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not getting better

Posted by L De Young on 2/20/01 at 13:04 (039462)

I have had PF for two years now, in both feet. This is the most insane disease, without any direct answers. I am now unemployed, and filing for Social Security disability. How do you explan this disease to someone who doesn't know anyone who has had it? I've tried everything, almost (no surgery). Nice to know I'm not alone.

Re: not getting better

Steve P on 2/20/01 at 16:19 (039479)

So sorry to hear about this! I take it that your employer wasn't able to restructure your job or reassign your duties so that you could keep working. Your doctor should be able to sign off on your disability application, I would think.

Have you considered ESWT? There's plenty of info about it on this website. It's often an appropriate treatment for those who have tried everything short of surgery.

Best of luck to you.........Steve

Re: not getting better

Brian G on 2/20/01 at 18:48 (039488)

Hi L,

I know exactlly how you feel, and I've been battling PF for over 7 years. About the SSD, do you have a lawyer yet? What do you think your chances are for being approved? I know I would not be able to work without long acting pain meds. Have you looked into the opiates yet, L?

Does anyone know of anybody who has been approved for SSD that suffers from PF? I have often wondered about this.

Regards
BG

Re: not getting better

Paula G. on 2/20/01 at 19:15 (039491)

I have often wondered about the disability issue. I know there is a disability act that employers MUST, by law, follow when a person is under a doctor's care and has doctor's orders. I was a cashier at a store, and my employer had to give me specific hours and something to sit on if I needed it.
I don't think the issue is that with PF a person cannot work, it is just specific things that we cannot do. What exactly is your job? Must you do a lot of walking, or what I think is worse is standing.

Re: not getting better

LDY on 2/20/01 at 20:21 (039502)

My occupation was just to strenious, so after 20 years, I decided to try a a career change. My next two jobs were no better. I didn't tell my new jobs about the PF or I won't have gotten the jobs. I quit these jobs because I was just to uncomfortable.

My doctor did do the disability paperwork, and I now am waiting to talk to a PHD tomorrow, paid for by Social Security. How do you tell someone that 'my feet hurt'? The first couple of steps are the worse. I have to take medication to handle the pain. The pain never really goes away. I can walk pretty good after I get going, so I don't look disabled.

I will look into 'ESWT'. As you know, we'll try almost anything.

Re: not getting better

LDY on 2/20/01 at 21:06 (039515)

No lawyer, I'm going it alone. I don't know anyone who has received SS disability for PF. But I'm sure with as many sufferers, someone has or more will soon.

Re: not getting better

LDY on 2/20/01 at 21:10 (039516)

I was a marketing manager for a casino. Not the type of job for sore feet. Just being able to work a whole day,is not possible because of the discomfort and medication. I have to rest my feet.

Do you have PF? How are you doing?

Re: not getting better

Julie on 2/21/01 at 02:26 (039530)

Dear L

I am sorry too that you are not getting better, and I agree with Steve that you ought to investigate ESWT. You say you've tried almost everything, but that can mean different things to different people! May I suggest that you read and print out and study the PF Book (link on the home page of this site) if you haven't already done so? Something you perhaps haven't tried may leap out at you, and may be the key to improvement or at least relief.

Taping is helpful to many people with classic PF, including me. Have a look at the taping section in part 2 of the PF Book. The first, simplest method illustrated has been very effective for me. Taping can also make it easier to 'explain' your condition (there's nothing like a bandage to convince sceptics that something is really the matter!)

I know the frustration of trying to explain PF to someone who has never heard of it. I always say, immediately, that it is an injury (people understand that word, especially if reinforced by a sight of the tape). If I judge that they are likely to understand the technicalities, I then explain about the plantar fascia; if not, I just say that it's a tearing of the muscle away from the heelbone. Most people will cringe at the word 'tear'.

No, you're not alone, so keep reading and posting and keep your spirits up as much as you can.

All the best

Julie

Re: not getting better

ldy on 2/21/01 at 09:56 (039545)

Thank you Julie. I have used taping, but like your suggestions, anything I can do to convince the sceptics.

Has anyone ever have success with SS disability?

Re: not getting better

Ellen W on 2/21/01 at 17:09 (039576)

Dear Idy,

I attended a conference 2 years ago at which there was a speaker from the Social Security Administration, Social Insurance Disability Program.

Here are the applicable notes on what she said, which were included in a report published by the Department of Health and Human Services. I apologize for the length of this post, but I found it very instructive on what Social Security looks for, and since disability coverage may be of interst to a lot of people on this board, I thought people might find it interesting.

Here is some of what was covered:
Social Security has 2 benefits programs: Title II, in hwich eligibility is based on work history, and Title XVI, Supplemental Security Income (SSI), in which eligibility is based on need.

