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ouch please can u help?

Posted by Tammie on 8/15/01 at 10:11 (056785)

This morning I recieved shot 2 of whatever but believe it was cotisone, Please tell me is it the norm to have more pain then before the shot? The last shot i had at least had a bit of numbing feeling for a short time, This one does not at all in fact I would say is making my foot crazy and feel shooting pains in inside area of my ankle and up to my leg .Why, and what can this possibly be NOW? He said it should feel better soon, please can someone tell me how soon it should help? I think I am ready to give up, this cannot be real, and I have pt in a few hours lovely,should this be something I should call my pod back on? Or give it more time? It has been 2 hours, since injection. I am sorry for my posts I just dont know what to do .

Re: ouch please can u help?

Andrea R. on 8/15/01 at 10:52 (056789)

Tammie,

I would call your doctor. Try icing and see if it makes any difference.

Sorry I don't have any great ideas. It doesn't seem that the shots should make it worse that quickly.

Keep us informed.

All the best,

Andrea

Re: ouch please can u help?

JudyS on 8/15/01 at 11:55 (056790)

Tammy - if it helps any, I can tell you that I definately had more pain in my foot twice immediately after having had the cortisone shots. I assumed ith was from the needle site as well as from the 'foreign body' of liquid being inside my foot. The pain never lasted more than a day - and the shots never helped.

Re: Re:gave in and called

tammie on 8/15/01 at 13:00 (056796)

Hi, I called or rather hubby called, said is normal and can last up to a couple of days to take a ultram and ice if tolerate and elevate and rest. Call him if not eased up in a couple of days. Ok so doing as told and thought i would update u as I felt kinda stupid posting as seems alls I ever post is bad,makes me feel uncomfortable/ Told dr. I wish I could really say everything is good really I do,as if u think I love thease shots ,he chuckled. Well I feel kinda light headed as he told me to take to of the ultrams to give relief but making me sleepy, so going to nap!Canceled pt for today, will check back tomorrow with them to see if calmed down they said they would fit me in! So again thanks and I am off for a nap and a date with some good looking ice pack! Maybe catch up later!

Re: ouch please can u help?

Dr. Zuckerman on 8/15/01 at 18:40 (056832)

Hi,

I have seen steriod injection increase pain for up to two weesk before any relief. Take a ice water soaking twenty minutes three times daily. Off the foot. May need a pain medication for this. Ice packs can help alot also.

Re: Dr Z

Tammie on 8/15/01 at 21:03 (056850)

I will glady do ANYTHING to help this is unreal, I cannot keep up like this, the ultram does not keep up to the pain, it is ok for a couple of hours, do u think I should tell him again ? He is not to keen on any pain type meds, Not that i am either, but I really hurt and I hurt bad enough to feel physically ill.What do u think about pt tomorrow or fri? I honestly dont think I can if I feel like this,I am so afraid of any more pain, she is only using ultrasound and that ione, darn cant spell it but it is like a electrical thing that sends tingling in foot, last time it made my foot itch so bad I wanted to rip it off, she thought that unusal, but gee anymore what isnt to me! Thank you so much really I do mean it I feel like a blubbering child right now and I hurt like hell excuse me as I do not normally cuss but I think I have had my limits for pain today. He seems to feel for sure that this is the tts stuff, I hesitate to ask what u think as I dont want to put u on spot and worse yet I dont want to be ignored so will Thank u again and be done with this as I can now take another pill and maybe get a bit of sleep before I wake up, but I have my doubts. THANK U SO VERY MUCH!

Re: Dr Z

tony o on 8/16/01 at hrmin (056925)

poor tammy. your in for a true bout in hell. pain? you havent any idea what the pain is gonna be like in a few more months. i have had everything possible done and still suffer. the drs. won't give any pain meds. because they say im exagerating. after 13 months of excrutiating pain i have come to a conclusion. no boby knows what were going through. except maybe us. i had the decopression done on 11/29/2000 and its worst than before the operation. i am loosing my will , my hope and my strength because of tts. and no one listens. i have tried so hard to do without pain medicines and find that the only thing that did help back 6 months ago were narcotics.since i live alone this is very hard. you won't be able to do much except lay down and soak your ankle in epsom salts. i have a tens unit thats a joke. i have tried lidocain patches, bupivicaine, naprosyn, ultram, darvocet, topomax, vioxx, lorazapam,celexa, hydrocodone, effexor, cephalexim, tylenol w/ codene, celebrex, mexiletine,nuerontin, hydroxyzine pam,ibprophen, serzone, lortab 10, and many others. all of this provided very little to no relief for me. either im going nuts or ive got the worst case of tts of all time.nothing seems to work. the constant agony and suffering with defeat me in the end if i don't get any relief. i fear i don't have much time left. ive lost just about everything ive worked my entire life for and can't even collect disability cuz the docs say im not. where does any one go from here . ive been to orthopedic surgeons, neurosugeons, physciatric counseling, drug tests, mri's, bone scans, emg's and 4 months of PT after the sursery. oh i forgot. i took a funtional capacity test last month and couldn't even finish it. 1/2 way through i was so intense i just gave up. does this all sound good to you? your in for a real hell. the only thing that did work was epideral and was hospitalized for two days. ive had a total of 78 hours that were pain free.........in 13 months. prayer doesent even help this. get ready for the ride of your life kid. hope you got the strength for it.. i thought i did.. and im a tough guy.
any docs out there got any advice????im at the end.

