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CONSIDERING SURGERY FOR TTS

Posted by LaVona J. on 3/17/02 at 18:22 (076669)

My pain started about March of 2002, in my ankles and feet. I've been to several Drs. The orthopedic surgeon says its TTS. I had the tests at the neurologists, the tests said everything was ok, since then I have developed numbness {bottom of right foot} Dr. sent me for an MRI,I go in tomorrow for results and to discuss setting up date for surgery. I've tried everything else nothing works. Ice helps some at end of day when its really bad. My husband & I drive semi truck [longhaul]or I should have I used to, over the course of the last year By the end of two weeks I'm done for, it takes me weeks to rest up enough so my feet can handle it some more. I've read some of your results some encouraging some not. can anyone give me an idea of total recouperation time, need it done to both feet. Help, encouragement and advice,are all appreciated, Thank-you

Re: Did you really mean march of this yr ? You are thinking of surgery after only a few weeks? Please Wendyn or Dr. read her post!

Tammie on 3/18/02 at 12:26 (076733)

Hi, I am reading your post over and over and feel compelled to ask a couple of questions.I am not a dr. or the most knowledgable person here on the board as I am trying to get my own foot troubles in order.

I seen that you stated that your pain started in March of this year? This seems to be very very quick to jump into a surgery. This is of course a opioion , But have you had any therapy PT? You say you had tests from a neuro and the tests did not show any problems? Have you had any bloodwork done? Is what you list in this post every thing you have tried? It just seems to me if this started being treated in march of this year this is not at all that long, and that surgery at this point might be jumping the gun so to speak. I mean usually or it seems to appear that surgery is like a last resort, after a long period of time trying many things such as PT, orthodics, change of shoes,testing to be sure you have no medical problems (blood) work. We are here for you in all respects I am glad you found this site it really is a blessing! Please keep posting ! Welcome!

I think if u look above there are a couple of links to read more about tts a site by wendyn here and I believe there is another by a steve I think.There is alot of good info about this kind of foot problem. I hope that you get more answers from some others that are much more expieranced at this. If you want to do a search here search Elliott or Wendyn they are two with a lot of good information also Laurie . I do hope that all works out for you! As for the recovery time it can be verry long can be 6 mnths to over a year to have results. And as with any surgery it might not have the results as you would like. Please before you decide surgery make sure you have researched it well and have a nother Dr. opioion. This can make the difference in a good result in the end.

Re: Lavona and Tammie

wendyn on 3/18/02 at 13:55 (076737)

First Tammie, thanks for helping point out this post.

I often scan the posts using Reverse Order - and I miss a lot that way...but time tends to be a bit of a problem lately.

Lavona, I'm guessing that your '2002' is a typo since you talk about how this has progressed over the last year.

I think it's great that you're going for an MRI - please share your results when you get them.

When you say you've had a bunch of tests, what tests have you had done? I know it's a pain to sit and think about them all and list them out...but it's a good exercise for you to do once before surgery anyway.

You say you've tried everything - what have you tried? I'm not being intentionally difficult...but it's important to know - especially from the viewpoint of what your doctor's think the underlying cause is.

You say you've developed numbness now, but if you didn't have it to begin with - can you tell us how this started (your feet problems) and then progressed?

What concerns me most is that you say your pain is much worse AFTER you spend 2 weeks in a truck. For most people with TTS - it's things like walking and standing that tend to make their pain much worse...although sometimes inactivity can be aggravating a little too.

Do you have any other health problems?

Re: Lavona and Tammie

LaVona J. on 3/18/02 at 21:13 (076786)

Wendyn and Tammie,
My problems first started, 3-2001, soles of feet very sore, ankles hurt, tried new shoes, didn't work, went to family Dr.,he said I needed anti-pronation shoes, and soft gel insoles with foot exersises, tried all that it just got worse, my feet started burning, ankles swolen & very painful. I got to the point were shopping was unbearable if it took more than 15 mins. Presently I can't walk or stand even to do little things like cleaning up my house, which isn't much it's just the 2 of us, without paying for it the rest of the day, extreme pain. Icing or should I say freezing my feet helps alot, when it gets really bad I break down and take a pain pill. I don't like taking them and I won't take them if I have to drive in the next 24 hrs. Anyway after the family Dr. my husband made me go to a different Dr. I was thinking arthritis or something, I went to an orthopedic Surgeon. He took xrays they looked fine, he also actually watched me walk and said I wasn't pronating, he sent me to another specialist. Again they took xrays, he sent me to the neuro. The tests turned out ok if not extra sensitive. Pain is something that has never been a bother to me, I mean I've always in the past had a high tolerance to any kind of pain. He wanted me to try neurontin, I did it didn't help, I've had bad experiences with cortozone shots before, so not an option. the other suggestion was surgury, I told him I'd think about it that was last June 2001. in the mean time I tried time off from work , rested tried vitamins, diet changes, every cushioned insole on the market [Almost]. I can't take it anymore, My whole life has had to change, I can't walk or stand in the kitchen to prepare meals any more. Some days its hard to stand in the shower! I used to love to walk, hike,ride horses, I'm an outdoor person. anyway this is to long. I hope this answers some questions. Oh the MRI I took recently everything looked fairly normal.
Thank-You for your help its much appreciated.
LaVona

Re: Lavona

wendyn on 3/19/02 at 07:38 (076814)

Lavona, it sounds like you have been through A LOT.

