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Hello Everyone, Just giving an update

Posted by Chad H on 10/03/01 at 10:34 (062151)

It has been about 6 months since I have posted on the board. We moved from Chicago to Columbus, Ohio and our daughter is now 4 months old! These are very exciting times!

Not much has changed with my TTS. Some background: I have had 2 TTS releases with zero success and I have had sugery to repair a sprain on the outside of my affected ankle (right ankle). My ankle is just full of scar tissue. None of the surgeries have helped. I am 29 years old and have been dealing with this for 6 years. Over the past 6 years the pain has caused me to alter the way I walk and now my muscles, tendons, ligaments, etc have tightened up to the point that I have little range of motion in my ankle. This is also a great source of pain. I still have a great deal of swelling in my ankle to the point that most of the time I can't see my ankle bone. I walk with a limp and am unable to run or anything.

My wife wants me to go back to the doctor because she thinks my limp is getting worse and the pain definitely affects my attitude. I currently take Aleve for the pain and occasionally will take perscription Motrin, but it doesn't help much and doesn't last long.

So my questions for you out there are what should I do, and what options should I discuss with the doctor? He has mentioned a vein wrap, and I have even seen a microvascular surgeon to discuss this. Should I investigate other means of pain management? Other medications? Physical therapy to help with range of motion? Other surgeries? Other doctors I should see? This doctor is an excellent foot and ankle ortho here in Columbus, but maybe there is someone else I should see.

Thanks for listening!

Re: Hello Everyone, Just giving an update

Terry M on 10/05/01 at 09:05 (062283)

I know a TTS sufferer who had release surgury a yr ago, and did not work.
He does have TTS in both feet, and has been off work since his surgury.
He has his local drs to refer him to a foot specialist at John Hopkins,
and on Oct. 15th, he is going to have a 'nerve bypass.' Maybe this can be
an option for you. Hope it helps, TM

Re: Hello Everyone, Just giving an update

Chad H on 10/05/01 at 21:00 (062349)

What is a nerve bypass?

Re: Hello Everyone, Just giving an update

Terry M on 10/08/01 at 09:11 (062460)

Chad, From what I have been told, a small piece of nerve is removed from the leg area, and attached to the Tarsel Nerve to bypass the damaged
part of the nerve. I is much like a Heart bypass. Your dr explain it better
than I could. Talk to you later. TM

Re: Hello Everyone, Just giving an update

Chad H on 10/08/01 at 11:46 (062468)

Wow, that sounds very interesting. Thanks for the information, I will check into it and let you know what else I find out.

Re: Hello Everyone, Just giving an update

Tana on 10/11/01 at 16:36 (062768)

Terry please let us know the name of that Dr. in Baltimore. I live in the area and had tts release 10 months ago with no luck. would really appreciate knowing. have it in other foot too. keep us updated on how your friend makes out. thanks loads.

Re: Hello Everyone, Just giving an update

Terry M on 10/05/01 at 09:05 (062283)

I know a TTS sufferer who had release surgury a yr ago, and did not work.
He does have TTS in both feet, and has been off work since his surgury.
He has his local drs to refer him to a foot specialist at John Hopkins,
and on Oct. 15th, he is going to have a 'nerve bypass.' Maybe this can be
an option for you. Hope it helps, TM

Re: Hello Everyone, Just giving an update

Chad H on 10/05/01 at 21:00 (062349)

What is a nerve bypass?

Re: Hello Everyone, Just giving an update

Terry M on 10/08/01 at 09:11 (062460)

Chad, From what I have been told, a small piece of nerve is removed from the leg area, and attached to the Tarsel Nerve to bypass the damaged
part of the nerve. I is much like a Heart bypass. Your dr explain it better
than I could. Talk to you later. TM

Re: Hello Everyone, Just giving an update

Chad H on 10/08/01 at 11:46 (062468)

Wow, that sounds very interesting. Thanks for the information, I will check into it and let you know what else I find out.

Re: Hello Everyone, Just giving an update

Tana on 10/11/01 at 16:36 (062768)

Terry please let us know the name of that Dr. in Baltimore. I live in the area and had tts release 10 months ago with no luck. would really appreciate knowing. have it in other foot too. keep us updated on how your friend makes out. thanks loads.