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Seen a new dr. today

Posted by Tammie on 1/03/02 at 20:26 (068594)

I seen a new dr. today hoping for a referral to another dr. Well this is the scoop, would like thoughts from my friends here if you can.

She at this point agrees with what my pod is doing and says there are only a few things she doesnt, she is comfortable with his dx and treatment. But she is not happy with the pain and the lack of sleep. She says she is not sure why he feels uneasy about treating my pain but she is contacting him to further discuss it . She would like to work with him to see what they can both do . She explained some of the nerve type pain I am having as being classical text book, and thought there are some avenues to be explored yet, such as the neruotron? spelling I am sorry. In any case she would like to start with a older med that was or is used for depression I believe(elival?) she says it has shown to sometimes help in nerve pain cases? Then she said we could move to the neurotron if needed. I am sorry i am a awful speller.

She also thinks at this time i might benifit from a antidepressant and has also recomeded and prescribed one for me to begin.She says we need to start but we need to start with obvious first, going from there. She also gave me ultram and not 5 or 10 she said she wanted me to use what i need and not just live thru it I can take up to 6 a day or the night, and she said in a month maybe I will be feeling a bit better and we can go from there. She said there is no reason to feel the pain and to not get any sleep,(stating anyone with a lack of sleep and pain cannot possibly think straight or do what is best for themselves). There were things that could be given to help me thru the rough road. Nice compassionate woman, really surprised me alot. She examined my foot and feet I should say , agreed with what the dr. said about working and job hazards right now but said she also understood me and that we will take it a bit at a time first things first. She did not think I need a mri quite yet but would be open to persuing it if needed.

Oh yea she wanted to contact my work on a general interest area to see if there were things to preventive, and to talk with them about my case to help them understand what it is and why I am needing some off feet time. My goodness did I jsut meet my gaurdian angel or am I dreaming that maybe I might be on a good road? What do u friends think are thease meds used for this? I am not familiar with much in this area but I know there are many here with a great knowledge! I hope that I am not dreaming and that there really is a hope there somewhere! She also does not really like surgery she prefers it as only the very last thing and her feeling is that she sees more cases after the nerve surgeries that have a permenant long term pain never really going away. She thinks that it is luck of the draw if they don't but again that is her thought . She does not like the surgery unless it is know to the patient and that they truly understand that this can occur. Now do u think she is trying to tell me something? Or am I over reading her. Thanks to all.

Re: Seen a new dr. today

nancy s. on 1/03/02 at 21:57 (068610)

tammie, your new doctor sounds like a gem. not only does she want to work with and consult your other doctor, she wants to check things out at your work and educate them about your condition and what you can and cannot do? wow -- i'm impressed, truly. she sounds like a keeper.
i take it she prescribed elavil for your nerve pain and another antidepressant for depression? i'm not sure i got that right. but if so, i just wanted to tell you that i have found an antidepressant to be a great help. i can't even begin to describe how depressed i got over my feet; the depression had me in a tight grip, causing me to lose sleep, lose hope, and become very isolated.
chronic pain, losing the ability to walk much or at all, having many important aspects of your life change because of these things -- all this can cause serious depression. and the sooner it's treated, the better.
good luck to you with this new doc -- she sounds committed to quality and complete care.
nancy

Re: re elavil

SuzanneK on 1/03/02 at 22:46 (068626)

Hi Tammie. Sounds like this doctor is really concerned about your chronic pain. Good for her! It can be so debilitating.

My mom is taking elavil for a spasmodic bowel. She started having this terible pain not long after my dad passed away. An added benefit in her case is the antidepressant effect. My dad died after a long struggle with chronic obstructive pulmonary disease. His passing was long and difficult. Mom would never in a million years admit that she might be clinically depressed (she is!) and would certainly never take any meds for it.

Her mood has lightened dramatically - it is difficult to say how much is due to the lack of pain, the ability to sleep, the easing of depression, or any /all of the above. Hope the meds work as well for you!