Re: Gee thanks alot,

Tammie on 8/16/01 at 20:12 (056946)

I am not tough anymore it has broke me down to a wimpering little child, who cant get any more relief than a couple hours right after a pain med, and it then comes back in torents. I have never felt so sick and dejected and pain filled. Tomorrow i will call the pod again unless there is a miracle overnight,At this point my foot is so sore I can barely walk and I am doing nothing but laying around and crying and trying to sleep when I can.For me to lay around it has me good. I just wanted to say hi and try to do anything but lay for a bit, but I am heading back to the couch I cant handle it. And tony I didnt think I could feel more depressed but think I do now. I am sorry for u really I am but I sure hope that is not my future as I think I will never do it.I never thought I was a pain baby but I am now. I tryed the ice, the water sends awful jolts but then will calm a bit , I tryed a warm bath and found it a bit more comfortable till I got out,everything irritates my ankle , I cant even lay it on side It feels so very weak I can barely walk and I am calling the doc tomorrowenough is enough,break out the good meds or else put me away or fix it so it quits hurting! Thanks nite

Re: Tammie...

Julie on 8/17/01 at 01:09 (056960)

Tammie, my heart goes out to you this morning, reading your cry of pain. I am terribly sorry the cortisone shot has affected you so badly. It's especially awful when something you hoped would help makes you hurt worse! But please try to believe that there is an end to this particular episode of pain, even if it takes the whole two weeks Dr Z mentioned for the effect of the injection to wear off.

Call your doctor. Insist that he give you pain medication that is strong enough to help. That's what pain medication is for, and that'ss what you need right now, whether he is 'keen' or not. I know you're not keen either, but it's not forever. If he hesitates, keep up the pressure (get your husband to help).

Tony's experience wasn't the most encouraging thing for you to hear right now, was it - but he's in a great deal of pain, and probably couldn't help himself. Try not to let it get to you. Look forward to a better time: I wish that for you.

Julie

Re: Tony

Tammie on 8/17/01 at hrmin (056981)

Hi,
as I layed on the couch and tryed to find a comfortable position and could not I began to think of your post. I feel a bit better right now do I expect to the pain medication, and what you wrote upset me and I wanted to write u now.I am so very sorry that you have had such a hard time with this, You must really be at a low point right now.i am sorry for you, I dont think it is over for you my friend, maybe this is the new hope, You found this board and there are amazing people here,if your Dr. does not believe u then it is time to find one who does!You sound like you have lost allot in your life due to this pain and I hope that you can start getting it back, I am a fighter always have been , I am not sitting down permently yet, I have fight left, I have had a few bad days and tho I admit they made me feel like a sniviling child, I am going to make it thru this and thru the next hurdle. And most of the reason is I have faith, I really do and no amount of pain will ever allow me to loose the faith. Also right next to that faith is this site, where I have met the most wonderful and caring people who honestly care and let you vent when u need to and allow you to cry or say whatever it is you need to and they do not hold it against you for loosing it. I have done allot of this and I have found true caring people! Please visit us here stick around read the boards, read the heel book that Scott has here , Ask questions there are some good Dr.s here some are at a convention I believe so may take a couple of days for a answer, but please post again Dr. Z is around he is a good guy I believe he does care maybe he can offer some help this does not need to eat away your whole life, there has to be help for you! I am lucky as I have a familiy here tho not always understanding they do love me I am sure, and tho they get tired of the endlesness of this foot deal, they in the end seem to be here and supportive of me when I really need it . I can only offer my hand in friendship to u and try to fill your heart with some sunshine,I know it seems like you are lost , but please keep fighting the fight contact the Dr.s here as maybe they can help you! Please, and dont give up and even tho u feel prayer is lost for u , I will keep you in my prayers as It is never lost or hopeless! May you find a angel to help you thru the darkness and find the sunshine! Hugs to u friend and if u would like to write feel free, just be patient with me for a reply as right now my foot and medication rules my body lol. Smile soesnt it feel a little better to at least grin?

Re: Dr Z Tony needs some help maybe you can help?

Tammie on 8/17/01 at 10:59 (056982)

Thanks Dr. Z I didnt want him to get lost as he sounds as tho he could use a kind hearted good Dr. about now!Thank u!

Re: Tony

JudyS on 8/17/01 at 11:40 (056986)

Tammy, what lovely words you've written for Tony....you put in to action the theory that helping a friend in need is therapeutic for one's own discomforts.
I hope you don't mind if I use your post to add a thought or two.
I've had PF for about 3 years....I've done all the usual, conservative treatments......and waited. If I was going to have surgery, it should have been a long time ago.
But you spoke of faith so I'd like to share this with you, Tony, and others. As of earlier this spring, I had improved a good 60%, and now, post-ESWT (2 months), I've improved more. I am not out of the woods but....I've gotten so much of my life back that I have faith.
The flip side of faith is despair. Last winter, one dark evening I very suddenly found myself sitting alone on the floor, crying my heart out. I'd had it with PF. I'd had it with it's spirit-robbing nature. I hadn't been myself nor had a sense of control in nearly 2 years. I am such a strong, independant person that being robbed of my spirit was too alien to deal with any more. So I cried for a long time......then 'came to' with a new determination to get my inner strength back......even if that meant not having my strong feet back!
I was no different than any person here......I'd been at the point where I was hobbling on tiptoe or crawling to get from one room to another. I couldn't stand for five minutes or walk for two.
My biggest mistake was trying to run or work through the pain early on. I kept at it, I kept playing ball and things got worse. Oh how I wish my Pod had been aggressive about educating me! It wasn't until I chose to educate myself and found this board that new determination was born.
Some may ask what I attribute my healing to and I honestly don't know for sure......the two things I do consistently are read this board and do warm up stretches every morning while I'm still under my quilt! Of course, I stopped weight-bearing exercise as well. The second thing I did wrong, without question, is that I completely let go of exercise altogether for nearly a year. If I couldn't run, I didn't do anything. PF became an excuse. Oh, how I wish I hadn't done that! A huge part of my spirit is actually from working out in many forms - and I went and gave that up! Silly me - I was doing such a good job at wallowing in self-pity that I actually helped the PF take me away.....
The point of my long-windedness here is this....your word 'faith' is so pertinant. If I, a serious sufferer for so long, can start to get my life back, so can others. I'm no magician, I had no surgery, I had only time and this site's education - and perhaps a new kind of spirit. I don't think my little feet problems will ever be absent, but at least they can no longer take that spirit from me.
I miss you on IM.....please come back :)

