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Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Posted by CindyF on 7/11/01 at 06:18 (052773)

Hello....
I am scheduled for surgery in 2 weeks for what I was told by my Ortho was a rare form of TTS. It has most of my nerves in my foot trapped, requiring surgery to both the inside and outside of my left foot.
I am very nervous about this surgery because I have already had 2 surgeries on that foot .
The first was in 1996, where the Podiatrist who thought he was removing a heel spur informed me after the surgery that it was a nerve tumor, the size of his thumb.
Things went fine for the first 3 weeks, then I started getting redness and drainage at the incision site...which had been looking good...and was closed.
I went back to the Pod/Surgeon and was seeing him on a daily basis to get this infection under control. After a week he got the results of the drainage culture and it was found I had a rare anarobic bacteria (lives without oxygen) causing this infection. The redness and drainage became worse by the day,along with severe edema and heat and severe pain to the foot and seeing the Pod/surgeon daily....I begged him to lance it or put me in the hospital to get antibiotics by IV...because I was taking so many strong antibiotics by mouth that I was sick from it.
Well, after the 9th day of dealing with this pain and the severe swelling and heat in my foot...my husband pretty much demanded they do something.
So...he did..in his office...which to this day I regret and always will.
He started off by numbing my whole foot with novacaine...then..he slit open the old incision area...and out popped several large sacs of infection, what my husband refered to as being the size of cheetos...
Then this Pod/surgeon had this bright idea that if the bacteria was anarobic bacteria...that he could flush it out with HYDROGEN PEROXIDE.
Well, he proceded to fill syringes with peroxide and jabbed the needle in different parts of my foot...irrigating out the infection.
Let's just say, the last thing I remember was the most excrutiating pain I ever had. This great Pod/surgeon had just flushed out all the novacaine in my foot. And here I was being tortured by this man. Needless to say I fainted from the pain.
My husband told me later that the POD. gave me more novacaine instantly, but not before he wanted to punch him.
Anyway....I ended up with a large hole in my foot that went down to the bone that took a month to close.
So from a result of all that...I have had a limp for the last 5 years.
Seing various podiatrist...I have paid for too many cortisone injections, 2 pair of orthotics and seen 3 different podiatrist.
Finally I went in April, 01 to an Orthopedic foot specialist.
He found that I have damaged the outer part of my left ankle from the limping....and I would need that repaired seperately from anything else.
So...in April, 01 I had Orthoscopic surgery to repair the ankle area, which has really releived that pain, but now I still have the origional pain that made me limp.
My ankle is still stiff some, and I have to wear an ankle support at all times during walking.
A nerve conductor test reveiled all the nerves in my foot are shown to be entrapped. My Dr. feels it might be from the scar tissue.
Now I come to where I am...having the TT surgery to both sides of my foot.
Has anyone else out there had this done to both sides?
I'm worried it will be a long time before I recover enough to go back to work, or if I will recover enough to even walk.
My Doctor claims my situation could place me on disability, but I'm only 38...too young for that.
My job requires lots of walking, but not all day long.
I just wanted to share my experience with someone out there.
Please let me know if anyone else has had TTS on both sides of the foot at one time.
Thanks,
Cindy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Julie on 7/11/01 at 06:43 (052775)

Cindy, I know nothing about TTS, but I have to tell you how terribly sorry I am that you have had so much trouble. You seem to have borne it bravely and with good humour, but my goodness! what a load to bear. The pod who did you so much damage should be hung, drawn and quartered. (Did you ever report him to anyone?)

I do hope that your new surgery goes well, and leaves you in better shape - I'm sure the orthopaedic foot surgeon will do a better job - and that you heal beautifully and can return eventually to work and normal life.

All the best, Julie

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Stephanie Adams on 7/11/01 at 08:13 (052780)

First of all I will say Good Luck on your surgery to come.
I thought I had it bad. I have been off work 8 weeks so far and not supposed to return for 4 more and I only had the inside done. If you read my previous two posts you will see what I have gone through. Not even close to what you already have, if you survived the other ordeal, I think it will be very easy this time. Make sure the doctor knows all of your history and how you feel about this and also ask alot of ?'s. You will probably be off work for sometime, don't push it, let it heal slowly.
Again I say Good Luck.

Re: there is no TTS on the outer ankle

elliott on 7/11/01 at 11:20 (052799)

First of all, real sorry for your predicament. Doesn't sound good. Where and exactly what is your nerve pain?

The posterior tibial nerve runs down the back of the foot and down to the medial (inner) side of the ankle, where, in or near the so-called tarsal tunnel just behind the ankle, it splits into three main branches, the medial plantar nerve (giving sensation to the medial 4 toes), the lateral plantar nerve (giving sensation to the lateral, or outer, 2 toes) and the medial calcaneal nerve(s) (going to the mostly medial side of the heel). No TTS nerve runs along the outer side of the ankle, although there are other nerves there (e.g. superficial peroneal nerve) not connected to the posterior tibial nerve or its branches. The lateral plantar nerve does go to the outer toes but starts on the medial side of the foot and runs onthe sole under your foot to the toes, but is nowhere near the outer ankle.