Re: Seen a new dr. today

wendyn on 1/03/02 at 23:42 (068642)

Tammie - your new doctor sounds great.

Is that right though - Elavil AND another anti-depressent?

Can you take two at a time?

Elavil is supposed to be very good nerve pain.

What your doctor is saying about the surgery (TTS) being last resort and often causing more problems than not - seems to go with everything I have learned here and through research. Unfortunate, but true.

I hope that they can get your pain under control and help you on the road to getting better.

Re: Seen a new dr. today

Laurie R on 1/03/02 at 23:54 (068643)

Hi Tammie , As I said in the email to you , I am so very proud of you for going today . I know it was very hard for you to talk to your new doctor, but you did it . This doctor sounds so wonderful and she seems like she really wants to help you , the whole you . With pain as most of us knows comes so much not just the pain ....

I wish you only the best .... Laurie R

Re: my honest opinion

elliott on 1/04/02 at 00:30 (068647)

I'm going to be very frank, but you know I have the best of intentions, if not hugs and kisses.

I'm going to differ from the others. A doctor caring that you're in pain is not the same as one giving you appropriate care. Basically what you're getting is painkillers, which you could've tried before surgery too. She also should be wanting to find out what went wrong. I'm not at all impressed with your initial pod's care either. Unconscionable that the pod did not seek an MRI for you before your TTS surgery, especially given your mysterious swelling. And based on your description, your pod's TTS surgical technique sounds all wrong to me (as if I'm a doctor), and maybe the results bear that out. Based on your previous posts, I wouldn't be suprised if he snipped a nerve or something, leaving you with major numbness; not sure how successful meds would be for something like that.

Can I ask what is your new doctor? A pod? Ortho? Other? Why is she so special?

Sure, TTS surgery has lower success rates, but usually that means incomplete release, recurrence, pain tradeoff and the like, chances worth taking when you're in a lot of pain. It shouldn't suggest a likelihood for things going way wrong. When they do, one has to wonder what the surgeon did, or at least what was wrong with you to start with.

I'm not blaming the new Dr. for giving you meds; you need them. And that is especially appropriate after a failed surgery too, as you can't just run into another one so quick; the risks go up the second time around. In fact, given the increased risks, despite the pain I'd wait at least a year before even considering it, as maybe things will settle down. But there were a lot of strange things about your case. It wasn't as if a very experienced TTS surgeon performed a routine TTS surgery that went awry and now there's nothing that can be done. You want to know what happened. What that swelling is. I think that MRI is way overdue, as well as, if at all possible, a visit to a big-name TTS person (some names of whom I mentioned before), preferably not connected with your pod, who may get a better handle on your case after looking at your MRI, reading your pod's op report, and listening to your pre- and post-surgery symptoms, and who would be better-suited to handle more complicated TTS surgery should it be necessary such as nerve re-attachment, transsection, etc. It doesn't have to imply another surgery is the way to go (if he's worth his salt, the standard for repeat surgery should be even higher than for the first time around), but just hearing what he has to say will help give a clearer picture of where you're at.

I think a bit differently than many here, and if you don't like my advice, that's cool too. Whatever you do, hang in there, Tammie. You're on our minds.

----

Re: my honest opinion

Tammie on 1/04/02 at 08:35 (068656)

Thank u for the honesty, yes there are many questions and not as many answers. I will try as well as I can. Ins. dictates that u have to have a referral from your primary for the specialists. Therefore since I had no primary I had to find one which I did on my own. I had talked to some people and listened around and found this dr. she is a other as u say lol. A MD but not a specialist in feet. Yes she gave me zoloft also besides the elevial. I dont know to much about the normal ways of this foot thing and what will help or not. She seemed concerned with gettting (Me) together first before we procede with the next steps as she quoted.

She felt that once I was feeling a bit better with some pain relief and some good sleep I might be in a better frame to see what really is going on. As she felt that when u are in pain and not sleeping it is hard to actually really know how much pain and exactly where and what is going on. She did not say she would not order a mri or get a specialist involved, she said we need to get me to a point that I can feel as well as explore what is going on with my feet. I guess this has hit me a bit more then I ever thought it could as I have never dealt with a long term pain and one that keeps me from doing my every day life. If u know what I mean.