Re: Tony

tony o on 8/17/01 at 13:55 (056999)

sounds like you have found something. but you have others supporting you also im sure.this wasnt my fault. the doctor just released to back to FULL work. so that means i can't even go on disability. i'm stuck with this crap and am not very happy that my life has changed for the worst. i had it made. i'm not bitter....just disappointed. doesn't seem like anyone believes me. you see, i do have something that not one off you has. discrimination!!! the docs. are discriminating against me because i have very long hair, play heavy metal and blues in area bands and my appearance is what ive been told is ....extremely dangerous looking. i can accually function with strong pain meds and not be intensely pained. but ive been cut off from them. (i only had 15 in one month. i dont want drugs.....i want relief, a cure so i can stand on stage and blow my harmonica so i can go back to climbing telephone poles, so i can go hiking throught the woods with my dogs. ive never asked much of anyone or needed anything in my life. i cant even stand in a mac donalds to work. im used to making a good living on being healthy and in 13 months what i worked 48 years for is gone. its all a joke and i aint laughing. im totally confused and cant get any cooperation from anyone. i'm sorry. i'm just totally frustrated with every one and everybody involved with this. at this point. im tired of it. the crying the insomnia, the lies, the promises, the pain. no one will believe me.

Re: Tony

tony o on 8/17/01 at 14:07 (057001)

didnt mean to bum you out. i no what your going through.. im just so pissed off at these docs. they have done absolutly nothing to give me any relief. a person cannot tolerate this kind of pain for over 1 year straight without relief. the human mind and body were not made for this kind of suffering. ive been shot in the face, been in 2 car accidents had an eye removed an appendix, broken my left knee twice and have never had this kind of pain. you see, i knew all those injuries would heal. there saying i got to live with this the way it is. with no meds i cant last much longer. but i keep hanging on. i worked 12-16 hours a day. now i can't even weed my garden. tommorrow i will wake up and all will be better...but 1st you have to get to sleep before you can sleep. if anyone has any thing that they know will WORK. feel free to give it to me. please no more juck. ive got em all.

Re: Tony I am not laughing and I care

Tammie on 8/17/01 at 15:08 (057005)

I am so sorry for u tony you indeed need some help,I am sorry for the people who cant see thru the (look?)to know that you have pain that indeed pain can be on the inside as well as the outside! I am sorry that you have a Dr. who cannot help you, but please dont give up there are tons of Dr.s that might or could help u given the chance,Tony we all want what you want, really we do and most of us do get backsome of it, maybe not all but at least some. We may not hear all the good outcomes as they may have left and went on with there own life to do what they have missed out on . But there are some who do come and check in and tell us of the great news and we rejoice with them and it gives hope to those left , hope is a big and powerful word my friend and without hope we would all be lost! I am in total understanding in when u say people dont seem to understand the pain or the sleepless nights. the pain that seems like it never lets up till something is taken to relieve it, I am proably new to this and still am expierancing many different things, I have found the shot I recieved seemed to esculate the pain and bring on a whole new set of pains with it, so friend I hear u I believe u I can only offer my hand for u in friendship and understanding and give u the thought of hope,Forget what the people who do not understand think about you or who might think you are a fake or whatever, search inside yourself for the answers, look to us for support and friendship, and maybe to some people here with knowledge and the ability to direct you to a Dr. who may understand you better! This pain and problem is not your fault it is noones but we got to find out how to deal with it, not let it overtake you and make u loose the will to live and fight! I by far do not have all the answers I myself am trying to find them and deal withthem but i tell u this I am not ready to lay down and let it take away my life, without one heck of a fight, things may have to change for me I do not know I have no clue to what my life may hold or change for me but I will deal with it as it is meant to be. Tony welcome and please know this there are so many wonderful people here we do not care what a person looks like or any thing else related to that just come and listen look for your answers and the support, and maybe you will start to get the return of your life! Hugs to u Tammie

Re: Re:Thanks to u Julie and Judy

tammie on 8/17/01 at 15:12 (057007)

I am going to make this short I am sorry but not feeling that well, I just want tothank u for the kind words Julie and to u to Judy I will be back to chat soon I just have to get over this little hump right now and it is kinda keeping me down! And limited to how much I can take, Thank u again really I mean it, and I hope that someone can help tony here as he sounds in need, and I am not sure I can do it ,Thanks Hope to see u on in chat soon! HUGS to u both!

Re: Tony I am not laughing and I care

tony o on 8/17/01 at 15:50 (057008)

thank you.

Re: Dr Z

Dr. Zuckerman on 8/17/01 at 17:24 (057028)

Hey Tony,

Just got your posting thanks to Tammie. PAin is fun and you only kow about it when you have it.

How about a pain specialist. There are many pain medications out there that can help you.

First of all have you seen a pain specialist

Re: Re:Tony read Dr. z message please

tammie on 8/17/01 at 20:26 (057045)

Tony dr. z left u a message but he posted dr. z in subject. Thanks , I have had to look to see if u got any help , now u have me worring over you, which is good gives me something to focus on. Give Dr. Z more information maybe he will be able to help u!

