01 at 16:57 (038565)

.

Re: Paula, this is all too familiar

Brian G on 2/09/01 at 21:05 (038576)

Hi Paula,

Like others I have also had doctors that failed to listen to me. I have found that it really helps to be prepared. Write down everthing you want to discuss with your new doc. That way if you get side tracked, or too emotional, your list will be right there.

In your list you should include everything you have tried so far, and whether it has helped, or not. Also, include a list of things that you can no longer do, that was once easy for you to accomplish. It's very important for the doc to realize exactlly what your going through. I think a lot of people are in so much pain when they go in, they just loose it and can't hardly tell their doc whats going on. He needs to know, and it's up to you to give him that information, all of it.

Good luck
Brian G.

Re: Paula, A couple of reminders.

Kim B. on 2/09/01 at 21:42 (038581)

Paula, that's real good info Brian and the others have offered you, so far!

The 'list' is a MUST. Doctors, their offices, and their personnel can sometimes be intimmidating and aloof, and this will sometimes cause you to loose track of what you came there to find out. Try to keep your list simple and concise. Start with everything, and then pare it down, eliminating everything that is redundant, if possible. With a little partice, you'll get used to it. I keep a running list in my daytimer and whenever a question occurs to me, I jot it down. (Being a Mom, I have a seperate list for my childs pediatrition.) Later, or the day before a doctor's visit, I clean it up a bit and include just what I need to know for that visit.

Let the doc know that you are educating yourself about your illness. A good doc will appreciate this about you, a bad doc will be intimidated by and informed patient. Despite the harshness of my previous post, DO be somewhat humble. Just let the doc know that you are anxcious to get better and plan to assist him in finding the the right solutions (and hopefully a cure) for you.

You're in charge now, and knowing that will help you sleep better, which in turn should make you smile a bit more. Rest as often as you can. To hell with having a neat/clean house for now. Something has to give, so sacrifice housework first if you haven't already. For now, saveing your feet from further damage is much more important that a clean house. Some weeks the best I can do is to keep everying at my house in clean towels, clean bedsheets, and clean underware.

Remember to check in the shower shoes, icing, and all the other little tips and tricks that are burried in the archives. Some of these things will very likely help you while you are in between appointments. It is very fustrating at times. And you may still find yourself crying about the situation at times. But, now you have some tools, and comrads to help you get through this mess. Remember, people do actually recover from this illness.

Regards, Kim B.

Re: Paula, one more thought...

Cynthia D on 2/10/01 at 10:29 (038610)

Something extremely helpful for me and my family was to print up some of these messages for my husband to read. When I did this, my husband was shocked that I had been suffering so for so long because mostly, I would just plow on through my day in pain. It was a real eye-opener and he was a lot more understanding and helpful after that. Give it a try.

Re: What wonderful kindness...thank you

Paula on 2/10/01 at 14:24 (038620)

Thank you again. I cannot get on the computer to read these messages as they are posted, but I find myself very thrilled to be able to come on and read. What an outpouring of kindness from all of you. I am writing down all you suggested and will do it.
I feel good about the appointment I have this next week. I will sure come on and let all of you know how it goes...
Actually, I have been doing the rolling pin thing. Gosh! It sure makes a person's feet feel good. What a great suggestion.

Re: What wonderful kindness...thank you

Rebecca D on 2/10/01 at 20:25 (038642)

Paula,
Another trick that works is playing with Jacks. (You know the children's game with the little spikey jacks and a rubber ball?) My General practitioner gave me this one, and it does help. Use your feet to pick the jacks from one pile and move to a new pile. Done once or twice per sitting, on a daily basis does help. It causes you to flex the muscles in a different way, and it relieves some of the tension in your foot. I also use massage therapy. It began due to a car accident, but when the PF acted up, I had my massage therapist focus on the foot, and not only do I get relief, I also have someone who knows something about muscles telling me if I am improving or not. I saw him today, and he said a lot of the inflammation was gone. Don't give up, and absolutely make a pest of yourself until you get the relief you deserve! My story is somewhat different, and if you search on my name, you can find out why. I do still suffer from PF, and I have been using this website a lot. Scott's section on stretching and taping has been most helpful!
Best of luck to you,
Rebecca

Re: What wonderful kindness...thank you

Julie on 2/11/01 at 03:10 (038655)

Paula, I've come into this discussion late, having somehow missed your first posting. You've been given lots of helpful advice and support and I'm very glad it has made you feel better. I'd like to add a couple of observations to what has already been said..

