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Well the day is here for my long awaited appointment with the specialist

Posted by Laurie R on 5/21/01 at 11:59 (048462)

Hi Everyone , Well today is the day ... I will be going in a few hours for my long awaited appointment with the foot specialist.... I am just wondering if this doctor is going to help me. I have been waiting for almost 5 months for this. Now I am nervous a little bit. Not fear of what he is going to do ,but fear of him to rush me into surgery. I just wanted to vent a little bit before I go.

I guess after having PF for almost two years and now Tenosynivitis ,and maybe TTS what next?? I have had all kinds of treatment . I think I have had 7 hard casts ,2 walking casts 1 air cast 60 + PT visits 4 cortisone shots 4 or 5 shots to numb my foot night splint tape ace bandages . Also I have had x-rays ,MRI, EMG ,pain meds ,anti imflamms .REST crutches Oh I forgot the Tenogram that showed the tenosynivitis ....I think what I'm trying to say is that surgery is the only thing left. I will keep an open mind and listen to this doctor and ask all my questions. I have always been told if you go to a surgeon then he is going to want to do surgery . If that is the case ,I need more then 38 % to 50 % that it is going to help. Someday I would love to go back to work .....Am I wishing here??

Ok I must get ready ,thank you for listening .. As always everyone is so great here and I so appreciate all your support . I will post when I get back to let you all know how it turned out... My very best to all.

Laurie R

Re: Well the day is here for my long awaited appointment with the specialist

Donna SL on 5/21/01 at 12:10 (048464)

Laurie,

Finally! Good luck today. Ask a lot of questions (write them down if you have a chance), and don't hesitate to take some notes if necessary.

Donna

Re: Well the day is here for my long awaited appointment with the specialist

JudyS on 5/21/01 at 12:38 (048466)

Laurie - You Go Girl! Don't be nervous about the surgeon - his job today is to evaluate only.....he's not gonna recommend surgery if his expertise tells him it's not appropriate. I can't wait to hear the outcome. Be sure to ask him a zillion questions and tell him it's because a zillion folks on this website want the info!

Re: Well the day is here for my long awaited appointment with the specialist

Nancy N on 5/21/01 at 14:07 (048478)

We're all thinking of you today, Laurie--hang in there, and don't worry so much! :) I'm sure Judy's right, that any doctor worth his salt will not recommend surgery if s/he does not honestly believe it's the best way to go. Let us know how it goes!

Re: Well the day is here for my long awaited appointment with the specialist

Valerie S on 5/21/01 at 15:09 (048482)

Yeah, Laurie... you survived until your long-awaited appointment!!

I, like everyone else, am anxious to hear how it turns out. Good luck to you. I had the opposite exerience in regards to the doctor/surgeon... the surgeon did NOT recommend surgery... Hopefully you end up in good hands!

Looking forward to your update!
Val.

Re: Nothing but the best for my niece!!! ;>) Good luck! eom

Steve P on 5/21/01 at 17:02 (048488)

.

Re: Well the day is here for my long awaited appointment with the specialist

wendyn on 5/21/01 at 18:10 (048495)

Laurie - keep us posted!

I am guessing it's not a holiday where you folks are at - we are all off work today - yipee horaay!!!

Re: I'm back from the appointment and very confused and sad

Laurie R on 5/21/01 at 19:44 (048504)

Hi Guys, Frist of all thank you all so much for your well wishes today ... Thsi si sthe second time I'm trying to post this .I just finshed the first one telling about today and I got kicked off line ..So here it goes again.

When I first go there the doctor looked at my tenogram and said that my tenodon was very blocked .. Now he siad he did not want to do surgery to fix it because maybe I would not be able to ever walk again..... So he wanted me to start taking 'Predisone ' for 5 to 7 days ... I told him no way .. I have read to many bad things about it. He said he would not treat anyone that needed Predisone and did not want to try it. Then he was telling me some of the side affects ,one being that I would not sleep for 2 to 3 nights and I could be very jumpie. I told him I have kids that I have to take care of ... He said that the predisone just could be the cure. I don't think so .I have had 4 cortisone shots that did not help me at all ..... Then he told me that he treats the 49 ers and the SF Giants and they take it and it helps them . I thought to myself then they can have mine I don't want it. I stopped taking drugs years ago , I don't want thoes feelings back.

Tehn he looked at my foot , and said that I do have tenosynivitis pretty bad. Then he started talking about surgery again and said that sometimes after surgery you have to take predisone ... He said that I don't have to take it now ,but to think about it .. Then I said so ,you will not see me if I don't take this predisone ,he said he would but how could he help me if I won't listen to him ..... he has a point ,but I don't have to agree.

Tehn he said that I have all the symptoms and my films show the tenosynivitis but he was very concerned with the pain I have when I 'm off my feet. Sometime I have more pain when I 'm off my feet then on them. He said that has nothing to do with the tendon. Now he thinks I migh thave RSD....This was something I did not want to hear. I only have one symptom of RSD .He said that you don't need all the symptoms to have it just one could mean it. So now he wants me to see another specialist to have this checked out. Also he was going to call my Pod to go over everything. Well I think I'm calling my Pod tomorrow to go over all this with him. I'm very confused at this point. MY cousin and one of my aunties have RSD ,very bad...If I do have it then I will deal with it.

So now for sure I know I have PF as well as Tenosynivitis and maybe RSD. he said that he needs to know if I do have RSD before he would do surgery ,cause he would have to block thoes nerves . I did not fully understand what he was talking about. He covered a lot in the 35 minutes he was talking to me.

Now he asked what I was taking for pain. I told him Vicoden ES .He said that anyone that has taken Vicoden for longer then two months is hooked on it. Well I have been on it a lot longer then that. So I did agree with him on that . So he told me to get off the Vicoden and he wants me to take Ultram. I am very cool with that . I wanted to get off the Vicoden anyways. One thing he knows I'm in pain and he took my pain seriously . So I'm very happy about that.

He was going to callmy WC insurance company to get the other specialist approved ... I told him good luck it took me amost 5 months to get you approved ... So when I left I gave him my attorney's number so maybe she could get it approved.

Any thoughts on this visit would be very appreciated...

Your very confused and sad , Laurie R

Re: I'm back from the appointment and very confused and sad

Valerie S on 5/21/01 at 21:14 (048518)

Hi Laurie.

I'm sorry to hear that you are sad... my heart goes out to you. It sounds like the doc at least took your pain and your condition seriously... that's a start. And it probably won't hurt, trying a new medication to replace the Vicoden, if you are open to that. I took the Prednisone for a week, and it did relieve my pain, but it made me very wired and spaced out, and the pain came back before I even finished the pack. I have 'only' been diagnosed with PF, and have no experience with Tenosynivitis or RSD. I really don't blame you for refusing the Prednisone; I cerainly wouldn't do that again...

I wish I had some wisdom to offer you... I will always be here if you need a friend... Best to you. I hope everything looks clearer in the morning. Please remember you are not alone... we are all here, all behind you.

Take it easy, Laurie.
Your friend, Val.

Re: I'm back from the appointment and very confused and sad

Donna SL on 5/21/01 at 22:56 (048529)

Hi Laurie,

I don't know if this will help you, but I remember my sister had taken prednisone, and it only increased her appetite, and made her retain some fluid. She actually felt better when she was on it.