When it processes a Title II claim, the first thing that the Social Security Office must kdo is determine that a claimant meets the insured status requirement--that is, that he or she has worked long enough to qualilfy. For SSI benefits, Social Security determines whether or not a person's income and resources fall within eligibility limits.

Social Security's definition of disability requires that a person have an impairment that will prevent him or her from working and would/or has prevented them for working for at least 12 months. In order to determine disability, Social Security follows a sequential evaluation process. First, someone has to have a medically determined impairment. The next two steps are to 'screen out.' If the person is working, and making $500 a month, SS would not find a person disabled no matter what the impairment is, because they still have the ability to work. In the second step, the agency determines how severe the impairment is and whether it impacts on any work-related activity. If it did not, a person would not be found to be disabled. At the third step, the disability examiner checks to see if the impairment meets the medical criteion in Social Security's llistings of impairments. The agency takes a look at what residual functional capacity the person has left and after determining kthat, what kind of work the person can perform. If they can still do their former occupation, then SS would find them not disabled. If they can't the agency looks for other types of work that can be done.

Claimants can appeal decisions. Recommendation is done at the State Disability Determination Agency by a different group of people than the initial reviewers.

To be eligible for Social Security benefits, a claimnat has to be, or has to expect to be, out of work for a year.

Medical evidence must meet criteria for severity. Sometimes, Social Security wants to know more about the impairment from a doctor or clinic. Does the evidence describe what the total symptoms are and how a person is reacting, or is collateral evidence necessary to find out what the person's dailyl activities are and how they function.

Ellen

Re: not getting better

Brian G on 2/21/01 at 19:02 (039590)

Good luck L,

I have aso heard that it 'helps' to have some depression. You might want to talk to your doc about an anti-depressant if your not already on one.

Regards
BG

Re: not getting better

Dr. Zuckerman on 2/21/01 at 21:33 (039603)

Hi,

If there are any questions or if you could fill out the plantar fascia data survey and e-mail it to me I will try to determine if ESWT could help you.

Re: not getting better

Pauline on 2/22/01 at 11:07 (039639)

I know what you are saying. My first round of PF lasted 2 1/2 years.
Before you consider surgery, I'd take Dr. Z up on his offer. Fill out the form and see if ESWT can help you. I'd put my money on ESWT first before any surgery.

Re: not getting better

Cynthia D on 2/22/01 at 11:44 (039645)

L: I know what you mean about people not understanding pf, and the difficulty explaining it. You don't look disabled, and you can participate in life up to a degree. When the pain kicks in, you are floored and the next day, you are walking around (after the first painful few steps). That to me was one of the worse effects of this disease. Now that I have had ESWT (two weeks ago), I started telling people that I tore my muscle off the heel from tennis and had it repaired. That seems to satisfy most inquiries.

I used to explain that my feet were only good for a few hundred or less steps a day, and I had to pick and choose where I would use up my steps until my feet were tired. Standing still put me in excruciating pain, so I would lean, or sit whenever possible, even in the grocery store. I would explain I had used up all my steps for the day. People 'sort of' understood that.

You have some good advice here so I won't add any more, but I wish you luck.

Re: LDY, please write to me

Brian G on 2/23/01 at 14:52 (039741)

Hi LDY,

Please send me an E-mail if you would. Since I'm thinking about SSD myself, I'd like to be in contact with someone who is going through the process. I've had PF for over 7 years, and I am only able to work with the help of pain meds. We may be able to help each other, I have some good web contacts I could share.

Regards
Brian G

Re: LDY, please write to me

LDY on 2/27/01 at 10:31 (039994)

Brian, sorry this took me so long, I've been away from the computer lately. I now am waiting for SSD's decision on my disability. What kind of work are you doing? What are you taking for medication?

Re: not getting better

LDY on 2/27/01 at 10:38 (039996)

Thank you for the information. I knew most of the findings, but wonder if my husbands income would disqualify me from disability. I am waiting for SSD's dicission.

Re: I think E-mail would be best

Brian G on 2/27/01 at 23:31 (040046)

Hi LDY,

I did get your E-mail, thanks. I've been working for a large hi-tech campany for the past 18 years. Lots of concrete and tile floors. Not to mention the safety shoes. I'm surprised more of us didn't end up with PF! I have had the heel pain for over 7 years now, and am in the process of looking for a different job, a sit down job. If this new job doesn't work out, I'll probably be filing also.

Rather than discussing my meds here, I'd like to take it to E-mail. Do you have a free account? I use Hotmail, just go to http://www.MSN.com and register. I can point you in the direction of a message board dealing with SSD, as well as other helpful boards on many different neurological type problems. They have chat rooms also. I'm thinking two heads are better than one, plus it's only a matter of time before this thread is burried. Hope to hear from you again.

