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tts

Posted by sue m on 6/14/02 at 15:57 (087612)

i have suffered from tasel tunnel syndrome for 6 years. since the birth of my twin boys. is there anyone that can help me try and control the burning in my feet and legs. help! any ideas?

Re: tts

Ed Davis, DPM on 6/14/02 at 18:12 (087629)

How was the diagnosis of TTS made and confirmed? How soon after the birth of your children did symptoms occur? Did you have symptoms while pregant?
Ed

Re: Possible Tarsal Tunnel Syndrome

Becky E on 7/06/02 at 09:41 (089205)

Does anybody have issues with the bottom of the feet getting too cold or hot and leading to pain and/or tingling? By way of background, the first symptom I had (about 2 years ago) was heel pain, almost as if my heel was bruised. At the time, I was in a job where I was on my feet all day, and the floor was very hard, i.e., no carpeting. I was also wearing some very cheap shoes. Since then, I bought better shoes and started using heel lifts.

The sensation progressed into a tingling feeling -- what I would describe as a 'pins and needles' feeling. The 'pins and needles' feeling started around the middle of 2001. Now, my feet become extremely cold throughout the day. The cool feeling is on the bottom of my feet only. For the most part, the cold feeling is in both feet, although the left foot is worse than the right. Interestingly, the heel pain, the first symptom, was also worse in the left than in the right. I usually feel the cold feet when I sit still. When I stand for a long time, then I get pain across the bottom of my foot, but that pain is not the cold type feeling I just described. I can warm them up with exercise, but if they get too hot, then I get the 'pins and needles' feeling again.

In addition to the feet, I also have wrist pain. The wrist pain started in Nov. 2000, and began in the right wrist; I am left-handed. The wrist pain is now in both wrists and I would describe it as a mixture of times of sharp pain and a dull ache which radiates into my hands and up to my forearm. My wrists are sensitive to the touch and also get that cold feeling that I have in my feet with one major difference: the cold feeling in my feet is internal, that is, one cannot necessarily feel that cold by touching my foot -- the cold feeling in my wrists may always be felt by touching my wrists, what I call external cold. The pain also sometimes radiates into both shoulders and the anterior portion of my chest and neck. The pain in the shoulders is rather tingly.

I don't know whether all of these ailments are related, the feet, wrists, and shoulders, but I thought I would throw everything out there on the off chance that they may be. Although the pain in each of the affected areas began on one side, it quickly went into the other. This symmetry is very confusing to me, and indicates, at least in my mind, that these ailments are not isolated, i.e. one thing affecting the right foot, and another affecting the left.

I had surgery on both knees for plica syndrome in late 2001 and early 2002. I still have residual pain in the knees on occasion. I have been to a rheumatologist, neurologist, cardiovascular specialist, podiatrist, orthopaed, and a chiropractor. I am seeing my astrologist today. :) I will be seeing an endocrinologist this week.

I tried neurontin for a week, but discontinued it because I was not feeling the benefits of the medication, and because it also made me very fatigued. I also took desipramine, but also discontinued it after a week because of constipation.

One point I would like to emphasize is the evolution of the pain. It started as a bruise-type of feeling, and is now almost exclusively temperature, i.e., the cold feeling.

Thank you for any information you can provide.

Becky

Re: Possible Tarsal Tunnel Syndrome

wendyn on 7/06/02 at 13:22 (089212)

Becky, it is very important that this new sensation is explained to your doctor. Have you discussed the temperature changes with someone like the neurologist?

From all the doctors you've seen - what tests have they done?

Re: tts

Lara T on 7/09/02 at 02:08 (089339)

Have you tried compression socks? My primary symptom was burning feet - and dorsal nerve pain when I let it develop too far which hasn't happened since I've had compression socks. It doesn't seem to work for a lot of people, and it seems that perhaps many doctors aren't aware they can be helpful, but I like to recommend people consider them because 1) they were magic for me and gave me a life back 2) they are relatively inexpensive - expensive socks, inexprensive treatment, 3) they are non-invasive, 4) if they don't work - and some people have expressed symptoms becoming worse, this is easily reversed by taking off the socks - I assume. Of course check with a doctor first to make sure you aren't going to damage something.