The surgery the pod did seemed different from most here but I dont know why or if it is normal or not . Alls i know I feel pain and that I cannot live with pain forever without some relief on ocasion and he (the pod) was not helping in that area.He made me feel like I was a nut that I should be able to deal with it and I needed help . NO he has nothing to do with this new dr. he has never heard her name as far as i know in fact I did not tell him I was seeing her. Tho I will say he urged me t find a primary dr. as they kept kicking back when he asked for a mri said had to be refered from primary. Heh I dont know everything but I have had to fight this insurance more then I like I mean they kicked back my husband getting stitiches in his arm at a dr. office get that . His union is in the fight now. So for me it is like one step at a time.

I am starting to deal with the big issues first which seems to be me! And not getting rest and feeling pain all the time. Along with the next step pt starting monday. Then we shall see what is on the list for the next step. I had to start somewhere and I guess this is the start. Thanks for everyones thoughts. I need the input here, as it helps me to keep going and at least have a clue to what and where I should be at. Thank u all!

Oh yea she also did some blood testing as some was not done, mainly thyroid as I have hypothyroid and have been treated for some amount of years with synthroid by my g.y.n. She seemed to wonder if the levels could be off.

Re: my honest opinion

wendyn on 1/04/02 at 10:31 (068672)

Tammie - one of the first things most doctors check with unexplained foot pain is thyroid levels, along with test for diabetes, RH factor and sometimes B12.

Re: Thinking of you, Tammie!

Suzanne D on 1/04/02 at 16:06 (068720)

Dear Tammie,
I wanted to let you know that you are on my mind and in my prayers. I don't know enough about feet and all the problems we can experience to give any comments (I wish I did!), but I DO want you to know I am 'pulling for you'!

Did I understand that your new dr. is a general practitioner? In that case, can she be your primary care dr. and then refer you to someone else if that is needed? At least she seemed to care and be interested, and so hopefully she would be willing to continue to listen and explore what else can be done in the future.

I do hope the medicines help you to get more rest and feel better! Then I hope someone can help you get to the bottom of everything so that you can heal.

Hang in there! :-)

Re: thyroid?

Carole C on 1/04/02 at 17:24 (068736)

I didn't know that! That's fascinating. Is it low thyroid that causes foot pain? Now I'm really curious. I don't have thyroid problems (doctors always give me at least a cursory check for that because I'm heavy and have thin eyebrows etc) but I'm still curious!

Carole C

Re: thyroid?

wendyn on 1/04/02 at 17:37 (068737)

I don't know exactly why - but for some reason I believe it's low thyroid that can cause unexplained foot pain.

Perhaps one of the doctors can comment?

Re: Seen a new dr. today

Lynda S. on 1/04/02 at 17:47 (068740)

Tammie:

I think your new doctor may be on the right track, especially if you haven't responded to other conservative measures. I went so far as having two plantar fascia procedures before my podiatrist, who sees a lot of diabetics with nerve pain in their feet, suggested I try a small dose of Elavil. He said it would help me sleep better and hopefully would do something for the feet. It did! Not a lot, but with my PCP, worked on increasing it. At some point I was switched to Nortriptyline (or Pamelor) because the Elavil gave me an awful taste in my mouth. The Nortriptyline along with wearing Birkenstocks every day has made a huge difference. Whether I was depressed or not before, I don't know, but certainly the inability to engage in normal day-to-day activities with one's feet could make anyone depressed. Good luck.

Re: Low Thyroid for Carol

wendyn on 1/04/02 at 22:14 (068774)

Carol, you had me curious...according to a few websites I checked...these are SOME of the sypmtoms that MAY appear with low thyroid

Carpal Tunnel syndrome, other nerve entrapment syndromes (burning/tingling) in hands or feet.

