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Surgical updates???

Posted by wendyn on 3/25/01 at 21:10 (042455)

I know that there are a bunch (well a few) of you out there who have had TTS surgery (some with good results and some with bad). I'd really like to include a section in the FAQ with peoples comments and feelings about the sugery (preferably a good cross section of pros and cons to keep it balanced). If you can spare a few minutes - can you outline a brief history, your sugery - and how you're doing now? I'll add them to that part of the document so that future visitors have some experiences to help them with their decisions.

Thank you thank you thank you.

Re: Surgical updates???

chris d on 3/26/01 at hrmin (042540)

Here goes...pain began in Jan 2000...Initial dx of Plantar facistis (PF) tx heel wrap, injection, anti-inflamatories....PT; ultrasound, massage, ice then some sort of electrode thing. Inserts, then custom-made inserts, finally walking cast before referral to specialist. Specialist did 3 injections, inserts (again!) and exercises. Sp. decided that it may TTS and scheduled an ENG which was positive for TTS. Surgery was on NOv 8th..PF release and TTS...PF is absolutely fine, no pain whatsoever and i'm very thankfull i had PF surgery. Initially, i was not so pleased with TTS, felt that the pain was just as and sometimes worse than before surgery. Referred to PT again with wonderous results...they worked me hard and it was worth it! Practically pain free! Interesting note: 2 years ago I was dx with a bunion on same foot with pain on big toe bone and on the top of the foot...following surgery that pain is gone! Feel free to e-mail me if you have further questions or need any clarifications.

Re: Surgical updates???

Scott2 on 3/26/01 at 15:33 (042551)

Wendy,

I posted my info a few weeks ago and here it is again for your reference:

Profile:

Male, 33 years old
Good health (except for the foot of course)

Surgery - Feb 16, 2001 (PF Release and Distal Tarsal Tunnel Release)
Stitches Removed - Mar 5
Crutches and non weight bearing - until Mar 5
Two crutches and partial weight bearing (cam-walker) - through Mar 8
One crutch and cam-walker - Mar 9
Cam-walker only - Mar 10 to March 25
Soft shoe (running, slip-on) - March 26

Doctor said the surgery went well as the nerve was entrapped. Swelling is all gone in foot. Incision is pretty much healed. I am doing exercises to strengthen and stretch the foot (range of motion and assisted heel raises). I am also riding the recumbent bike at the club for 20-30 minutes. Manual test done by doctor (tapping) to check for any tingling or discomfort was negative - which is good. Heel still tender to touch due to PF release.

I feel that my recovery really picked up after the stitches were removed. The first two weeks were really tough with discomfort and not being able to bear any weight. I took pain medication now and then.

I was instructed to wear the cam-walker for two more weeks and then a running shoe for two weeks after that. I am just starting to ease back into shoes and it feels weird and I cannot take wearing the shoe very long as my foot fatigues easily. My calf muscle has really atrophied as well.

At this point, I cannot say the surgery was a success or not until I can put on a pair of running shoes and go for a run without any pain - which I feel is still a ways down the road.

Re: Surgical updates???

wendyn on 3/26/01 at 17:25 (042562)

Thank you Scott - I had seen your other post but I didn't want to include it in the FAQ without your permission since that wasn't the intent when you posted it the first time.

I would be happy to include it - but PLEASE PLEASE PLEASE don't disappear on us! Keep us informed of your progress and recovery, it's so important for other patients to have someone 'who's been there' still around.

Re: Surgical updates???

wendyn on 3/26/01 at 17:28 (042563)

Chris - I will include yours too - Thanks!

But you stick around too please and continue to let us know how you progress. We're not likely to attract anyone to this board who had successful surgery a few years ago (since they'd be outside having fun) so it's important to hang on you!

Re: Surgical updates???

P Helm on 3/26/01 at 20:01 (042574)

I am 34 yrs old and I first starting having problems about 4-5 yrs ago. I was first diagnosed as having PF. I saw 2 Neurologists and three different sports Dr.'s.. I was diagnosed as having idiopathic Neuropathy. The Neurologists didn't think I had TTS, but I had all the symptoms of it. The last Ortho I went to seemed to think I had TTS. I had the surgery Feb. 26th 2001. As of now I can't tell if it has helped or not. It is still swollen and I have pain.. I think maybe when the swelling goes down it may feel better. When I tap around the ankle area I still feel electric shocks. The Ortho Surgeon did say I had large blood vessels trapping the nerves in my foot. Anyway, I go to the Dr . Friday the 31 st. Maybe I will know more. I am really thankful for Birkenstock sandals or else I don't think I would be getting around as well as I am. Hope this is helpful.

