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Quick Question about TTS

Posted by Carmen H on 11/30/01 at 16:45 (065770)

I posted on the TTS board but wanted to post here too. If you stop getting burning pain and get tingling instead (that only mildly hurts) is that a good sign for someone with possible TTS??
Input would be great!
Thanks!
Still waiting on a test to confirm the tts......

Re: Quick Question about TTS

cindyp on 11/30/01 at 19:38 (065777)

Not being dr. z but having been there and done that i can say for me yes the feeling of electrical shocks and tingling is a sign of a nerve thing going on.

Re: Quick Question about TTS

John h on 12/01/01 at 15:36 (065836)

Carmen: I want to make a few comments about TTS. I had surgery for TTS along with PF surgery at the same time about 3 years ago. I went through the usual test for TTS with some highly specialized physicians. The doctor conducting the electrical test who was an orthopedic specialist does nothing but condut these test for a living. He said after looking at my results that the nerve condution indicated I might have TTS but the fact was there is no gold standard test that will positively identify TTS. my surgeon told me the same thing. He said it was my call to have the TTS surgery while he was doing the PF surgery. He told me later that the only thing he found in the tarsal tunnel was an enlarged vericose vein which he removed. My take on this surgery is that it is probably overdone and if you ever have it done it better be someone very experienced and good with a scalpel. The incision for this surgery is on the order of 5-6' and runs up the inside of my ankle from edge of foot to above ankle bone. TTS can be treated with ice and other forms of treatment if it really exist. Before I had this surgery again I would have to thourghly convinced that there was something pressing on a nerve in the tarsal tunnel or somewhere else. Things can go bad doing this surgery if the doctor is not really trained to know what he is looking for and good with the scalpel.

Re: Quick Question about TTS

Carmen H on 12/01/01 at 17:55 (065847)

John I believe you have had it all! Wow....you have gone through some stuff haven't you? Thank you for the input....you know I already drilled the guy and I don't even have the diagnosis yet. I jump the gun a bit but I feel like this....when I have a doctor in the room and I have his FULL attention I am going to squeeze him dry of information before it's another two weeks of pain before I see him or her again!!! He has a test he is doing at their office....I have had: EMG, NCV and Somato Sensory tests done fso far. The somato came back with abnormal results on the tibial nerve but that could be in the back too....there's no damage to the myelin sheath anywhere though . THANKFULLY. So we'll see. I have started icing the INSIDE of my ankles which I hadn't done before (it just recently went up the ankle...tingling sensations...it's been burning the bottom of my feet for 5 months now), the burning has STOPPED completely on the bottoms of the feet, and I have a pair of shoes with GREAT support and a slight heel on them and when they are on my feet....(CAREFUL CARMEN NO JINXING) my pain level STAYS at a one. Probably b/c the pressure is finally off that nerve! I had been wearing Danskos which TRULY helped the first few months...without them I wouldn't have walked. But now they KILL me. I felt like a normal person today...no burning in feet, back, hands, nothing. I shopped for 2 hours and barely had a pain. I could tell I was almost overdoing it and we left. So John since you've given me good food for thought...I am wondering...if the burning subsides does this mean it's getting better? Also what else can help the TTS? Keep in mind I have taken every NSAID known to man.
:-)
Wow I got long winded there didn't I?
Thanks John....as usual I look for your posts and appreciate them!!!

Re: Quick Question about TTS

John h on 12/01/01 at 22:12 (065873)

Carmen: When my PF first began some 7 years ago for the first year I described the pain to my doctor as 'burning'! In time and I do not remember when it turned from burning to what i guess is the conventional PF pain--it just plain hurt when i was my feet. Since I have bi-lateral PF i can tell you that the Tarsal Tunnel surgery neither helped or made the foot worse. I know I would not bother doing the other foot again. Duing the last year or so I have improved significantly from when this all first started. I will not even begin to go through the list of things I have done and had done to me. Almost anything you read about on this board i have tried. My guess is the things that have helped are ESWT,Birkenstock Airizona Sandals, ice (reduced pain), and resting the feet more than the hyperactive person i am calls for, and perhaps night splints. TTS and PF surgery neither helped or made me worse. That old saying time heals may be somewhat true but it sure is a worisome journey. Setbacks are inevitable so be prepared. Sometimes it is one step forward and 2 steps backwards but you have got to keep on moving. Probably my bigest mistakes have been when I get my pain level down to a one or less i do something dumb like run a lap. I never seem to learn.