Poor wound healing

Swelling in Feet

Cold hands/feet, poor circulation, Raynaud's phenomenon

Muscle/joing aches/pains

Juding by this list, I can see why most doctors ensure this is checked - especially before doing surgery. I belive we've had a few people on this website who were diagnosed with low thyroid - and improved substantially after receiving treatment.

Tammie - do you know what else they checked your blood for?

Didn't your first doctor do any blood work?

Re: Thanks, Wendy!

Carole C on 1/04/02 at 22:42 (068775)

Thanks, Wendy! The swelling in the feet and poor wound healing would sure make PF incredibly awful, I'd bet.

Carole C

Re: Thanks, Wendy!

wendyn on 1/04/02 at 23:52 (068783)

Carole - I think that the real issue is that people can be MISDIAGNOSED...i.e. - NOT have PF or TTS in the first place.

When I had PF - my doctors didn't do any extra tests...but when I started having really bad pain that was beyond PF - they checked for Thyroid etc.

The real concern is that someone with buring, swelling, pain in the hands and feet could be diagnosed with something else...and have the low thyroid missed.

Surgery and conservative treatments would fail...because the underlying problem is still there.

Re: Some blood tests back

Tammie on 1/05/02 at 19:18 (068868)

They called yesterday with a medication change for my thyroid, I guess the tsh level was a bit high and they reduced my thyroid pill a little bit. I was worrying why they would reduce my pills and I had to recall to be sure . I felt dumb but she explained and well she said it was not a terrible difference in dose but still needed to be corrected and she will retest in 3 months.

I did have a bit of blood work done , I really dont remember what was done that was a longgggggggg time ago lol. But I seem to remember they didnt check thyroid as I had recently had it done with my gyn who was in charge of my thyroid trouble. The only reason this new dr. checked it is she is taking over my overall medical care and she wants her own results she said. She is to be my primary now, I did not have a primary before . I was a very fortuante person and did not see a dr. till absoulty needed.

I have started all the new meds and have found some side effects that are not the most pleasant, but am being assured it takes time to adjust to them and well am trying to hang in there! I must say this much I can relieve the pain at times now as the ultram does help I dont have to space it skipping total days for fear that I would not have any for the super days if u know what i mean. With being given 10 piils for a whole month it sure left alot of days and nights with pain. I now have plenty ,not that I am abusing it or using alot but they are there if needed. I go to bed without and see if I can deal with it and if not I can take one and even 2 if I like . It is a piece of heaven for the moment I feel like I could sleep for a month straight. I must say that my mood has been foul and the tension high and I have been tired of hurting for so very long that I know this is not the cure but I am catching up on some long lost sleep and a few hours of no pain.

Re: Tammie

wendyn on 1/05/02 at 23:20 (068891)

Tammie - just a word of caution, if you start all your new meds at once - you won't know which one is causing which side effect.

And, if it turns out you have an allergy or anything - you won't be able to determine the culprit.

Any chance of staging the new ones?

Re: nor...

elliott on 1/06/02 at 09:41 (068928)

which one is working.

Re: nor...

Tammie on 1/06/02 at 14:16 (068970)

Did I say one is working? LOl yea right well so much for that a night from the h word does not mean it works. No not yet. I do get some relief for about 2 hrs after I have taken a ultram.But am usually woken up with a jolt and no pun intended.I think if correct that the new meds have to build up in the system over a period of time? I may be worng about that later when I feel up to it I am going to do a search on the meds and see what I come up with.

I worked yesterday and had a miserable night and I worked today and expect a miserable night tonight so am going to take a warm wirlpool and try to relax some maybe with luck fall asleep in tub!

I wish I had started one at a time for meds, but she had told me to start right away . I have a metallic taste in mouth and heartburn oh my terrible,nauseated and a bit light headed at times. I will be calling tomorrow as I was desperate and took a prevacid of hubbys for the stomache and heartburn distress. Thanks for the interest, I feel like a soap opera is going on in my life, and I dont much care for it. I knew I did not like medicine very much now I remember why!

Re: Hang in there, Tammie!

