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Welcome Back Elliott

Posted by Tammie on 7/14/02 at 18:59 (089641)

I knew it was you as you write with the same knowledge!Also you still seem angry about not being able to run, For this i am really sorry! I know what you meant about not wanting to (give in) to the pain management rt. But did you really try it yet?

I have I like my doc he seems to know his buisness and got me that MRI and the nerve test also. Yes I am on alot of meds and will have my first block on the 29 and I am like a big baby. But guess what ? I came out of the so called closet thing and said listen this is my darn foot and I am going to be in charge of it and I will say what I have to say. I feel great about this in my life.

I just wonder if it might work for you also? I mean elliot I know you are in pain I can feel it in your post, I dont want to be the nosey or pushy person, But would like to offer that friendship hand and offer my support if it is ever needed. By the way have you heard about that Ron? I think of him often and wonder what happened as he seen that DR.Yu remember? Ok in any way I wanted to say hello and tell you thanks for the gentle push you provided for me.

Re: thnx

elliott on 7/15/02 at 06:46 (089650)

No, angry is the wrong word. Depressed, certainly. What were the results of your MRI?

Re: thnx

KathyB on 7/15/02 at 11:47 (089679)

Elliott, I know my pain and can not really know yours. I have been in pain for the last ten years. Three years ago I finally went to a pod but the damage to my ankles was tremendous. They fitted me with orthodics, then braces. I ruptured my posterier tibial tendon in my left foot in Oct 99, crushed my sub-talar joint in Jan 01, by Sept 01 my right foot was so bad they did the same two surgeries on my right foot. The problem is the pain never went away. I am not on Neurotin, Topamax, Trazdone, Celexa and carisoprodol. I am now 90/90 pain free. I am 90% pain free 90% of the time. I was diagnosed as clinically depressed two years ago, that is what the trazodone and the celexa are for. The carisoprodol is new and has thrown me for a loop but it is only a short term med. I have been on an even keel both physically and mentally for about 2 months as my body has adjusted to the meds I am not taking. Do not be afraid to go to pain management. Right now you are expending energy to fight the pain, if you were out of that pain you to expend that energy on stretching, strengthening and living a better life. It took me a long time to understand this. I hope my story will help you understand it to.
Just a note: I do Yoga, I stretch every day, I work on my legs, my tummy (damm Neurotin) and my whole body to get strong and not let my illness destroy my body because I am not willing to fight for it, and yes it hurt for a while, but it won't forever.

Re: thnx

Tammie on 7/15/02 at 20:24 (089725)

Elliott, I understand the depression God I do! You really know how bad I was a while back, But I have put it back in the far corner where it belongs!! I took the push I have been so busy trying to get things in order and keep my folder of any and all info I can get my hands on!

I bit the bullet and seen my pain management Dr. he is really great I must say he has found out alot about me and my back my hip my knee and then my foot on left side which is the trouble! He insisted on nerve testing and MRI right away before anything but pain control was done. I grant u I am on a lot of meds, along with the meds there comes side effects that are not the best except now I dont hide I deal with them.

I to am feeling some lumps here and there I was put in hospital for my pain being out of control and My potassium and other things were going wako. They gave me 3 shots of morphine before I had enough relief that they could take off restraints so I wouldnt hurt myself or yank my cath out or my lines for IVs I did once after several atemps to get it in vein was hard dehydration they said ?/ Who knows but I did realize that day I was realeased I have traved some awful darn hard roads and I have been moving pretty good thru this thick mud crap!

Ok MRI results and nerve tests(needle nerve test and oh it did to hurt)I made it even tho I did cry and almost got sick he had to stop several times and got a bit anxious with me .I get my copy of it sent to me and do not have yet expect it anytime now. Excuse my laymans terms till I can copy the original terms when I get them. He explained to me this( something called( spondylolist spelling not sure)foward moving of a vertebra onto another vertebrae compressing nerves and the pain in my hips and my left leg I dont know the numbers or names of which areas the nerves are compressed going down my right side. Continuing in to my foot areas giving me alot of nerve pain and leaving me with some dead nerve endings.

The left side showed many many nerve fiber damamge He was certain and totaly agrees that there is RSD in this left foot. In fact he is very upset that I cant get in quick enough for a nerve block I am dated to the 29 I think anyway the last mon of month and first two mon of aug. He has great hope of thease helping tremdously. Alls I have is Hope! Now please understand I dont have the professionl words yet I am waiting for it the co, that does the MRI are supposed to send the same copy of what they sent him, Red tape I love it! Highly fashionable when you the pat. wants copys of everything hahahah RED is good!

Comfirmed by the tests and the examinations and testing he is certain that Rsd is in my left footAnd then the spondylolist? spel is confermed but unsure if either or both are linked to each other,more testing to follow and more dx and treatments are nerve blocks for both troubles.

He after talking to me and my husband turned jokingly and said by the way did you say you have a attorney, My hubby said why do we need one? He would not say anymore. Also a Dr at the cleveland Clinic asked us have we consulted someone about my case and how long has this been going on and how come there were two surgeries done in the same area was he trying to do the facial again ? He just could not agree but he said I should ask him to supply me with a surgery report the one he gave me was pretty skimpy! Very unlikly full report he said. I said ok I think I know what you are saying but do u think I should get the lawyer? He says well now I dont know But I do know you have a right to know what was done and why and the posibilties of why this all might have occured.