Your situation sounds so serious that if I were you, I'd ask the ortho (who I hope has had a lot of experience with nerve-related surgeries) exactly what's going on and what he plans to do. Don't let him dumb down to you. Perhaps you waited too long to go to an ortho. Now that you're there, ask him everything, maybe think about it, maybe ask a second opinion. Just some friendly advice.

Re: there is no TTS on the outer ankle

CindyF on 7/11/01 at 12:50 (052818)

Elliot...
Thanks for the advice...
The Ortho didn't use the words TTS for the outer part of my foot...
He said I had nerves trapped all over my foot due to the scar tissue and he would have to open me up on both sides of my foot..
The neurologist even called him up...after I had seen him for the nerve conductor test...and talked about my problem...asking if he thought I might would prefer to go on disability instead of surgery...that it would qualify me...
I said NO!
I have been to so many Doctors and had many test on this foot..even a bone scan...which also reveiled I could have some Osteomylitis in my foot...probably a result of the first surgical infection..
I'm at the point now where I feel I would want him to look all in my foot to get rid of any scar tissue that could be causing my pain...
When you have pain just walking to the bathroom in the afternoon...and you feel you can't take another step on the foot because the pain is so great at times..you are willing to at least try....
I feel confident with this Ortho...he was great with my ankle repair...and the reason he didn't want to do this TTS at the same time is because he felt the area was contaminated and didn't want to harm the better tissue around my outer ankle...
make sense?
Oh..I have asked my Ortho many questions...and hopefully going into this with my eyes open...
Thanks for you wonderful advice and concern..
Cindy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

CindyF on 7/11/01 at 12:54 (052819)

Julie...
No..I didn't report this guy...he was supposedly a Podiatrist specializing in surgery...
After several different podiatrist...my sister suggested an Orthopedic Dr.
She works at an Orthopedic Hospital in another state...
So..that's how I ended up now...
Which...The Ortho Dr. did get rid of the outer ankle pain I was having with the Orthoscopic surgery...
Thanks for your concern...*S*
Cndy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

CindyF on 7/11/01 at 13:01 (052822)

Stephanie...
Oh...I am preparing myself for being off work a good time...
I already haven't worked since April...what's another few months....
I am fortunate to have a wonderful husband who tells me I won't go back to work until he see's me not in pain...*L*
If it were up to me...I would have went back to work as soon as I got off the crutches...which was 3 weeks with the ankle surgery...
I called my work and told them to go ahead and let me quit...and I will just see if they are hiring when I get better...
They informed me I am still on Medical leave...and will remain that status until I get healed...regardless if I tell them to let me just quit...*L*
It's not like I'm getting any kind of money from them....just the satisfaction of knowing I still have my job...
Thanks for your concern...
Cindy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

wendyn on 7/11/01 at 13:23 (052826)

Cindy - have you had an MRI of the whole area?

Re: there is no TTS on the outer ankle

cindyp on 7/11/01 at hrmin (052831)

Well I can gladly say that I haven't had such awful problems as you, god bless ya. I did have a tumor crushing the medial and lateral plantar nerves. I too thought that there would be surgery on both sides, but no it was only on one side but 25 stitches. Take care, good luck, ask lots of questions about plans and intentions. Get a dr. that specializes in the foot and ankle and the nerves. Ask about how much surgery he has done like this. Crossing my fingers for you. I go back on the 17 of July. Feel pretty good. Stiff and sore some but other than that. I thought I would never be okay. You will be.

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Julie on 7/11/01 at 15:01 (052846)

Cindy, do hang onto your job and make the most of your medical leave. Keep it rather than quitting will also make a difference if your healing takes longer than you hope and you have to go on temporary disability. This isn't being negative - I hope you'll heal very quickly - just realistic.

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Julie on 7/11/01 at 06:43 (052775)

Cindy, I know nothing about TTS, but I have to tell you how terribly sorry I am that you have had so much trouble. You seem to have borne it bravely and with good humour, but my goodness! what a load to bear. The pod who did you so much damage should be hung, drawn and quartered. (Did you ever report him to anyone?)

I do hope that your new surgery goes well, and leaves you in better shape - I'm sure the orthopaedic foot surgeon will do a better job - and that you heal beautifully and can return eventually to work and normal life.

All the best, Julie

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Stephanie Adams on 7/11/01 at 08:13 (052780)

First of all I will say Good Luck on your surgery to come.
I thought I had it bad. I have been off work 8 weeks so far and not supposed to return for 4 more and I only had the inside done. If you read my previous two posts you will see what I have gone through. Not even close to what you already have, if you survived the other ordeal, I think it will be very easy this time. Make sure the doctor knows all of your history and how you feel about this and also ask alot of ?'s. You will probably be off work for sometime, don't push it, let it heal slowly.
Again I say Good Luck.

