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I'm doing better, from head to toe

Posted by Kim B. on 3/18/01 at 23:58 (041826)

Hi Gang, I've been busy lately. My husband has a new grand baby girl, and we've been running back and forth a bit more than usual to help bring in the newest member of the family.

My sinus are actually doing very well. It appears that I am going to get some benefit from the sinus operation. The real test will be if, over the long haul, my chronic sinus infections discontinue.

I haven't been posting as much because I'm trying to get more sleep lately to help with my Fibromyagia (FM) problems. I have to cut some time out somewhere to do this, so computer time is being cut into for need of more rest.

Another reason you guy aren't hearing as much from me lately is because my feet are doing so much better! The reason for this is the Methadone pain medication I am taking for my FM, is working great on my foot pain. It's not for everyone, I know. Women of child bearing years are probably not good candidtes for example, but PF defiantely responds to it. I hope this little bit of information may help someone who is at their wits end. And condider yourselves updated.

Gotta Run, (walk)

Kim B.

Re: I'm doing better, from head to toe

Brian G on 3/19/01 at 08:48 (041840)

Thank God for pain meds, without which, I would not be working. Keep on healing Kim.

BG

Re: I'm doing better, from head to toe

Pauline on 3/19/01 at 10:48 (041848)

Kim,
Glad your back posting and your surgery went well. Looking forward to hearing about the rewards you get from having had the surgery and if you would recommend it to others.

Re: I'm doing better, from head to toe

Beverly on 3/19/01 at 11:53 (041850)

Kim,

This is terrific! Glad to hear you are better from head to toe!
Beverly

Re: I'm doing better, from head to toe

Celia on 3/19/01 at 14:59 (041864)

That's great, Kim! Now remember, you don't want that darn thing creeping up again so take it easy whenever you do something. So how long have you been taking it? I'm already on my third refill and haven't really felt much relief. On top of that I've been receiving cortizone treatment thru skin penetration and it kills! I don't know if I should continue the Medrol once I finish this pack.

Re: I'm doing better, from head to toe

methadone? on 3/19/01 at 15:29 (041870)

i've been in horrible pain for 9 months. methadone? where do i get some, what kind of doctor prescibes it? what are the dangers of side effects?

Re: I'm doing better, from head to toe

paula g on 3/19/01 at 15:31 (041872)

sorry, my name isn't methadone, but if it works i may change my name to that. it's kinda catchy

Re: Oops! Did you say Methadone???

Celia on 3/19/01 at 17:28 (041882)

Okay, Kim. I've got the wrong medicine here. I thought I read Medrol!! Sheesh! I hate Mondays!

Re: Information on Methadone (Long Post)

Kim B. on 3/19/01 at 21:00 (041900)

Methadone is a long acting, opinoid medication. It's all natural which is the good part. Doctors are stingy about using it, is the bad part. It is a controlled substance and Doctors have to answer to state and federal officials about whom and why it is given. But when everything is legitmate, they have nothing to fear. It is preferably, a last resort for managing many severe pain illnesses and again, is not administered lightly, because of the red tape that surrounds it. I tired a number of different pain meds before we reluctantly gave the Methadone a try. It has a misunderstood reputaion for being addictive mainly because of it's misuse by people who abuse drugs or use them as 'recreational drugs'. Because of this abuse history, some doctors and branches of the drug inforcement agencies are 'throwing the baby out with the bath water!' It is not so much that it is 'addictive' so to speak, although one could definitely get addicted to good pain control, after a lot of suffering with a life altering illness. I don't understand everything about it, but as your liver learns to metabolize a certain amount, to get the same level of pain control, some people will have to 'go up' on their dose. Of course, it's best to stay at low doses for as long as possible. To do this, you still have to manage your ailment in other ways. Don't start over using and abusing the parts that you are trying to get healed, for one example.

For those who have real pain, there is no euphoric feeling received from it, but because of it's abuse by persons that don't need it, it is highly controlled and considered 'addictive'. This is a strong misrepresentation. From what I understand, it is the drug abusers who become addicted to it because of the high they might get. Persons with real pain issues will not get a high or buzz from it. The pain receptors absorb it, and turns the pain signal off.