Knowing me I said what would that help?Whats done is done money is not anything to make it better and what if he did have a accident he is human, This doc laughed and said good lord lady how come this world isnt more like you, our mal practice ins wouldnt be so much. So from all that I am learning and thinking there was a possibilty that he might have done allot wrong.I dont want another person to hurt with the pain I have suffered or if this is do to what he did MY life is wrecked, noone else needs to feel this. I wish I could no the truth and be allowed to not sue just fix it so he HAS to take more training BEFORE he does any more surgery. Thay need to add this as a option / darm maybe is availiable never thought about legal man as they to camn be shisters. Well this is it .

Heh Elliott are u sleeping yet? HEHHHHHHH are you with me LOL I know long book long wind, what can I say I am a woman who like you has a lot of pain and alot of anger and yes depression also! Nice that we can come here nice and safe and with people who live like us and really know what it is like! Welcome back and you know I know you hurt I really do and it is hard for you to live day to day like this and that yes it really does seem forever to be pain free, BUT medications are not answers not at all BUT they are great as stand bys till they can get something going on to help solve the troubles we suffer! Trust me it was best I did I mean it to from my heart! Night Elliott and I wish for good dreams and tomorrows sunshine ! NOw quit running so much in your dreams I cant hardly see you anymore you are getting to thin stretched out!HAHA

Re: thnx

Tammie on 7/15/02 at 20:45 (089729)

Kathy , I read your post and I was laughing not at u but with you as I think just how much I have been doing.Life is tough and pain is harder and tougher then any job! The Yoga thanks to a friend here Julie has so much helped me with learning to relax oh my how hard this is for me . If our friend Julie is around she would be so happy that when I was in hospital and they were all around everywhere and I hurt everywear and I was so sacred cause I COULD hear and I might of looked out I was not and I scared tp death and I rememeberd hew say now we can do this focus think about how far we came think about good things now think of simple things that I love the love that I have and give. I really have used it alot. Maybe not the whole type word for word as I am implemated more my own but great!!!(THAKS IF seen buy u julie!)

Neurontin is one I am trying hard to lower he changed it to 600 x3 day I was feeling to much side sicko tired just funny. I just lowered it to 300x3 per day and I feel much better. The paxil for me was a life sentance it left me here and alive! The elevil yea nice for sleeping, of course the oxy and percocetnot to mention the otherthings u need for THE DARN side effects LOL LOL OK Kathy YoU keep in her ok I am counting on you I watch you and how u are going! Tk care.

Re: The time to call, is NOW !!!!

BrianG on 7/15/02 at 22:04 (089735)

Hi Tammie,

If I'm reading this correctly, your Podiatrist performed 2 failed operations on you, without any tests. And it's quite possible that neither one was necessary????? How can you NOT go talk to a lawyer ??????? You only have a short amount of time, before the statute of limitations runs out. Wouldn't it be better to know now, rather than after it was too late to do anything, court wise!!! Your pain management doctor is right, make that call! Good luck

BrianG

Re: The time to call, is NOW !!!!

wendyn on 7/15/02 at 22:30 (089739)

If Tammie has ankolosing spondilytis (sp?) - then I would suspect it's entirely possible that it was the source of her pain to begin with. I was tested for it, and it's one of the things most doctors will rule out BEFORE surgery. It can cause unexplained back, leg and foot pain.

I did not have it - but I have two friends who do.

Tammie - is this the name of what he wrote on the report?

Re: Tammie

Julie on 7/16/02 at 02:03 (089748)

Tammie, although I don't post much any more I do still look at the board, and I saw your message to me. I am certainly happy that I've been able to help you with relaxation, and I appreciate your thanks.

My real reason for posting this is to tell you that I agree with Brian and your pain management doctor that you should contact an attorney. If you do have ankylosing spondylitis, it's very possible, as Wendy suggests, that it has been the root cause of your pain all along, and that your surgeries were unnecessary. It's certainly clear that they were botched and have made matters very much worse. And they didn't cause the spondylitis.

Compensation WOULD make a difference to you: it would make life easier for you and your family.

I know your way is usually to argue with yourself for ages before making a decision, but in this case it's important to lose no time. I recall Brian saying a while ago that the statute of limitations is as little as two years in some states.

All good wishes

Julie

Re: Wendyn

Tammie on 7/16/02 at 13:34 (089782)

Wendyn, Thank you , I am not really sure as I do not have copy yet I might try to call and find this out for sure, but in any case I wanted to thank u I to am wondering a lot of things , getting the info is not at all easy sometimes it feels like trying to get a insurance co to pay things THEY feel are unimportant LOLL Well like said will try to get neame for sure!

Re: Julie and Brian & all

Tammie on 7/16/02 at 13:42 (089783)

Thank u for all but surprise< My husband HAS been talking with a lawyer! They are looking into the case and stuff now ! He did this with my signing a paper and hubby doing most of comuting as I have to much already.

Ok now thank you for reading Julie YOu are so much in my life you would not know it!!! I know it sounds crazy to most but you Know I am a anture person I LOVE the woods and the beatiful things outside! Now I am not saying I like HOT weather like some but I do enjoy the days that are managible sort of like winter hahah! Getting back // I think alot of your tape and how I have found it useful to me and it started me thinking and wondering if that is How I am // but whatever I am truly grateful and I want to thank you and anyone else who has been helping me as I have many many friends here who I love and try to remeber in prayer and in thougth as much as can! {Part of this meds are to blame for some forgetfullness and I nod off in mid sentence and many many things So thanks for all Love Tammy

Re: Tammie could it be Spondylolisthesis?

Donna SL on 7/16/02 at 14:16 (089789)

Hi Tammie,

It sounds like from the report you were describing a condition called spondylolisthesis which is forward slipping of the vertebrae. I'm somewhat familiar with this because my brother has had this all his life. There are aome forms that develop later in life, and there is a congenital kind that my brother has. He's never had foot problems from it, but has had pain in his legs.