Also, my brother had to take Prednisone for his sinuses several times, and he didn't suffer any side affects.

I think everyone reacts differently.

It would be good to get a second opinion, and I'm sure you'll be talking to your pod about this, but it would be wonderful if something as simple as the prednisone could do the trick, and you could avoid surgery.

Re: I'm back from the appointment and very confused and sad

wendyn on 5/21/01 at 23:20 (048532)

Well Laurie - so far I think I like the sound of your new doctor.

I know he scared you - but it really does sound like he's thinking this through.

A million years ago - I know you and I had discussed RSD - whether by email or on the board. The diagnosis was being tossed around in my case - and you and I were sharing almost identical symptoms.

Laurie, if it IS RSD, it is so important that they treat it. RSD is treated very differently than your 'standard injury.' Basically what happens is that the nerve goes completely 'haywire' and it sends all kinds of messages out to the rest of the body as if it's in extreme pain (of course the pain is real that you feel - but most of the pain is caused by the over reaction of the nerve). If left untreated, it can cause bone loss and permanent problems. The only way to stop the awful cycle is to get the nerve to settle down and stop doing what it's doing. Do you remember Lee who used to post here? There have been a number of people here who were eventually diagnosed with RSD.

I am really happy to hear that he is going to completely check this out in your case. That's why he's a specialist - and that's why you went to get his opinion. His job is to look at all the other things that may have been overlooked before.

For prednisone....hmmmm. You and I have both read the same things. Prednisone is a pretty scary drug. It's also a very effective drug. How about, since he backed off - let's leave it for now. If he suggests it again, you can always take the prescription slip (say thank you) and go home. Even get it filled. Then, you can talk to the pod who I know you trust so well. You can talk to the doctors and the patients here, and then decide whether or not to take it.

So please - don't stress too much about it for now - there is lots of time for that later if need be. I think that if it turns out to be RSD - they may drop the prednisone idea anyway. How bout for just right now, to take this really one day at a time and see what unfolds?

What do you think?

Re: I'm back from the appointment and very confused and sad

Laurie R on 5/22/01 at 00:24 (048533)

Oh Wendy , thank youso much .... And yes I will take your advise ,one day at a time. Your right if I do have RSD God forbid I am sure I will not have to take the Predisone. I am so scared of this drug. But now I have thought real hard tonight and I can not let this stop me from getting the care I need. And if I do have RSD then I will deal with it.

I swear Wendy when this all started almost two years ago they told me that my PF would go away in 4 weeks .... At the timr I thought 4 weeks , no way it can not last that long..Well here I am still waiting. It just seems like it keeps going into something else... You know I really don't do much and I'm not on my feet all that much. I just would love to work again. I think I am to young to never be able to work. I can't live off Workman's comp forever. We are maxed on our credit cards we live check to check and we don't have extra for anything. I sorry to just complain tonight . This really took me for a loop today. I was so scared of surgery ,I never even thought of anything else.

I will have you all know that I had no anxiety ...Yeah Laurie.This is a biggie for me . I usually get so nuts before the appointment I have no clue what is even going on.Today I looked the doctor in his eyes and listened to every word he said.

Wendy thatnk's for your support and kind words ,I really needed to hear this tonight ... Guess what ?? I am not sad anymore ....

Donna ,Thank you too for your kind words ... It will be ok. This doctor even told me he went over a lot of things with me and he knew I was a little confused.... He is a very good doctor ... He is also trying to help me .Liek Wendy suggested ,take one day at a time. I will try to do this.

Val, you sweetie , you are in so much pain and have so much going on yourself and you took the time out to make me feel better. Thank you my friend. I hope tomorrow goes really well for you.

Thank's again ,you guys make me feel so good.

My best to everyone , Laurie

PS Wendy , how are you feeling?? How is the pain??

Re: Laurie, you are marvellous

Julie on 5/22/01 at 06:51 (048550)

Hi Laurie

I was off the board yesterday, so I didn't get a chance to wish you good luck for your appointment, and I've only seen your full report this morning.

What stands out a mile is how strong and focused you are - to be able to say that 'whatever it is I will deal with it'. My hat is off to you, truly it is.

(I also think you're pretty amazing to have heard and understood REMEMBERED everything the doctor said to you.)

Apart from that I can't add a thing to the brilliant advice Wendy has given you, so full of good sense as usual, as well as reassurance. Keep on taking one day at a time, and let's see what the next step, and the next...are going to be. You really do have the inner strength to carry you through, Laurie. And don't forget that there is a source of strength outside and beyond you that you can trust - as well as the love and support you have from everyone here.

All the best, Julie

Re: Laurie, you are marvellous

Tammie on 5/22/01 at 08:36 (048557)

Laurie,
I think in all of the darkness in your life ,physical pain and emotional, etc. there is a opening in the clouds,perhaps a rainbow of happiness and relief.Please open your heart to it and your ears! I understand it has been a long haul for you a very long one,but you have made it thru all of this turmoil and grief and pain,not to give up or back off. It seems as tho your Dr.s are listening to you and they HEAR that you have real pain that is a plus! They seem to be looking into all methods and diagnosis and conferring with the other dr. so sounds as tho he is not threatened, by getting someone else involved with finding out what is really wrong,and he is concerned with helping you. I dont know but maybe this is your opening my friend ,I know that you were hoping this would be the fixer of all problems and u would be back to work and you and your family could live easier but look at the covered blessing of you being home with your family, it is sometimes hidden and maybe a gift that u have not seen thru your pain. You have been able to enjoy being with your daughter and husband and you have gotton thru this terriable time of pain with them making a bond that is strong you are teaching your daughter that lifes downs can be overcome and that u can survive even if there are no extras! That life is not about material things and fancies! Maybe more about the special love that you all share and the happiness you find thru all the darkness, maybe the lesson is about surviving! I am not sure just some thoughts to maybe help u thru today and the next! One day at a time is trying to be my new motto,and with that in each day try something to be thankful for . And to start tomorrow and every day with a light thought and with a smile! Life is what we make of it , if we choose to be sad we will be if we choose to be happy we can be ,why be miserable as we never know what or when the end will be! You will make it Laurie in what ever is to be you are wonderful strong and loving person we have been emailing each other for a short time now but I can feel it ! Please be happy !!!!!!!! And so many people here new exactly what to say in the medical part so I have to try to lighten your heart a bit if that is ok! I continue praying for you my friend! Hugs to u!!! I hope u get a little sunshine in your life today.

Re: I'm back from the appointment and very confused and sad

BrianG on 5/22/01 at 08:50 (048561)

Hi Laurie,

Did this new doc really tell you that your were 'hooked' on the Vicodan? I can tell you right off the bat that this man has not educated himself on the use of proper pain meds for people with chronic pain. About the switch to Ultram, it's OK to give it a try, but I really doubt it will work as good as what you were taking. In some counties, Ultram is given out like candy. It's not a real pain med, but unfortunatly you will also have problems if you stop it with out tapering first. Please ask your doc to taper you off the Vicodan if you've decided to stop it. It should only take 2-3 weeks, and will save you a lot of unplesent side effects. I do not think the Ultram will mask the Vicodan withdrawal symptoms, but it might. It's something you should ask your doc. I hate to see you get sick neeedlessly. Good luck.