Suzanne D on 1/06/02 at 18:43 (068993)

Dear Tammie,
I am sorry you had a bad night last night! I hope you can rest better tonight.

For what it is worth, my husband began a drug for chemical imbalance of the brain last spring and had the side effect of a metallic taste in his mouth. He also had a bad headache each day. He found out by taking the one pill a day at night rather than in the morning, he could avoid some of the side effects.

I just thought I would share that with you in case it helps.

:-) My thoughts and prayers are with you!!

Re: Hang in there, Tammie!

Tammie on 1/07/02 at 09:03 (069040)

Thanks Suzanne, I was told that to ! The dr. told me to take the amitriptlynine in the evening before bedtime as it also has a drowsy effect. The antideppresant she said take in evening also . And I can take the ultram to if and whenever I need it any time of day or night. I am getting a bit of sleep not how long I had hoped tho as it still is interupted several times at night like in 2 hr incerments. I usually lay awake for the next hr or so and then I will take a ultram again if I havent been able to fall back asleep. I am afraid to do this tho on days I have to get up for work as I have to get up at 4 am and dont want to be sick or sleepy.But I am experimenting with it a bit more. Thanks for the suggestions! I hope you have a good day today!

Re: Seen a new dr. today

nancy s. on 1/03/02 at 21:57 (068610)

tammie, your new doctor sounds like a gem. not only does she want to work with and consult your other doctor, she wants to check things out at your work and educate them about your condition and what you can and cannot do? wow -- i'm impressed, truly. she sounds like a keeper.
i take it she prescribed elavil for your nerve pain and another antidepressant for depression? i'm not sure i got that right. but if so, i just wanted to tell you that i have found an antidepressant to be a great help. i can't even begin to describe how depressed i got over my feet; the depression had me in a tight grip, causing me to lose sleep, lose hope, and become very isolated.
chronic pain, losing the ability to walk much or at all, having many important aspects of your life change because of these things -- all this can cause serious depression. and the sooner it's treated, the better.
good luck to you with this new doc -- she sounds committed to quality and complete care.
nancy

Re: re elavil

SuzanneK on 1/03/02 at 22:46 (068626)

Hi Tammie. Sounds like this doctor is really concerned about your chronic pain. Good for her! It can be so debilitating.

My mom is taking elavil for a spasmodic bowel. She started having this terible pain not long after my dad passed away. An added benefit in her case is the antidepressant effect. My dad died after a long struggle with chronic obstructive pulmonary disease. His passing was long and difficult. Mom would never in a million years admit that she might be clinically depressed (she is!) and would certainly never take any meds for it.

Her mood has lightened dramatically - it is difficult to say how much is due to the lack of pain, the ability to sleep, the easing of depression, or any /all of the above. Hope the meds work as well for you!

Re: Seen a new dr. today

wendyn on 1/03/02 at 23:42 (068642)

Tammie - your new doctor sounds great.

Is that right though - Elavil AND another anti-depressent?

Can you take two at a time?

Elavil is supposed to be very good nerve pain.

What your doctor is saying about the surgery (TTS) being last resort and often causing more problems than not - seems to go with everything I have learned here and through research. Unfortunate, but true.

I hope that they can get your pain under control and help you on the road to getting better.

Re: Seen a new dr. today

Laurie R on 1/03/02 at 23:54 (068643)

Hi Tammie , As I said in the email to you , I am so very proud of you for going today . I know it was very hard for you to talk to your new doctor, but you did it . This doctor sounds so wonderful and she seems like she really wants to help you , the whole you . With pain as most of us knows comes so much not just the pain ....

I wish you only the best .... Laurie R

Re: my honest opinion

elliott on 1/04/02 at 00:30 (068647)

I'm going to be very frank, but you know I have the best of intentions, if not hugs and kisses.