The PF Book helped me enormously when I first discovered this website, and I've gone back to it many times. Print it out and study it: you will get loads of useful information from it that will help you to deal with doctors and to be active in your treatment programme.

There are so many things that can help. They are all described in the PF Book. Different things help different people. Taping has been the biggest help for me: several methods are described in the book. The first, simplest one works very well for me. Do try it: if it works for you it will not only relieve the pain, it will rest the fascia and help it to heal.

An elastic ankle support, such as the Futuro, will also support the arch. I use one in combination with tape: the two together give very good support.

Icing, which reduces inflammation, can also help.

You need to find a doctor who will listen to you and take your pain seriously, and who KNOWS enough about the condition to join you in putting together a treatment programme that will work for you. The more information you can arm yourself with, the better able you will be to assess the capability of the doctors you talk to. Keep looking, and you will find someone who can genuinely help you.

And also, of course, you will get lots of help and support here.

All the best, Julie

Re: Anyone ever have doctor trouble??, Please talk to me.

Barbara TX on 2/12/01 at 15:52 (038742)

I have had doctor trouble, but you just have to switch until you find one that is really interested in helping you... have no fear about just going somewhere else. Since you have been helped by a cortisone shot in the heel, you may be a very good candidate for a procedure called ESWT. Click on the link to find out more. Please consider this before any surgery. It is a new procedure that any really good podiatrist who knows his stuff is watching carefully and beginning to recommend to his patients.

With PF you develop a thick skin when it comes to doctors. They solve this problem easily in many patients, and become frustrated when some cases challenge them to work a little harder.

Please have hope. Your case is just going to take a little longer to resolve than most, but it will resolve. You sound like you are still standing to do a lot of things, but the time has come to arrange your life so that healing takes place, and this means OFF your feet for serious rest. Now is the time for your kids to learn to become resourceful and super-helpful... mom needs her rest to get better. Get a swiveling office chair for the kitchen, and USE those scooters if you need to shop (for stuff or even just to feel NORMAL again).

After you've read the PF BOOK, make a list of the things you want to try and just check them off, one by one, and this starts with getting a good DPM who mentions a lot of the things that we do on the board. Put a message out as to where you live and ask others here on the board for DPM suggestions. A good one may be right under your nose.

YOU CAN DO THIS! We are here to help, and a lot of us are moms who are recovering together. Good luck! B.

Re: Do we have two Paulas?

Barbara TX on 2/12/01 at 16:08 (038745)

Could I ask the Paulas (and everyone else who posts with just a first name) to use either a last name initial or a state initial after your name so that we can distinuish one from the other? We want to know you both! B.

Re: Anyone ever have doctor trouble??, Please talk to me.

carolj on 2/23/01 at 18:15 (039758)

i have had this nightmare in both feet worse in the right for approx. 11/2
years i have been to a podiatrist and went faithfully i actually was so
desperate for relief i let him give me a total of 24 (12 ib each) cortisone
and some sort of lidocaine. ialso went to physical therapy also faithfully
with whirlpool, ultrasound and massage. when tx. was complete, symptoms
returned, then i was off to the wonderful u of mi. med sport. I was given
an an internal emg which showed severe damage, which was also pooh-poohed
by the doc. I wear magnetic inserts in my clogs, wear my night splint to
bed and while relaxing, and sleep with ice packs on my feet brrrrrrrrrrr
after work my feet sometimes are double size. i am currently only taking
aspirin for pain motrin is useless, these docs (some) are terrified of
treating pain, which i believe is a huge problem. it seems almost inhumane
to experience it and i'm sure there are people much worse than myself.so
i know how you guys feel, good luck!!!!

Re: Anyone ever have doctor trouble??, Please talk to me.

Barbara TX on 2/24/01 at 09:29 (039786)

Carol - I too have had some doctor troubles in the past. You really do need to take your EMG results/x-rays, etc. and get to a doctor who explains to you IN DETAIL the damage he sees and constructs for you a plan to help resolve it. You must insist on and MRI if you haven't already! I know there are doctors out there just like this. Although finding one is a big hassle, you will feel great when you finally meet with success! Good luck! B.

Re: Anyone ever have doctor trouble??, Please talk to me.