I can sympathize with your pain and having your life taken away.

With everything that your doctors have tested and done, have they ever told you why they think you are having problems in the first place?

What will they go into your foot and do?

Re: Lavona

Tammie on 3/19/02 at 20:00 (076899)

I just dont know what to say to you but to say I understand and I have been there! Just read some posts and research all that you can so that when you make any decision that you will know the true facts and if you choose surgery you will go in with all the knowledge and with a good Dr.

What are they saying they can do with surgery to help you? Is it the tts release or the pf release? I am curious as you didnt really say or maybe I missed it lol.I sometimes get confused to which posts I am reading. I truly understand your frustration and you pain really I do !If you read some of the posts on the foot surgery board you will know there are many of us that is there or been there. Just be very cautious and know there are two sides to every surgery , the positive side and the oops not so good side. Have you been given pain relief and have you been getting your sleep? As I have found that is something that seems to be neglected in treating this. Pain causes emotional fatigue also, and sometimes this needs to be addresed, Just some thoughts as I have been this road and I had the surgery actually 2 and noway am I better off from it but then for every bad there are good outcomes also! Just get several dr.s advice and listen to it really hear it ok? Please post , it helps there are alot of wonderful people here and the dr.s are great also but you might have to go to the ask dr. board and ask your questions , as they might not see it here. Hugs to you and I hope all turns out the very best!

Re: Lavona

LaVona J. on 3/24/02 at 15:08 (077408)

Sorry I haven't replied earlier I was out putting another 4100 miles on my feet in the last 5 days.The second Dr. I went to said I had just put to many miles on my feet. The MRI did show fluid build up around nerve. Surgery is for release.

Re: Lavona

LaVona J. on 3/24/02 at 15:23 (077409)

Its TTS surgery, and I have pain pills for when it gets really bad, but I can't and won't take them when I'm out on the road driving, which is where I've been for the last 5 days. I freeze my feet often. unless I can almost totally freeze them I can't sleep, even the sheets hurt to touch my feet,when its bad. And yes it is emotionally draining, and depressing. I've been on anti-depressants for a while now. They help but nothing really beats a good nights sleep and eating right.
Thank you for the Hugs they are needed.
LaVona

Re: Did you really mean march of this yr ? You are thinking of surgery after only a few weeks? Please Wendyn or Dr. read her post!

Tammie on 3/18/02 at 12:26 (076733)

Hi, I am reading your post over and over and feel compelled to ask a couple of questions.I am not a dr. or the most knowledgable person here on the board as I am trying to get my own foot troubles in order.

I seen that you stated that your pain started in March of this year? This seems to be very very quick to jump into a surgery. This is of course a opioion , But have you had any therapy PT? You say you had tests from a neuro and the tests did not show any problems? Have you had any bloodwork done? Is what you list in this post every thing you have tried? It just seems to me if this started being treated in march of this year this is not at all that long, and that surgery at this point might be jumping the gun so to speak. I mean usually or it seems to appear that surgery is like a last resort, after a long period of time trying many things such as PT, orthodics, change of shoes,testing to be sure you have no medical problems (blood) work. We are here for you in all respects I am glad you found this site it really is a blessing! Please keep posting ! Welcome!

I think if u look above there are a couple of links to read more about tts a site by wendyn here and I believe there is another by a steve I think.There is alot of good info about this kind of foot problem. I hope that you get more answers from some others that are much more expieranced at this. If you want to do a search here search Elliott or Wendyn they are two with a lot of good information also Laurie . I do hope that all works out for you! As for the recovery time it can be verry long can be 6 mnths to over a year to have results. And as with any surgery it might not have the results as you would like. Please before you decide surgery make sure you have researched it well and have a nother Dr. opioion. This can make the difference in a good result in the end.

Re: Lavona and Tammie

wendyn on 3/18/02 at 13:55 (076737)

First Tammie, thanks for helping point out this post.

I often scan the posts using Reverse Order - and I miss a lot that way...but time tends to be a bit of a problem lately.

Lavona, I'm guessing that your '2002' is a typo since you talk about how this has progressed over the last year.

I think it's great that you're going for an MRI - please share your results when you get them.