I'm going to differ from the others. A doctor caring that you're in pain is not the same as one giving you appropriate care. Basically what you're getting is painkillers, which you could've tried before surgery too. She also should be wanting to find out what went wrong. I'm not at all impressed with your initial pod's care either. Unconscionable that the pod did not seek an MRI for you before your TTS surgery, especially given your mysterious swelling. And based on your description, your pod's TTS surgical technique sounds all wrong to me (as if I'm a doctor), and maybe the results bear that out. Based on your previous posts, I wouldn't be suprised if he snipped a nerve or something, leaving you with major numbness; not sure how successful meds would be for something like that.

Can I ask what is your new doctor? A pod? Ortho? Other? Why is she so special?

Sure, TTS surgery has lower success rates, but usually that means incomplete release, recurrence, pain tradeoff and the like, chances worth taking when you're in a lot of pain. It shouldn't suggest a likelihood for things going way wrong. When they do, one has to wonder what the surgeon did, or at least what was wrong with you to start with.

I'm not blaming the new Dr. for giving you meds; you need them. And that is especially appropriate after a failed surgery too, as you can't just run into another one so quick; the risks go up the second time around. In fact, given the increased risks, despite the pain I'd wait at least a year before even considering it, as maybe things will settle down. But there were a lot of strange things about your case. It wasn't as if a very experienced TTS surgeon performed a routine TTS surgery that went awry and now there's nothing that can be done. You want to know what happened. What that swelling is. I think that MRI is way overdue, as well as, if at all possible, a visit to a big-name TTS person (some names of whom I mentioned before), preferably not connected with your pod, who may get a better handle on your case after looking at your MRI, reading your pod's op report, and listening to your pre- and post-surgery symptoms, and who would be better-suited to handle more complicated TTS surgery should it be necessary such as nerve re-attachment, transsection, etc. It doesn't have to imply another surgery is the way to go (if he's worth his salt, the standard for repeat surgery should be even higher than for the first time around), but just hearing what he has to say will help give a clearer picture of where you're at.

I think a bit differently than many here, and if you don't like my advice, that's cool too. Whatever you do, hang in there, Tammie. You're on our minds.

----

Re: my honest opinion

Tammie on 1/04/02 at 08:35 (068656)

Thank u for the honesty, yes there are many questions and not as many answers. I will try as well as I can. Ins. dictates that u have to have a referral from your primary for the specialists. Therefore since I had no primary I had to find one which I did on my own. I had talked to some people and listened around and found this dr. she is a other as u say lol. A MD but not a specialist in feet. Yes she gave me zoloft also besides the elevial. I dont know to much about the normal ways of this foot thing and what will help or not. She seemed concerned with gettting (Me) together first before we procede with the next steps as she quoted.

She felt that once I was feeling a bit better with some pain relief and some good sleep I might be in a better frame to see what really is going on. As she felt that when u are in pain and not sleeping it is hard to actually really know how much pain and exactly where and what is going on. She did not say she would not order a mri or get a specialist involved, she said we need to get me to a point that I can feel as well as explore what is going on with my feet. I guess this has hit me a bit more then I ever thought it could as I have never dealt with a long term pain and one that keeps me from doing my every day life. If u know what I mean.

The surgery the pod did seemed different from most here but I dont know why or if it is normal or not . Alls i know I feel pain and that I cannot live with pain forever without some relief on ocasion and he (the pod) was not helping in that area.He made me feel like I was a nut that I should be able to deal with it and I needed help . NO he has nothing to do with this new dr. he has never heard her name as far as i know in fact I did not tell him I was seeing her. Tho I will say he urged me t find a primary dr. as they kept kicking back when he asked for a mri said had to be refered from primary. Heh I dont know everything but I have had to fight this insurance more then I like I mean they kicked back my husband getting stitiches in his arm at a dr. office get that . His union is in the fight now. So for me it is like one step at a time.

I am starting to deal with the big issues first which seems to be me! And not getting rest and feeling pain all the time. Along with the next step pt starting monday. Then we shall see what is on the list for the next step. I had to start somewhere and I guess this is the start. Thanks for everyones thoughts. I need the input here, as it helps me to keep going and at least have a clue to what and where I should be at. Thank u all!