Donna SL on 2/09/01 at 12:42 (038540)

Paula,

Try to find a podiatrist (DPM) that's part of a sports medicine facility, preferably associated with a large university hospital. They see a lot of PF, and most should be knowlegeable, and sympathic to this ailment. Most ortho docs training is more sugery oriented. I went to an ortho foot and ankle specialist once, and got the same reaction. All he said was that it will go away in 12 to 18 months, and offered no suggestions for treatment.

More than likely the pulling sensation is from tendonitis in reaction to your injuries. The pod should check you out either through a physcial exam of your feet, xrays, mri's if necessary, etc. Also get into a physical therapy program ASCP. This will help tremendously. Also, night splints are excellent. When I started using them it was a major turning point in my recovery, combined with the PT. Insurance usually pays for the splints too. I like the ones from Royce Medical. They are adjustable, and have a soft removable liner.

Donna

Re: Board members, this gal is in dyer straights! Help!!

Kim B. on 2/09/01 at 12:56 (038541)

Paula,

Doctor Bashing? count me in. (You came to the right place too)! We stongly dislike Doctors with that kind of attitude! I feel so stongly about them that I could easily use the word 'hate' instead. But, I won't, because I beleive it is bad for my karma to use such a word toward another one of God's creatures. I'm not going to allow the doctor you described have an effect on me (and my karma), and neither should you! Do not allow that 'waste of flesh' to have any affect you. Don't give him that much power! Simply use him as a learning tool, and then, dump him and his memory in the trash.

I have SO been where you are. I feel for you and barely know where to start. A lot of folks have posted on simular experiences, so don't feel alone. Sadly, the scenario you described happens way too often.

Your pain is real, and you'll have to find ways to manage it, until you find the cure that is right for you. This doesn't happen over night, but like I said, you've come to the right place.

Use Scott's powerful 'Search' feature located at the top of each page to find more information about any topic that interest you here. If you are new to this site, I suggest you read Scott's book for one thing, and then, use the 'search' to look up certian words. 'Newbie' or 'Newbies' is a good one for starters. That will bring up a lot of good information that the old-timers around here have posted regarding what things can be helpful for newbies to get started trying to get a handle on the pain side of things. Look up 'depression' and you're sure to relate to some of those posts. Look up 'amputation or amputate', and you'll see that many of us have felt that way before too.

There is so much to tell you, but it takes a while. So, start reading, asking questions, and researching. A lot of small successes add up when your feet are messed up. Hopefully, others here, will be along soon to give you even more advice.

The people here can enlighten you on ways that will help you be able to take charge of your health condition, instead of feeling like the docs and nurses are steam-rolling over you. Your doctor seems to have a bad dispostion (burn out, alcoholism, divorce, whatever the root of HIS problem is.) It's not your fault and I think you'll have to dump that 'zero' and find one that respects you and your situation.

After so much experience with Doctors, (I have another illness that keeps me in their offices, btw) these days, I am usually able to present myself as an educated patient, who is willing to allow THEM a chance at helping me. If, for some reason, they are not up to the challenge, I pretty much move on. I don't waste much time or money with a dipstick like you described. It is a privilege for them to get to work on YOUR body parts. YOU are the master of your situation. Do not hand that power over to someone just be cause they have a white coat and a fancy degree on the wall. Make THEM earn your respect, trust and business!

I'd better stop, I'm out of control again. You definately pressed one of my hot buttons! Ick and shame on BAD doctors!!

Good luck and hang on tight! The calvary is coming. You will have to do the real work, but this gang knows a lot of short-cuts you can try, and we learn more every day from each other!

Regards, Kim B.

Re: We're here for you, don't worry, we've been there

Cynthia D on 2/09/01 at 13:14 (038548)

Paula, I suffered off and on this way for four years. I was pregnant when I first went to a pod and he wouldn't touch me with a ten foot pole. Guess he thought if he touched my foot, I would miscarry and sue or something! So I suffered for another year. Another year wasted and in pain. I finally went to another doc who was more aggressive, shots, (ouch) Vioxx (which helps alot). Night splints are a good thing if you can keep them on.

But nothing has helped me more than this website. I never talked to anyone on the internet until this January. Maybe you could do a search on Cynthia D and see if you can find useful some of the suggestions everyone had for me. I also found it helpful to search people's names who seemed to have the same symptoms I did to see what responses they got. There was a patient named Wanda who wrote Dreams and Hopes that Fall. No one can understand this condition because we aren't bleeding or in a cast (most times). I commisserated with her and was at a low point in my life over this pain and decided on the spot to do something. Sounds like you are at that place now. I't hard but you are in the right place. I had already tried everything but walking on my hands. Within a matter of days, I was learning about ESWT and Dr. Zuckerman in NJ. I went Monday for treatment and while I am tender and sore, I have less pain now than I have for four years! I am extremely optimistic that this will work for me permanently!