BCG

Re: Laurie, you are marvellous

ellen w on 5/22/01 at 10:34 (048573)

Hi Laurie,

I had a positive experience with the prednisone dose pack though I had the symptoms your doctor described to you -- I was very wired, and by the 4th day, the 'editing function' was gone from my brain. I really had to restrain myself from saying inappropriate things to the people at work (like what I really think of some of them....)

While I was on it, I was able to move in ways that I hadn't in months. This didn't last after I stopped taking it, but my symptoms --stiff ankle, pain in the heel due to bursitis -- weren't as bad as they had been before. The prednisone seemed to take the inflammation down to another level where some healing was able to begin to heal. And my doctor, who had been talking casting or surgery, said my reaction to the prednisone proved that neither would be necessary.

Like you, I was scared to take this drug, but it was less scary than surgery or, for me, a shot of cortisone into the heel itself.

Like one of the other posters said, everyone's reaction to this drug is different. Another person here at work also took it, and said he had absolutely no psychological side effects. If I were to take it again, and I probably would, I'd time it so that the 4th & 5th days of taking it were days were I wouldn't have a lot going on.

Hope this helps,
Ellen

Re: I'm back from the appointment and very confused and sad

JudyS on 5/22/01 at 12:00 (048576)

Laurie Laurie Laurie - as Queen of the World, I hereby pronounce all confusion and sadness gone from your body, mind and soul! (there - did it work?).
I hope you don't mind if I share two thoughts I had while reading about your experience at the doc's. One, your expectation, jusitifiably so, was that he was going to spell it out in black and white, you'd be treated one way or another, and finally be on the road to sure recovery. Instead, he talked about RSD and Prednisone and only added fuel to the fire of confusion! Let's look at those two things for a minute; RSD - chances are slim, right? And after all, your foot problem is a result of an injury, not a systemic issue. And about that Prednisone; side effects - yes. To what degree, who knows - it's different for everyone. But....a temporary treatment and perhaps worth a week or so of trying? On the other hand, no one knows as well as I do how difficult it is to put up with life-limiting side effects for even one day! The other of those first two items.......the last thing you needed to hear from this expert was his advice to try yet another 'drug'. Talk about adding fuel to the fire! But do you suppose today you'll be able to clear the cobwebs of confusion a bit and reason, to some degree, that his recommendation is based on his experience and knowledge regarding the Tensosynivitis (sp)? Maybe, for the immediate future - say a week to ten days, it might be worth a try? And you get to get off that med if it's just too much to handle, right?
You've said that you really miss working so I was wondering if it could be a good time to get a stronger feeling of control by beginning to look in to retraining programs that could help you enter a different field while you wait for your foot to heal. That'd be a heck of a way to take at least one bull by the horns! You might check with your local community college about re-training, re-entry, etc. and even with the workman's comp. folks. There's lots of opportunity out there for a beautiful, smart and energetic person such as, well, you!
I truly hope the sun is shining brighter for you today and don't forget - YOU get to be in charge!

Re: "Hooked' on Vicodin --- In 2 Months?!

Janet C. on 5/22/01 at 21:26 (048603)

Hi Laurie!

Everyone had the MOST WONDERFUL advice for you! I think that this Message Board is GREAT, how the people REALLY CARE for one another! I just wanted to add that I think your doctor was mistaken in saying that patients who take Vicodin for two months, are hooked on it. I took Vicodin for years, and I could, and did quit. Easily. Although my pain levels returned to their intensity, I suffered no withdrawals, EVER. I know that everyone is different, and SOME people COULD POSSIBLY get addicted after two months of taking Vicodin, but I would presume that's an extremely rare occurance. Perhaps your doctor thought by exaggerating, he could prevent you from developing a dependance on Vicodin.

My best wishes to you - always,

Janet

Re: "Hooked' on Vicodin --- In 2 Months?!

Laurie R on 5/22/01 at 21:52 (048605)

Thank you so much for posting this Janet..... As you could think ,,I was thinking all day that now with everything else going on I'm a drug addict... Thi sis one of the reason I don't care for doctors. They have a way of putting things in my head and I believe them. This doctor was ok , but I don't agree with everything he said to me. As I said when I left I wsa very confused..... I'm still confused. I did call my Pod today and left a message . His nurse called me back and said that he would be gone until next Tuesday . I will call him then.I need to talk to him before I do anything at htis point. I know I will get through this .Yesterday just took me for a loop. I had my pitty party last night and today I done with it. Now it is time to think of a way to get the help I need. I did not stop the Vicodin yet ,Iam not going to even think about it until I talk to my Pod.

Brain , thanks for your input too. I really appreciate everybodies input. This has helped me so much. All of you helped me get though my craziness last night.I will say I was really down. The first thing when I got home was post my story so I could hear what everyone had to say. I do listen... Brain I very glad you replyed to me .Before my apppointment I was going to ask you what you thought on new pain meds for me. I know you know a lot about it. See with me the Vicodin was great at first ,now it does not work like it used to . I so agree what you posted. Thanks again .....

I love this board.... Thanks to everyone.

My best to all,Laurie R

Re: Laurie, you are marvellous

Laurie R on 5/23/01 at 00:26 (048610)

Hi Ellen ,I knew their was someone on the board that took this and said that it made them say things they would normally not say .... Thank you so much for the advise.... How are you doing now? Thank's again. Laurie R

Re: Laurie, you are marvellous

Laurie R on 5/23/01 at 00:32 (048611)

Dear Judy Tammie and Julie, Thank you all for your kind words .. Boy , you guys really made me feel better. I need the support right now ,and you all gave it to me. It is a hard time for me as I am still really confused ,but it will get better. Everything takes time. I'm very thankful for a lot of things and I always think things can be worse.

My main thing I have to do to get started on the right treatment and a diagnosis for RSD is to talk to my Pod . He will be back in his office next Tues. I'm sure he will know someone that can help me. If not my attorney has doctors too. I will keep fighting until I find the right doctor that will help me. Just think I was so scared of surgery , and for now I don't have to worry about that..

Things always seem to work out . Thanks again ,you guys are wonderful and on ething that i'm greatful for is all of you and this board....

My best to all,Laurie R

Re: It's called Accomodated

BrianG on 5/23/01 at 11:35 (048651)

Hi Laurie,

Just one more quick thing about the Vicodan. It's a good med for short term pain, as you found out. Like all pain meds, you'll gradually develop a tolerance and need a little more to give you the same pain relief. This is not necessary a bad thing. The bad thing is what is mixed with the pain med. It is probably asprin or acetimenephin, both of which can cause internal problems if taken at too high a dose for too long. Not to worry though, you are not any where near that amount.

Yes, you will have some discomfert if you stop the Vicodan without tapering. It'll probably be like the flu for about a week. If you gradually taper off, like I mentioned, you'll have no discomfert. Do a little reading on the Ultram, use a seach engine, if your going to take it. I personally wouldn't take it, but it's up to you and your doc.

If your pain continues, and you decide to stay on a pain med, your better off to take something that won't harm your stomach. One such med is Hydrocodone. You'll still have to deal with accomidation (needing more) and some constipation, but I personally think it's better than the relentless pain. I just couldn't deal with the pain, year after year. I hope all your decisions are easy ones. Just try to stay informed, and hopefully I'll be around if you have any questions. Good luck.