Re: Quick Question about TTS

cindyp on 12/02/01 at 18:25 (065934)

What you can do is get another opinion i got 8. You can get a mri that will look in there and see if there is a physical problem that is causing the tts. YOu try and find thebest dr. in the area. I would go with a orthopedist who specializes in the foot and ankle. NEVER go with one opinion.

Re: Quick Question about TTS

Carmen H on 12/03/01 at 07:11 (065968)

Thanks but this is my 4th Podiatrist...the foot and ankle orthopedic said I was too young to have foot pain.....this is the 2nd 'good' opinion I have had on the feet and the 3rd on the Nerves....so I think I am on the right track. Believe me...I have been through the ringer on tests!
:-)

Re: Quick Question about TTS

cindyp on 12/03/01 at 12:49 (065982)

See when a dr. would have told me i was to young for foot pain i would have asked him to put his diploma back in the cracker jack box. There's no such thing as being to young. I am 39 and my foot had bothered me since i was 25 off and on.

Re: Quick Question about TTS

Carmen H on 12/03/01 at 16:28 (066006)

That'a hilarious! I think he knew he'd never see me again after I said 'ummmm whatever. just give me the prescription for vicodin and I'm done'
Cracker jack box...hee hee.
funny girl!

Re: Quick Question about TTS

wendyn on 12/03/01 at 21:26 (066034)

cindyp has quite the sense of humor - I will remember that line about the cracker jack box - sounds like something I would use.

I've had foot pain since I was 11, bunions since 19 - so I was mildly amused at the 'you're too young for foot pain' comment. Maybe you should have told him that he was too young to be so senile and crotchety.

Re: Quick Question about TTS

cindyp on 12/03/01 at 22:27 (066042)

Or unqualified and stupid. heheheh I would have jumped on a table and said I am paying you boob listen to me and hear what I am saying. Gosh some of these guys drove me crazy before I found somebody to help me.

Re: Quick Question about TTS

cindyp on 11/30/01 at 19:38 (065777)

Not being dr. z but having been there and done that i can say for me yes the feeling of electrical shocks and tingling is a sign of a nerve thing going on.

Re: Quick Question about TTS

John h on 12/01/01 at 15:36 (065836)

Carmen: I want to make a few comments about TTS. I had surgery for TTS along with PF surgery at the same time about 3 years ago. I went through the usual test for TTS with some highly specialized physicians. The doctor conducting the electrical test who was an orthopedic specialist does nothing but condut these test for a living. He said after looking at my results that the nerve condution indicated I might have TTS but the fact was there is no gold standard test that will positively identify TTS. my surgeon told me the same thing. He said it was my call to have the TTS surgery while he was doing the PF surgery. He told me later that the only thing he found in the tarsal tunnel was an enlarged vericose vein which he removed. My take on this surgery is that it is probably overdone and if you ever have it done it better be someone very experienced and good with a scalpel. The incision for this surgery is on the order of 5-6' and runs up the inside of my ankle from edge of foot to above ankle bone. TTS can be treated with ice and other forms of treatment if it really exist. Before I had this surgery again I would have to thourghly convinced that there was something pressing on a nerve in the tarsal tunnel or somewhere else. Things can go bad doing this surgery if the doctor is not really trained to know what he is looking for and good with the scalpel.