Re: Re:Tony read Dr. z message please

DR. Zuckerman on 8/17/01 at 20:37 (057046)

I am here so lets see if we can help you out. Tony

Re: Re:Tony read Dr. z message please

tony o on 8/17/01 at hrmin (057055)

dr. Z......why is this incurible? there has to be relief of some kind. i was in pain managent but my insurance dropped my august 15th. they pumped me full of everything. shots, anti-depressents, mild pain meds, ointments, patches, siezure meds, heart med. physcologists, drug tests. what is this? i feel like a guneau pig. ive spent over $50,000 so far for nuthin. ive had the decompression surgeru, ive had the funtional capacity assessment, ive did all that was asked of me. the anti-depressents make me very sick. i had bad symptoms . they were mixing my medicine so much i was having a bad reaction to them so they took me off. when i tell them to cut the nerve they won,t epurderal was good but only lasted 1 day after hospital released me. now the docs wont give me anything, i have no money, and no help. any suggestions? Tony o

Re: Re:Tony read Dr. z message please

DR. Zuckerman on 8/17/01 at 22:41 (057058)

How is your back. Was there any pain medication that helped at all.
The fentyl pain is one of the more effective pain medication. So they try this.

Re: Re:Tony read Dr. z message please

tony o on 8/17/01 at 22:49 (057061)

the only thing that even helped take the edge off was narcotics. i have very little back pain and had an MRI on it to verify. they found nuttin. the docs wont listen to me. after they tried all the junk i got a little mad at them and told them to please help me. they released me to go back to full work with no restrictions. i couldnt believe them. i am so frustrated. i went to a family MD to get some meds. and he refused to give me anything. no one want to even see you when they find out you have this condition. i live way out in the GA. mts. and the quality of med care is rediculious. should i ask for that med? they are really strange about patients asking for meds. they dont like to be told anything doc. T

Re: Dr Z,please read

Tammie on 8/18/01 at 07:31 (057073)

Dr. Z, I think that you are the most compassionate man I have met in some time, I thank u from the bottom of my heart,tho I do not know Tony I felt the pain and heard his cry and I am just so very grateful that you were willing to give the time to look to see if you might help. Thank you for being here for people! I just dont know how to express the relief I felt when I read this simple 1 sentance, I think it was the( I am here) , it shouted out like I am here and I do hear what you are saying and I care enough to try and help yout! If I could present hallos or wings u surly would be right in front of the line! In mywords that cannot begin to know how to thank u I will try once again, Thanks for not giving up on us! And Thanks for being here to try and help! Now off I scoot to work on gettting better.((((((((((HUGS))))))) to you

Re: Tony

DENNIS on 8/18/01 at 16:04 (057111)

LIKE YOU I CANNOT SEEM TO FIND PEOPLE THAT FULLY APPRECIATE THE PAIN ASSOCIATED WITH OUR CONDITION (EXCEPT FOR ALL OF THE FOLKS THAT POST TO THIS BOARD). LIKE YOU, I FIND MY LIFE SAVINGS OF ALMOST 51 YEARS DWINDLING AWAY AS I CANNOT WORK. I USED TO GET RELIEF FROM RECLING IN THE LAZY-BOY, BUT NOW THE ONLY RELIEF IS FROM SLEEP (NOT AWAKE TO FEEL THE PAIN). WHAT'S THE ANSWER? I DON'T KNOW. I HAVE TRIED SEVERAL DIFFERENT MEDS AND THEY DIDN'T HELP. DON'T BECOME A MARTYR, AFTER ALL WHEN WE ARE ALL GONE, EVERYTHING ELSE GOES ON. YOU ARE THE ONE THAT HAS TO DECIDE IF YOUR 'APPEARANCE' IS EFFECTING YOUR HEALTH CARE PROVIDER'S DECISIONS. I'M JUST A COUNTRY BOY FROM THE CORNFIELDS OF NEBRASKA, BUT, IF THE ONLY WAY THAT I COULD LICK THIS PROBLEM WAS TO SPRAY-PAINT MY SKIN PURPLE AND MY HAIR GREEN, I WOULD DO IT. AFTER ALL I COULD ALWAYS LET THE PAINT WEAR OFF AND GO BACK TO BEING ME. THE CHOICE IS FOR ALL OF US TO DECIDE AS INDIVIDUALS, THAT IS, TO PRIORITIZE WHAT IS THE MOST IMPORTANT TO EACH OF US. GOOD LUCK TO YOU.

Re: We would be in a world of hurt without the corn!

BrianG on 8/19/01 at 18:03 (057191)

Hi Dennis,

Don't you think that green hair is going to clash with all that purple ???? Mind if I ask you what meds you've tried? It may be that you just haven't hit on the right combination yet. In this day and age, everyone deserves to be as free from pain, as possible. 'Just a country boy' deserves the same compassion as someone from any large city.

BCG

Re: We would be in a world of hurt without the corn!

DENNIS on 8/19/01 at 22:31 (057216)

THE ONES I CAN RECALL ARE VIOX, CELEBREX, AMITRYPELENE AND MOST RECENTLY NEURONTIN. NEURONTIN WAS 300MG AT 6 PER DAY. I KNOW THERE WERE A COUPLE OTHERS BUT CANNOT RECALL THE NAMES NOW.

Re: No pain meds listed

BrianG on 8/20/01 at 09:54 (057256)

Hi Dennis,

There isn't a REAL pain med in the bunch. Have you ever spoken to your doc about pain management. Everything you have taken so far MAY work for PF, but it was not designed to eliminate pain. There is so much more that can be tried.

BCG

Re: No pain meds listed

DENNIS on 8/21/01 at 16:46 (057463)

I THOUGHT NEURONTIN WAS A PAIN MED, EVEN THOUGH IT WAS ORIGINALLY DEVELOPED FOR ANTI-SEIZURE PURPOSES. WHAT DO YOU SUGGEST I TALK TO THE DR. ABOUT, I.E., WHAT SPECIFIC MED(S)?