BCG

Re: "Hooked' on Vicodin --- In 2 Months?!

BrianG on 5/23/01 at 11:45 (048653)

Hi Janet,

I think you were one of the lucky ones to have no discomfert after taking Vicodan for years. Others are not as lucky. Your right about the doctors exaggering a lot. The percentage of people that get addicted to drugs, from taking pain meds is about 1%, or less. We've all heard about the celeb's this has happened to, but they don't bother to mention that all of their friends are most likely taking drugs also. The responsible person who takes meds for legitimate pain does not have to worry about addiction. Thanks for helping to pass on the word, I really think it's important to let the people who are suffering know that there is help available.

BCG

Re: It's called Accomodated

Laurie R on 5/23/01 at 16:58 (048677)

Thank you so much Brain, I know you know better then anyone else about pain meds. I appreciate your time so much. I'm staying on the Vicodin until I talk to my Pod next week ..... I was never going to just stop the Vicodin. The more I think about that specialist I went to on Monday the more I get mad. He told me so much in such a short time my head was spinning when I left. I sure he is a wonderful doctor just night right for me.

The thing is he understood how much pain I'm in ,it shows in the tenogram films I brought with me. He said that my tendon is blocked very bad ... I just htink some doctors not all are on a power trip...

Brain if you don't mind me asking ,you said you would not take Ultram ,can you tell me why??

Thanks again,my very best to you.Laurie R

Re: "Hooked' on Vicodin --- In 2 Months?!

Laurie R on 5/23/01 at 16:59 (048678)

I agree 100 % thank you again Brain and Janet...Laurie R

Re: Laurie, you are marvellous

ellen w on 5/23/01 at 18:39 (048696)

Laurie,

Thanks for asking. I thought I was close to posting the 'I'm cured, I'm cured, I'm cured' message that Rich did months ago, but since then I've had a set back due mostly to work. I've been hit with 2 major back to back projects, one an accreditation report that's due in Washington next week, so I've been working long hours. None of it's on my feet, like your job, it's all computer time, but my ankles have been swelling again and freezing up. I'm not completely back to square one, and I will take some time off after next week, so I'll re-evalute then. I know how frustrated you are -- I've been following your posts and have felt terrible about how badly the worker's comp system has treated you. There ought to be a better way. Anyway, after I took the prednisone, I went from nonstop bad days to several months where I had bad, average, and good days in terms of pain and stiffness, gradually there were more good days than bad, and when I started taking MSM, I started feeling much better. My heel, which had been this solid hard red mass returned to its normal color, and thanks to the PT exercises, the ankle is much stronger than its been in years. Your problem sounds much more serious than mine, however. But, if I remember what you posted accurately, his advice that the inflammation needs to come down before he does surgery sounds like good advice -- maybe Dr. Z. could advise on this?
Anyway, gotta run, sorry that this was such a rambling message.
Ellen

Re: It's called Accomodated

BrianG on 5/24/01 at 07:53 (048749)

If I was just starting out, I might take it. It is not as strong as what I'm on now. To go from Vicodan to Ultram is like going backwards. Thats why I really think that this doctor is not very educated when it comes to pain meds.

BCG

Re: RE: question on RSD

karenc on 5/24/01 at 10:21 (048770)

I noted in reading some of these posts that Laurie said she had sometimes more pain OFF of her feet than on and that the doctor thought she could have RSD. Stupid question but what is that? b/c my pf seems to often times hurt and cause me throbbing pain (not at a 10, but a good 5 or 6) often times when I'm in the car or at my desk w/ no pressure on it whatsoever. Is that a common symptom of pf or something else (like this RSD?)? Any thoughts would be greatly appreciated.

Re: RE: question on RSD

Laurie R on 5/24/01 at 10:37 (048772)

Hi Karenc, Please read what Wendyn wrote back to me on RSD in this thred. She explained it perfect .... RSD is a lot different from PF. I have a few things wrong with my foot besides PF ... My best to you.Laurie R

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

Valerie S on 5/24/01 at 14:45 (048793)

HI Karen.

Like you, I don't know what RSD even is, but thought you might appreciate my experience. The pain that you have when you are off your feet - I have that too, and used to compare stories with the girl I worked with about the 'dangling foot' pain (pain when your heel is not resting on the floor). When I was on my feet all day, it actually hurt more to lift my foot up off the floor to 'rest' it than it did to stand on it. (Damned if you do, damned if you don't...)

The most explosive 'resting' pain I would get was when driving home from work (all day on my feet-ouch). There is a long stretch of highway, and during that time, I would get burning and stabbing pains in my foot...this was with my foot on the gas, heel on the floor. Once I got off at the exit, I would have to take my foot off the gas and put it on the brake. During this, my heel was not on the floor, and I would get this EXPLOSION of SEARING HOT pain, so violent I would sometimes literally cry out loud in pain.

Since being off work (9 weeks now), I don't have the same excrutiating pain that I used to unless I spend more than an hour on my feet, so this symptom has tapered off a bit for me. I did some light housework today, for 2 hours straight, and once I sat down, I started getting that 'dangling foot' pain again. I have been living on the assumption that this is part of PF pain... I sure hope so, 'cause I have been having this kind of pain all along.

Anyone else with 'just' PF have this experience too, or is this symptom a sign of additional problems??

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

Tammie on 5/24/01 at 17:27 (048810)

Heh there Hi!
I just read this post and it sounds so very familiar! That is like what I have been saying all along! I had it before the pf surgery and I have it now after but always at night time! I tryed explaing this to my dr. he said dont worry is the nerves regenterating! Hmmmm now if that is so how come u have it and u did not have the pf surgery? Do they say that stuff is pf? Or is it something else? Gosh I dont EVEN want to think that is not what he has stated!I can walk on my heel now tho and before surgery I could not walk on it at all. And if I keep busy on my feet I dont notice stuff till late at night or whenI sit and dangle or cross my leg BINGO u just stated how I feel! I will listen to what is told to u! I hope you are doing well Val it was nice chattin with u! Have to do it again!

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

wendyn on 5/24/01 at 21:40 (048827)

RSD is Reflex Sympathetic Dystrophy or also known as Complex Regional Pain Syndrome. It is an extremely rare problem. (So not something your average person here would need to be concerned about). It can happen following an injury or surgery - and the nerve(s) basically over reacts and begins to cause pain and symptoms out of proportion to what the initial injury was. It usually causes extreme pain, discoloration, and circulation problems. If left untreated - it can cause muscle atrophy and bone density loss.

It is usually treated by nerve blocks, and usually by a specialist who has dealt with it before (not your average GP).

I am not a doctor, but since this was once tossed around as a possible diagnosis in my case - I did some reading.

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

karenc on 5/25/01 at 08:59 (048852)

wow - I just thought mine was pf, and from a few of the other posts, may still be, but I'm going to monitor my 'dangling foot' pain and see where we come out. I'd love to hear how many others of you (we're now 3) have it and associated it w/ just (!) pf (as opposed to Wendy's issue). I have not had surgery and I did not have a major injury (just too much running on old shoes on hard concrete and ignoring the pain). My pf foot (well, I think I got it in the other, but the bad foot) is my left one, though, so it's not even involved in the driving. And occurs at my desk. I need to also do research on this sciatic nerve (sp?) and how it can affect the whole deal. (I'm only partly through Scott's 19 page treatise, so there may be some leads there, too). Anyway, I'll keep checking here. thanks.