Brian G

Re: not getting better

Steve P on 2/20/01 at 16:19 (039479)

So sorry to hear about this! I take it that your employer wasn't able to restructure your job or reassign your duties so that you could keep working. Your doctor should be able to sign off on your disability application, I would think.

Have you considered ESWT? There's plenty of info about it on this website. It's often an appropriate treatment for those who have tried everything short of surgery.

Best of luck to you.........Steve

Re: not getting better

Brian G on 2/20/01 at 18:48 (039488)

Hi L,

I know exactlly how you feel, and I've been battling PF for over 7 years. About the SSD, do you have a lawyer yet? What do you think your chances are for being approved? I know I would not be able to work without long acting pain meds. Have you looked into the opiates yet, L?

Does anyone know of anybody who has been approved for SSD that suffers from PF? I have often wondered about this.

Regards
BG

Re: not getting better

Paula G. on 2/20/01 at 19:15 (039491)

I have often wondered about the disability issue. I know there is a disability act that employers MUST, by law, follow when a person is under a doctor's care and has doctor's orders. I was a cashier at a store, and my employer had to give me specific hours and something to sit on if I needed it.
I don't think the issue is that with PF a person cannot work, it is just specific things that we cannot do. What exactly is your job? Must you do a lot of walking, or what I think is worse is standing.

Re: not getting better

LDY on 2/20/01 at 20:21 (039502)

My occupation was just to strenious, so after 20 years, I decided to try a a career change. My next two jobs were no better. I didn't tell my new jobs about the PF or I won't have gotten the jobs. I quit these jobs because I was just to uncomfortable.

My doctor did do the disability paperwork, and I now am waiting to talk to a PHD tomorrow, paid for by Social Security. How do you tell someone that 'my feet hurt'? The first couple of steps are the worse. I have to take medication to handle the pain. The pain never really goes away. I can walk pretty good after I get going, so I don't look disabled.

I will look into 'ESWT'. As you know, we'll try almost anything.

Re: not getting better

LDY on 2/20/01 at 21:06 (039515)

No lawyer, I'm going it alone. I don't know anyone who has received SS disability for PF. But I'm sure with as many sufferers, someone has or more will soon.

Re: not getting better

LDY on 2/20/01 at 21:10 (039516)

I was a marketing manager for a casino. Not the type of job for sore feet. Just being able to work a whole day,is not possible because of the discomfort and medication. I have to rest my feet.

Do you have PF? How are you doing?

Re: not getting better

Julie on 2/21/01 at 02:26 (039530)

Dear L

I am sorry too that you are not getting better, and I agree with Steve that you ought to investigate ESWT. You say you've tried almost everything, but that can mean different things to different people! May I suggest that you read and print out and study the PF Book (link on the home page of this site) if you haven't already done so? Something you perhaps haven't tried may leap out at you, and may be the key to improvement or at least relief.

Taping is helpful to many people with classic PF, including me. Have a look at the taping section in part 2 of the PF Book. The first, simplest method illustrated has been very effective for me. Taping can also make it easier to 'explain' your condition (there's nothing like a bandage to convince sceptics that something is really the matter!)

I know the frustration of trying to explain PF to someone who has never heard of it. I always say, immediately, that it is an injury (people understand that word, especially if reinforced by a sight of the tape). If I judge that they are likely to understand the technicalities, I then explain about the plantar fascia; if not, I just say that it's a tearing of the muscle away from the heelbone. Most people will cringe at the word 'tear'.

No, you're not alone, so keep reading and posting and keep your spirits up as much as you can.

All the best

Julie

Re: not getting better

ldy on 2/21/01 at 09:56 (039545)

Thank you Julie. I have used taping, but like your suggestions, anything I can do to convince the sceptics.

Has anyone ever have success with SS disability?

Re: not getting better

Ellen W on 2/21/01 at 17:09 (039576)

Dear Idy,

I attended a conference 2 years ago at which there was a speaker from the Social Security Administration, Social Insurance Disability Program.

Here are the applicable notes on what she said, which were included in a report published by the Department of Health and Human Services. I apologize for the length of this post, but I found it very instructive on what Social Security looks for, and since disability coverage may be of interst to a lot of people on this board, I thought people might find it interesting.

Here is some of what was covered:
Social Security has 2 benefits programs: Title II, in hwich eligibility is based on work history, and Title XVI, Supplemental Security Income (SSI), in which eligibility is based on need.