There is tons of information on the web but the site below gives a general idea of what it is.
http://www.spinesolver.com/spondylolisthesis.htm

You need to see an orthopedic doctor to confirm this, and evaluate what stage it is in. Some people live their whole lives with no need for surgery, or any type of serious treatment.

If you find out this is what it is there are many conservative methods that may help you, like prolo, and scerolotherapy (sp?), etc. These types of injections that my brother had many years ago are what kept him from spinal fusion surgery so far. It wasn't called that when he had it done over 15 years ago. Dr. Meyers who did it at the time was a pioneer in the field. He just recently passed away. Back then they used papaya enzymes, and today they use things like glucosamine chondroitin injections to strenghten the surrounding areas. When Dr. Meyers retired my brother stopped the treatments, because no one else was doing it then. Just recently I found doctors are doing the procedure again, and he's looking into it once more since the slippage has worsened a bit.

I know you have other priorities right now, but if in addition you have spondylolisthesis, I just wanted you to be aware there are conservative treatmenta available to prevent it from worsening. Also very early stages can benefit from simple therapies like chiropractic treatment, or even
pilates.

Donna

Re: medical reports

BrianG on 7/16/02 at 16:09 (089797)

Hi Tammie,

Sometimes lawyers can get copies of these reports much easier than we can. Something to think about.

BrianG

Re: medical reports

Tammie on 7/16/02 at 17:01 (089798)

Brian I already signed a paper releasing anything he might need, records , tests, etc. We were suposed to hear from him this week if there is enough for a case or not. I hesitate to really think there is but who am I ? LOL I am not to interested but my hubby is very angry at this dr. and he also blames himself for making me the first appt. there. Ok well thanks alot!!! Ps on meds tell me this if u can?

I am on oxycontin 40 mg.X2 a day Percecet 3 per day for breakthru pain
Neurontin 600mgx 3 per day paxil 40 mg day synthroid .100 elevil .50 mg I think this is the list

I after taking the nerountin 3 times a day dropped it to 2 I was feeling sick and sleepy effects which I already have with other meds. I felt good like I should/ no pain change from doing it or not.

I also asked family doc today about my paxil/ I felt I might need to be looked at for a pos change as I was finding alot of weepys and out of control crazy mom on loose. This was his soulution lets stop al together/ I said this oh my just like that no weening off or nothing he said yea I said excuse me not to be out of line but isnt there a time frame it stays in body and takes a while to leave ? I also chimed in will I have any withdrawl with it, he said hmm good question in fact I thibk u may be right so just cut them in half and I will see u mon to see how we are doing.

Now I just seem to have a red flag showing about him really knowing about me and my meds and troubles what do u think? He is thinking of something called serotonin/ saying alot of what i have been expierincing has the sound of maybe this. well anyways thank u as u really know your meds and I trust your instinct.

Re: Some Paxil info

BrianG on 7/17/02 at 21:43 (089919)

Hi Tammie,

I went to the Net, and it didn't take me long to find what you are looking for. You were right to question your doctor about quiting Paxil cold turkey. According to this article, which I'll cut and paste, cold turky can be very dangerous. I know you family doc means well, but he just doesn't have the education that a pain management specialist will have, when it comes to meds. If possible, I'd ask your pain management doctor to take over all your meds. See what he says, ask if he is comfertable doing it. This is what I found. Good luck

BrianG

 
According to World Health Organization ('WHO'), Paxil has the highest incidence rate of withdrawal adverse experiences of any antidepressant drug in the world.' Studies show that 85% of people taking SSRI antidepressants will have some type of symptom when they stop taking the drug. While the medical community has acknowledged the potential for all SSRIs to cause dependency/withdrawal syndrome, Paxil is, by far, the worst.
It is alleged that Paxil can cause some people who take it to experience serious and unexpected withdrawal reactions, including suicide. Complaints now exist that patients and physicians were unaware of the withdrawal reactions due to the manufacturers deliberate failure to warn people about these occurrences. The physicians and the patients used Paxil without knowing the addictive properties and lawsuits have resulted because people were not made aware of Paxil's addictive, dependency, and withdrawal reactions to reduced or terminated dosages.
It is alleged that Paxil creates both physical and psychological dependency because Glaxo SmithKline has concealed information about the severe withdrawal reactions of its drug. Many patients and their physicians are confused into thinking that the withdrawal reactions are caused by something else, such as a relapse, leading to further incorrect and unnecessary medical treatment, including increased dosages of Paxil. It is alleged that Doctors were not properly notified of the withdrawal symptoms and either did not taper the patients off of Paxil or Re-prescribed the drug after observing withdrawal symptoms.
Paxil Withdrawals
Paxil withdrawal experiences vary from person to person . Duration of Paxil withdrawal also varies from person to person.
Withdrawal Symptoms May Include:
'Electrical 'zaps' to the brain, dizziness, extreme nausea, crying spells, light headedness, vertigo, coordination problems, gait disturbances, sweating, vomiting, high fever, abdominal discomfort, flu symptoms, agitation, tremulousness, irritability, aggression, sleep disturbance, nightmares, tremor, confusion, memory and concentration difficulties, lethargy, malaise, weakness, and general fatigue.'
intense insomnia
extremely vivid dreams
extreme confusion during waking hours
fear of losing your sanity
depersonalization- feeling of existing outside of reality
memory and concentration problems, panic attacks
severe mood swings, like extreme irritability and anger
suicidal thoughts
dizziness/vertigo
electric feeling shocks throughout your body
unsteady gait
slurred speech
headaches
profuse sweating
muscle cramping
blurred vision
outbursts of tears for no apparent reason
hypersensitivity to motion, sounds, smells
decreased appetite
nausea
abdominal cramping
loss of appetite
chills/hot flashes
Other Possible Paxil Withdrawal Symptoms:
fainting, scratching sounds within one's head, tingling sensations in lips and areas around them, heart palpitations and chest pain, swollen and sore eyes, fatigue, bursting headaches, lump in throat
rash, dry, flaky, and/or irritated skin, grinding teeth, difficulty with swallowing, itchiness, numbness, speech problems,trembling.