Oh yea she also did some blood testing as some was not done, mainly thyroid as I have hypothyroid and have been treated for some amount of years with synthroid by my g.y.n. She seemed to wonder if the levels could be off.

Re: my honest opinion

wendyn on 1/04/02 at 10:31 (068672)

Tammie - one of the first things most doctors check with unexplained foot pain is thyroid levels, along with test for diabetes, RH factor and sometimes B12.

Re: Thinking of you, Tammie!

Suzanne D on 1/04/02 at 16:06 (068720)

Dear Tammie,
I wanted to let you know that you are on my mind and in my prayers. I don't know enough about feet and all the problems we can experience to give any comments (I wish I did!), but I DO want you to know I am 'pulling for you'!

Did I understand that your new dr. is a general practitioner? In that case, can she be your primary care dr. and then refer you to someone else if that is needed? At least she seemed to care and be interested, and so hopefully she would be willing to continue to listen and explore what else can be done in the future.

I do hope the medicines help you to get more rest and feel better! Then I hope someone can help you get to the bottom of everything so that you can heal.

Hang in there! :-)

Re: thyroid?

Carole C on 1/04/02 at 17:24 (068736)

I didn't know that! That's fascinating. Is it low thyroid that causes foot pain? Now I'm really curious. I don't have thyroid problems (doctors always give me at least a cursory check for that because I'm heavy and have thin eyebrows etc) but I'm still curious!

Carole C

Re: thyroid?

wendyn on 1/04/02 at 17:37 (068737)

I don't know exactly why - but for some reason I believe it's low thyroid that can cause unexplained foot pain.

Perhaps one of the doctors can comment?

Re: Seen a new dr. today

Lynda S. on 1/04/02 at 17:47 (068740)

Tammie:

I think your new doctor may be on the right track, especially if you haven't responded to other conservative measures. I went so far as having two plantar fascia procedures before my podiatrist, who sees a lot of diabetics with nerve pain in their feet, suggested I try a small dose of Elavil. He said it would help me sleep better and hopefully would do something for the feet. It did! Not a lot, but with my PCP, worked on increasing it. At some point I was switched to Nortriptyline (or Pamelor) because the Elavil gave me an awful taste in my mouth. The Nortriptyline along with wearing Birkenstocks every day has made a huge difference. Whether I was depressed or not before, I don't know, but certainly the inability to engage in normal day-to-day activities with one's feet could make anyone depressed. Good luck.

Re: Low Thyroid for Carol

wendyn on 1/04/02 at 22:14 (068774)

Carol, you had me curious...according to a few websites I checked...these are SOME of the sypmtoms that MAY appear with low thyroid

Carpal Tunnel syndrome, other nerve entrapment syndromes (burning/tingling) in hands or feet.

Poor wound healing

Swelling in Feet

Cold hands/feet, poor circulation, Raynaud's phenomenon

Muscle/joing aches/pains

Juding by this list, I can see why most doctors ensure this is checked - especially before doing surgery. I belive we've had a few people on this website who were diagnosed with low thyroid - and improved substantially after receiving treatment.

Tammie - do you know what else they checked your blood for?

Didn't your first doctor do any blood work?

Re: Thanks, Wendy!

Carole C on 1/04/02 at 22:42 (068775)

Thanks, Wendy! The swelling in the feet and poor wound healing would sure make PF incredibly awful, I'd bet.

Carole C

Re: Thanks, Wendy!

wendyn on 1/04/02 at 23:52 (068783)

Carole - I think that the real issue is that people can be MISDIAGNOSED...i.e. - NOT have PF or TTS in the first place.

When I had PF - my doctors didn't do any extra tests...but when I started having really bad pain that was beyond PF - they checked for Thyroid etc.

The real concern is that someone with buring, swelling, pain in the hands and feet could be diagnosed with something else...and have the low thyroid missed.

Surgery and conservative treatments would fail...because the underlying problem is still there.