In the meantime, do whatever you can to try all the suggestions here, and like Kim said, shake off this guy and his negative energy, take charge of your situation. Get a new doctor. What city do you live in? I bet someone can recommend a new doc for you pronto.

You can beat this ugly monster and we will help you. You are not alone any more. Best wishes.

Re: Thank you SO MUCH!

Paula on 2/09/01 at 14:14 (038555)

Thank you all so much. Know what I thought about doing? When the bill comes from this 'doctor' I thought I would send him what I thought his appointment was worth to me...along with a letter of explanation and the bill back. Yes, I believe I will.
I have made an appt. with a podiatrist. The poor receptionist at that office got my whole problem in a nutshell. It is hard because husbands/spouses get to where they do not understand. Not deliberately...just because it is so chronic.
Yes, we MUST be our own patient advocate. I am taking notes on what to 'tell' this podiatrist when I see him. I have tried Vioxx and it makes me sick. I was taking Motrin 800 mg three times a day for awhile and that helped but then was not effective.
I am sitting here actually smiling...Reading these messages. I feel so unalone.. You understand when I tell you that I cannot walk across the room without walking like I had to go BM really bad. You know, bent over and shuffling mostly. LOL.
I found myself talking to the cashier at the store the other day. She has the problem too. Her doctor will do nothing. I told her some of my problem and who to go to.
So, I will ask him about night splints, a new different medication for the inflammation. And other things. Has anyone ever tried a temporary cast?
I know I have heard total immobilization for several weeks helps also.

Re: Thank you SO MUCH!

Laurie R on 2/09/01 at 14:25 (038557)

Hi Paula,
I really feel for you. I have been where you are right now. Remeber you are in charge of your treatment. For every bad doctor their is a good one. It took me a while to find the right doctor. I have a wonderufl caring and compassionate Pod now. I am feel very lucky to have him.PLEASE let us know how your visit with your new doctor goes.Hang in there. We are here for each other .....Laurei R

Re: Paula, this is all too familiar

Beverly on 2/09/01 at 15:38 (038563)

Paula,

My heart goes out to you right now. Your story is all too familiar to me.
I could tell you doctor horror stories. (Old board members will remember me ranting and raving about two nightmarish pods back last Spring.)

First, don't give up. It is true many doctors don't take heel pain seriously. But there are some who do. The suggestion to get to a sports med. specialist was a good one. I tried several doctors before I found a helpful one through a sports med. clinic that specialized in the foot/ankle. But the most helpful thing for me was the perscription he wrote for physical therapy. There again, it took several tries to find a PT who was both compassionate, took the pain seriously, and knew something. There are good pods and bad pods. Good orthopedic specialists and bad ones. I've come to believe it is not so important whether one goes the ortho or pod route, but to get someone who knows what he's doing and cares!

Please don't give up. This board has helped me lots. Scott's book is very informative. Remember, we are all in different stages of heeling. What I can do now, I could not do six months ago. And I still can't do weight bearing exercises. I wish there were some universal cure for PF, but unfortantely, there isn't. I tried lots of things. And many of us, myself included, are 'dual diagnosed.' In my case, I have PF and PTT (and for awhile a torn hamstring).

I too had that pulling sensation in my left foot. It came several months into PF. It set me back alot. I still don't know what it was.

Finally, have you had:
x-rays
MRI
I had to push hard to get the MRI. It did not tell me anything I didn't already know, but it gave me much peace of mind knowing I didn't have something worse. If you have not had an MRI, I'd push hard to get one.

Best wishes. Don't give up!
Beverly

Re: Paula, this is all too familiar

Ellen W on 2/09/01 at 16:28 (038564)

I agree very much with Beverly's post. Paula, if your problem is tendonitis, PT should really help. The 'pulling' sensation that you describe is what my doctor said can be one of the hallmarks of the start of a problem with the achilles tendon. My physical therapist started me off with really gentle stretching and movement exercises, along with deep tissue massage. She said she could literally feel knots all up and down my calves. The massage hurt while she was doing it, but the pain didn't extend beyond the immediate massage session, and it really helped. On the one day when she was out, a substitute therapist did the massage, and though her touch was gentler, it didn't help nearly as much. So finding a good therapist that listens to you and works with you is key.