 
 
 
 
 

Re: medical reports

Jim F on 7/19/02 at 22:07 (090183)

Tammie,it struck me that you take .10mg of synnthriod as i've taken .15mg for 20 yrs and for the last ten years have had pf and for the the past 3 yrs have had tts .Finally i found a dr who told me i was beiing under medicated. I just hope its not to late . I've spent the last 20 yrs 50lbs. overweight,and the last few yrs my muscles are always tight.im curious as to what your tsh(thyroid stimulating hormone)levelis,you should get it tested.

Re: BRIAN & anyone have a question About Law and Drs

Tammie on 7/25/02 at 11:58 (090569)

Brain, sorry to use caps but since down a bit I feared u might miss it! I wanted to tell you that I had a lawyer call me yesterday. Ok he is wondering if I would like to take a dab into looking for more info and going on with this .He said there is a time limit as you said , he figures it is OCT for me.He also told me you can put a lot of money into thease types of cases as the Drs pay alot of money for mal practice and they will not just roll over and say yes I did wrong. He thinks I may have a good chance at this but alot of work needs to be done including a POD to look it over and see what they think along with poss neuro. I have to pay for all this and my records and my tests mri report xrays and stuff he says we are talking a few gran up front. I jsut dont think this is going to be the way One is I do not have alot of money that is why I need to work . Besides the fact I love MY job. He told me he would bring my employer in and my children my family any one that can prove my life has drasticaly changed.

I dont know tho is this the usual or does anyone know? He looked over a summary MY HUBBY made with me agreeing to it. Along with the records I had gotton for him and by verably speeking with him from his office he used a intercome phone i could tell. I think there is something very wrong I do not exactly know what or where or who is involved I would never want to hurt a dr. or anyone for that matter who was inocent. I wish I had a bit more proof or a bit more understanding that he might be the blame. I would never forgive myself if he was inocent.But then there is a problem .

This has truly afected my liufe deeply. I have had a few dr.s off record that really felt it was his doing simply with him not doing ANY pre testing except xrays and looking feeling ant that was it. But then there was therapy shoes orthodics ice and time away from work. This lawyer said why were no nerve test or mri or ultrosound or blood work to rule out a few blood work items. I just dont know what do u think? I mean I do not want you to think I am relying on u or anyone elses thoughts but just curious if you know anyone to talk with and does this sound how things go? I have never done anything such as this so am looking for some good sound advice. HOW do you get a DR to look this over and say it was done with out some vital testing ? Most I have ever heard from any one that I have talked with at work and around said even if you are right u will never find a dr. who will say that as that is a big no no . Looking for advice.

Ps I go for my first nerve block mon. scared like a baby but will do it to help myself! I have been recently in hospital do to all of this, I was admitted with dx of anxiety and RSD complications Pain they gave me 3 shots of something that did not work then worked up to 3 shots of morphine before they could calm me and actually touch me without pain.With tons of blood work and another ct scan of my head and lord only knows what ever test I was released the next day with a ton of narcotics. I was good I called my pain dr. and asked about the scripts he advised me not to take to continue till next monday nerve block. But he increased my breakthru meds. Am I forgetting to do something now? I was taken to Cleveland Clinic by ambualance from a small hospital the dr. who admitted me was internal med. They were afraid I had some exciting bug or something lol tried to say food poision ing but couldnt when I said I had been vomiting for a hole day and I had not eaten in a week just liquids I have had trouble swallowing food without a ton of liquid , do you think they followed up this link no no just anxiity and my RSD. S here I am waiting and worrying about what will be next. Thanks for anyones thoughts , I am working well with my pain dr. tho he repeats often he is just there for my pain any other I need to find a good Dr. for that. I have a dr. that was recomended to me but he is not a part of any big hopital just a small. Thanks Tammie

Re: medical reports/ THank you

Tammie on 7/25/02 at 12:03 (090570)

Sorry I missed this, Yes I have been followed quite closely lately and I seem to ge doing good so far with what I am changed to so hopefully nothing there. My potassium was very low tho told me to eat things rich in it.Thanks for the advice I really apreciate any ones input .

Re: Tammie could it be Spondylolisthesis?

Tammie on 7/25/02 at 12:06 (090571)

I am sorry I am not really sure I should recieve a report from the tests but sometimes takes some time I have a nerve block monday and maybe hubby can ask there. Thanks for all of the thoughts we have to figure this mess out one day or a nother!!! I know the word had the spelling to the y for sure but not sure what was then lol. I just glanced it as it was laying there when he tried to explain. Thanks again Tammie

Re: Here is another way to go about it

BrianG on 7/25/02 at 23:20 (090637)

Hi Tammy,

No, I don't think you should use this attorney. You should NOT have to put out that kind of money up front. Find a lawyer who will take yor case for a percentage of the winnings. It could be 25%, it could be more. The most you will be responsible for, is his expense's. Things such as getting records, and filing fees. Maybe a couple hundred dollars, max.