Re: Surgical updates???

Scott2 on 3/27/01 at 14:31 (042674)

Oh, I'll be here for some time. I have a long way to go and would like to provide enouragement and support for others because even though this is not life threatening, it sure can take a lot of fun out of life.

Re: Surgical updates???

DENNIS B. on 3/27/01 at 14:36 (042676)

I HAD TTS RELEASE ON FEB 07, 2000. NO WEIGHT BEARING FOR 2 WEEKS AND THEN WAS ALLOWED TO WEAN MYSELF OFF OF THE CRUTCHES AND GO TO FULL WEIGHT BEARING. IT IS NOW 7 WEEKS AFTER SURGERY AND I WOULD AT THIS POINT DEEM THE PROCEDURE UNSUCCESSFUL. PAIN IS STILL THERE AS IS THE 'ELECTRIC SHOCK' WHEN I TAP AROUND THE ANKLE. PRIOR TO SURGERY, I GOT RELIEF BY LAYING DOWN. NOW THE PAIN ALSO EXISTS WHILE LAYING DOWN. DROVE FOR ABOUT 1 1/2 HOURS 2 WEEKS AGO AND ALMOST FELL WHEN I GOT OUT OF THE CAR (I USED CRUISE CONTROL AND KEPT MOVING MY FEET AROUND). I HAVE TTS IN BOTH FEET. WENT TO MY ORTHO SURGEON LAST WEEK AND HE FELT THAT THE RECOVERY TIME IS GOING TO BE EXTENDED SINCE I HAD THIS CONDITION FOR OVER 2 YEARS PRIOR TO SURGERY. TODAY WALKING IS PAINFUL, SITTING IS PAINFUL AND TO A LESSER EXTENT, SO IS LAYING DOWN. MY LIFE IS PURE MISERY AND I CAN'T SEE A LIGHT AT THE END OF THE TUNNEL. I WOULD RECOMMEND THAT ANYONE CONTEMPLATING SURGERY READ ALL OF THE POSTS FROM THOSE THAT HAVE ALREADY HAD SURGERY BEFORE THEY DECIDE WHETHER OR NOT TO PROCEED WITH SURGERY.

Re: Surgical updates???

Bob R on 3/27/01 at hrmin (042702)

I'm 2 years out from TTS surgery. If I had it to do over again I wouldn't. I'm about 25% better than I was. I have tried everything. Self message and gel orthotics helped the most. Getting the right shoe was important. Most TTS sufferers are pronators. The best shoe for Pronators is the Wilson DST.

Re: Surgical updates???

Steve W on 3/28/01 at 00:01 (042744)

Hey folks, I think I know most of you since I have the Tarsal Tunnel web page.

My experience with surgery was pretty good - about 50% improvement now about 4 years after the surgery.

My doc also release what he called the 'high tarsal tunnel' area - about 4 inches above the ankle. He said mine was compressed in both places.

I'd still have the surgery again - although I wish the overall recovery odds were better.

-- Steve Williamson 'I feel your pain'

Re: Surgical updates???

Jen on 3/29/01 at 10:45 (042914)

Hi
I'm so happy to hear you are pain free!!!! What did PT do for you to help the pain that didn't help before surgery??

Jen

Re: Surgical updates???

Jen on 3/29/01 at 10:49 (042915)

I have had TTS and PF for 3 years. Are you any better at all after surgery or has been a bad decision for you? I am about to have surgery and very scared to make this decision??

Jen

Re: Surgical updates???

chris d on 3/29/01 at 11:09 (042919)

I did have PT prior to surgery that really didn't help. FOllowing surgery my foot was still swollen and the incision scar was quite painful. PT siad she was going to do scar tissue maintance (?) and excerises to strengthen the ankle...my friend was the PT tech who worked me...i had to stand on the surgical foot on a trampoline and hold that position for 30 seconds..did that 5x and then i hand to stand on 1 foot with my eyes closed for 10 seconds 5x's...then on the floor shaking a body board, shaking it 4 different ways for 30 seconds...then onto (boy this is hard to explain) I had a huge rubber band around my waist attached to a heavy exercise equipment item and stretched the band with me inside far out and had to run in place then step side to side in both directions and move forward and back...it was alot harder than it sounds, but it really worked my ankle...

Re: Surgical updates???