And because the body gets used to metabolizing it, it can't be quit cold turkey and like many other meds has to be tapered off slowly when it is no longer needed, or a persons will go through terrible withdrawal symptoms, like stomach pain, chills and fever, sweats, etc. It is a medicine that must be administered and over-seen by a very competent Physician.

I work with an Internist physican for my FM problems. Pain Management Specialist are also very knowledgeable and experienced with the use of long acting opiniods. Unfortunately, women who are at risk of becoming pregnant may be more liability than most docs care to take on. Since I am no longer able to have kids, that is one of the things that makes my doc, at least a little more comfortable, in prescibing it for me. Men shouldn't have this complication to deal with.

It takes 3 days to line out in your system, meaning, the does I take today is for 3 days from now. Likewise, the dose I took 3 days ago is easing my pain today.

It is not a short-term pain medication. Moreover, there is a lot to learn and consider about it before using it as a treatment. My husband even had to be consulted and agree to the use of the drug for my pain problems, so as you can imagine, we put it off until my quality of life was so bad that it made more sense to give it a try than not. It is more for long-term control for a long-term problem. Persons with new PF are not good candidates because if their case is not chronic, the Vioxx and other meds may make more sense. However, for many people with long term or chronic PF that is not going away in a few months, it may be a solution to getting back into life.

I've lost weight on this mediation because, I think it raises my metabolism AND because since my pain is greatly diminished, my activity level is so much higher. That for me is one of the reasons that this med makes so much sense for person's with PF, since the docs say, loose weight, etc. This med helps with excess weight and in my case cancels a lot of the pain. IT IS A DAMN TWO FOR ONE! I do not understand why docs have this med at their disposal yet still allow people to suffer while they watch their livelihoods go down the drain.

I found out by accident that my PF pain would benefit from this medicine. As I said, I started taking it for my FM, on a trial basis to see if it would respond. My feet pain being relieved was a side benefit. May be that my PF is FM related, or it may be that EVERYONE with foot pain would benefit from it. It is good for nerve type pain, and so even the TTS folks might.

I hope to taper off and discontinue it when and if my Fibromyalgia (FM) problems are ever resolved. ESWT is still a possibility for my feet too, if insurance and the doctors decide it is a good option for me.

Long acting opinoids like Methadone have been around for so long that they are very inexpensive, which means even people without health insurance can probably afford them. 3-month supply was about $37, I think. Less for those with health insurance. Why is this readily available, inexpensive medicine being kept from people who are good candidates for it? In addition, unlike other pain meds that have a lot of synthetic man made crap in them, I have no stomach upset from the use of Methadone. My only complaint is some constipation, but I had that in the form of IBS, irritable bowel syndrome, anyway. Hope this information helps someone out there regain their life and/or keeps someone from loosing their mind. I was at my wits end with the FM and the PF illnesses, and I cannot forget the anguish and suffering even if I try.

Study and learn as much as possible about it and whether it may or may not be right for you. Find a compassionate doctor and ask for a low dose trial of the medicine. If your feet respond to it, great! If not, at least you tried. From what I understand, the Methadone dose lasts for 24 hours. At first, I only took a low dose once a day. Now that my body had adjusted to it, I do require more in my system, but this medicine has made a world of difference and for many, it is worth investigating.

Btw, here is a web site that advocates the use of appropriate use of these stronger types of pain medicines. There is a section on how to go about locating a doctor that is compassionate, experienced and unafraid to prescribe this stronger type of pain treatment.

http://www.widomaker.com/~skipb/skiphome.htm.html is ASAP the American Society for Action on Pain.

Regards from me.