Take a look at http://www.footlaw.com If they take your case it wil be for a percentage of any gains you win. They can also work with local lawyers in your area, to ensure your case gets filed correctly, and on time. There are other firms that work the same way, but they are the only ones I know of that specialize in foot problems.

Good luck with the pain clnic
Brian

PS: Once you hire that attorney, the stress is now his, not yours. Now, doesn't that sound better :*)

Re: thnx

elliott on 7/15/02 at 06:46 (089650)

No, angry is the wrong word. Depressed, certainly. What were the results of your MRI?

Re: thnx

KathyB on 7/15/02 at 11:47 (089679)

Elliott, I know my pain and can not really know yours. I have been in pain for the last ten years. Three years ago I finally went to a pod but the damage to my ankles was tremendous. They fitted me with orthodics, then braces. I ruptured my posterier tibial tendon in my left foot in Oct 99, crushed my sub-talar joint in Jan 01, by Sept 01 my right foot was so bad they did the same two surgeries on my right foot. The problem is the pain never went away. I am not on Neurotin, Topamax, Trazdone, Celexa and carisoprodol. I am now 90/90 pain free. I am 90% pain free 90% of the time. I was diagnosed as clinically depressed two years ago, that is what the trazodone and the celexa are for. The carisoprodol is new and has thrown me for a loop but it is only a short term med. I have been on an even keel both physically and mentally for about 2 months as my body has adjusted to the meds I am not taking. Do not be afraid to go to pain management. Right now you are expending energy to fight the pain, if you were out of that pain you to expend that energy on stretching, strengthening and living a better life. It took me a long time to understand this. I hope my story will help you understand it to.
Just a note: I do Yoga, I stretch every day, I work on my legs, my tummy (damm Neurotin) and my whole body to get strong and not let my illness destroy my body because I am not willing to fight for it, and yes it hurt for a while, but it won't forever.

Re: thnx

Tammie on 7/15/02 at 20:24 (089725)

Elliott, I understand the depression God I do! You really know how bad I was a while back, But I have put it back in the far corner where it belongs!! I took the push I have been so busy trying to get things in order and keep my folder of any and all info I can get my hands on!

I bit the bullet and seen my pain management Dr. he is really great I must say he has found out alot about me and my back my hip my knee and then my foot on left side which is the trouble! He insisted on nerve testing and MRI right away before anything but pain control was done. I grant u I am on a lot of meds, along with the meds there comes side effects that are not the best except now I dont hide I deal with them.

I to am feeling some lumps here and there I was put in hospital for my pain being out of control and My potassium and other things were going wako. They gave me 3 shots of morphine before I had enough relief that they could take off restraints so I wouldnt hurt myself or yank my cath out or my lines for IVs I did once after several atemps to get it in vein was hard dehydration they said ?/ Who knows but I did realize that day I was realeased I have traved some awful darn hard roads and I have been moving pretty good thru this thick mud crap!

Ok MRI results and nerve tests(needle nerve test and oh it did to hurt)I made it even tho I did cry and almost got sick he had to stop several times and got a bit anxious with me .I get my copy of it sent to me and do not have yet expect it anytime now. Excuse my laymans terms till I can copy the original terms when I get them. He explained to me this( something called( spondylolist spelling not sure)foward moving of a vertebra onto another vertebrae compressing nerves and the pain in my hips and my left leg I dont know the numbers or names of which areas the nerves are compressed going down my right side. Continuing in to my foot areas giving me alot of nerve pain and leaving me with some dead nerve endings.

The left side showed many many nerve fiber damamge He was certain and totaly agrees that there is RSD in this left foot. In fact he is very upset that I cant get in quick enough for a nerve block I am dated to the 29 I think anyway the last mon of month and first two mon of aug. He has great hope of thease helping tremdously. Alls I have is Hope! Now please understand I dont have the professionl words yet I am waiting for it the co, that does the MRI are supposed to send the same copy of what they sent him, Red tape I love it! Highly fashionable when you the pat. wants copys of everything hahahah RED is good!

Comfirmed by the tests and the examinations and testing he is certain that Rsd is in my left footAnd then the spondylolist? spel is confermed but unsure if either or both are linked to each other,more testing to follow and more dx and treatments are nerve blocks for both troubles.

He after talking to me and my husband turned jokingly and said by the way did you say you have a attorney, My hubby said why do we need one? He would not say anymore. Also a Dr at the cleveland Clinic asked us have we consulted someone about my case and how long has this been going on and how come there were two surgeries done in the same area was he trying to do the facial again ? He just could not agree but he said I should ask him to supply me with a surgery report the one he gave me was pretty skimpy! Very unlikly full report he said. I said ok I think I know what you are saying but do u think I should get the lawyer? He says well now I dont know But I do know you have a right to know what was done and why and the posibilties of why this all might have occured.

Knowing me I said what would that help?Whats done is done money is not anything to make it better and what if he did have a accident he is human, This doc laughed and said good lord lady how come this world isnt more like you, our mal practice ins wouldnt be so much. So from all that I am learning and thinking there was a possibilty that he might have done allot wrong.I dont want another person to hurt with the pain I have suffered or if this is do to what he did MY life is wrecked, noone else needs to feel this. I wish I could no the truth and be allowed to not sue just fix it so he HAS to take more training BEFORE he does any more surgery. Thay need to add this as a option / darm maybe is availiable never thought about legal man as they to camn be shisters. Well this is it .