Re: No pain meds listed

DENNIS on 8/21/01 at 16:51 (057464)

I NEGLECTED TO MENTION THAT I HAVE A SOMEWHAT LOW TOLERANCE TO SOME KINDS OF MEDS. FOR EXAMPLE (2) TYLENOL PM TABLETS MAKE ME GROGGY FOR ABOUT 24 HOURS. I DON'T WANT TO BE DRUGGED UP, AS IN A CLOUD, BUT DO WANT PAIN RELIEF.

Re: ouch please can u help?

Andrea R. on 8/15/01 at 10:52 (056789)

Tammie,

I would call your doctor. Try icing and see if it makes any difference.

Sorry I don't have any great ideas. It doesn't seem that the shots should make it worse that quickly.

Keep us informed.

All the best,

Andrea

Re: ouch please can u help?

JudyS on 8/15/01 at 11:55 (056790)

Tammy - if it helps any, I can tell you that I definately had more pain in my foot twice immediately after having had the cortisone shots. I assumed ith was from the needle site as well as from the 'foreign body' of liquid being inside my foot. The pain never lasted more than a day - and the shots never helped.

Re: Re:gave in and called

tammie on 8/15/01 at 13:00 (056796)

Hi, I called or rather hubby called, said is normal and can last up to a couple of days to take a ultram and ice if tolerate and elevate and rest. Call him if not eased up in a couple of days. Ok so doing as told and thought i would update u as I felt kinda stupid posting as seems alls I ever post is bad,makes me feel uncomfortable/ Told dr. I wish I could really say everything is good really I do,as if u think I love thease shots ,he chuckled. Well I feel kinda light headed as he told me to take to of the ultrams to give relief but making me sleepy, so going to nap!Canceled pt for today, will check back tomorrow with them to see if calmed down they said they would fit me in! So again thanks and I am off for a nap and a date with some good looking ice pack! Maybe catch up later!

Re: ouch please can u help?

Dr. Zuckerman on 8/15/01 at 18:40 (056832)

Hi,

I have seen steriod injection increase pain for up to two weesk before any relief. Take a ice water soaking twenty minutes three times daily. Off the foot. May need a pain medication for this. Ice packs can help alot also.

Re: Dr Z

Tammie on 8/15/01 at 21:03 (056850)

I will glady do ANYTHING to help this is unreal, I cannot keep up like this, the ultram does not keep up to the pain, it is ok for a couple of hours, do u think I should tell him again ? He is not to keen on any pain type meds, Not that i am either, but I really hurt and I hurt bad enough to feel physically ill.What do u think about pt tomorrow or fri? I honestly dont think I can if I feel like this,I am so afraid of any more pain, she is only using ultrasound and that ione, darn cant spell it but it is like a electrical thing that sends tingling in foot, last time it made my foot itch so bad I wanted to rip it off, she thought that unusal, but gee anymore what isnt to me! Thank you so much really I do mean it I feel like a blubbering child right now and I hurt like hell excuse me as I do not normally cuss but I think I have had my limits for pain today. He seems to feel for sure that this is the tts stuff, I hesitate to ask what u think as I dont want to put u on spot and worse yet I dont want to be ignored so will Thank u again and be done with this as I can now take another pill and maybe get a bit of sleep before I wake up, but I have my doubts. THANK U SO VERY MUCH!

Re: Dr Z

tony o on 8/16/01 at hrmin (056925)

poor tammy. your in for a true bout in hell. pain? you havent any idea what the pain is gonna be like in a few more months. i have had everything possible done and still suffer. the drs. won't give any pain meds. because they say im exagerating. after 13 months of excrutiating pain i have come to a conclusion. no boby knows what were going through. except maybe us. i had the decopression done on 11/29/2000 and its worst than before the operation. i am loosing my will , my hope and my strength because of tts. and no one listens. i have tried so hard to do without pain medicines and find that the only thing that did help back 6 months ago were narcotics.since i live alone this is very hard. you won't be able to do much except lay down and soak your ankle in epsom salts. i have a tens unit thats a joke. i have tried lidocain patches, bupivicaine, naprosyn, ultram, darvocet, topomax, vioxx, lorazapam,celexa, hydrocodone, effexor, cephalexim, tylenol w/ codene, celebrex, mexiletine,nuerontin, hydroxyzine pam,ibprophen, serzone, lortab 10, and many others. all of this provided very little to no relief for me. either im going nuts or ive got the worst case of tts of all time.nothing seems to work. the constant agony and suffering with defeat me in the end if i don't get any relief. i fear i don't have much time left. ive lost just about everything ive worked my entire life for and can't even collect disability cuz the docs say im not. where does any one go from here . ive been to orthopedic surgeons, neurosugeons, physciatric counseling, drug tests, mri's, bone scans, emg's and 4 months of PT after the sursery. oh i forgot. i took a funtional capacity test last month and couldn't even finish it. 1/2 way through i was so intense i just gave up. does this all sound good to you? your in for a real hell. the only thing that did work was epideral and was hospitalized for two days. ive had a total of 78 hours that were pain free.........in 13 months. prayer doesent even help this. get ready for the ride of your life kid. hope you got the strength for it.. i thought i did.. and im a tough guy.
any docs out there got any advice????im at the end.

Re: Gee thanks alot,

Tammie on 8/16/01 at 20:12 (056946)

I am not tough anymore it has broke me down to a wimpering little child, who cant get any more relief than a couple hours right after a pain med, and it then comes back in torents. I have never felt so sick and dejected and pain filled. Tomorrow i will call the pod again unless there is a miracle overnight,At this point my foot is so sore I can barely walk and I am doing nothing but laying around and crying and trying to sleep when I can.For me to lay around it has me good. I just wanted to say hi and try to do anything but lay for a bit, but I am heading back to the couch I cant handle it. And tony I didnt think I could feel more depressed but think I do now. I am sorry for u really I am but I sure hope that is not my future as I think I will never do it.I never thought I was a pain baby but I am now. I tryed the ice, the water sends awful jolts but then will calm a bit , I tryed a warm bath and found it a bit more comfortable till I got out,everything irritates my ankle , I cant even lay it on side It feels so very weak I can barely walk and I am calling the doc tomorrowenough is enough,break out the good meds or else put me away or fix it so it quits hurting! Thanks nite

Re: Tammie...