DENNIS B. on 3/29/01 at 13:44 (042937)

I HAVE TO BE HONEST AND SAY THAT I AM NOT ANY BETTER AFTER SURGERY. HOWEVER, THE SURGEON SAYS IT TAKES TIME, AS DO OTHERS ON THIS BOARD. MAYBE I WAS EXPECTING TOO MUCH, TOO SOON. THE FIRST FEW DAYS AFTER I WAS ABLE TO PUT WEIGHT ON THE FOOT, WHICH WAS ABOUT 2 TO 2 1/2 WEEKS AFTER SURGERY, I DEFINITELY NOTICED AN IMPROVEMENT. I THINK NOW THAT WAS PROBABLY DUE TO THE POST SURGICAL NON-WEIGHT BEARING WHICH HELPED THE FOOT THAT WAS OPERATED ON BUT IT ALSO AGGRIVATED THE OTHER FOOT WHICH ALSO HAS TTS. MOST OF WHAT I SEE HERE IS THAT PEOPLE GENERALLY ARE DOING BETTER THAN I AM, MAYBE I'M ONE OF THOSE THAT THE SURGERY DIDN'T HELP. THE ORTO SURGEON DID TELL ME GOING INTO THIS THING THAT HE FELT THERE WAS A 70 TO 75% CHANCE OF IT BEING SUCCESSFUL, SO MAYBE I'M IN THE MINORITY OF THE ODDS. I FELT AT THE TIME THAT I HAD EVERYTHING TO GAIN AND NOTHING TO LOSE BY GOING AHEAD WITH THE SURGERY AND I STILL FEEL THAT WAS THE RIGHT DECISION BASED ON THE FACTS I HAD AVAILABLE TO ME. BUT NOW IN RETROSPECT, I'M NOT SO SURE THAT I WOULD HAVE IT DONE AGAIN KNOWING WHERE I AM AT TODAY. GUESS I'LL KNOW MORE AS TIME GOES BY. ALSO YOU MAY HAVE SEEN ON ONE OF MY OTHER POSTS THAT I AM 50 YEARS OLD AND IT LOOKS TO ME LIKE THE OTHER PEOPLE ARE CONSIDERABLY YOUNGER. I BELIEVE THAT MY AGE HAS SOMETHING TO DO WITH IT. I AM CURRENTLY UNEMPLOYABLE AS I CANNOT SIT OR STAND FOR MORE THAN 20 TO 30 MINUTES AT A TIME WITHOUT HAVING TO LAY DOWN OR RECLINE IN THE CHAIR. PERHAPS MY PROBLEMS EXTEND BEYOND TTS. GOOD LUCK TO YOU ON YOUR DECISION AND IF YOU DO HAVE SURGERY, GOOD LUCK IN THAT DEPARTMENT AS WELL.

Re: Surgical updates???

Kay S on 3/29/01 at 14:59 (042946)

Hi Jen
I had tarsal tunnel release in September, 2000. I didn't think the surgery was that bad, and actually my feet were better while I was healing from the surgery. It did eliminate the numbness I had that ran alongside my foot to the little toes, and also some of the burning, but I have realized that most of my pain is now and has always been, from pf. So for me, I felt the tts was basically a waste of time. I could have lived with the numbness, etc. but this heel pain is something entirely different. I guess I thought the tts had caused some of the heel pain and I wanted so desperately for it to be true.
I had an excellent doctor and I don't think having the surgery hurt me a bit, but I am still in pain, just like before. That's the part that is so frustrating.
I hope you don't mind that I answered, even though you are looking for someone with a more positive outcome.
I hope you are in the other category after your surgery!
Good luck.
Kay

Re: Surgical updates???

wendyn on 3/30/01 at 19:54 (043096)

Steve - I thought I'd read that you were also using neurontin. Are you 50% better with or without the neurontin? Does the neurontin bring you closer to 100% or bring you up to the 50%?

Re: Surgical updates???

THEA on 3/31/01 at 18:46 (043177)