Ellen

Re: Amen, Donna! Sports Medicine is the way to go. Good luck, Paula. eom.

Steve P on 2/09/01 at 16:57 (038565)

.

Re: Paula, this is all too familiar

Brian G on 2/09/01 at 21:05 (038576)

Hi Paula,

Like others I have also had doctors that failed to listen to me. I have found that it really helps to be prepared. Write down everthing you want to discuss with your new doc. That way if you get side tracked, or too emotional, your list will be right there.

In your list you should include everything you have tried so far, and whether it has helped, or not. Also, include a list of things that you can no longer do, that was once easy for you to accomplish. It's very important for the doc to realize exactlly what your going through. I think a lot of people are in so much pain when they go in, they just loose it and can't hardly tell their doc whats going on. He needs to know, and it's up to you to give him that information, all of it.

Good luck
Brian G.

Re: Paula, A couple of reminders.

Kim B. on 2/09/01 at 21:42 (038581)

Paula, that's real good info Brian and the others have offered you, so far!

The 'list' is a MUST. Doctors, their offices, and their personnel can sometimes be intimmidating and aloof, and this will sometimes cause you to loose track of what you came there to find out. Try to keep your list simple and concise. Start with everything, and then pare it down, eliminating everything that is redundant, if possible. With a little partice, you'll get used to it. I keep a running list in my daytimer and whenever a question occurs to me, I jot it down. (Being a Mom, I have a seperate list for my childs pediatrition.) Later, or the day before a doctor's visit, I clean it up a bit and include just what I need to know for that visit.

Let the doc know that you are educating yourself about your illness. A good doc will appreciate this about you, a bad doc will be intimidated by and informed patient. Despite the harshness of my previous post, DO be somewhat humble. Just let the doc know that you are anxcious to get better and plan to assist him in finding the the right solutions (and hopefully a cure) for you.

You're in charge now, and knowing that will help you sleep better, which in turn should make you smile a bit more. Rest as often as you can. To hell with having a neat/clean house for now. Something has to give, so sacrifice housework first if you haven't already. For now, saveing your feet from further damage is much more important that a clean house. Some weeks the best I can do is to keep everying at my house in clean towels, clean bedsheets, and clean underware.

Remember to check in the shower shoes, icing, and all the other little tips and tricks that are burried in the archives. Some of these things will very likely help you while you are in between appointments. It is very fustrating at times. And you may still find yourself crying about the situation at times. But, now you have some tools, and comrads to help you get through this mess. Remember, people do actually recover from this illness.

Regards, Kim B.

Re: Paula, one more thought...

Cynthia D on 2/10/01 at 10:29 (038610)

Something extremely helpful for me and my family was to print up some of these messages for my husband to read. When I did this, my husband was shocked that I had been suffering so for so long because mostly, I would just plow on through my day in pain. It was a real eye-opener and he was a lot more understanding and helpful after that. Give it a try.

Re: What wonderful kindness...thank you

Paula on 2/10/01 at 14:24 (038620)

Thank you again. I cannot get on the computer to read these messages as they are posted, but I find myself very thrilled to be able to come on and read. What an outpouring of kindness from all of you. I am writing down all you suggested and will do it.
I feel good about the appointment I have this next week. I will sure come on and let all of you know how it goes...
Actually, I have been doing the rolling pin thing. Gosh! It sure makes a person's feet feel good. What a great suggestion.

Re: What wonderful kindness...thank you

Rebecca D on 2/10/01 at 20:25 (038642)

Paula,
Another trick that works is playing with Jacks. (You know the children's game with the little spikey jacks and a rubber ball?) My General practitioner gave me this one, and it does help. Use your feet to pick the jacks from one pile and move to a new pile. Done once or twice per sitting, on a daily basis does help. It causes you to flex the muscles in a different way, and it relieves some of the tension in your foot. I also use massage therapy. It began due to a car accident, but when the PF acted up, I had my massage therapist focus on the foot, and not only do I get relief, I also have someone who knows something about muscles telling me if I am improving or not. I saw him today, and he said a lot of the inflammation was gone. Don't give up, and absolutely make a pest of yourself until you get the relief you deserve! My story is somewhat different, and if you search on my name, you can find out why. I do still suffer from PF, and I have been using this website a lot. Scott's section on stretching and taping has been most helpful!
Best of luck to you,
Rebecca

Re: What wonderful kindness...thank you

Julie on 2/11/01 at 03:10 (038655)

Paula, I've come into this discussion late, having somehow missed your first posting. You've been given lots of helpful advice and support and I'm very glad it has made you feel better. I'd like to add a couple of observations to what has already been said..