Julie on 8/17/01 at 01:09 (056960)

Tammie, my heart goes out to you this morning, reading your cry of pain. I am terribly sorry the cortisone shot has affected you so badly. It's especially awful when something you hoped would help makes you hurt worse! But please try to believe that there is an end to this particular episode of pain, even if it takes the whole two weeks Dr Z mentioned for the effect of the injection to wear off.

Call your doctor. Insist that he give you pain medication that is strong enough to help. That's what pain medication is for, and that'ss what you need right now, whether he is 'keen' or not. I know you're not keen either, but it's not forever. If he hesitates, keep up the pressure (get your husband to help).

Tony's experience wasn't the most encouraging thing for you to hear right now, was it - but he's in a great deal of pain, and probably couldn't help himself. Try not to let it get to you. Look forward to a better time: I wish that for you.

Julie

Re: Tony

Tammie on 8/17/01 at hrmin (056981)

Hi,
as I layed on the couch and tryed to find a comfortable position and could not I began to think of your post. I feel a bit better right now do I expect to the pain medication, and what you wrote upset me and I wanted to write u now.I am so very sorry that you have had such a hard time with this, You must really be at a low point right now.i am sorry for you, I dont think it is over for you my friend, maybe this is the new hope, You found this board and there are amazing people here,if your Dr. does not believe u then it is time to find one who does!You sound like you have lost allot in your life due to this pain and I hope that you can start getting it back, I am a fighter always have been , I am not sitting down permently yet, I have fight left, I have had a few bad days and tho I admit they made me feel like a sniviling child, I am going to make it thru this and thru the next hurdle. And most of the reason is I have faith, I really do and no amount of pain will ever allow me to loose the faith. Also right next to that faith is this site, where I have met the most wonderful and caring people who honestly care and let you vent when u need to and allow you to cry or say whatever it is you need to and they do not hold it against you for loosing it. I have done allot of this and I have found true caring people! Please visit us here stick around read the boards, read the heel book that Scott has here , Ask questions there are some good Dr.s here some are at a convention I believe so may take a couple of days for a answer, but please post again Dr. Z is around he is a good guy I believe he does care maybe he can offer some help this does not need to eat away your whole life, there has to be help for you! I am lucky as I have a familiy here tho not always understanding they do love me I am sure, and tho they get tired of the endlesness of this foot deal, they in the end seem to be here and supportive of me when I really need it . I can only offer my hand in friendship to u and try to fill your heart with some sunshine,I know it seems like you are lost , but please keep fighting the fight contact the Dr.s here as maybe they can help you! Please, and dont give up and even tho u feel prayer is lost for u , I will keep you in my prayers as It is never lost or hopeless! May you find a angel to help you thru the darkness and find the sunshine! Hugs to u friend and if u would like to write feel free, just be patient with me for a reply as right now my foot and medication rules my body lol. Smile soesnt it feel a little better to at least grin?

Re: Dr Z Tony needs some help maybe you can help?

Tammie on 8/17/01 at 10:59 (056982)

Thanks Dr. Z I didnt want him to get lost as he sounds as tho he could use a kind hearted good Dr. about now!Thank u!

Re: Tony

JudyS on 8/17/01 at 11:40 (056986)

Tammy, what lovely words you've written for Tony....you put in to action the theory that helping a friend in need is therapeutic for one's own discomforts.
I hope you don't mind if I use your post to add a thought or two.
I've had PF for about 3 years....I've done all the usual, conservative treatments......and waited. If I was going to have surgery, it should have been a long time ago.
But you spoke of faith so I'd like to share this with you, Tony, and others. As of earlier this spring, I had improved a good 60%, and now, post-ESWT (2 months), I've improved more. I am not out of the woods but....I've gotten so much of my life back that I have faith.
The flip side of faith is despair. Last winter, one dark evening I very suddenly found myself sitting alone on the floor, crying my heart out. I'd had it with PF. I'd had it with it's spirit-robbing nature. I hadn't been myself nor had a sense of control in nearly 2 years. I am such a strong, independant person that being robbed of my spirit was too alien to deal with any more. So I cried for a long time......then 'came to' with a new determination to get my inner strength back......even if that meant not having my strong feet back!
I was no different than any person here......I'd been at the point where I was hobbling on tiptoe or crawling to get from one room to another. I couldn't stand for five minutes or walk for two.
My biggest mistake was trying to run or work through the pain early on. I kept at it, I kept playing ball and things got worse. Oh how I wish my Pod had been aggressive about educating me! It wasn't until I chose to educate myself and found this board that new determination was born.
Some may ask what I attribute my healing to and I honestly don't know for sure......the two things I do consistently are read this board and do warm up stretches every morning while I'm still under my quilt! Of course, I stopped weight-bearing exercise as well. The second thing I did wrong, without question, is that I completely let go of exercise altogether for nearly a year. If I couldn't run, I didn't do anything. PF became an excuse. Oh, how I wish I hadn't done that! A huge part of my spirit is actually from working out in many forms - and I went and gave that up! Silly me - I was doing such a good job at wallowing in self-pity that I actually helped the PF take me away.....
The point of my long-windedness here is this....your word 'faith' is so pertinant. If I, a serious sufferer for so long, can start to get my life back, so can others. I'm no magician, I had no surgery, I had only time and this site's education - and perhaps a new kind of spirit. I don't think my little feet problems will ever be absent, but at least they can no longer take that spirit from me.
I miss you on IM.....please come back :)