WELL I HAD SURGERY ON 3/1 AND IM DOING ALRIGHT. I HAD HALF THE STITCHES TAKEN OUT ON 3/12 AND THE REST ON 3/19. ON 3/19 DR TOLD ME I COULD PUT AS MUCH PRESSURE AS I COULD STAND. I AM WALKING OK, ALMOST NORMALLY. I HAVE BEEN WEARING TENNIS SHOES HOWEVER IN THE LAST FEW DAYS THE SHOE HAS BEEN RUBBING ON THE SCAR. THE SCAR IS STILL PRETTY TENDER. I STRETCH EVERY DAY AND HAVE BEEN WALKING THE DOG ON LONG WALKS AND RIDING MY BIKE IN THE MORNINGS. I SOMETIMES FEEL A LITTLE OF THE SAME TINGLING THAT I FELT BEFORE THE SURGERY HOWEVER IM TELLING MYSELF THAT IT MUST BE THE HEALING. I AM IN LAW ENFORCEMENT AND HAVE NOT BEEN ABLE TO GO BACK TO MY NORMAL JOB ON THE ROAD, WHICH IS SORD OF DRIVING ME STIR CRAZY. BUT I HAVE BEEN IMPRESSED ON HOW WELL MY ANKLE IS DOING AFTER ONLY 4 WEEKS. IM STAYING OPTIMISTIC AND BELIEVE THAT IM GOING TO BE ONE OF THE SUCCESSFUL SURGERY STORIES. DR. SAID I SHOULD BE ABLE TO GO FOR A SHORT STRAIGHT JOG ON THE 5TH WEEK (NEXT WEEK). I STILL HAVE A LOT OF TIGHTNESS SO I DON'T KNOW IF I WILL START THAT UNTIL IT LOSENS UP SOME. I GO BACK TO THE DOCTOR ON 4/16 AND HOPEFULLY HE WILL PERMIT ME TO GO BACK TO MY NORMAL WORK STATUS. HE SAID AT THAT TIME DEPENDING ON HOW I FEEL HE WILL ALLOW ME TO USE SOME WEIGHTS WITH MY STRENGTHENING AND RUN IN A ZIGZAG PATTERN. WELL THAT IS MY UPDATE AND BY THE WAY SOMEONE HAD MENTIONED ON THIS BOARD A REALLY GOOD STRETCH - TOES POINTED TO THE WALL AND BEND YOUR KNEES UNTIL THEY TOUCH THE WALL . THAT H AS BEEN A GREAT IMPROVEMENT. THANK YOU..

Re: Surgical updates???

eileenc on 4/01/01 at 09:43 (043211)

Your life sounds like mine. Unsuccessful surgery, 50 years old,continuing pain, etc. I too must spend a significant number of hours lying down so that I can do other things. Medicine has helped, ice baths, and trying to accept a more sedentary life style in general. I work only half-time (that helps) and will soon retire. I think that I agree with you that age can make a difference. It has been 3 1/2 years and it took almost a year of improvement (little ones) before I hit a plateau. I find that if I can sleep well it keeps the pain down and the outlook on life up. My best wishes.

Re: Surgical updates???

eileenc on 4/01/01 at 09:51 (043214)

If you are thinking abut starting neurontin i will say that it made a major difference in my life. Started it almost 3 years ago and it reduced my pain significantly. the downside---I do feel like there is a veil over my brain and that I have lost a few IQ points, but that could also be due to the other drug I take with it. YOu do get used to it and if it significantly reduces your pain--go for it! My dosage is fairly high. I started lower and worked up to an amount which seemed to work.Most people on this board take a lower amount.

Re: Surgical updates???

Chad H on 4/02/01 at 14:45 (043342)

Wendy,

Feel free to use my previous post(s), or let me know and I will retype!!

Re: Surgical updates???

SteveW on 4/02/01 at hrmin (043381)

Wendyn, you asked about my level of pain after the surgery and after using Neurotin. The surgery itself helped about 50% (three years ago). The medicine has helped another 50% of that - so, all together I am about 75% better than I was several years ago. It is actually hard to pin down - since it has been three years since my surgeries. I could hardly walk 3 years ago and had to go up stairs sideways.

-- thanks, Steve

Re: Surgical updates???

claudia m on 4/08/01 at 17:57 (044014)

Dennis B, I hope you are wrong about age , I am 60 and going to have TTS surgery Tuesday April 10th. I feel I have no choice but to have the Surgery, I am in such awful pain. I can't even sleep at night anymore. It is steadly getting worse. I sure hope you will get better with time.I will never be able to work like this again. My job requires being on my feet 8 to 10 hours a day , so I have been off work for quite awhile now. Good Luck.

Re: Surgical updates???

Sandy H. on 4/24/01 at hrmin (045529)

Im not around much anymore,why because my feet are doing great. Those are words I never thought I would be able to say. I had my left TT surgery in Jan of 2000 and my right in August of 2000. I had a diagnosis of PF since 1991 and probably has TTS undiagnosed right along with it the whole time. I tried everything, was very reluctant to have surgery but figgured what do I have to loose, I realize its not for everyone but it did me a world of good. Currently Im working 12 hour shifts at work, and Im hiking again,Ive even managed to loose weight now that Im active again, pretty hard when you are on crutches and casted for what seems like forever. I wish everyone here good doctors to fix the bad feet, Im broke but fineally happy, I wish the same for all of you. I dont check in much anymore, feel free to e-mail me if you have questions.