Re: Information on Methadone (Long Post)

Brian G on 3/20/01 at 10:09 (041932)

Thanks for the post Kim, very informative. Yes, it's quite a commitment to begin the long acting pain meds. In many cases it's the difference between uncontrolled suffering and holding down a job. I'd like to add that Methadone does have a long 1/2 life, which allows people on addiction treatment programs to take it once a day. The pain relieving properties do not last that long. A good many people that use it, take it 4 times a day. Another good site to check out is http://www.pain.com At the bottom on the home page is a list of doctors and clinics that 'may' prescribe Methadone. Not all pain clinics / docs will prescribe it. Good luck

BG

Re: Thanks for the link Brian. (eom)

Kim B. on 3/20/01 at 22:46 (042015)

eom = end of message. :-)

Re: I'm doing better, from head to toe

Brian G on 3/19/01 at 08:48 (041840)

Thank God for pain meds, without which, I would not be working. Keep on healing Kim.

BG

Re: I'm doing better, from head to toe

Pauline on 3/19/01 at 10:48 (041848)

Kim,
Glad your back posting and your surgery went well. Looking forward to hearing about the rewards you get from having had the surgery and if you would recommend it to others.

Re: I'm doing better, from head to toe

Beverly on 3/19/01 at 11:53 (041850)

Kim,

This is terrific! Glad to hear you are better from head to toe!
Beverly

Re: I'm doing better, from head to toe

Celia on 3/19/01 at 14:59 (041864)

That's great, Kim! Now remember, you don't want that darn thing creeping up again so take it easy whenever you do something. So how long have you been taking it? I'm already on my third refill and haven't really felt much relief. On top of that I've been receiving cortizone treatment thru skin penetration and it kills! I don't know if I should continue the Medrol once I finish this pack.

Re: I'm doing better, from head to toe

methadone? on 3/19/01 at 15:29 (041870)

i've been in horrible pain for 9 months. methadone? where do i get some, what kind of doctor prescibes it? what are the dangers of side effects?

Re: I'm doing better, from head to toe

paula g on 3/19/01 at 15:31 (041872)

sorry, my name isn't methadone, but if it works i may change my name to that. it's kinda catchy

Re: Oops! Did you say Methadone???

Celia on 3/19/01 at 17:28 (041882)

Okay, Kim. I've got the wrong medicine here. I thought I read Medrol!! Sheesh! I hate Mondays!

Re: Information on Methadone (Long Post)

Kim B. on 3/19/01 at 21:00 (041900)

Methadone is a long acting, opinoid medication. It's all natural which is the good part. Doctors are stingy about using it, is the bad part. It is a controlled substance and Doctors have to answer to state and federal officials about whom and why it is given. But when everything is legitmate, they have nothing to fear. It is preferably, a last resort for managing many severe pain illnesses and again, is not administered lightly, because of the red tape that surrounds it. I tired a number of different pain meds before we reluctantly gave the Methadone a try. It has a misunderstood reputaion for being addictive mainly because of it's misuse by people who abuse drugs or use them as 'recreational drugs'. Because of this abuse history, some doctors and branches of the drug inforcement agencies are 'throwing the baby out with the bath water!' It is not so much that it is 'addictive' so to speak, although one could definitely get addicted to good pain control, after a lot of suffering with a life altering illness. I don't understand everything about it, but as your liver learns to metabolize a certain amount, to get the same level of pain control, some people will have to 'go up' on their dose. Of course, it's best to stay at low doses for as long as possible. To do this, you still have to manage your ailment in other ways. Don't start over using and abusing the parts that you are trying to get healed, for one example.

For those who have real pain, there is no euphoric feeling received from it, but because of it's abuse by persons that don't need it, it is highly controlled and considered 'addictive'. This is a strong misrepresentation. From what I understand, it is the drug abusers who become addicted to it because of the high they might get. Persons with real pain issues will not get a high or buzz from it. The pain receptors absorb it, and turns the pain signal off.

And because the body gets used to metabolizing it, it can't be quit cold turkey and like many other meds has to be tapered off slowly when it is no longer needed, or a persons will go through terrible withdrawal symptoms, like stomach pain, chills and fever, sweats, etc. It is a medicine that must be administered and over-seen by a very competent Physician.