There are some OTC (over-the-counter) socks, and then mild, moderate (and perhaps another higher level) available by prescription. I got prescription ones - don't know if the OTC socks would have helped me determine if they were helpful or not.

Re: tts

Ed Davis, DPM on 6/14/02 at 18:12 (087629)

How was the diagnosis of TTS made and confirmed? How soon after the birth of your children did symptoms occur? Did you have symptoms while pregant?
Ed

Re: Possible Tarsal Tunnel Syndrome

Becky E on 7/06/02 at 09:41 (089205)

Does anybody have issues with the bottom of the feet getting too cold or hot and leading to pain and/or tingling? By way of background, the first symptom I had (about 2 years ago) was heel pain, almost as if my heel was bruised. At the time, I was in a job where I was on my feet all day, and the floor was very hard, i.e., no carpeting. I was also wearing some very cheap shoes. Since then, I bought better shoes and started using heel lifts.

The sensation progressed into a tingling feeling -- what I would describe as a 'pins and needles' feeling. The 'pins and needles' feeling started around the middle of 2001. Now, my feet become extremely cold throughout the day. The cool feeling is on the bottom of my feet only. For the most part, the cold feeling is in both feet, although the left foot is worse than the right. Interestingly, the heel pain, the first symptom, was also worse in the left than in the right. I usually feel the cold feet when I sit still. When I stand for a long time, then I get pain across the bottom of my foot, but that pain is not the cold type feeling I just described. I can warm them up with exercise, but if they get too hot, then I get the 'pins and needles' feeling again.

In addition to the feet, I also have wrist pain. The wrist pain started in Nov. 2000, and began in the right wrist; I am left-handed. The wrist pain is now in both wrists and I would describe it as a mixture of times of sharp pain and a dull ache which radiates into my hands and up to my forearm. My wrists are sensitive to the touch and also get that cold feeling that I have in my feet with one major difference: the cold feeling in my feet is internal, that is, one cannot necessarily feel that cold by touching my foot -- the cold feeling in my wrists may always be felt by touching my wrists, what I call external cold. The pain also sometimes radiates into both shoulders and the anterior portion of my chest and neck. The pain in the shoulders is rather tingly.

I don't know whether all of these ailments are related, the feet, wrists, and shoulders, but I thought I would throw everything out there on the off chance that they may be. Although the pain in each of the affected areas began on one side, it quickly went into the other. This symmetry is very confusing to me, and indicates, at least in my mind, that these ailments are not isolated, i.e. one thing affecting the right foot, and another affecting the left.

I had surgery on both knees for plica syndrome in late 2001 and early 2002. I still have residual pain in the knees on occasion. I have been to a rheumatologist, neurologist, cardiovascular specialist, podiatrist, orthopaed, and a chiropractor. I am seeing my astrologist today. :) I will be seeing an endocrinologist this week.

I tried neurontin for a week, but discontinued it because I was not feeling the benefits of the medication, and because it also made me very fatigued. I also took desipramine, but also discontinued it after a week because of constipation.

One point I would like to emphasize is the evolution of the pain. It started as a bruise-type of feeling, and is now almost exclusively temperature, i.e., the cold feeling.

Thank you for any information you can provide.

Becky

Re: Possible Tarsal Tunnel Syndrome

wendyn on 7/06/02 at 13:22 (089212)

Becky, it is very important that this new sensation is explained to your doctor. Have you discussed the temperature changes with someone like the neurologist?

From all the doctors you've seen - what tests have they done?

Re: tts

Lara T on 7/09/02 at 02:08 (089339)

Have you tried compression socks? My primary symptom was burning feet - and dorsal nerve pain when I let it develop too far which hasn't happened since I've had compression socks. It doesn't seem to work for a lot of people, and it seems that perhaps many doctors aren't aware they can be helpful, but I like to recommend people consider them because 1) they were magic for me and gave me a life back 2) they are relatively inexpensive - expensive socks, inexprensive treatment, 3) they are non-invasive, 4) if they don't work - and some people have expressed symptoms becoming worse, this is easily reversed by taking off the socks - I assume. Of course check with a doctor first to make sure you aren't going to damage something.

There are some OTC (over-the-counter) socks, and then mild, moderate (and perhaps another higher level) available by prescription. I got prescription ones - don't know if the OTC socks would have helped me determine if they were helpful or not.