Re: there is no TTS on the outer ankle

elliott on 7/11/01 at 11:20 (052799)

First of all, real sorry for your predicament. Doesn't sound good. Where and exactly what is your nerve pain?

The posterior tibial nerve runs down the back of the foot and down to the medial (inner) side of the ankle, where, in or near the so-called tarsal tunnel just behind the ankle, it splits into three main branches, the medial plantar nerve (giving sensation to the medial 4 toes), the lateral plantar nerve (giving sensation to the lateral, or outer, 2 toes) and the medial calcaneal nerve(s) (going to the mostly medial side of the heel). No TTS nerve runs along the outer side of the ankle, although there are other nerves there (e.g. superficial peroneal nerve) not connected to the posterior tibial nerve or its branches. The lateral plantar nerve does go to the outer toes but starts on the medial side of the foot and runs onthe sole under your foot to the toes, but is nowhere near the outer ankle.

Your situation sounds so serious that if I were you, I'd ask the ortho (who I hope has had a lot of experience with nerve-related surgeries) exactly what's going on and what he plans to do. Don't let him dumb down to you. Perhaps you waited too long to go to an ortho. Now that you're there, ask him everything, maybe think about it, maybe ask a second opinion. Just some friendly advice.

Re: there is no TTS on the outer ankle

CindyF on 7/11/01 at 12:50 (052818)

Elliot...
Thanks for the advice...
The Ortho didn't use the words TTS for the outer part of my foot...
He said I had nerves trapped all over my foot due to the scar tissue and he would have to open me up on both sides of my foot..
The neurologist even called him up...after I had seen him for the nerve conductor test...and talked about my problem...asking if he thought I might would prefer to go on disability instead of surgery...that it would qualify me...
I said NO!
I have been to so many Doctors and had many test on this foot..even a bone scan...which also reveiled I could have some Osteomylitis in my foot...probably a result of the first surgical infection..
I'm at the point now where I feel I would want him to look all in my foot to get rid of any scar tissue that could be causing my pain...
When you have pain just walking to the bathroom in the afternoon...and you feel you can't take another step on the foot because the pain is so great at times..you are willing to at least try....
I feel confident with this Ortho...he was great with my ankle repair...and the reason he didn't want to do this TTS at the same time is because he felt the area was contaminated and didn't want to harm the better tissue around my outer ankle...
make sense?
Oh..I have asked my Ortho many questions...and hopefully going into this with my eyes open...
Thanks for you wonderful advice and concern..
Cindy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

CindyF on 7/11/01 at 12:54 (052819)

Julie...
No..I didn't report this guy...he was supposedly a Podiatrist specializing in surgery...
After several different podiatrist...my sister suggested an Orthopedic Dr.
She works at an Orthopedic Hospital in another state...
So..that's how I ended up now...
Which...The Ortho Dr. did get rid of the outer ankle pain I was having with the Orthoscopic surgery...
Thanks for your concern...*S*
Cndy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

CindyF on 7/11/01 at 13:01 (052822)

Stephanie...
Oh...I am preparing myself for being off work a good time...
I already haven't worked since April...what's another few months....
I am fortunate to have a wonderful husband who tells me I won't go back to work until he see's me not in pain...*L*
If it were up to me...I would have went back to work as soon as I got off the crutches...which was 3 weeks with the ankle surgery...
I called my work and told them to go ahead and let me quit...and I will just see if they are hiring when I get better...
They informed me I am still on Medical leave...and will remain that status until I get healed...regardless if I tell them to let me just quit...*L*
It's not like I'm getting any kind of money from them....just the satisfaction of knowing I still have my job...
Thanks for your concern...
Cindy

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

wendyn on 7/11/01 at 13:23 (052826)

Cindy - have you had an MRI of the whole area?

Re: there is no TTS on the outer ankle

cindyp on 7/11/01 at hrmin (052831)

Well I can gladly say that I haven't had such awful problems as you, god bless ya. I did have a tumor crushing the medial and lateral plantar nerves. I too thought that there would be surgery on both sides, but no it was only on one side but 25 stitches. Take care, good luck, ask lots of questions about plans and intentions. Get a dr. that specializes in the foot and ankle and the nerves. Ask about how much surgery he has done like this. Crossing my fingers for you. I go back on the 17 of July. Feel pretty good. Stiff and sore some but other than that. I thought I would never be okay. You will be.

Re: Multiple Nerve Entrapments requiring TTS on inner and outer ankle at once...in 2 weeks!!

Julie on 7/11/01 at 15:01 (052846)

Cindy, do hang onto your job and make the most of your medical leave. Keep it rather than quitting will also make a difference if your healing takes longer than you hope and you have to go on temporary disability. This isn't being negative - I hope you'll heal very quickly - just realistic.