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Help!!

Posted by Pam F on 3/13/02 at 08:22 (076328)

I have been on and off this sight for about one year. During this time, I have endured numerous injections, thearpy, spur removal with pf release, a tarsal tunnel, and nerve entrapment release, more injections, and more theapy. The doctor has now said that maybe we should just cut the nerve to the foot. The doctor has also wrote for me to be on disability. I have been off work for a year now. I have started a weight loss program at the hospital, in February, and have lost 20# so far. I am still having foot pain, and my family is tired of hearing me complain plus I really think no one thinks that I am really in pain. Has any out there ever endured all of this? Does anyone have any words of wisdom to help me? I feel that I am at the brink of real depression. Thnak You

Re: Help!!

Valerie S on 3/13/02 at 09:04 (076332)

Oh Pam...

I'm sorry to hear you are in such pain and distress... I have not been through the ringer that you have, but I also had to give up my job because of PF. I have been off work for a year also.

It really is hard when people around you can't feel what you're going through. I'm sorry that you're having such a hard time finding a solution. Have you gone for a second, third, fourth opinion? I would be scared of any doctor that even mentioned cutting the nerve to the foot! Yikes! I'm no doctor of course, but that sure sounds extreme to me...

One comfort I can offer you is that you will always find support and people here who understand what you are going through. I think most of us can relate to the hopeless despair that you feel right now. I spent many hours crying in hopelessness, believe me...

Especially when you're not working, it's hard to get your mind off your feet and onto something positive. Have you considered possibly starting a new hobby? I'm a creative person, and I have found some contentment and feelings of accomplishment in creating beautiful things over the last year especially... and my family loves getting homemade scarves, rugs, cards, etc.... I have also just found a new interest in hand analysis and am going to start learning to read palms for fun (you know, family and friends, that sort of thing...).

Maybe you could just dive into a good novel, or read about something you've always been interested in... learning something new can open up a whole new world for you. Keep searching for answers to your foot woes, of course... but remember that just because your feet hurt, you don't have to give up on life. You have plenty to offer and plenty to learn about yourself, even if you have to do it sitting down!

We're here for you whenever you want to vent... I wish I could get rid of your pain. I understand the frustration you feel, and if I could, I would erase the words 'my feet' from my vocabulary... hee hee... but just try to remember that there's a whole world out here... come on out and grab a piece!

Your friend, Val.

Re: Help!!

Ardee W. on 3/13/02 at 09:56 (076342)

I am new to this board but I want to encourage you to get on more often and find relief and acceptance here where people naturally understand more. You have been through the ringer! I would personally not let them cut the nerve. It sounds like the last ditch effort to get rid of your pain but that is permanent. My mom was dying in the hospital from cancer and down to 68 pounds. The doctor wanted to cut the nerves in her spinal cord to give her relief. Of course, she would be paralyzed. My dad, bless him, checked her out of that hospital and got a new doctor and she went on to get better and live 15 more years. Enough to see her grandchildren born!

Another thought is that maybe you could suggest to some family and friends to come here and read for awhile. Maybe, they would have more understanding.

Love and peace to you. Hope may be right around the corner!

Re: Help!!

JudyS on 3/13/02 at 10:21 (076345)

Wow, Pam - I sure wish I had some strong words of encouragement for you but I'm not sure I'm qualified. My experience has been somewhat like yours except that I've not had surgery. It must have been quite disappointing for you to not have the results from surgery I imagine you anticipated. You're definately being quite normal if you feel as though you're on the brink of depression. That's pretty common with most of us here, at one time or another. The great thing is that you're 'on the brink'.....but not there yet? I wonder if that means you can take some steps to head it off at the pass? Lots of folks here will give you ideas as to how to do that and, if you don't mind, I'll make a point about something you said in your post - it speaks to inner strength that many sufferers don't think they have. If you've already taken productive (20 pounds!) steps to take control by losing weight, then you have some good inner strength going on, my friend, and it's impressive! Give yourself a pat on the back and remember that success, while it may come in seemingly miniscule steps, will come as long as you continue to exercise that strength. Good for you!

Re: Help!!

BrianG on 3/13/02 at 21:24 (076387)

Hi PamF,

I don't know what kind of disability you are thinking about, but if it is SSD, the time to file is now. You can loose money by waiting to long to file. If you do file, I think it's best to retain a good medical disability lawyer. I still don't know why, but the govt. sure does make it hard for us to collect SSD. Hire the lawyer, and take a lot of stress out of your life.

I'd also look into foot taping, and daiy pain meds. If you don't get this pain under control, you risk even worse depression. Have you talked to your doctor about a pain management specialist? What medications are you on? Good luck

BrianG

PS My Pod mentioned cutting the nerve once, and only once. I have never heard of anyone actually doing it, although I'm sure we've all thought about it.

Re: Help!!

Necee on 3/13/02 at 23:41 (076401)

Hi Pam,
I really feel for you. My goodness you sure have gone through a lot, but you sound like a very strong willed gal, and I know that you will overcome this.
You have been given some very good advice here, and I commend you for reaching out. Stay focused on getting your feet well, don't let negative thoughts even enter your mind or they will consume you.