I work with an Internist physican for my FM problems. Pain Management Specialist are also very knowledgeable and experienced with the use of long acting opiniods. Unfortunately, women who are at risk of becoming pregnant may be more liability than most docs care to take on. Since I am no longer able to have kids, that is one of the things that makes my doc, at least a little more comfortable, in prescibing it for me. Men shouldn't have this complication to deal with.

It takes 3 days to line out in your system, meaning, the does I take today is for 3 days from now. Likewise, the dose I took 3 days ago is easing my pain today.

It is not a short-term pain medication. Moreover, there is a lot to learn and consider about it before using it as a treatment. My husband even had to be consulted and agree to the use of the drug for my pain problems, so as you can imagine, we put it off until my quality of life was so bad that it made more sense to give it a try than not. It is more for long-term control for a long-term problem. Persons with new PF are not good candidates because if their case is not chronic, the Vioxx and other meds may make more sense. However, for many people with long term or chronic PF that is not going away in a few months, it may be a solution to getting back into life.

I've lost weight on this mediation because, I think it raises my metabolism AND because since my pain is greatly diminished, my activity level is so much higher. That for me is one of the reasons that this med makes so much sense for person's with PF, since the docs say, loose weight, etc. This med helps with excess weight and in my case cancels a lot of the pain. IT IS A DAMN TWO FOR ONE! I do not understand why docs have this med at their disposal yet still allow people to suffer while they watch their livelihoods go down the drain.

I found out by accident that my PF pain would benefit from this medicine. As I said, I started taking it for my FM, on a trial basis to see if it would respond. My feet pain being relieved was a side benefit. May be that my PF is FM related, or it may be that EVERYONE with foot pain would benefit from it. It is good for nerve type pain, and so even the TTS folks might.

I hope to taper off and discontinue it when and if my Fibromyalgia (FM) problems are ever resolved. ESWT is still a possibility for my feet too, if insurance and the doctors decide it is a good option for me.

Long acting opinoids like Methadone have been around for so long that they are very inexpensive, which means even people without health insurance can probably afford them. 3-month supply was about $37, I think. Less for those with health insurance. Why is this readily available, inexpensive medicine being kept from people who are good candidates for it? In addition, unlike other pain meds that have a lot of synthetic man made crap in them, I have no stomach upset from the use of Methadone. My only complaint is some constipation, but I had that in the form of IBS, irritable bowel syndrome, anyway. Hope this information helps someone out there regain their life and/or keeps someone from loosing their mind. I was at my wits end with the FM and the PF illnesses, and I cannot forget the anguish and suffering even if I try.

Study and learn as much as possible about it and whether it may or may not be right for you. Find a compassionate doctor and ask for a low dose trial of the medicine. If your feet respond to it, great! If not, at least you tried. From what I understand, the Methadone dose lasts for 24 hours. At first, I only took a low dose once a day. Now that my body had adjusted to it, I do require more in my system, but this medicine has made a world of difference and for many, it is worth investigating.

Btw, here is a web site that advocates the use of appropriate use of these stronger types of pain medicines. There is a section on how to go about locating a doctor that is compassionate, experienced and unafraid to prescribe this stronger type of pain treatment.

http://www.widomaker.com/~skipb/skiphome.htm.html is ASAP the American Society for Action on Pain.

Regards from me.

Re: Information on Methadone (Long Post)

Brian G on 3/20/01 at 10:09 (041932)

Thanks for the post Kim, very informative. Yes, it's quite a commitment to begin the long acting pain meds. In many cases it's the difference between uncontrolled suffering and holding down a job. I'd like to add that Methadone does have a long 1/2 life, which allows people on addiction treatment programs to take it once a day. The pain relieving properties do not last that long. A good many people that use it, take it 4 times a day. Another good site to check out is http://www.pain.com At the bottom on the home page is a list of doctors and clinics that 'may' prescribe Methadone. Not all pain clinics / docs will prescribe it. Good luck

BG

Re: Thanks for the link Brian. (eom)

Kim B. on 3/20/01 at 22:46 (042015)

eom = end of message. :-)