Re: The Dangling Foot

Julie on 5/25/01 at 10:50 (048861)

Karen, I've noticed the dangling foot pain too. And others have mentioned it in the past. It could be to do with the fact that when the foot is plantar-flexed (toes pointed forwards) the fascia is at its most contracted.

Re: The Dangling Foot

karenc on 5/25/01 at 12:36 (048877)

thanks so much. I'll not worry about the RSD thing, then. (whew - only one foot injury at a time).

Re: Well the day is here for my long awaited appointment with the specialist

Donna SL on 5/21/01 at 12:10 (048464)

Laurie,

Finally! Good luck today. Ask a lot of questions (write them down if you have a chance), and don't hesitate to take some notes if necessary.

Donna

Re: Well the day is here for my long awaited appointment with the specialist

JudyS on 5/21/01 at 12:38 (048466)

Laurie - You Go Girl! Don't be nervous about the surgeon - his job today is to evaluate only.....he's not gonna recommend surgery if his expertise tells him it's not appropriate. I can't wait to hear the outcome. Be sure to ask him a zillion questions and tell him it's because a zillion folks on this website want the info!

Re: Well the day is here for my long awaited appointment with the specialist

Nancy N on 5/21/01 at 14:07 (048478)

We're all thinking of you today, Laurie--hang in there, and don't worry so much! :) I'm sure Judy's right, that any doctor worth his salt will not recommend surgery if s/he does not honestly believe it's the best way to go. Let us know how it goes!

Re: Well the day is here for my long awaited appointment with the specialist

Valerie S on 5/21/01 at 15:09 (048482)

Yeah, Laurie... you survived until your long-awaited appointment!!

I, like everyone else, am anxious to hear how it turns out. Good luck to you. I had the opposite exerience in regards to the doctor/surgeon... the surgeon did NOT recommend surgery... Hopefully you end up in good hands!

Looking forward to your update!
Val.

Re: Nothing but the best for my niece!!! ;>) Good luck! eom

Steve P on 5/21/01 at 17:02 (048488)

.

Re: Well the day is here for my long awaited appointment with the specialist

wendyn on 5/21/01 at 18:10 (048495)

Laurie - keep us posted!

I am guessing it's not a holiday where you folks are at - we are all off work today - yipee horaay!!!

Re: I'm back from the appointment and very confused and sad

Laurie R on 5/21/01 at 19:44 (048504)

Hi Guys, Frist of all thank you all so much for your well wishes today ... Thsi si sthe second time I'm trying to post this .I just finshed the first one telling about today and I got kicked off line ..So here it goes again.

When I first go there the doctor looked at my tenogram and said that my tenodon was very blocked .. Now he siad he did not want to do surgery to fix it because maybe I would not be able to ever walk again..... So he wanted me to start taking 'Predisone ' for 5 to 7 days ... I told him no way .. I have read to many bad things about it. He said he would not treat anyone that needed Predisone and did not want to try it. Then he was telling me some of the side affects ,one being that I would not sleep for 2 to 3 nights and I could be very jumpie. I told him I have kids that I have to take care of ... He said that the predisone just could be the cure. I don't think so .I have had 4 cortisone shots that did not help me at all ..... Then he told me that he treats the 49 ers and the SF Giants and they take it and it helps them . I thought to myself then they can have mine I don't want it. I stopped taking drugs years ago , I don't want thoes feelings back.

Tehn he looked at my foot , and said that I do have tenosynivitis pretty bad. Then he started talking about surgery again and said that sometimes after surgery you have to take predisone ... He said that I don't have to take it now ,but to think about it .. Then I said so ,you will not see me if I don't take this predisone ,he said he would but how could he help me if I won't listen to him ..... he has a point ,but I don't have to agree.

Tehn he said that I have all the symptoms and my films show the tenosynivitis but he was very concerned with the pain I have when I 'm off my feet. Sometime I have more pain when I 'm off my feet then on them. He said that has nothing to do with the tendon. Now he thinks I migh thave RSD....This was something I did not want to hear. I only have one symptom of RSD .He said that you don't need all the symptoms to have it just one could mean it. So now he wants me to see another specialist to have this checked out. Also he was going to call my Pod to go over everything. Well I think I'm calling my Pod tomorrow to go over all this with him. I'm very confused at this point. MY cousin and one of my aunties have RSD ,very bad...If I do have it then I will deal with it.

So now for sure I know I have PF as well as Tenosynivitis and maybe RSD. he said that he needs to know if I do have RSD before he would do surgery ,cause he would have to block thoes nerves . I did not fully understand what he was talking about. He covered a lot in the 35 minutes he was talking to me.

Now he asked what I was taking for pain. I told him Vicoden ES .He said that anyone that has taken Vicoden for longer then two months is hooked on it. Well I have been on it a lot longer then that. So I did agree with him on that . So he told me to get off the Vicoden and he wants me to take Ultram. I am very cool with that . I wanted to get off the Vicoden anyways. One thing he knows I'm in pain and he took my pain seriously . So I'm very happy about that.

He was going to callmy WC insurance company to get the other specialist approved ... I told him good luck it took me amost 5 months to get you approved ... So when I left I gave him my attorney's number so maybe she could get it approved.

Any thoughts on this visit would be very appreciated...

Your very confused and sad , Laurie R

Re: I'm back from the appointment and very confused and sad

Valerie S on 5/21/01 at 21:14 (048518)

Hi Laurie.

I'm sorry to hear that you are sad... my heart goes out to you. It sounds like the doc at least took your pain and your condition seriously... that's a start. And it probably won't hurt, trying a new medication to replace the Vicoden, if you are open to that. I took the Prednisone for a week, and it did relieve my pain, but it made me very wired and spaced out, and the pain came back before I even finished the pack. I have 'only' been diagnosed with PF, and have no experience with Tenosynivitis or RSD. I really don't blame you for refusing the Prednisone; I cerainly wouldn't do that again...

I wish I had some wisdom to offer you... I will always be here if you need a friend... Best to you. I hope everything looks clearer in the morning. Please remember you are not alone... we are all here, all behind you.

Take it easy, Laurie.
Your friend, Val.

Re: I'm back from the appointment and very confused and sad

Donna SL on 5/21/01 at 22:56 (048529)

Hi Laurie,

I don't know if this will help you, but I remember my sister had taken prednisone, and it only increased her appetite, and made her retain some fluid. She actually felt better when she was on it.

Also, my brother had to take Prednisone for his sinuses several times, and he didn't suffer any side affects.

I think everyone reacts differently.

It would be good to get a second opinion, and I'm sure you'll be talking to your pod about this, but it would be wonderful if something as simple as the prednisone could do the trick, and you could avoid surgery.

Re: I'm back from the appointment and very confused and sad

wendyn on 5/21/01 at 23:20 (048532)

Well Laurie - so far I think I like the sound of your new doctor.

I know he scared you - but it really does sound like he's thinking this through.

A million years ago - I know you and I had discussed RSD - whether by email or on the board. The diagnosis was being tossed around in my case - and you and I were sharing almost identical symptoms.

