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PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Posted by CatherineL on 10/11/01 at 09:37 (062731)

Hi all,

I found this site earlier this year and have found it very helpful. I'm asking for your expert help and suggestions.

I've tried the following in many combinations for 1 1/2 years:

store-bought inserts, heel pads, arch supports
better shoes (Ecco, Birkenstock Etonics)
custom orthotics (twice)
naproxen
Vioxx
taping
Phisiotherapy - 3 phisiotherapists
massage therapy
Less time on my feet
anelgesic cream
night splint(haven't been able to wear overnight, due to sleeping problems)
2 drs (one physician, one sport & injury physician)
Ice
Heat
Stretching
NEVER go barefoot (even thinking about wearing Birkenstock in shower)
Laser therapy
cortisone

I hobble around part of the day. Especially the first hr of the day, after resting/sitting and if I ever dare to be on my feet for over an hour at a time.

The nearest ESWT center is a $600 plane ride away. I could afford it, but would rather not unless there is nothing else. It's second-last on my list, just before surgery.

What should I do next? Foot specialist? ESWT?

I have an appt with the injury dr. next Thursday. I've also approached him regarding Handi-cap parking permit, and he didn't think it applied. Don't think too many people understand the pain involved. :-[ I'm usually a very positive person, but not feeling so when I think about this.

thanx
CL

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

ellen w on 10/11/01 at 15:35 (062759)

I haven't been seen by a foot specialist or had ESWT, so can't comment on those alternatives -- though it does sound as if you need someone to evaluate if whether what you have is simply PF or something more complicated.

Some other thoughts:

1. If you can't wear your nightsplint all night (it took me a couple of week of progressively wearing it for longer periods of time before I could do it), trying wearing it for an hour before you get up.

2. Also do some non-weight bearing stretching exercises before you get up in the am that concentrate on ankles, calfs, and hamstrings.

3. Medrol dose pack. This is a steroid medication.

4. Mobic -- a drug that targets a different mechanism of inflammation than Vioxx.

5. Ecco's may be part of your problem -- I bought apair of ECCO hiking boots before I knew what I was doing, and then discovered that they have literally no arch support (in other words, when you bend the shoe, it bends right where the arch is).

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Steve P on 10/11/01 at 16:56 (062771)

Catherine --- I am also at 1 1/2 years. I was bogged down at the 1 year mark & having no further progress. ESWT got me going again, although I do still have a ways to go.

$600 plane ride? Wow.....do you live in northern Canada or Australia?

Steve

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Catherine on 10/12/01 at 11:22 (062846)

Hi Ellen,

I ditched the Ecco's last year, same problem no-support.

I'll check with the dr next week on the medrol and mobic.

I do the stretching and have tried the a.m. stretching and/or heat, although it does help, it doesn't make a big differnce in my day.

Also, night splint. I was wearing it an hour or so a day in the eve. but the phisiotherapist told me the only benefit from it is if you wear it about 3 hrs before getting up in the morning. With all my sleeping problems, I can't imagine setting the alarm for 3 a.m., putting the splint on and actually getting back to sleep.

Steve

Hi again. glad the ESWTherapy is helping, let me know how it goes. I'm Canadian eh! Living in a little town in southern Manitoba. Nearest airport is over a hour away. And Toronto area would be the closest ESWT center. The airfare here has been high with not much for arline competition. The cheap fare is $350 and up. I don't think any of the flight, treatment, etc. would be covered by our provincial plan our my employer plan.

So I'm on my own, but hearing how much it's help long-term sufferers like me, I'll inquire with the dr about ESWT.

Thanx for the help.

Went for a massage on my feet & legs, feeling soooo much better today. (Didn't walk like a crippled-up 90 yr-old this morning).
CL

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

ellen w on 10/12/01 at 13:29 (062857)

Hi Catherine,

One other thing -- you may want to do a search on this board for info on Active Release Therapy (ART). Donna had posted quite a bit about it. My therapy seems to be progressing, so I don't think I'll need it, but I had been thinking that would be my next step -- though my sports medicine doctor said he didn't know a thing about it and therefore wouldn't write a prescription for it.

Ellen

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

CatherineL on 10/12/01 at 16:43 (062881)

Ellen

Wow! You wouldn't believe how much of a help suggesting ART is.

I had read some mention on posts, but never check into since it sounds like a surgical treatment.

I check the postings and called an office to find someone in the area who does it. Only 2 are registered in my province, one 4 hrs away and one just down the street. And... I had made an appt with him several months ago as another way to treat my feet, buy was unable to make the appt and had to cancel and didn't rebook. What a coincidence.

I have an appt Tuesday!
I've read a couple x/wk for a few weeks. I'll try that.