When you say you've had a bunch of tests, what tests have you had done? I know it's a pain to sit and think about them all and list them out...but it's a good exercise for you to do once before surgery anyway.

You say you've tried everything - what have you tried? I'm not being intentionally difficult...but it's important to know - especially from the viewpoint of what your doctor's think the underlying cause is.

You say you've developed numbness now, but if you didn't have it to begin with - can you tell us how this started (your feet problems) and then progressed?

What concerns me most is that you say your pain is much worse AFTER you spend 2 weeks in a truck. For most people with TTS - it's things like walking and standing that tend to make their pain much worse...although sometimes inactivity can be aggravating a little too.

Do you have any other health problems?

Re: Lavona and Tammie

LaVona J. on 3/18/02 at 21:13 (076786)

Wendyn and Tammie,
My problems first started, 3-2001, soles of feet very sore, ankles hurt, tried new shoes, didn't work, went to family Dr.,he said I needed anti-pronation shoes, and soft gel insoles with foot exersises, tried all that it just got worse, my feet started burning, ankles swolen & very painful. I got to the point were shopping was unbearable if it took more than 15 mins. Presently I can't walk or stand even to do little things like cleaning up my house, which isn't much it's just the 2 of us, without paying for it the rest of the day, extreme pain. Icing or should I say freezing my feet helps alot, when it gets really bad I break down and take a pain pill. I don't like taking them and I won't take them if I have to drive in the next 24 hrs. Anyway after the family Dr. my husband made me go to a different Dr. I was thinking arthritis or something, I went to an orthopedic Surgeon. He took xrays they looked fine, he also actually watched me walk and said I wasn't pronating, he sent me to another specialist. Again they took xrays, he sent me to the neuro. The tests turned out ok if not extra sensitive. Pain is something that has never been a bother to me, I mean I've always in the past had a high tolerance to any kind of pain. He wanted me to try neurontin, I did it didn't help, I've had bad experiences with cortozone shots before, so not an option. the other suggestion was surgury, I told him I'd think about it that was last June 2001. in the mean time I tried time off from work , rested tried vitamins, diet changes, every cushioned insole on the market [Almost]. I can't take it anymore, My whole life has had to change, I can't walk or stand in the kitchen to prepare meals any more. Some days its hard to stand in the shower! I used to love to walk, hike,ride horses, I'm an outdoor person. anyway this is to long. I hope this answers some questions. Oh the MRI I took recently everything looked fairly normal.
Thank-You for your help its much appreciated.
LaVona

Re: Lavona

wendyn on 3/19/02 at 07:38 (076814)

Lavona, it sounds like you have been through A LOT.

I can sympathize with your pain and having your life taken away.

With everything that your doctors have tested and done, have they ever told you why they think you are having problems in the first place?

What will they go into your foot and do?

Re: Lavona

Tammie on 3/19/02 at 20:00 (076899)

I just dont know what to say to you but to say I understand and I have been there! Just read some posts and research all that you can so that when you make any decision that you will know the true facts and if you choose surgery you will go in with all the knowledge and with a good Dr.

What are they saying they can do with surgery to help you? Is it the tts release or the pf release? I am curious as you didnt really say or maybe I missed it lol.I sometimes get confused to which posts I am reading. I truly understand your frustration and you pain really I do !If you read some of the posts on the foot surgery board you will know there are many of us that is there or been there. Just be very cautious and know there are two sides to every surgery , the positive side and the oops not so good side. Have you been given pain relief and have you been getting your sleep? As I have found that is something that seems to be neglected in treating this. Pain causes emotional fatigue also, and sometimes this needs to be addresed, Just some thoughts as I have been this road and I had the surgery actually 2 and noway am I better off from it but then for every bad there are good outcomes also! Just get several dr.s advice and listen to it really hear it ok? Please post , it helps there are alot of wonderful people here and the dr.s are great also but you might have to go to the ask dr. board and ask your questions , as they might not see it here. Hugs to you and I hope all turns out the very best!

Re: Lavona

LaVona J. on 3/24/02 at 15:08 (077408)

Sorry I haven't replied earlier I was out putting another 4100 miles on my feet in the last 5 days.The second Dr. I went to said I had just put to many miles on my feet. The MRI did show fluid build up around nerve. Surgery is for release.

Re: Lavona

LaVona J. on 3/24/02 at 15:23 (077409)

Its TTS surgery, and I have pain pills for when it gets really bad, but I can't and won't take them when I'm out on the road driving, which is where I've been for the last 5 days. I freeze my feet often. unless I can almost totally freeze them I can't sleep, even the sheets hurt to touch my feet,when its bad. And yes it is emotionally draining, and depressing. I've been on anti-depressants for a while now. They help but nothing really beats a good nights sleep and eating right.
Thank you for the Hugs they are needed.
LaVona