Re: Tony

tony o on 8/17/01 at 13:55 (056999)

sounds like you have found something. but you have others supporting you also im sure.this wasnt my fault. the doctor just released to back to FULL work. so that means i can't even go on disability. i'm stuck with this crap and am not very happy that my life has changed for the worst. i had it made. i'm not bitter....just disappointed. doesn't seem like anyone believes me. you see, i do have something that not one off you has. discrimination!!! the docs. are discriminating against me because i have very long hair, play heavy metal and blues in area bands and my appearance is what ive been told is ....extremely dangerous looking. i can accually function with strong pain meds and not be intensely pained. but ive been cut off from them. (i only had 15 in one month. i dont want drugs.....i want relief, a cure so i can stand on stage and blow my harmonica so i can go back to climbing telephone poles, so i can go hiking throught the woods with my dogs. ive never asked much of anyone or needed anything in my life. i cant even stand in a mac donalds to work. im used to making a good living on being healthy and in 13 months what i worked 48 years for is gone. its all a joke and i aint laughing. im totally confused and cant get any cooperation from anyone. i'm sorry. i'm just totally frustrated with every one and everybody involved with this. at this point. im tired of it. the crying the insomnia, the lies, the promises, the pain. no one will believe me.

Re: Tony

tony o on 8/17/01 at 14:07 (057001)

didnt mean to bum you out. i no what your going through.. im just so pissed off at these docs. they have done absolutly nothing to give me any relief. a person cannot tolerate this kind of pain for over 1 year straight without relief. the human mind and body were not made for this kind of suffering. ive been shot in the face, been in 2 car accidents had an eye removed an appendix, broken my left knee twice and have never had this kind of pain. you see, i knew all those injuries would heal. there saying i got to live with this the way it is. with no meds i cant last much longer. but i keep hanging on. i worked 12-16 hours a day. now i can't even weed my garden. tommorrow i will wake up and all will be better...but 1st you have to get to sleep before you can sleep. if anyone has any thing that they know will WORK. feel free to give it to me. please no more juck. ive got em all.

Re: Tony I am not laughing and I care

Tammie on 8/17/01 at 15:08 (057005)

I am so sorry for u tony you indeed need some help,I am sorry for the people who cant see thru the (look?)to know that you have pain that indeed pain can be on the inside as well as the outside! I am sorry that you have a Dr. who cannot help you, but please dont give up there are tons of Dr.s that might or could help u given the chance,Tony we all want what you want, really we do and most of us do get backsome of it, maybe not all but at least some. We may not hear all the good outcomes as they may have left and went on with there own life to do what they have missed out on . But there are some who do come and check in and tell us of the great news and we rejoice with them and it gives hope to those left , hope is a big and powerful word my friend and without hope we would all be lost! I am in total understanding in when u say people dont seem to understand the pain or the sleepless nights. the pain that seems like it never lets up till something is taken to relieve it, I am proably new to this and still am expierancing many different things, I have found the shot I recieved seemed to esculate the pain and bring on a whole new set of pains with it, so friend I hear u I believe u I can only offer my hand for u in friendship and understanding and give u the thought of hope,Forget what the people who do not understand think about you or who might think you are a fake or whatever, search inside yourself for the answers, look to us for support and friendship, and maybe to some people here with knowledge and the ability to direct you to a Dr. who may understand you better! This pain and problem is not your fault it is noones but we got to find out how to deal with it, not let it overtake you and make u loose the will to live and fight! I by far do not have all the answers I myself am trying to find them and deal withthem but i tell u this I am not ready to lay down and let it take away my life, without one heck of a fight, things may have to change for me I do not know I have no clue to what my life may hold or change for me but I will deal with it as it is meant to be. Tony welcome and please know this there are so many wonderful people here we do not care what a person looks like or any thing else related to that just come and listen look for your answers and the support, and maybe you will start to get the return of your life! Hugs to u Tammie

Re: Re:Thanks to u Julie and Judy

tammie on 8/17/01 at 15:12 (057007)

I am going to make this short I am sorry but not feeling that well, I just want tothank u for the kind words Julie and to u to Judy I will be back to chat soon I just have to get over this little hump right now and it is kinda keeping me down! And limited to how much I can take, Thank u again really I mean it, and I hope that someone can help tony here as he sounds in need, and I am not sure I can do it ,Thanks Hope to see u on in chat soon! HUGS to u both!

Re: Tony I am not laughing and I care

tony o on 8/17/01 at 15:50 (057008)

thank you.

Re: Dr Z

Dr. Zuckerman on 8/17/01 at 17:24 (057028)

Hey Tony,

Just got your posting thanks to Tammie. PAin is fun and you only kow about it when you have it.

How about a pain specialist. There are many pain medications out there that can help you.

First of all have you seen a pain specialist

Re: Re:Tony read Dr. z message please

tammie on 8/17/01 at 20:26 (057045)

Tony dr. z left u a message but he posted dr. z in subject. Thanks , I have had to look to see if u got any help , now u have me worring over you, which is good gives me something to focus on. Give Dr. Z more information maybe he will be able to help u!

Re: Re:Tony read Dr. z message please

DR. Zuckerman on 8/17/01 at 20:37 (057046)

I am here so lets see if we can help you out. Tony

Re: Re:Tony read Dr. z message please

tony o on 8/17/01 at hrmin (057055)

dr. Z......why is this incurible? there has to be relief of some kind. i was in pain managent but my insurance dropped my august 15th. they pumped me full of everything. shots, anti-depressents, mild pain meds, ointments, patches, siezure meds, heart med. physcologists, drug tests. what is this? i feel like a guneau pig. ive spent over $50,000 so far for nuthin. ive had the decompression surgeru, ive had the funtional capacity assessment, ive did all that was asked of me. the anti-depressents make me very sick. i had bad symptoms . they were mixing my medicine so much i was having a bad reaction to them so they took me off. when i tell them to cut the nerve they won,t epurderal was good but only lasted 1 day after hospital released me. now the docs wont give me anything, i have no money, and no help. any suggestions? Tony o

Re: Re:Tony read Dr. z message please

DR. Zuckerman on 8/17/01 at 22:41 (057058)

How is your back. Was there any pain medication that helped at all.
The fentyl pain is one of the more effective pain medication. So they try this.