Thanx a bunch
CL

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Tammy M on 10/14/01 at 21:09 (062993)

Hi Catherine....glad to hear from another fellow canuck! I wish I had some magic cure to add to the list you've already tried. My only relief has been less time spent on my feet. I hate to sound discouraging, but I think PF is a problem that just has to run it's course in time, and will go away when IT is ready...everything I've tried just gets me through to the next day in a little less pain. I've had some luck with light stretching--nonweight-bearing. Ice and Advil are helpful. I almost cannot wait for the snow to start to fly again...have you ever stepped outside and stuck your bare foot in the icy snow just to get a little relief? That is what I call making the best of 2 bad situations---winter and PF!!
Good luck from New Brunswick!! Tammy M

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

ellen w on 10/11/01 at 15:35 (062759)

I haven't been seen by a foot specialist or had ESWT, so can't comment on those alternatives -- though it does sound as if you need someone to evaluate if whether what you have is simply PF or something more complicated.

Some other thoughts:

1. If you can't wear your nightsplint all night (it took me a couple of week of progressively wearing it for longer periods of time before I could do it), trying wearing it for an hour before you get up.

2. Also do some non-weight bearing stretching exercises before you get up in the am that concentrate on ankles, calfs, and hamstrings.

3. Medrol dose pack. This is a steroid medication.

4. Mobic -- a drug that targets a different mechanism of inflammation than Vioxx.

5. Ecco's may be part of your problem -- I bought apair of ECCO hiking boots before I knew what I was doing, and then discovered that they have literally no arch support (in other words, when you bend the shoe, it bends right where the arch is).

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Steve P on 10/11/01 at 16:56 (062771)

Catherine --- I am also at 1 1/2 years. I was bogged down at the 1 year mark & having no further progress. ESWT got me going again, although I do still have a ways to go.

$600 plane ride? Wow.....do you live in northern Canada or Australia?

Steve

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Catherine on 10/12/01 at 11:22 (062846)

Hi Ellen,

I ditched the Ecco's last year, same problem no-support.

I'll check with the dr next week on the medrol and mobic.

I do the stretching and have tried the a.m. stretching and/or heat, although it does help, it doesn't make a big differnce in my day.

Also, night splint. I was wearing it an hour or so a day in the eve. but the phisiotherapist told me the only benefit from it is if you wear it about 3 hrs before getting up in the morning. With all my sleeping problems, I can't imagine setting the alarm for 3 a.m., putting the splint on and actually getting back to sleep.

Steve

Hi again. glad the ESWTherapy is helping, let me know how it goes. I'm Canadian eh! Living in a little town in southern Manitoba. Nearest airport is over a hour away. And Toronto area would be the closest ESWT center. The airfare here has been high with not much for arline competition. The cheap fare is $350 and up. I don't think any of the flight, treatment, etc. would be covered by our provincial plan our my employer plan.

So I'm on my own, but hearing how much it's help long-term sufferers like me, I'll inquire with the dr about ESWT.

Thanx for the help.

Went for a massage on my feet & legs, feeling soooo much better today. (Didn't walk like a crippled-up 90 yr-old this morning).
CL

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

ellen w on 10/12/01 at 13:29 (062857)

Hi Catherine,

One other thing -- you may want to do a search on this board for info on Active Release Therapy (ART). Donna had posted quite a bit about it. My therapy seems to be progressing, so I don't think I'll need it, but I had been thinking that would be my next step -- though my sports medicine doctor said he didn't know a thing about it and therefore wouldn't write a prescription for it.

Ellen

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

CatherineL on 10/12/01 at 16:43 (062881)

Ellen

Wow! You wouldn't believe how much of a help suggesting ART is.

I had read some mention on posts, but never check into since it sounds like a surgical treatment.

I check the postings and called an office to find someone in the area who does it. Only 2 are registered in my province, one 4 hrs away and one just down the street. And... I had made an appt with him several months ago as another way to treat my feet, buy was unable to make the appt and had to cancel and didn't rebook. What a coincidence.

I have an appt Tuesday!
I've read a couple x/wk for a few weeks. I'll try that.

Thanx a bunch
CL

Re: PF for 1 1/2 yrs and no better off!!!!!!!! What next?

Tammy M on 10/14/01 at 21:09 (062993)

Hi Catherine....glad to hear from another fellow canuck! I wish I had some magic cure to add to the list you've already tried. My only relief has been less time spent on my feet. I hate to sound discouraging, but I think PF is a problem that just has to run it's course in time, and will go away when IT is ready...everything I've tried just gets me through to the next day in a little less pain. I've had some luck with light stretching--nonweight-bearing. Ice and Advil are helpful. I almost cannot wait for the snow to start to fly again...have you ever stepped outside and stuck your bare foot in the icy snow just to get a little relief? That is what I call making the best of 2 bad situations---winter and PF!!
Good luck from New Brunswick!! Tammy M