The PF Book helped me enormously when I first discovered this website, and I've gone back to it many times. Print it out and study it: you will get loads of useful information from it that will help you to deal with doctors and to be active in your treatment programme.

There are so many things that can help. They are all described in the PF Book. Different things help different people. Taping has been the biggest help for me: several methods are described in the book. The first, simplest one works very well for me. Do try it: if it works for you it will not only relieve the pain, it will rest the fascia and help it to heal.

An elastic ankle support, such as the Futuro, will also support the arch. I use one in combination with tape: the two together give very good support.

Icing, which reduces inflammation, can also help.

You need to find a doctor who will listen to you and take your pain seriously, and who KNOWS enough about the condition to join you in putting together a treatment programme that will work for you. The more information you can arm yourself with, the better able you will be to assess the capability of the doctors you talk to. Keep looking, and you will find someone who can genuinely help you.

And also, of course, you will get lots of help and support here.

All the best, Julie

Re: Anyone ever have doctor trouble??, Please talk to me.

Barbara TX on 2/12/01 at 15:52 (038742)

I have had doctor trouble, but you just have to switch until you find one that is really interested in helping you... have no fear about just going somewhere else. Since you have been helped by a cortisone shot in the heel, you may be a very good candidate for a procedure called ESWT. Click on the link to find out more. Please consider this before any surgery. It is a new procedure that any really good podiatrist who knows his stuff is watching carefully and beginning to recommend to his patients.

With PF you develop a thick skin when it comes to doctors. They solve this problem easily in many patients, and become frustrated when some cases challenge them to work a little harder.

Please have hope. Your case is just going to take a little longer to resolve than most, but it will resolve. You sound like you are still standing to do a lot of things, but the time has come to arrange your life so that healing takes place, and this means OFF your feet for serious rest. Now is the time for your kids to learn to become resourceful and super-helpful... mom needs her rest to get better. Get a swiveling office chair for the kitchen, and USE those scooters if you need to shop (for stuff or even just to feel NORMAL again).

After you've read the PF BOOK, make a list of the things you want to try and just check them off, one by one, and this starts with getting a good DPM who mentions a lot of the things that we do on the board. Put a message out as to where you live and ask others here on the board for DPM suggestions. A good one may be right under your nose.

YOU CAN DO THIS! We are here to help, and a lot of us are moms who are recovering together. Good luck! B.

Re: Do we have two Paulas?

Barbara TX on 2/12/01 at 16:08 (038745)

Could I ask the Paulas (and everyone else who posts with just a first name) to use either a last name initial or a state initial after your name so that we can distinuish one from the other? We want to know you both! B.

Re: Anyone ever have doctor trouble??, Please talk to me.

carolj on 2/23/01 at 18:15 (039758)

i have had this nightmare in both feet worse in the right for approx. 11/2
years i have been to a podiatrist and went faithfully i actually was so
desperate for relief i let him give me a total of 24 (12 ib each) cortisone
and some sort of lidocaine. ialso went to physical therapy also faithfully
with whirlpool, ultrasound and massage. when tx. was complete, symptoms
returned, then i was off to the wonderful u of mi. med sport. I was given
an an internal emg which showed severe damage, which was also pooh-poohed
by the doc. I wear magnetic inserts in my clogs, wear my night splint to
bed and while relaxing, and sleep with ice packs on my feet brrrrrrrrrrr
after work my feet sometimes are double size. i am currently only taking
aspirin for pain motrin is useless, these docs (some) are terrified of
treating pain, which i believe is a huge problem. it seems almost inhumane
to experience it and i'm sure there are people much worse than myself.so
i know how you guys feel, good luck!!!!

Re: Anyone ever have doctor trouble??, Please talk to me.

Barbara TX on 2/24/01 at 09:29 (039786)

Carol - I too have had some doctor troubles in the past. You really do need to take your EMG results/x-rays, etc. and get to a doctor who explains to you IN DETAIL the damage he sees and constructs for you a plan to help resolve it. You must insist on and MRI if you haven't already! I know there are doctors out there just like this. Although finding one is a big hassle, you will feel great when you finally meet with success! Good luck! B.