Re: Re:Tony read Dr. z message please

tony o on 8/17/01 at 22:49 (057061)

the only thing that even helped take the edge off was narcotics. i have very little back pain and had an MRI on it to verify. they found nuttin. the docs wont listen to me. after they tried all the junk i got a little mad at them and told them to please help me. they released me to go back to full work with no restrictions. i couldnt believe them. i am so frustrated. i went to a family MD to get some meds. and he refused to give me anything. no one want to even see you when they find out you have this condition. i live way out in the GA. mts. and the quality of med care is rediculious. should i ask for that med? they are really strange about patients asking for meds. they dont like to be told anything doc. T

Re: Dr Z,please read

Tammie on 8/18/01 at 07:31 (057073)

Dr. Z, I think that you are the most compassionate man I have met in some time, I thank u from the bottom of my heart,tho I do not know Tony I felt the pain and heard his cry and I am just so very grateful that you were willing to give the time to look to see if you might help. Thank you for being here for people! I just dont know how to express the relief I felt when I read this simple 1 sentance, I think it was the( I am here) , it shouted out like I am here and I do hear what you are saying and I care enough to try and help yout! If I could present hallos or wings u surly would be right in front of the line! In mywords that cannot begin to know how to thank u I will try once again, Thanks for not giving up on us! And Thanks for being here to try and help! Now off I scoot to work on gettting better.((((((((((HUGS))))))) to you

Re: Tony

DENNIS on 8/18/01 at 16:04 (057111)

LIKE YOU I CANNOT SEEM TO FIND PEOPLE THAT FULLY APPRECIATE THE PAIN ASSOCIATED WITH OUR CONDITION (EXCEPT FOR ALL OF THE FOLKS THAT POST TO THIS BOARD). LIKE YOU, I FIND MY LIFE SAVINGS OF ALMOST 51 YEARS DWINDLING AWAY AS I CANNOT WORK. I USED TO GET RELIEF FROM RECLING IN THE LAZY-BOY, BUT NOW THE ONLY RELIEF IS FROM SLEEP (NOT AWAKE TO FEEL THE PAIN). WHAT'S THE ANSWER? I DON'T KNOW. I HAVE TRIED SEVERAL DIFFERENT MEDS AND THEY DIDN'T HELP. DON'T BECOME A MARTYR, AFTER ALL WHEN WE ARE ALL GONE, EVERYTHING ELSE GOES ON. YOU ARE THE ONE THAT HAS TO DECIDE IF YOUR 'APPEARANCE' IS EFFECTING YOUR HEALTH CARE PROVIDER'S DECISIONS. I'M JUST A COUNTRY BOY FROM THE CORNFIELDS OF NEBRASKA, BUT, IF THE ONLY WAY THAT I COULD LICK THIS PROBLEM WAS TO SPRAY-PAINT MY SKIN PURPLE AND MY HAIR GREEN, I WOULD DO IT. AFTER ALL I COULD ALWAYS LET THE PAINT WEAR OFF AND GO BACK TO BEING ME. THE CHOICE IS FOR ALL OF US TO DECIDE AS INDIVIDUALS, THAT IS, TO PRIORITIZE WHAT IS THE MOST IMPORTANT TO EACH OF US. GOOD LUCK TO YOU.

Re: We would be in a world of hurt without the corn!

BrianG on 8/19/01 at 18:03 (057191)

Hi Dennis,

Don't you think that green hair is going to clash with all that purple ???? Mind if I ask you what meds you've tried? It may be that you just haven't hit on the right combination yet. In this day and age, everyone deserves to be as free from pain, as possible. 'Just a country boy' deserves the same compassion as someone from any large city.

BCG

Re: We would be in a world of hurt without the corn!

DENNIS on 8/19/01 at 22:31 (057216)

THE ONES I CAN RECALL ARE VIOX, CELEBREX, AMITRYPELENE AND MOST RECENTLY NEURONTIN. NEURONTIN WAS 300MG AT 6 PER DAY. I KNOW THERE WERE A COUPLE OTHERS BUT CANNOT RECALL THE NAMES NOW.

Re: No pain meds listed

BrianG on 8/20/01 at 09:54 (057256)

Hi Dennis,

There isn't a REAL pain med in the bunch. Have you ever spoken to your doc about pain management. Everything you have taken so far MAY work for PF, but it was not designed to eliminate pain. There is so much more that can be tried.

BCG

Re: No pain meds listed

DENNIS on 8/21/01 at 16:46 (057463)

I THOUGHT NEURONTIN WAS A PAIN MED, EVEN THOUGH IT WAS ORIGINALLY DEVELOPED FOR ANTI-SEIZURE PURPOSES. WHAT DO YOU SUGGEST I TALK TO THE DR. ABOUT, I.E., WHAT SPECIFIC MED(S)?

Re: No pain meds listed

DENNIS on 8/21/01 at 16:51 (057464)

I NEGLECTED TO MENTION THAT I HAVE A SOMEWHAT LOW TOLERANCE TO SOME KINDS OF MEDS. FOR EXAMPLE (2) TYLENOL PM TABLETS MAKE ME GROGGY FOR ABOUT 24 HOURS. I DON'T WANT TO BE DRUGGED UP, AS IN A CLOUD, BUT DO WANT PAIN RELIEF.