Heh Elliott are u sleeping yet? HEHHHHHHH are you with me LOL I know long book long wind, what can I say I am a woman who like you has a lot of pain and alot of anger and yes depression also! Nice that we can come here nice and safe and with people who live like us and really know what it is like! Welcome back and you know I know you hurt I really do and it is hard for you to live day to day like this and that yes it really does seem forever to be pain free, BUT medications are not answers not at all BUT they are great as stand bys till they can get something going on to help solve the troubles we suffer! Trust me it was best I did I mean it to from my heart! Night Elliott and I wish for good dreams and tomorrows sunshine ! NOw quit running so much in your dreams I cant hardly see you anymore you are getting to thin stretched out!HAHA

Re: thnx

Tammie on 7/15/02 at 20:45 (089729)

Kathy , I read your post and I was laughing not at u but with you as I think just how much I have been doing.Life is tough and pain is harder and tougher then any job! The Yoga thanks to a friend here Julie has so much helped me with learning to relax oh my how hard this is for me . If our friend Julie is around she would be so happy that when I was in hospital and they were all around everywhere and I hurt everywear and I was so sacred cause I COULD hear and I might of looked out I was not and I scared tp death and I rememeberd hew say now we can do this focus think about how far we came think about good things now think of simple things that I love the love that I have and give. I really have used it alot. Maybe not the whole type word for word as I am implemated more my own but great!!!(THAKS IF seen buy u julie!)

Neurontin is one I am trying hard to lower he changed it to 600 x3 day I was feeling to much side sicko tired just funny. I just lowered it to 300x3 per day and I feel much better. The paxil for me was a life sentance it left me here and alive! The elevil yea nice for sleeping, of course the oxy and percocetnot to mention the otherthings u need for THE DARN side effects LOL LOL OK Kathy YoU keep in her ok I am counting on you I watch you and how u are going! Tk care.

Re: The time to call, is NOW !!!!

BrianG on 7/15/02 at 22:04 (089735)

Hi Tammie,

If I'm reading this correctly, your Podiatrist performed 2 failed operations on you, without any tests. And it's quite possible that neither one was necessary????? How can you NOT go talk to a lawyer ??????? You only have a short amount of time, before the statute of limitations runs out. Wouldn't it be better to know now, rather than after it was too late to do anything, court wise!!! Your pain management doctor is right, make that call! Good luck

BrianG

Re: The time to call, is NOW !!!!

wendyn on 7/15/02 at 22:30 (089739)

If Tammie has ankolosing spondilytis (sp?) - then I would suspect it's entirely possible that it was the source of her pain to begin with. I was tested for it, and it's one of the things most doctors will rule out BEFORE surgery. It can cause unexplained back, leg and foot pain.

I did not have it - but I have two friends who do.

Tammie - is this the name of what he wrote on the report?

Re: Tammie

Julie on 7/16/02 at 02:03 (089748)

Tammie, although I don't post much any more I do still look at the board, and I saw your message to me. I am certainly happy that I've been able to help you with relaxation, and I appreciate your thanks.

My real reason for posting this is to tell you that I agree with Brian and your pain management doctor that you should contact an attorney. If you do have ankylosing spondylitis, it's very possible, as Wendy suggests, that it has been the root cause of your pain all along, and that your surgeries were unnecessary. It's certainly clear that they were botched and have made matters very much worse. And they didn't cause the spondylitis.

Compensation WOULD make a difference to you: it would make life easier for you and your family.

I know your way is usually to argue with yourself for ages before making a decision, but in this case it's important to lose no time. I recall Brian saying a while ago that the statute of limitations is as little as two years in some states.

All good wishes

Julie

Re: Wendyn

Tammie on 7/16/02 at 13:34 (089782)

Wendyn, Thank you , I am not really sure as I do not have copy yet I might try to call and find this out for sure, but in any case I wanted to thank u I to am wondering a lot of things , getting the info is not at all easy sometimes it feels like trying to get a insurance co to pay things THEY feel are unimportant LOLL Well like said will try to get neame for sure!

Re: Julie and Brian & all

Tammie on 7/16/02 at 13:42 (089783)

Thank u for all but surprise< My husband HAS been talking with a lawyer! They are looking into the case and stuff now ! He did this with my signing a paper and hubby doing most of comuting as I have to much already.

Ok now thank you for reading Julie YOu are so much in my life you would not know it!!! I know it sounds crazy to most but you Know I am a anture person I LOVE the woods and the beatiful things outside! Now I am not saying I like HOT weather like some but I do enjoy the days that are managible sort of like winter hahah! Getting back // I think alot of your tape and how I have found it useful to me and it started me thinking and wondering if that is How I am // but whatever I am truly grateful and I want to thank you and anyone else who has been helping me as I have many many friends here who I love and try to remeber in prayer and in thougth as much as can! {Part of this meds are to blame for some forgetfullness and I nod off in mid sentence and many many things So thanks for all Love Tammy

Re: Tammie could it be Spondylolisthesis?

Donna SL on 7/16/02 at 14:16 (089789)

Hi Tammie,

It sounds like from the report you were describing a condition called spondylolisthesis which is forward slipping of the vertebrae. I'm somewhat familiar with this because my brother has had this all his life. There are aome forms that develop later in life, and there is a congenital kind that my brother has. He's never had foot problems from it, but has had pain in his legs.

There is tons of information on the web but the site below gives a general idea of what it is.
http://www.spinesolver.com/spondylolisthesis.htm

You need to see an orthopedic doctor to confirm this, and evaluate what stage it is in. Some people live their whole lives with no need for surgery, or any type of serious treatment.