Re: Surgical updates???

chris d on 3/26/01 at hrmin (042540)

Here goes...pain began in Jan 2000...Initial dx of Plantar facistis (PF) tx heel wrap, injection, anti-inflamatories....PT; ultrasound, massage, ice then some sort of electrode thing. Inserts, then custom-made inserts, finally walking cast before referral to specialist. Specialist did 3 injections, inserts (again!) and exercises. Sp. decided that it may TTS and scheduled an ENG which was positive for TTS. Surgery was on NOv 8th..PF release and TTS...PF is absolutely fine, no pain whatsoever and i'm very thankfull i had PF surgery. Initially, i was not so pleased with TTS, felt that the pain was just as and sometimes worse than before surgery. Referred to PT again with wonderous results...they worked me hard and it was worth it! Practically pain free! Interesting note: 2 years ago I was dx with a bunion on same foot with pain on big toe bone and on the top of the foot...following surgery that pain is gone! Feel free to e-mail me if you have further questions or need any clarifications.

Re: Surgical updates???

Scott2 on 3/26/01 at 15:33 (042551)

Wendy,

I posted my info a few weeks ago and here it is again for your reference:

Profile:

Male, 33 years old
Good health (except for the foot of course)

Surgery - Feb 16, 2001 (PF Release and Distal Tarsal Tunnel Release)
Stitches Removed - Mar 5
Crutches and non weight bearing - until Mar 5
Two crutches and partial weight bearing (cam-walker) - through Mar 8
One crutch and cam-walker - Mar 9
Cam-walker only - Mar 10 to March 25
Soft shoe (running, slip-on) - March 26

Doctor said the surgery went well as the nerve was entrapped. Swelling is all gone in foot. Incision is pretty much healed. I am doing exercises to strengthen and stretch the foot (range of motion and assisted heel raises). I am also riding the recumbent bike at the club for 20-30 minutes. Manual test done by doctor (tapping) to check for any tingling or discomfort was negative - which is good. Heel still tender to touch due to PF release.

I feel that my recovery really picked up after the stitches were removed. The first two weeks were really tough with discomfort and not being able to bear any weight. I took pain medication now and then.

I was instructed to wear the cam-walker for two more weeks and then a running shoe for two weeks after that. I am just starting to ease back into shoes and it feels weird and I cannot take wearing the shoe very long as my foot fatigues easily. My calf muscle has really atrophied as well.

At this point, I cannot say the surgery was a success or not until I can put on a pair of running shoes and go for a run without any pain - which I feel is still a ways down the road.

Re: Surgical updates???

wendyn on 3/26/01 at 17:25 (042562)

Thank you Scott - I had seen your other post but I didn't want to include it in the FAQ without your permission since that wasn't the intent when you posted it the first time.

I would be happy to include it - but PLEASE PLEASE PLEASE don't disappear on us! Keep us informed of your progress and recovery, it's so important for other patients to have someone 'who's been there' still around.

Re: Surgical updates???

wendyn on 3/26/01 at 17:28 (042563)

Chris - I will include yours too - Thanks!

But you stick around too please and continue to let us know how you progress. We're not likely to attract anyone to this board who had successful surgery a few years ago (since they'd be outside having fun) so it's important to hang on you!

Re: Surgical updates???

P Helm on 3/26/01 at 20:01 (042574)

I am 34 yrs old and I first starting having problems about 4-5 yrs ago. I was first diagnosed as having PF. I saw 2 Neurologists and three different sports Dr.'s.. I was diagnosed as having idiopathic Neuropathy. The Neurologists didn't think I had TTS, but I had all the symptoms of it. The last Ortho I went to seemed to think I had TTS. I had the surgery Feb. 26th 2001. As of now I can't tell if it has helped or not. It is still swollen and I have pain.. I think maybe when the swelling goes down it may feel better. When I tap around the ankle area I still feel electric shocks. The Ortho Surgeon did say I had large blood vessels trapping the nerves in my foot. Anyway, I go to the Dr . Friday the 31 st. Maybe I will know more. I am really thankful for Birkenstock sandals or else I don't think I would be getting around as well as I am. Hope this is helpful.

Re: Surgical updates???

Scott2 on 3/27/01 at 14:31 (042674)

Oh, I'll be here for some time. I have a long way to go and would like to provide enouragement and support for others because even though this is not life threatening, it sure can take a lot of fun out of life.