Re: Quick Question about TTS

Carmen H on 12/01/01 at 17:55 (065847)

John I believe you have had it all! Wow....you have gone through some stuff haven't you? Thank you for the input....you know I already drilled the guy and I don't even have the diagnosis yet. I jump the gun a bit but I feel like this....when I have a doctor in the room and I have his FULL attention I am going to squeeze him dry of information before it's another two weeks of pain before I see him or her again!!! He has a test he is doing at their office....I have had: EMG, NCV and Somato Sensory tests done fso far. The somato came back with abnormal results on the tibial nerve but that could be in the back too....there's no damage to the myelin sheath anywhere though . THANKFULLY. So we'll see. I have started icing the INSIDE of my ankles which I hadn't done before (it just recently went up the ankle...tingling sensations...it's been burning the bottom of my feet for 5 months now), the burning has STOPPED completely on the bottoms of the feet, and I have a pair of shoes with GREAT support and a slight heel on them and when they are on my feet....(CAREFUL CARMEN NO JINXING) my pain level STAYS at a one. Probably b/c the pressure is finally off that nerve! I had been wearing Danskos which TRULY helped the first few months...without them I wouldn't have walked. But now they KILL me. I felt like a normal person today...no burning in feet, back, hands, nothing. I shopped for 2 hours and barely had a pain. I could tell I was almost overdoing it and we left. So John since you've given me good food for thought...I am wondering...if the burning subsides does this mean it's getting better? Also what else can help the TTS? Keep in mind I have taken every NSAID known to man.
:-)
Wow I got long winded there didn't I?
Thanks John....as usual I look for your posts and appreciate them!!!

Re: Quick Question about TTS

John h on 12/01/01 at 22:12 (065873)

Carmen: When my PF first began some 7 years ago for the first year I described the pain to my doctor as 'burning'! In time and I do not remember when it turned from burning to what i guess is the conventional PF pain--it just plain hurt when i was my feet. Since I have bi-lateral PF i can tell you that the Tarsal Tunnel surgery neither helped or made the foot worse. I know I would not bother doing the other foot again. Duing the last year or so I have improved significantly from when this all first started. I will not even begin to go through the list of things I have done and had done to me. Almost anything you read about on this board i have tried. My guess is the things that have helped are ESWT,Birkenstock Airizona Sandals, ice (reduced pain), and resting the feet more than the hyperactive person i am calls for, and perhaps night splints. TTS and PF surgery neither helped or made me worse. That old saying time heals may be somewhat true but it sure is a worisome journey. Setbacks are inevitable so be prepared. Sometimes it is one step forward and 2 steps backwards but you have got to keep on moving. Probably my bigest mistakes have been when I get my pain level down to a one or less i do something dumb like run a lap. I never seem to learn.

Re: Quick Question about TTS

cindyp on 12/02/01 at 18:25 (065934)

What you can do is get another opinion i got 8. You can get a mri that will look in there and see if there is a physical problem that is causing the tts. YOu try and find thebest dr. in the area. I would go with a orthopedist who specializes in the foot and ankle. NEVER go with one opinion.

Re: Quick Question about TTS

Carmen H on 12/03/01 at 07:11 (065968)

Thanks but this is my 4th Podiatrist...the foot and ankle orthopedic said I was too young to have foot pain.....this is the 2nd 'good' opinion I have had on the feet and the 3rd on the Nerves....so I think I am on the right track. Believe me...I have been through the ringer on tests!
:-)

Re: Quick Question about TTS

cindyp on 12/03/01 at 12:49 (065982)

See when a dr. would have told me i was to young for foot pain i would have asked him to put his diploma back in the cracker jack box. There's no such thing as being to young. I am 39 and my foot had bothered me since i was 25 off and on.

Re: Quick Question about TTS

Carmen H on 12/03/01 at 16:28 (066006)

That'a hilarious! I think he knew he'd never see me again after I said 'ummmm whatever. just give me the prescription for vicodin and I'm done'
Cracker jack box...hee hee.
funny girl!

Re: Quick Question about TTS

wendyn on 12/03/01 at 21:26 (066034)

cindyp has quite the sense of humor - I will remember that line about the cracker jack box - sounds like something I would use.

I've had foot pain since I was 11, bunions since 19 - so I was mildly amused at the 'you're too young for foot pain' comment. Maybe you should have told him that he was too young to be so senile and crotchety.

Re: Quick Question about TTS

cindyp on 12/03/01 at 22:27 (066042)

Or unqualified and stupid. heheheh I would have jumped on a table and said I am paying you boob listen to me and hear what I am saying. Gosh some of these guys drove me crazy before I found somebody to help me.