If you find out this is what it is there are many conservative methods that may help you, like prolo, and scerolotherapy (sp?), etc. These types of injections that my brother had many years ago are what kept him from spinal fusion surgery so far. It wasn't called that when he had it done over 15 years ago. Dr. Meyers who did it at the time was a pioneer in the field. He just recently passed away. Back then they used papaya enzymes, and today they use things like glucosamine chondroitin injections to strenghten the surrounding areas. When Dr. Meyers retired my brother stopped the treatments, because no one else was doing it then. Just recently I found doctors are doing the procedure again, and he's looking into it once more since the slippage has worsened a bit.

I know you have other priorities right now, but if in addition you have spondylolisthesis, I just wanted you to be aware there are conservative treatmenta available to prevent it from worsening. Also very early stages can benefit from simple therapies like chiropractic treatment, or even
pilates.

Donna

Re: medical reports

BrianG on 7/16/02 at 16:09 (089797)

Hi Tammie,

Sometimes lawyers can get copies of these reports much easier than we can. Something to think about.

BrianG

Re: medical reports

Tammie on 7/16/02 at 17:01 (089798)

Brian I already signed a paper releasing anything he might need, records , tests, etc. We were suposed to hear from him this week if there is enough for a case or not. I hesitate to really think there is but who am I ? LOL I am not to interested but my hubby is very angry at this dr. and he also blames himself for making me the first appt. there. Ok well thanks alot!!! Ps on meds tell me this if u can?

I am on oxycontin 40 mg.X2 a day Percecet 3 per day for breakthru pain
Neurontin 600mgx 3 per day paxil 40 mg day synthroid .100 elevil .50 mg I think this is the list

I after taking the nerountin 3 times a day dropped it to 2 I was feeling sick and sleepy effects which I already have with other meds. I felt good like I should/ no pain change from doing it or not.

I also asked family doc today about my paxil/ I felt I might need to be looked at for a pos change as I was finding alot of weepys and out of control crazy mom on loose. This was his soulution lets stop al together/ I said this oh my just like that no weening off or nothing he said yea I said excuse me not to be out of line but isnt there a time frame it stays in body and takes a while to leave ? I also chimed in will I have any withdrawl with it, he said hmm good question in fact I thibk u may be right so just cut them in half and I will see u mon to see how we are doing.

Now I just seem to have a red flag showing about him really knowing about me and my meds and troubles what do u think? He is thinking of something called serotonin/ saying alot of what i have been expierincing has the sound of maybe this. well anyways thank u as u really know your meds and I trust your instinct.

Re: Some Paxil info

BrianG on 7/17/02 at 21:43 (089919)

Hi Tammie,

I went to the Net, and it didn't take me long to find what you are looking for. You were right to question your doctor about quiting Paxil cold turkey. According to this article, which I'll cut and paste, cold turky can be very dangerous. I know you family doc means well, but he just doesn't have the education that a pain management specialist will have, when it comes to meds. If possible, I'd ask your pain management doctor to take over all your meds. See what he says, ask if he is comfertable doing it. This is what I found. Good luck

BrianG

 
According to World Health Organization ('WHO'), Paxil has the highest incidence rate of withdrawal adverse experiences of any antidepressant drug in the world.' Studies show that 85% of people taking SSRI antidepressants will have some type of symptom when they stop taking the drug. While the medical community has acknowledged the potential for all SSRIs to cause dependency/withdrawal syndrome, Paxil is, by far, the worst.
It is alleged that Paxil can cause some people who take it to experience serious and unexpected withdrawal reactions, including suicide. Complaints now exist that patients and physicians were unaware of the withdrawal reactions due to the manufacturers deliberate failure to warn people about these occurrences. The physicians and the patients used Paxil without knowing the addictive properties and lawsuits have resulted because people were not made aware of Paxil's addictive, dependency, and withdrawal reactions to reduced or terminated dosages.
It is alleged that Paxil creates both physical and psychological dependency because Glaxo SmithKline has concealed information about the severe withdrawal reactions of its drug. Many patients and their physicians are confused into thinking that the withdrawal reactions are caused by something else, such as a relapse, leading to further incorrect and unnecessary medical treatment, including increased dosages of Paxil. It is alleged that Doctors were not properly notified of the withdrawal symptoms and either did not taper the patients off of Paxil or Re-prescribed the drug after observing withdrawal symptoms.
Paxil Withdrawals
Paxil withdrawal experiences vary from person to person . Duration of Paxil withdrawal also varies from person to person.
Withdrawal Symptoms May Include:
'Electrical 'zaps' to the brain, dizziness, extreme nausea, crying spells, light headedness, vertigo, coordination problems, gait disturbances, sweating, vomiting, high fever, abdominal discomfort, flu symptoms, agitation, tremulousness, irritability, aggression, sleep disturbance, nightmares, tremor, confusion, memory and concentration difficulties, lethargy, malaise, weakness, and general fatigue.'
intense insomnia
extremely vivid dreams
extreme confusion during waking hours
fear of losing your sanity
depersonalization- feeling of existing outside of reality
memory and concentration problems, panic attacks
severe mood swings, like extreme irritability and anger
suicidal thoughts
dizziness/vertigo
electric feeling shocks throughout your body
unsteady gait
slurred speech
headaches
profuse sweating
muscle cramping
blurred vision
outbursts of tears for no apparent reason
hypersensitivity to motion, sounds, smells
decreased appetite
nausea
abdominal cramping
loss of appetite
chills/hot flashes
Other Possible Paxil Withdrawal Symptoms:
fainting, scratching sounds within one's head, tingling sensations in lips and areas around them, heart palpitations and chest pain, swollen and sore eyes, fatigue, bursting headaches, lump in throat
rash, dry, flaky, and/or irritated skin, grinding teeth, difficulty with swallowing, itchiness, numbness, speech problems,trembling.