Re: Surgical updates???

DENNIS B. on 3/27/01 at 14:36 (042676)

I HAD TTS RELEASE ON FEB 07, 2000. NO WEIGHT BEARING FOR 2 WEEKS AND THEN WAS ALLOWED TO WEAN MYSELF OFF OF THE CRUTCHES AND GO TO FULL WEIGHT BEARING. IT IS NOW 7 WEEKS AFTER SURGERY AND I WOULD AT THIS POINT DEEM THE PROCEDURE UNSUCCESSFUL. PAIN IS STILL THERE AS IS THE 'ELECTRIC SHOCK' WHEN I TAP AROUND THE ANKLE. PRIOR TO SURGERY, I GOT RELIEF BY LAYING DOWN. NOW THE PAIN ALSO EXISTS WHILE LAYING DOWN. DROVE FOR ABOUT 1 1/2 HOURS 2 WEEKS AGO AND ALMOST FELL WHEN I GOT OUT OF THE CAR (I USED CRUISE CONTROL AND KEPT MOVING MY FEET AROUND). I HAVE TTS IN BOTH FEET. WENT TO MY ORTHO SURGEON LAST WEEK AND HE FELT THAT THE RECOVERY TIME IS GOING TO BE EXTENDED SINCE I HAD THIS CONDITION FOR OVER 2 YEARS PRIOR TO SURGERY. TODAY WALKING IS PAINFUL, SITTING IS PAINFUL AND TO A LESSER EXTENT, SO IS LAYING DOWN. MY LIFE IS PURE MISERY AND I CAN'T SEE A LIGHT AT THE END OF THE TUNNEL. I WOULD RECOMMEND THAT ANYONE CONTEMPLATING SURGERY READ ALL OF THE POSTS FROM THOSE THAT HAVE ALREADY HAD SURGERY BEFORE THEY DECIDE WHETHER OR NOT TO PROCEED WITH SURGERY.

Re: Surgical updates???

Bob R on 3/27/01 at hrmin (042702)

I'm 2 years out from TTS surgery. If I had it to do over again I wouldn't. I'm about 25% better than I was. I have tried everything. Self message and gel orthotics helped the most. Getting the right shoe was important. Most TTS sufferers are pronators. The best shoe for Pronators is the Wilson DST.

Re: Surgical updates???

Steve W on 3/28/01 at 00:01 (042744)

Hey folks, I think I know most of you since I have the Tarsal Tunnel web page.

My experience with surgery was pretty good - about 50% improvement now about 4 years after the surgery.

My doc also release what he called the 'high tarsal tunnel' area - about 4 inches above the ankle. He said mine was compressed in both places.

I'd still have the surgery again - although I wish the overall recovery odds were better.

-- Steve Williamson 'I feel your pain'

Re: Surgical updates???

Jen on 3/29/01 at 10:45 (042914)

Hi
I'm so happy to hear you are pain free!!!! What did PT do for you to help the pain that didn't help before surgery??

Jen

Re: Surgical updates???

Jen on 3/29/01 at 10:49 (042915)

I have had TTS and PF for 3 years. Are you any better at all after surgery or has been a bad decision for you? I am about to have surgery and very scared to make this decision??

Jen

Re: Surgical updates???

chris d on 3/29/01 at 11:09 (042919)

I did have PT prior to surgery that really didn't help. FOllowing surgery my foot was still swollen and the incision scar was quite painful. PT siad she was going to do scar tissue maintance (?) and excerises to strengthen the ankle...my friend was the PT tech who worked me...i had to stand on the surgical foot on a trampoline and hold that position for 30 seconds..did that 5x and then i hand to stand on 1 foot with my eyes closed for 10 seconds 5x's...then on the floor shaking a body board, shaking it 4 different ways for 30 seconds...then onto (boy this is hard to explain) I had a huge rubber band around my waist attached to a heavy exercise equipment item and stretched the band with me inside far out and had to run in place then step side to side in both directions and move forward and back...it was alot harder than it sounds, but it really worked my ankle...

Re: Surgical updates???