Re: Some blood tests back

Tammie on 1/05/02 at 19:18 (068868)

They called yesterday with a medication change for my thyroid, I guess the tsh level was a bit high and they reduced my thyroid pill a little bit. I was worrying why they would reduce my pills and I had to recall to be sure . I felt dumb but she explained and well she said it was not a terrible difference in dose but still needed to be corrected and she will retest in 3 months.

I did have a bit of blood work done , I really dont remember what was done that was a longgggggggg time ago lol. But I seem to remember they didnt check thyroid as I had recently had it done with my gyn who was in charge of my thyroid trouble. The only reason this new dr. checked it is she is taking over my overall medical care and she wants her own results she said. She is to be my primary now, I did not have a primary before . I was a very fortuante person and did not see a dr. till absoulty needed.

I have started all the new meds and have found some side effects that are not the most pleasant, but am being assured it takes time to adjust to them and well am trying to hang in there! I must say this much I can relieve the pain at times now as the ultram does help I dont have to space it skipping total days for fear that I would not have any for the super days if u know what i mean. With being given 10 piils for a whole month it sure left alot of days and nights with pain. I now have plenty ,not that I am abusing it or using alot but they are there if needed. I go to bed without and see if I can deal with it and if not I can take one and even 2 if I like . It is a piece of heaven for the moment I feel like I could sleep for a month straight. I must say that my mood has been foul and the tension high and I have been tired of hurting for so very long that I know this is not the cure but I am catching up on some long lost sleep and a few hours of no pain.

Re: Tammie

wendyn on 1/05/02 at 23:20 (068891)

Tammie - just a word of caution, if you start all your new meds at once - you won't know which one is causing which side effect.

And, if it turns out you have an allergy or anything - you won't be able to determine the culprit.

Any chance of staging the new ones?

Re: nor...

elliott on 1/06/02 at 09:41 (068928)

which one is working.

Re: nor...

Tammie on 1/06/02 at 14:16 (068970)

Did I say one is working? LOl yea right well so much for that a night from the h word does not mean it works. No not yet. I do get some relief for about 2 hrs after I have taken a ultram.But am usually woken up with a jolt and no pun intended.I think if correct that the new meds have to build up in the system over a period of time? I may be worng about that later when I feel up to it I am going to do a search on the meds and see what I come up with.

I worked yesterday and had a miserable night and I worked today and expect a miserable night tonight so am going to take a warm wirlpool and try to relax some maybe with luck fall asleep in tub!

I wish I had started one at a time for meds, but she had told me to start right away . I have a metallic taste in mouth and heartburn oh my terrible,nauseated and a bit light headed at times. I will be calling tomorrow as I was desperate and took a prevacid of hubbys for the stomache and heartburn distress. Thanks for the interest, I feel like a soap opera is going on in my life, and I dont much care for it. I knew I did not like medicine very much now I remember why!

Re: Hang in there, Tammie!

Suzanne D on 1/06/02 at 18:43 (068993)

Dear Tammie,
I am sorry you had a bad night last night! I hope you can rest better tonight.

For what it is worth, my husband began a drug for chemical imbalance of the brain last spring and had the side effect of a metallic taste in his mouth. He also had a bad headache each day. He found out by taking the one pill a day at night rather than in the morning, he could avoid some of the side effects.

I just thought I would share that with you in case it helps.

:-) My thoughts and prayers are with you!!

Re: Hang in there, Tammie!

Tammie on 1/07/02 at 09:03 (069040)

Thanks Suzanne, I was told that to ! The dr. told me to take the amitriptlynine in the evening before bedtime as it also has a drowsy effect. The antideppresant she said take in evening also . And I can take the ultram to if and whenever I need it any time of day or night. I am getting a bit of sleep not how long I had hoped tho as it still is interupted several times at night like in 2 hr incerments. I usually lay awake for the next hr or so and then I will take a ultram again if I havent been able to fall back asleep. I am afraid to do this tho on days I have to get up for work as I have to get up at 4 am and dont want to be sick or sleepy.But I am experimenting with it a bit more. Thanks for the suggestions! I hope you have a good day today!