 
 
 
 
 

Re: medical reports

Jim F on 7/19/02 at 22:07 (090183)

Tammie,it struck me that you take .10mg of synnthriod as i've taken .15mg for 20 yrs and for the last ten years have had pf and for the the past 3 yrs have had tts .Finally i found a dr who told me i was beiing under medicated. I just hope its not to late . I've spent the last 20 yrs 50lbs. overweight,and the last few yrs my muscles are always tight.im curious as to what your tsh(thyroid stimulating hormone)levelis,you should get it tested.

Re: BRIAN & anyone have a question About Law and Drs

Tammie on 7/25/02 at 11:58 (090569)

Brain, sorry to use caps but since down a bit I feared u might miss it! I wanted to tell you that I had a lawyer call me yesterday. Ok he is wondering if I would like to take a dab into looking for more info and going on with this .He said there is a time limit as you said , he figures it is OCT for me.He also told me you can put a lot of money into thease types of cases as the Drs pay alot of money for mal practice and they will not just roll over and say yes I did wrong. He thinks I may have a good chance at this but alot of work needs to be done including a POD to look it over and see what they think along with poss neuro. I have to pay for all this and my records and my tests mri report xrays and stuff he says we are talking a few gran up front. I jsut dont think this is going to be the way One is I do not have alot of money that is why I need to work . Besides the fact I love MY job. He told me he would bring my employer in and my children my family any one that can prove my life has drasticaly changed.

I dont know tho is this the usual or does anyone know? He looked over a summary MY HUBBY made with me agreeing to it. Along with the records I had gotton for him and by verably speeking with him from his office he used a intercome phone i could tell. I think there is something very wrong I do not exactly know what or where or who is involved I would never want to hurt a dr. or anyone for that matter who was inocent. I wish I had a bit more proof or a bit more understanding that he might be the blame. I would never forgive myself if he was inocent.But then there is a problem .

This has truly afected my liufe deeply. I have had a few dr.s off record that really felt it was his doing simply with him not doing ANY pre testing except xrays and looking feeling ant that was it. But then there was therapy shoes orthodics ice and time away from work. This lawyer said why were no nerve test or mri or ultrosound or blood work to rule out a few blood work items. I just dont know what do u think? I mean I do not want you to think I am relying on u or anyone elses thoughts but just curious if you know anyone to talk with and does this sound how things go? I have never done anything such as this so am looking for some good sound advice. HOW do you get a DR to look this over and say it was done with out some vital testing ? Most I have ever heard from any one that I have talked with at work and around said even if you are right u will never find a dr. who will say that as that is a big no no . Looking for advice.

Ps I go for my first nerve block mon. scared like a baby but will do it to help myself! I have been recently in hospital do to all of this, I was admitted with dx of anxiety and RSD complications Pain they gave me 3 shots of something that did not work then worked up to 3 shots of morphine before they could calm me and actually touch me without pain.With tons of blood work and another ct scan of my head and lord only knows what ever test I was released the next day with a ton of narcotics. I was good I called my pain dr. and asked about the scripts he advised me not to take to continue till next monday nerve block. But he increased my breakthru meds. Am I forgetting to do something now? I was taken to Cleveland Clinic by ambualance from a small hospital the dr. who admitted me was internal med. They were afraid I had some exciting bug or something lol tried to say food poision ing but couldnt when I said I had been vomiting for a hole day and I had not eaten in a week just liquids I have had trouble swallowing food without a ton of liquid , do you think they followed up this link no no just anxiity and my RSD. S here I am waiting and worrying about what will be next. Thanks for anyones thoughts , I am working well with my pain dr. tho he repeats often he is just there for my pain any other I need to find a good Dr. for that. I have a dr. that was recomended to me but he is not a part of any big hopital just a small. Thanks Tammie

Re: medical reports/ THank you

Tammie on 7/25/02 at 12:03 (090570)

Sorry I missed this, Yes I have been followed quite closely lately and I seem to ge doing good so far with what I am changed to so hopefully nothing there. My potassium was very low tho told me to eat things rich in it.Thanks for the advice I really apreciate any ones input .

Re: Tammie could it be Spondylolisthesis?

Tammie on 7/25/02 at 12:06 (090571)

I am sorry I am not really sure I should recieve a report from the tests but sometimes takes some time I have a nerve block monday and maybe hubby can ask there. Thanks for all of the thoughts we have to figure this mess out one day or a nother!!! I know the word had the spelling to the y for sure but not sure what was then lol. I just glanced it as it was laying there when he tried to explain. Thanks again Tammie

Re: Here is another way to go about it

BrianG on 7/25/02 at 23:20 (090637)

Hi Tammy,

No, I don't think you should use this attorney. You should NOT have to put out that kind of money up front. Find a lawyer who will take yor case for a percentage of the winnings. It could be 25%, it could be more. The most you will be responsible for, is his expense's. Things such as getting records, and filing fees. Maybe a couple hundred dollars, max.

Take a look at http://www.footlaw.com If they take your case it wil be for a percentage of any gains you win. They can also work with local lawyers in your area, to ensure your case gets filed correctly, and on time. There are other firms that work the same way, but they are the only ones I know of that specialize in foot problems.

Good luck with the pain clnic
Brian

PS: Once you hire that attorney, the stress is now his, not yours. Now, doesn't that sound better :*)

Re: Some Paxil info

Gina B on 7/27/05 at 19:19 (179281)

I'm experiencing a lot of these withdrawal symptoms right now and reading that article really helped. I've been taking Paxil for anxiety, and I really thought that I was having an awful relapse. I'm glad that I'm not going crazy and I just have to wait until Paxil is done messing with me.