If you have questions or just want to vent then you came to the right place. We all struggle from time to time, and some more than others but with the concern and compassion found here it always makes our suffering a little easier to deal with.

I have had ongoing foot pain for over a year now, but I'm not giving up, its hard sometimes to continue, especially when people around you don't really understand, foot pain sounds like such a minor thing but we all know that its not.

Hang in there Pam and know that your not alone, we are here for you.
Happy Trails....
Necee

Re: Help!!

Clara on 3/14/02 at 05:27 (076407)

Hi there Pam F! I really feel sad for you! My gosh, how much have you been thru! I just can say- stay whith us on this board. Here you can get much support from us other who´s in the same situation. I can only say
that I´m thinking of you. And another thing, I got ill again, for a month ago, and got depressed. Really down the drain. I cried and cried so I got wounds around the eyes. So I got anti-depressive pills 'Zoloft', from my doctor´s. And I think they help me a little, infact.
I do not cry all the time anymore....! Have you tried something like that? For the depression, I mean?

Hugs from Sweden
/Clara

Re: Help!!

Pam F on 3/15/02 at 07:13 (076471)

Thank you, everyone, for the words of encouragement--it helps. Three weeks ago, I had a total joint replacement done in my left hand. I guess that was the icing on the cake after going thru everything with my foot.

Clara,I am taking 100mg of Zolof everyday, and have been for about three years. I think I would not have survived without them.

Thanks

Re: Help!!

Clara on 3/19/02 at 03:06 (076802)

Hello Pam F! So am I, I´m taking 100 mg Zoloft per day... but I´m thinking of my doctor´s order, he says that maybe I must take more to change this depression... I don´t know how my body and mind will be affected... I´m a little afraid of the side-effects ?

Have you been testing to take more than 100 mg? I have been on this medication for only 4 weeks now, maybe it take a little more time until I feel any large difference... well, I don´t cry all the time, but.. infact, this 'set-back' took me down, really down..

//Clara

Re: Help!!

Pam F on 3/19/02 at 09:36 (076823)

Clara, I had been up to 200 mg a day when I was going through a divorce after 23 years of marriage and my mother dying. This was a couple of years ago. I had no side effects at all. I could see a marked change when the dosage was increased (a good change), and I was on the 200mg for approx. one year. Good Luck!

Re: Help!!

Clara on 3/20/02 at 13:48 (077001)

Hi Pam!
Oh I´m sorry for you. That was a lot you have been thru. And thank you for the information, I think I should try a higher dose, maybe for about 150 mg for a while. I have other personal problems too, my father is very ill, I´m afraid that he will not be alive much longer, and other things in my life is difficult right now. So together, it have been 'too much' now for me..
I have not felt any 'side-effects' yet.
Take care
/Clara

Re: Help!!

Valerie S on 3/13/02 at 09:04 (076332)

Oh Pam...

I'm sorry to hear you are in such pain and distress... I have not been through the ringer that you have, but I also had to give up my job because of PF. I have been off work for a year also.

It really is hard when people around you can't feel what you're going through. I'm sorry that you're having such a hard time finding a solution. Have you gone for a second, third, fourth opinion? I would be scared of any doctor that even mentioned cutting the nerve to the foot! Yikes! I'm no doctor of course, but that sure sounds extreme to me...

One comfort I can offer you is that you will always find support and people here who understand what you are going through. I think most of us can relate to the hopeless despair that you feel right now. I spent many hours crying in hopelessness, believe me...

Especially when you're not working, it's hard to get your mind off your feet and onto something positive. Have you considered possibly starting a new hobby? I'm a creative person, and I have found some contentment and feelings of accomplishment in creating beautiful things over the last year especially... and my family loves getting homemade scarves, rugs, cards, etc.... I have also just found a new interest in hand analysis and am going to start learning to read palms for fun (you know, family and friends, that sort of thing...).

Maybe you could just dive into a good novel, or read about something you've always been interested in... learning something new can open up a whole new world for you. Keep searching for answers to your foot woes, of course... but remember that just because your feet hurt, you don't have to give up on life. You have plenty to offer and plenty to learn about yourself, even if you have to do it sitting down!

We're here for you whenever you want to vent... I wish I could get rid of your pain. I understand the frustration you feel, and if I could, I would erase the words 'my feet' from my vocabulary... hee hee... but just try to remember that there's a whole world out here... come on out and grab a piece!

Your friend, Val.

Re: Help!!

Ardee W. on 3/13/02 at 09:56 (076342)

I am new to this board but I want to encourage you to get on more often and find relief and acceptance here where people naturally understand more. You have been through the ringer! I would personally not let them cut the nerve. It sounds like the last ditch effort to get rid of your pain but that is permanent. My mom was dying in the hospital from cancer and down to 68 pounds. The doctor wanted to cut the nerves in her spinal cord to give her relief. Of course, she would be paralyzed. My dad, bless him, checked her out of that hospital and got a new doctor and she went on to get better and live 15 more years. Enough to see her grandchildren born!