Laurie, if it IS RSD, it is so important that they treat it. RSD is treated very differently than your 'standard injury.' Basically what happens is that the nerve goes completely 'haywire' and it sends all kinds of messages out to the rest of the body as if it's in extreme pain (of course the pain is real that you feel - but most of the pain is caused by the over reaction of the nerve). If left untreated, it can cause bone loss and permanent problems. The only way to stop the awful cycle is to get the nerve to settle down and stop doing what it's doing. Do you remember Lee who used to post here? There have been a number of people here who were eventually diagnosed with RSD.

I am really happy to hear that he is going to completely check this out in your case. That's why he's a specialist - and that's why you went to get his opinion. His job is to look at all the other things that may have been overlooked before.

For prednisone....hmmmm. You and I have both read the same things. Prednisone is a pretty scary drug. It's also a very effective drug. How about, since he backed off - let's leave it for now. If he suggests it again, you can always take the prescription slip (say thank you) and go home. Even get it filled. Then, you can talk to the pod who I know you trust so well. You can talk to the doctors and the patients here, and then decide whether or not to take it.

So please - don't stress too much about it for now - there is lots of time for that later if need be. I think that if it turns out to be RSD - they may drop the prednisone idea anyway. How bout for just right now, to take this really one day at a time and see what unfolds?

What do you think?

Re: I'm back from the appointment and very confused and sad

Laurie R on 5/22/01 at 00:24 (048533)

Oh Wendy , thank youso much .... And yes I will take your advise ,one day at a time. Your right if I do have RSD God forbid I am sure I will not have to take the Predisone. I am so scared of this drug. But now I have thought real hard tonight and I can not let this stop me from getting the care I need. And if I do have RSD then I will deal with it.

I swear Wendy when this all started almost two years ago they told me that my PF would go away in 4 weeks .... At the timr I thought 4 weeks , no way it can not last that long..Well here I am still waiting. It just seems like it keeps going into something else... You know I really don't do much and I'm not on my feet all that much. I just would love to work again. I think I am to young to never be able to work. I can't live off Workman's comp forever. We are maxed on our credit cards we live check to check and we don't have extra for anything. I sorry to just complain tonight . This really took me for a loop today. I was so scared of surgery ,I never even thought of anything else.

I will have you all know that I had no anxiety ...Yeah Laurie.This is a biggie for me . I usually get so nuts before the appointment I have no clue what is even going on.Today I looked the doctor in his eyes and listened to every word he said.

Wendy thatnk's for your support and kind words ,I really needed to hear this tonight ... Guess what ?? I am not sad anymore ....

Donna ,Thank you too for your kind words ... It will be ok. This doctor even told me he went over a lot of things with me and he knew I was a little confused.... He is a very good doctor ... He is also trying to help me .Liek Wendy suggested ,take one day at a time. I will try to do this.

Val, you sweetie , you are in so much pain and have so much going on yourself and you took the time out to make me feel better. Thank you my friend. I hope tomorrow goes really well for you.

Thank's again ,you guys make me feel so good.

My best to everyone , Laurie

PS Wendy , how are you feeling?? How is the pain??

Re: Laurie, you are marvellous

Julie on 5/22/01 at 06:51 (048550)

Hi Laurie

I was off the board yesterday, so I didn't get a chance to wish you good luck for your appointment, and I've only seen your full report this morning.

What stands out a mile is how strong and focused you are - to be able to say that 'whatever it is I will deal with it'. My hat is off to you, truly it is.

(I also think you're pretty amazing to have heard and understood REMEMBERED everything the doctor said to you.)

Apart from that I can't add a thing to the brilliant advice Wendy has given you, so full of good sense as usual, as well as reassurance. Keep on taking one day at a time, and let's see what the next step, and the next...are going to be. You really do have the inner strength to carry you through, Laurie. And don't forget that there is a source of strength outside and beyond you that you can trust - as well as the love and support you have from everyone here.

All the best, Julie

Re: Laurie, you are marvellous

Tammie on 5/22/01 at 08:36 (048557)

Laurie,
I think in all of the darkness in your life ,physical pain and emotional, etc. there is a opening in the clouds,perhaps a rainbow of happiness and relief.Please open your heart to it and your ears! I understand it has been a long haul for you a very long one,but you have made it thru all of this turmoil and grief and pain,not to give up or back off. It seems as tho your Dr.s are listening to you and they HEAR that you have real pain that is a plus! They seem to be looking into all methods and diagnosis and conferring with the other dr. so sounds as tho he is not threatened, by getting someone else involved with finding out what is really wrong,and he is concerned with helping you. I dont know but maybe this is your opening my friend ,I know that you were hoping this would be the fixer of all problems and u would be back to work and you and your family could live easier but look at the covered blessing of you being home with your family, it is sometimes hidden and maybe a gift that u have not seen thru your pain. You have been able to enjoy being with your daughter and husband and you have gotton thru this terriable time of pain with them making a bond that is strong you are teaching your daughter that lifes downs can be overcome and that u can survive even if there are no extras! That life is not about material things and fancies! Maybe more about the special love that you all share and the happiness you find thru all the darkness, maybe the lesson is about surviving! I am not sure just some thoughts to maybe help u thru today and the next! One day at a time is trying to be my new motto,and with that in each day try something to be thankful for . And to start tomorrow and every day with a light thought and with a smile! Life is what we make of it , if we choose to be sad we will be if we choose to be happy we can be ,why be miserable as we never know what or when the end will be! You will make it Laurie in what ever is to be you are wonderful strong and loving person we have been emailing each other for a short time now but I can feel it ! Please be happy !!!!!!!! And so many people here new exactly what to say in the medical part so I have to try to lighten your heart a bit if that is ok! I continue praying for you my friend! Hugs to u!!! I hope u get a little sunshine in your life today.

Re: I'm back from the appointment and very confused and sad

BrianG on 5/22/01 at 08:50 (048561)

Hi Laurie,

Did this new doc really tell you that your were 'hooked' on the Vicodan? I can tell you right off the bat that this man has not educated himself on the use of proper pain meds for people with chronic pain. About the switch to Ultram, it's OK to give it a try, but I really doubt it will work as good as what you were taking. In some counties, Ultram is given out like candy. It's not a real pain med, but unfortunatly you will also have problems if you stop it with out tapering first. Please ask your doc to taper you off the Vicodan if you've decided to stop it. It should only take 2-3 weeks, and will save you a lot of unplesent side effects. I do not think the Ultram will mask the Vicodan withdrawal symptoms, but it might. It's something you should ask your doc. I hate to see you get sick neeedlessly. Good luck.

BCG

Re: Laurie, you are marvellous

ellen w on 5/22/01 at 10:34 (048573)

Hi Laurie,

I had a positive experience with the prednisone dose pack though I had the symptoms your doctor described to you -- I was very wired, and by the 4th day, the 'editing function' was gone from my brain. I really had to restrain myself from saying inappropriate things to the people at work (like what I really think of some of them....)

While I was on it, I was able to move in ways that I hadn't in months. This didn't last after I stopped taking it, but my symptoms --stiff ankle, pain in the heel due to bursitis -- weren't as bad as they had been before. The prednisone seemed to take the inflammation down to another level where some healing was able to begin to heal. And my doctor, who had been talking casting or surgery, said my reaction to the prednisone proved that neither would be necessary.