DENNIS B. on 3/29/01 at 13:44 (042937)

I HAVE TO BE HONEST AND SAY THAT I AM NOT ANY BETTER AFTER SURGERY. HOWEVER, THE SURGEON SAYS IT TAKES TIME, AS DO OTHERS ON THIS BOARD. MAYBE I WAS EXPECTING TOO MUCH, TOO SOON. THE FIRST FEW DAYS AFTER I WAS ABLE TO PUT WEIGHT ON THE FOOT, WHICH WAS ABOUT 2 TO 2 1/2 WEEKS AFTER SURGERY, I DEFINITELY NOTICED AN IMPROVEMENT. I THINK NOW THAT WAS PROBABLY DUE TO THE POST SURGICAL NON-WEIGHT BEARING WHICH HELPED THE FOOT THAT WAS OPERATED ON BUT IT ALSO AGGRIVATED THE OTHER FOOT WHICH ALSO HAS TTS. MOST OF WHAT I SEE HERE IS THAT PEOPLE GENERALLY ARE DOING BETTER THAN I AM, MAYBE I'M ONE OF THOSE THAT THE SURGERY DIDN'T HELP. THE ORTO SURGEON DID TELL ME GOING INTO THIS THING THAT HE FELT THERE WAS A 70 TO 75% CHANCE OF IT BEING SUCCESSFUL, SO MAYBE I'M IN THE MINORITY OF THE ODDS. I FELT AT THE TIME THAT I HAD EVERYTHING TO GAIN AND NOTHING TO LOSE BY GOING AHEAD WITH THE SURGERY AND I STILL FEEL THAT WAS THE RIGHT DECISION BASED ON THE FACTS I HAD AVAILABLE TO ME. BUT NOW IN RETROSPECT, I'M NOT SO SURE THAT I WOULD HAVE IT DONE AGAIN KNOWING WHERE I AM AT TODAY. GUESS I'LL KNOW MORE AS TIME GOES BY. ALSO YOU MAY HAVE SEEN ON ONE OF MY OTHER POSTS THAT I AM 50 YEARS OLD AND IT LOOKS TO ME LIKE THE OTHER PEOPLE ARE CONSIDERABLY YOUNGER. I BELIEVE THAT MY AGE HAS SOMETHING TO DO WITH IT. I AM CURRENTLY UNEMPLOYABLE AS I CANNOT SIT OR STAND FOR MORE THAN 20 TO 30 MINUTES AT A TIME WITHOUT HAVING TO LAY DOWN OR RECLINE IN THE CHAIR. PERHAPS MY PROBLEMS EXTEND BEYOND TTS. GOOD LUCK TO YOU ON YOUR DECISION AND IF YOU DO HAVE SURGERY, GOOD LUCK IN THAT DEPARTMENT AS WELL.

Re: Surgical updates???

Kay S on 3/29/01 at 14:59 (042946)

Hi Jen
I had tarsal tunnel release in September, 2000. I didn't think the surgery was that bad, and actually my feet were better while I was healing from the surgery. It did eliminate the numbness I had that ran alongside my foot to the little toes, and also some of the burning, but I have realized that most of my pain is now and has always been, from pf. So for me, I felt the tts was basically a waste of time. I could have lived with the numbness, etc. but this heel pain is something entirely different. I guess I thought the tts had caused some of the heel pain and I wanted so desperately for it to be true.
I had an excellent doctor and I don't think having the surgery hurt me a bit, but I am still in pain, just like before. That's the part that is so frustrating.
I hope you don't mind that I answered, even though you are looking for someone with a more positive outcome.
I hope you are in the other category after your surgery!
Good luck.
Kay

Re: Surgical updates???

wendyn on 3/30/01 at 19:54 (043096)

Steve - I thought I'd read that you were also using neurontin. Are you 50% better with or without the neurontin? Does the neurontin bring you closer to 100% or bring you up to the 50%?

Re: Surgical updates???

THEA on 3/31/01 at 18:46 (043177)