When it processes a Title II claim, the first thing that the Social Security Office must kdo is determine that a claimant meets the insured status requirement--that is, that he or she has worked long enough to qualilfy. For SSI benefits, Social Security determines whether or not a person's income and resources fall within eligibility limits.

Social Security's definition of disability requires that a person have an impairment that will prevent him or her from working and would/or has prevented them for working for at least 12 months. In order to determine disability, Social Security follows a sequential evaluation process. First, someone has to have a medically determined impairment. The next two steps are to 'screen out.' If the person is working, and making $500 a month, SS would not find a person disabled no matter what the impairment is, because they still have the ability to work. In the second step, the agency determines how severe the impairment is and whether it impacts on any work-related activity. If it did not, a person would not be found to be disabled. At the third step, the disability examiner checks to see if the impairment meets the medical criteion in Social Security's llistings of impairments. The agency takes a look at what residual functional capacity the person has left and after determining kthat, what kind of work the person can perform. If they can still do their former occupation, then SS would find them not disabled. If they can't the agency looks for other types of work that can be done.

Claimants can appeal decisions. Recommendation is done at the State Disability Determination Agency by a different group of people than the initial reviewers.

To be eligible for Social Security benefits, a claimnat has to be, or has to expect to be, out of work for a year.

Medical evidence must meet criteria for severity. Sometimes, Social Security wants to know more about the impairment from a doctor or clinic. Does the evidence describe what the total symptoms are and how a person is reacting, or is collateral evidence necessary to find out what the person's dailyl activities are and how they function.

Ellen

Re: not getting better

Brian G on 2/21/01 at 19:02 (039590)

Good luck L,

I have aso heard that it 'helps' to have some depression. You might want to talk to your doc about an anti-depressant if your not already on one.

Regards
BG

Re: not getting better

Dr. Zuckerman on 2/21/01 at 21:33 (039603)

Hi,

If there are any questions or if you could fill out the plantar fascia data survey and e-mail it to me I will try to determine if ESWT could help you.

Re: not getting better

Pauline on 2/22/01 at 11:07 (039639)

I know what you are saying. My first round of PF lasted 2 1/2 years.
Before you consider surgery, I'd take Dr. Z up on his offer. Fill out the form and see if ESWT can help you. I'd put my money on ESWT first before any surgery.

Re: not getting better

Cynthia D on 2/22/01 at 11:44 (039645)

L: I know what you mean about people not understanding pf, and the difficulty explaining it. You don't look disabled, and you can participate in life up to a degree. When the pain kicks in, you are floored and the next day, you are walking around (after the first painful few steps). That to me was one of the worse effects of this disease. Now that I have had ESWT (two weeks ago), I started telling people that I tore my muscle off the heel from tennis and had it repaired. That seems to satisfy most inquiries.

I used to explain that my feet were only good for a few hundred or less steps a day, and I had to pick and choose where I would use up my steps until my feet were tired. Standing still put me in excruciating pain, so I would lean, or sit whenever possible, even in the grocery store. I would explain I had used up all my steps for the day. People 'sort of' understood that.

You have some good advice here so I won't add any more, but I wish you luck.

Re: LDY, please write to me

Brian G on 2/23/01 at 14:52 (039741)

Hi LDY,

Please send me an E-mail if you would. Since I'm thinking about SSD myself, I'd like to be in contact with someone who is going through the process. I've had PF for over 7 years, and I am only able to work with the help of pain meds. We may be able to help each other, I have some good web contacts I could share.

Regards
Brian G

Re: LDY, please write to me

LDY on 2/27/01 at 10:31 (039994)

Brian, sorry this took me so long, I've been away from the computer lately. I now am waiting for SSD's decision on my disability. What kind of work are you doing? What are you taking for medication?

Re: not getting better

LDY on 2/27/01 at 10:38 (039996)

Thank you for the information. I knew most of the findings, but wonder if my husbands income would disqualify me from disability. I am waiting for SSD's dicission.

Re: I think E-mail would be best

Brian G on 2/27/01 at 23:31 (040046)

Hi LDY,

I did get your E-mail, thanks. I've been working for a large hi-tech campany for the past 18 years. Lots of concrete and tile floors. Not to mention the safety shoes. I'm surprised more of us didn't end up with PF! I have had the heel pain for over 7 years now, and am in the process of looking for a different job, a sit down job. If this new job doesn't work out, I'll probably be filing also.

Rather than discussing my meds here, I'd like to take it to E-mail. Do you have a free account? I use Hotmail, just go to http://www.MSN.com and register. I can point you in the direction of a message board dealing with SSD, as well as other helpful boards on many different neurological type problems. They have chat rooms also. I'm thinking two heads are better than one, plus it's only a matter of time before this thread is burried. Hope to hear from you again.

Brian G