Another thought is that maybe you could suggest to some family and friends to come here and read for awhile. Maybe, they would have more understanding.

Love and peace to you. Hope may be right around the corner!

Re: Help!!

JudyS on 3/13/02 at 10:21 (076345)

Wow, Pam - I sure wish I had some strong words of encouragement for you but I'm not sure I'm qualified. My experience has been somewhat like yours except that I've not had surgery. It must have been quite disappointing for you to not have the results from surgery I imagine you anticipated. You're definately being quite normal if you feel as though you're on the brink of depression. That's pretty common with most of us here, at one time or another. The great thing is that you're 'on the brink'.....but not there yet? I wonder if that means you can take some steps to head it off at the pass? Lots of folks here will give you ideas as to how to do that and, if you don't mind, I'll make a point about something you said in your post - it speaks to inner strength that many sufferers don't think they have. If you've already taken productive (20 pounds!) steps to take control by losing weight, then you have some good inner strength going on, my friend, and it's impressive! Give yourself a pat on the back and remember that success, while it may come in seemingly miniscule steps, will come as long as you continue to exercise that strength. Good for you!

Re: Help!!

BrianG on 3/13/02 at 21:24 (076387)

Hi PamF,

I don't know what kind of disability you are thinking about, but if it is SSD, the time to file is now. You can loose money by waiting to long to file. If you do file, I think it's best to retain a good medical disability lawyer. I still don't know why, but the govt. sure does make it hard for us to collect SSD. Hire the lawyer, and take a lot of stress out of your life.

I'd also look into foot taping, and daiy pain meds. If you don't get this pain under control, you risk even worse depression. Have you talked to your doctor about a pain management specialist? What medications are you on? Good luck

BrianG

PS My Pod mentioned cutting the nerve once, and only once. I have never heard of anyone actually doing it, although I'm sure we've all thought about it.

Re: Help!!

Necee on 3/13/02 at 23:41 (076401)

Hi Pam,
I really feel for you. My goodness you sure have gone through a lot, but you sound like a very strong willed gal, and I know that you will overcome this.
You have been given some very good advice here, and I commend you for reaching out. Stay focused on getting your feet well, don't let negative thoughts even enter your mind or they will consume you.

If you have questions or just want to vent then you came to the right place. We all struggle from time to time, and some more than others but with the concern and compassion found here it always makes our suffering a little easier to deal with.

I have had ongoing foot pain for over a year now, but I'm not giving up, its hard sometimes to continue, especially when people around you don't really understand, foot pain sounds like such a minor thing but we all know that its not.

Hang in there Pam and know that your not alone, we are here for you.
Happy Trails....
Necee

Re: Help!!

Clara on 3/14/02 at 05:27 (076407)

Hi there Pam F! I really feel sad for you! My gosh, how much have you been thru! I just can say- stay whith us on this board. Here you can get much support from us other who´s in the same situation. I can only say
that I´m thinking of you. And another thing, I got ill again, for a month ago, and got depressed. Really down the drain. I cried and cried so I got wounds around the eyes. So I got anti-depressive pills 'Zoloft', from my doctor´s. And I think they help me a little, infact.
I do not cry all the time anymore....! Have you tried something like that? For the depression, I mean?

Hugs from Sweden
/Clara

Re: Help!!

Pam F on 3/15/02 at 07:13 (076471)

Thank you, everyone, for the words of encouragement--it helps. Three weeks ago, I had a total joint replacement done in my left hand. I guess that was the icing on the cake after going thru everything with my foot.

Clara,I am taking 100mg of Zolof everyday, and have been for about three years. I think I would not have survived without them.

Thanks

Re: Help!!

Clara on 3/19/02 at 03:06 (076802)

Hello Pam F! So am I, I´m taking 100 mg Zoloft per day... but I´m thinking of my doctor´s order, he says that maybe I must take more to change this depression... I don´t know how my body and mind will be affected... I´m a little afraid of the side-effects ?

Have you been testing to take more than 100 mg? I have been on this medication for only 4 weeks now, maybe it take a little more time until I feel any large difference... well, I don´t cry all the time, but.. infact, this 'set-back' took me down, really down..

//Clara

Re: Help!!

Pam F on 3/19/02 at 09:36 (076823)

Clara, I had been up to 200 mg a day when I was going through a divorce after 23 years of marriage and my mother dying. This was a couple of years ago. I had no side effects at all. I could see a marked change when the dosage was increased (a good change), and I was on the 200mg for approx. one year. Good Luck!

Re: Help!!

Clara on 3/20/02 at 13:48 (077001)

Hi Pam!
Oh I´m sorry for you. That was a lot you have been thru. And thank you for the information, I think I should try a higher dose, maybe for about 150 mg for a while. I have other personal problems too, my father is very ill, I´m afraid that he will not be alive much longer, and other things in my life is difficult right now. So together, it have been 'too much' now for me..
I have not felt any 'side-effects' yet.
Take care
/Clara