WELL I HAD SURGERY ON 3/1 AND IM DOING ALRIGHT. I HAD HALF THE STITCHES TAKEN OUT ON 3/12 AND THE REST ON 3/19. ON 3/19 DR TOLD ME I COULD PUT AS MUCH PRESSURE AS I COULD STAND. I AM WALKING OK, ALMOST NORMALLY. I HAVE BEEN WEARING TENNIS SHOES HOWEVER IN THE LAST FEW DAYS THE SHOE HAS BEEN RUBBING ON THE SCAR. THE SCAR IS STILL PRETTY TENDER. I STRETCH EVERY DAY AND HAVE BEEN WALKING THE DOG ON LONG WALKS AND RIDING MY BIKE IN THE MORNINGS. I SOMETIMES FEEL A LITTLE OF THE SAME TINGLING THAT I FELT BEFORE THE SURGERY HOWEVER IM TELLING MYSELF THAT IT MUST BE THE HEALING. I AM IN LAW ENFORCEMENT AND HAVE NOT BEEN ABLE TO GO BACK TO MY NORMAL JOB ON THE ROAD, WHICH IS SORD OF DRIVING ME STIR CRAZY. BUT I HAVE BEEN IMPRESSED ON HOW WELL MY ANKLE IS DOING AFTER ONLY 4 WEEKS. IM STAYING OPTIMISTIC AND BELIEVE THAT IM GOING TO BE ONE OF THE SUCCESSFUL SURGERY STORIES. DR. SAID I SHOULD BE ABLE TO GO FOR A SHORT STRAIGHT JOG ON THE 5TH WEEK (NEXT WEEK). I STILL HAVE A LOT OF TIGHTNESS SO I DON'T KNOW IF I WILL START THAT UNTIL IT LOSENS UP SOME. I GO BACK TO THE DOCTOR ON 4/16 AND HOPEFULLY HE WILL PERMIT ME TO GO BACK TO MY NORMAL WORK STATUS. HE SAID AT THAT TIME DEPENDING ON HOW I FEEL HE WILL ALLOW ME TO USE SOME WEIGHTS WITH MY STRENGTHENING AND RUN IN A ZIGZAG PATTERN. WELL THAT IS MY UPDATE AND BY THE WAY SOMEONE HAD MENTIONED ON THIS BOARD A REALLY GOOD STRETCH - TOES POINTED TO THE WALL AND BEND YOUR KNEES UNTIL THEY TOUCH THE WALL . THAT H AS BEEN A GREAT IMPROVEMENT. THANK YOU..

Re: Surgical updates???

eileenc on 4/01/01 at 09:43 (043211)

Your life sounds like mine. Unsuccessful surgery, 50 years old,continuing pain, etc. I too must spend a significant number of hours lying down so that I can do other things. Medicine has helped, ice baths, and trying to accept a more sedentary life style in general. I work only half-time (that helps) and will soon retire. I think that I agree with you that age can make a difference. It has been 3 1/2 years and it took almost a year of improvement (little ones) before I hit a plateau. I find that if I can sleep well it keeps the pain down and the outlook on life up. My best wishes.

Re: Surgical updates???

eileenc on 4/01/01 at 09:51 (043214)

If you are thinking abut starting neurontin i will say that it made a major difference in my life. Started it almost 3 years ago and it reduced my pain significantly. the downside---I do feel like there is a veil over my brain and that I have lost a few IQ points, but that could also be due to the other drug I take with it. YOu do get used to it and if it significantly reduces your pain--go for it! My dosage is fairly high. I started lower and worked up to an amount which seemed to work.Most people on this board take a lower amount.

Re: Surgical updates???

Chad H on 4/02/01 at 14:45 (043342)

Wendy,

Feel free to use my previous post(s), or let me know and I will retype!!

Re: Surgical updates???

SteveW on 4/02/01 at hrmin (043381)

Wendyn, you asked about my level of pain after the surgery and after using Neurotin. The surgery itself helped about 50% (three years ago). The medicine has helped another 50% of that - so, all together I am about 75% better than I was several years ago. It is actually hard to pin down - since it has been three years since my surgeries. I could hardly walk 3 years ago and had to go up stairs sideways.

-- thanks, Steve

Re: Surgical updates???

claudia m on 4/08/01 at 17:57 (044014)

Dennis B, I hope you are wrong about age , I am 60 and going to have TTS surgery Tuesday April 10th. I feel I have no choice but to have the Surgery, I am in such awful pain. I can't even sleep at night anymore. It is steadly getting worse. I sure hope you will get better with time.I will never be able to work like this again. My job requires being on my feet 8 to 10 hours a day , so I have been off work for quite awhile now. Good Luck.

Re: Surgical updates???

Sandy H. on 4/24/01 at hrmin (045529)

Im not around much anymore,why because my feet are doing great. Those are words I never thought I would be able to say. I had my left TT surgery in Jan of 2000 and my right in August of 2000. I had a diagnosis of PF since 1991 and probably has TTS undiagnosed right along with it the whole time. I tried everything, was very reluctant to have surgery but figgured what do I have to loose, I realize its not for everyone but it did me a world of good. Currently Im working 12 hour shifts at work, and Im hiking again,Ive even managed to loose weight now that Im active again, pretty hard when you are on crutches and casted for what seems like forever. I wish everyone here good doctors to fix the bad feet, Im broke but fineally happy, I wish the same for all of you. I dont check in much anymore, feel free to e-mail me if you have questions.