Like you, I was scared to take this drug, but it was less scary than surgery or, for me, a shot of cortisone into the heel itself.

Like one of the other posters said, everyone's reaction to this drug is different. Another person here at work also took it, and said he had absolutely no psychological side effects. If I were to take it again, and I probably would, I'd time it so that the 4th & 5th days of taking it were days were I wouldn't have a lot going on.

Hope this helps,
Ellen

Re: I'm back from the appointment and very confused and sad

JudyS on 5/22/01 at 12:00 (048576)

Laurie Laurie Laurie - as Queen of the World, I hereby pronounce all confusion and sadness gone from your body, mind and soul! (there - did it work?).
I hope you don't mind if I share two thoughts I had while reading about your experience at the doc's. One, your expectation, jusitifiably so, was that he was going to spell it out in black and white, you'd be treated one way or another, and finally be on the road to sure recovery. Instead, he talked about RSD and Prednisone and only added fuel to the fire of confusion! Let's look at those two things for a minute; RSD - chances are slim, right? And after all, your foot problem is a result of an injury, not a systemic issue. And about that Prednisone; side effects - yes. To what degree, who knows - it's different for everyone. But....a temporary treatment and perhaps worth a week or so of trying? On the other hand, no one knows as well as I do how difficult it is to put up with life-limiting side effects for even one day! The other of those first two items.......the last thing you needed to hear from this expert was his advice to try yet another 'drug'. Talk about adding fuel to the fire! But do you suppose today you'll be able to clear the cobwebs of confusion a bit and reason, to some degree, that his recommendation is based on his experience and knowledge regarding the Tensosynivitis (sp)? Maybe, for the immediate future - say a week to ten days, it might be worth a try? And you get to get off that med if it's just too much to handle, right?
You've said that you really miss working so I was wondering if it could be a good time to get a stronger feeling of control by beginning to look in to retraining programs that could help you enter a different field while you wait for your foot to heal. That'd be a heck of a way to take at least one bull by the horns! You might check with your local community college about re-training, re-entry, etc. and even with the workman's comp. folks. There's lots of opportunity out there for a beautiful, smart and energetic person such as, well, you!
I truly hope the sun is shining brighter for you today and don't forget - YOU get to be in charge!

Re: "Hooked' on Vicodin --- In 2 Months?!

Janet C. on 5/22/01 at 21:26 (048603)

Hi Laurie!

Everyone had the MOST WONDERFUL advice for you! I think that this Message Board is GREAT, how the people REALLY CARE for one another! I just wanted to add that I think your doctor was mistaken in saying that patients who take Vicodin for two months, are hooked on it. I took Vicodin for years, and I could, and did quit. Easily. Although my pain levels returned to their intensity, I suffered no withdrawals, EVER. I know that everyone is different, and SOME people COULD POSSIBLY get addicted after two months of taking Vicodin, but I would presume that's an extremely rare occurance. Perhaps your doctor thought by exaggerating, he could prevent you from developing a dependance on Vicodin.

My best wishes to you - always,

Janet

Re: "Hooked' on Vicodin --- In 2 Months?!

Laurie R on 5/22/01 at 21:52 (048605)

Thank you so much for posting this Janet..... As you could think ,,I was thinking all day that now with everything else going on I'm a drug addict... Thi sis one of the reason I don't care for doctors. They have a way of putting things in my head and I believe them. This doctor was ok , but I don't agree with everything he said to me. As I said when I left I wsa very confused..... I'm still confused. I did call my Pod today and left a message . His nurse called me back and said that he would be gone until next Tuesday . I will call him then.I need to talk to him before I do anything at htis point. I know I will get through this .Yesterday just took me for a loop. I had my pitty party last night and today I done with it. Now it is time to think of a way to get the help I need. I did not stop the Vicodin yet ,Iam not going to even think about it until I talk to my Pod.

Brain , thanks for your input too. I really appreciate everybodies input. This has helped me so much. All of you helped me get though my craziness last night.I will say I was really down. The first thing when I got home was post my story so I could hear what everyone had to say. I do listen... Brain I very glad you replyed to me .Before my apppointment I was going to ask you what you thought on new pain meds for me. I know you know a lot about it. See with me the Vicodin was great at first ,now it does not work like it used to . I so agree what you posted. Thanks again .....

I love this board.... Thanks to everyone.

My best to all,Laurie R

Re: Laurie, you are marvellous

Laurie R on 5/23/01 at 00:26 (048610)

Hi Ellen ,I knew their was someone on the board that took this and said that it made them say things they would normally not say .... Thank you so much for the advise.... How are you doing now? Thank's again. Laurie R

Re: Laurie, you are marvellous

Laurie R on 5/23/01 at 00:32 (048611)

Dear Judy Tammie and Julie, Thank you all for your kind words .. Boy , you guys really made me feel better. I need the support right now ,and you all gave it to me. It is a hard time for me as I am still really confused ,but it will get better. Everything takes time. I'm very thankful for a lot of things and I always think things can be worse.

My main thing I have to do to get started on the right treatment and a diagnosis for RSD is to talk to my Pod . He will be back in his office next Tues. I'm sure he will know someone that can help me. If not my attorney has doctors too. I will keep fighting until I find the right doctor that will help me. Just think I was so scared of surgery , and for now I don't have to worry about that..

Things always seem to work out . Thanks again ,you guys are wonderful and on ething that i'm greatful for is all of you and this board....

My best to all,Laurie R

Re: It's called Accomodated

BrianG on 5/23/01 at 11:35 (048651)

Hi Laurie,

Just one more quick thing about the Vicodan. It's a good med for short term pain, as you found out. Like all pain meds, you'll gradually develop a tolerance and need a little more to give you the same pain relief. This is not necessary a bad thing. The bad thing is what is mixed with the pain med. It is probably asprin or acetimenephin, both of which can cause internal problems if taken at too high a dose for too long. Not to worry though, you are not any where near that amount.

Yes, you will have some discomfert if you stop the Vicodan without tapering. It'll probably be like the flu for about a week. If you gradually taper off, like I mentioned, you'll have no discomfert. Do a little reading on the Ultram, use a seach engine, if your going to take it. I personally wouldn't take it, but it's up to you and your doc.

If your pain continues, and you decide to stay on a pain med, your better off to take something that won't harm your stomach. One such med is Hydrocodone. You'll still have to deal with accomidation (needing more) and some constipation, but I personally think it's better than the relentless pain. I just couldn't deal with the pain, year after year. I hope all your decisions are easy ones. Just try to stay informed, and hopefully I'll be around if you have any questions. Good luck.

BCG

Re: "Hooked' on Vicodin --- In 2 Months?!

BrianG on 5/23/01 at 11:45 (048653)

Hi Janet,

I think you were one of the lucky ones to have no discomfert after taking Vicodan for years. Others are not as lucky. Your right about the doctors exaggering a lot. The percentage of people that get addicted to drugs, from taking pain meds is about 1%, or less. We've all heard about the celeb's this has happened to, but they don't bother to mention that all of their friends are most likely taking drugs also. The responsible person who takes meds for legitimate pain does not have to worry about addiction. Thanks for helping to pass on the word, I really think it's important to let the people who are suffering know that there is help available.

BCG

Re: It's called Accomodated

Laurie R on 5/23/01 at 16:58 (048677)

Thank you so much Brain, I know you know better then anyone else about pain meds. I appreciate your time so much. I'm staying on the Vicodin until I talk to my Pod next week ..... I was never going to just stop the Vicodin. The more I think about that specialist I went to on Monday the more I get mad. He told me so much in such a short time my head was spinning when I left. I sure he is a wonderful doctor just night right for me.

The thing is he understood how much pain I'm in ,it shows in the tenogram films I brought with me. He said that my tendon is blocked very bad ... I just htink some doctors not all are on a power trip...

Brain if you don't mind me asking ,you said you would not take Ultram ,can you tell me why??

Thanks again,my very best to you.Laurie R

Re: "Hooked' on Vicodin --- In 2 Months?!

Laurie R on 5/23/01 at 16:59 (048678)

I agree 100 % thank you again Brain and Janet...Laurie R

Re: Laurie, you are marvellous

ellen w on 5/23/01 at 18:39 (048696)

Laurie,

Thanks for asking. I thought I was close to posting the 'I'm cured, I'm cured, I'm cured' message that Rich did months ago, but since then I've had a set back due mostly to work. I've been hit with 2 major back to back projects, one an accreditation report that's due in Washington next week, so I've been working long hours. None of it's on my feet, like your job, it's all computer time, but my ankles have been swelling again and freezing up. I'm not completely back to square one, and I will take some time off after next week, so I'll re-evalute then. I know how frustrated you are -- I've been following your posts and have felt terrible about how badly the worker's comp system has treated you. There ought to be a better way. Anyway, after I took the prednisone, I went from nonstop bad days to several months where I had bad, average, and good days in terms of pain and stiffness, gradually there were more good days than bad, and when I started taking MSM, I started feeling much better. My heel, which had been this solid hard red mass returned to its normal color, and thanks to the PT exercises, the ankle is much stronger than its been in years. Your problem sounds much more serious than mine, however. But, if I remember what you posted accurately, his advice that the inflammation needs to come down before he does surgery sounds like good advice -- maybe Dr. Z. could advise on this?
Anyway, gotta run, sorry that this was such a rambling message.
Ellen

Re: It's called Accomodated

BrianG on 5/24/01 at 07:53 (048749)

If I was just starting out, I might take it. It is not as strong as what I'm on now. To go from Vicodan to Ultram is like going backwards. Thats why I really think that this doctor is not very educated when it comes to pain meds.

BCG

Re: RE: question on RSD

karenc on 5/24/01 at 10:21 (048770)

I noted in reading some of these posts that Laurie said she had sometimes more pain OFF of her feet than on and that the doctor thought she could have RSD. Stupid question but what is that? b/c my pf seems to often times hurt and cause me throbbing pain (not at a 10, but a good 5 or 6) often times when I'm in the car or at my desk w/ no pressure on it whatsoever. Is that a common symptom of pf or something else (like this RSD?)? Any thoughts would be greatly appreciated.

Re: RE: question on RSD

Laurie R on 5/24/01 at 10:37 (048772)

Hi Karenc, Please read what Wendyn wrote back to me on RSD in this thred. She explained it perfect .... RSD is a lot different from PF. I have a few things wrong with my foot besides PF ... My best to you.Laurie R

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

Valerie S on 5/24/01 at 14:45 (048793)

HI Karen.

Like you, I don't know what RSD even is, but thought you might appreciate my experience. The pain that you have when you are off your feet - I have that too, and used to compare stories with the girl I worked with about the 'dangling foot' pain (pain when your heel is not resting on the floor). When I was on my feet all day, it actually hurt more to lift my foot up off the floor to 'rest' it than it did to stand on it. (Damned if you do, damned if you don't...)

The most explosive 'resting' pain I would get was when driving home from work (all day on my feet-ouch). There is a long stretch of highway, and during that time, I would get burning and stabbing pains in my foot...this was with my foot on the gas, heel on the floor. Once I got off at the exit, I would have to take my foot off the gas and put it on the brake. During this, my heel was not on the floor, and I would get this EXPLOSION of SEARING HOT pain, so violent I would sometimes literally cry out loud in pain.

Since being off work (9 weeks now), I don't have the same excrutiating pain that I used to unless I spend more than an hour on my feet, so this symptom has tapered off a bit for me. I did some light housework today, for 2 hours straight, and once I sat down, I started getting that 'dangling foot' pain again. I have been living on the assumption that this is part of PF pain... I sure hope so, 'cause I have been having this kind of pain all along.

Anyone else with 'just' PF have this experience too, or is this symptom a sign of additional problems??

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

Tammie on 5/24/01 at 17:27 (048810)

Heh there Hi!
I just read this post and it sounds so very familiar! That is like what I have been saying all along! I had it before the pf surgery and I have it now after but always at night time! I tryed explaing this to my dr. he said dont worry is the nerves regenterating! Hmmmm now if that is so how come u have it and u did not have the pf surgery? Do they say that stuff is pf? Or is it something else? Gosh I dont EVEN want to think that is not what he has stated!I can walk on my heel now tho and before surgery I could not walk on it at all. And if I keep busy on my feet I dont notice stuff till late at night or whenI sit and dangle or cross my leg BINGO u just stated how I feel! I will listen to what is told to u! I hope you are doing well Val it was nice chattin with u! Have to do it again!

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

wendyn on 5/24/01 at 21:40 (048827)

RSD is Reflex Sympathetic Dystrophy or also known as Complex Regional Pain Syndrome. It is an extremely rare problem. (So not something your average person here would need to be concerned about). It can happen following an injury or surgery - and the nerve(s) basically over reacts and begins to cause pain and symptoms out of proportion to what the initial injury was. It usually causes extreme pain, discoloration, and circulation problems. If left untreated - it can cause muscle atrophy and bone density loss.

It is usually treated by nerve blocks, and usually by a specialist who has dealt with it before (not your average GP).

I am not a doctor, but since this was once tossed around as a possible diagnosis in my case - I did some reading.

Re: RE: question on RSD -- Dangling Foot Pain Happens with PF,yes??

karenc on 5/25/01 at 08:59 (048852)

wow - I just thought mine was pf, and from a few of the other posts, may still be, but I'm going to monitor my 'dangling foot' pain and see where we come out. I'd love to hear how many others of you (we're now 3) have it and associated it w/ just (!) pf (as opposed to Wendy's issue). I have not had surgery and I did not have a major injury (just too much running on old shoes on hard concrete and ignoring the pain). My pf foot (well, I think I got it in the other, but the bad foot) is my left one, though, so it's not even involved in the driving. And occurs at my desk. I need to also do research on this sciatic nerve (sp?) and how it can affect the whole deal. (I'm only partly through Scott's 19 page treatise, so there may be some leads there, too). Anyway, I'll keep checking here. thanks.

Re: The Dangling Foot

Julie on 5/25/01 at 10:50 (048861)

Karen, I've noticed the dangling foot pain too. And others have mentioned it in the past. It could be to do with the fact that when the foot is plantar-flexed (toes pointed forwards) the fascia is at its most contracted.

Re: The Dangling Foot

karenc on 5/25/01 at 12:36 (048877)

thanks so much. I'll not worry about the RSD thing, then. (whew - only one foot injury at a time).