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Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Posted by Ricky J. on 7/29/02 at 13:30 (090907)

I have been scheduled to see a doctor on August 13th to determine what treatment I need to fix this. The trouble I am having is getting a good pain releiver prescibe for me until I can get some serious help. My ortheopedic doctor prescribe Darveset for me the other day and I took him the prescribtion and told him this stuff was worthless for the pain that I am in. I told him to give my pills to someone who could use them. I said that If he didn't give me anything stronger than that I was going to check myself into the hospital. He then wrote me a prescription for Hydrocodone 7.5, but only give me 30 pills for 21 days. This painreliever works pretty good up to 4 hrs per pill, it takes the sharp edge off the pain, but I still have alot of pain. I have to take 3 to 4 pills a day to even stay somewhat out of immense pain, at most I can make the prescription last 10 days. Does anyone know of anything better or last longer that I can suggest to my doctor to take? I am 37, atheltic, male that thought he had a high tolerance to pain but living with this since February has taken its toll on me. Since April I have had an MRI, Myelogram, CAT scan, two lumbar epidurals, Shock Torcher Treatment (EMG), and the Stab neetles in both legs for an hour to record my never impulses and screams. (You know the dentist from Little Shop of Horrors),.. that was my doctor. The doctors first thought it was in my back, but later determined TTS. They told me the soonest they could get someone to see me was in October, I told them I would kill myself by then. My wife managed to help me get an appointment on August 13th with the same doctor.

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Sharon W on 7/29/02 at 19:08 (090935)

Ricky,

You're right, Darvocet is wimpy and almost worthless for any kind of real pain. For me it doesn't do any more than a couple of extra-strength Tylenol, and since it's more ADDICTIVE than Tylenol, it makes no sense at all to take it.

Hydrocodone 7.5 is much more effective, for pain relief, but it's really not a good medication to take long-term. Next time you see your Dr., try asking about Ultram, and Neurontin. Both of them are effective for nerve pain, and they are SAFER for long-term use.

Sharon

Re: PS: Ricky

Sharon W on 7/29/02 at 19:39 (090939)

You might ask about Elavil, too. It is a medication sometimes prescribed for depression, but at somewhat lower doses it is often prescribed for people with chronic pain, or nerve pain. Even methadone can be a very successful treatment, for some people, although that one pretty much DOES have to be prescribed by a pain management specialist. If your current Dr. is undertreating you for pain (and that appears to be the case) then you should consult with a pain management specialist. They are the real experts with pain.

Sharon

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

wendyn on 7/29/02 at 21:00 (090942)

Wow Ricky - I don't have a whole log of suggestions for you...I hope you get in to see a good doctor soon. Sharon is right about the Neurontin (sp?) - it's supposed to be very effective for nerve type pain.

Please keep in touch and come here for support, we tend to be a pretty sympathetic bunch.

Do the doctor's have any idea what's going on?

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Dr. Zuckerman on 7/29/02 at 21:06 (090943)

This is a case where Ricky needs a stronger pain medication. Neurontin is ok . Go up to 2400 mgs. daily. Tylenol #3 one or two every six hours for pain. Vicophen one every six hours is a very good pain medication.

Re: Logs

wendyn on 7/29/02 at 22:48 (090957)

Not only do I not have a whole log of suggestions, I don't have a whole lot of them either.

Duh.

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

KathyB on 7/30/02 at 08:15 (090969)

I am on Neurontin and Topamax and they are working great for me. I can acutally walk without pain for 30 - 45 minuets. I also use Hydrocodone 7.5 for flare ups.

Re: I feel your pain , have u ever//Brian , laurie,Janet , a friend needed here

Tammie on 7/30/02 at 12:05 (090998)

considered a pain management? My friend Brian here and Laurie and Janet have been verry helpful with finding a way to survive PAIN. I am not a medical person and am not sure of your dx. but I have recently been dx with RSD. It is painfull and I do not want t go into my pain this is for you!

My dear friends here have shown me how to find good pain relief and how to feel good about ME. Issues are hard to deal with for seeing a pain management doc many are the thoughts they make us junkies. I can say myself that PAIN is just as dangerous, I say this with the reading of your post saying about living and how you are to this area of not wanting to if u are always in pain! Been there know it and here is how to find a relief of sorts//

Find a pain management Doc foryourself, beware it sometimes takes months to get in , again been there , but if your dr. is not treating your pain enough and u are to a point that your life is in danger go quick to a hopital er tell them about your pain and what u are doing for yourself and how you are hurting not do to depression but because you have lived with pain long enough that pain has depressed you. They can help but if you can make it till you see a pain doc it is well worth it .

They do in fact take a history from you and any pre copies from other docs are very helpful of him not repeating unneeded tests.The first day with them they will look you all over and go over alot of paper work and sign contract about not buying narcotics and things. Not bad for your own protection. When you leave you will feel much better about yourself and the medication that you might need to help you fight the pain! I say fight as i believe it is.It is a fight for your life and finding a answer to living it with less or perhaps no pain at all. There are many here who know much more about this then me as they helped me get over my fear of this type of treatment,Yes I take many pills/ I take neurontin/elivil/oxycontin/percecet/ are from them I also have other pills for different things and by my primary/ I asked for a antidepressant and i also am on Paxil I like it and know that I need it for now. But it has worked well for me , there are many that work well for some and then there are some that dont. Take care and I hope that I have givin you some options to help, there is also the thougth about going in to a pin managemnt clinic and sitting in front of desk untill you are seen , dont know if it would work but that is how far I was getting , the waiting is the hardest.Keep searching you will find a light .

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Don S. on 7/30/02 at 19:33 (091031)

I was diagnosed with bilateral TTS about 18 months ago. Was put on a low dose of neurontin (gabapentin) before being diagnosed. Was ready for surgery but my doc went back to his home in Georgia so started anew with his partner. He takes things maore coservatively. He increased the neurontin and am now up to 600mg 3 times a day. It helped but I still had my bad days. He then added vioxx (25mg once daily) about 6 weeks ago and the relief has been tremendous. I went from a pain level of 6 to 7 down to a 3. Give it a try.

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

BrianG on 7/30/02 at 22:31 (091061)

Hi Ricky,

Most of your personal doctors are not going to provide you wth long lasting pain meds. Tammie is right, try to get in to a pain management clinic. You can ask your doctor for a referrel. If he can't help you, then start calling hospitals in your area. Most clinic's have a long waiting period, as there are not enough to go around at this time. Once you get an appointment, tell the recetionist, or nurse, that you'll be available to come in with little notice, if they have a cancellation. Have a copy of your records ready.

There are other ways to get pain meds on the internet, but they are expensive, illegle, and you never know what kind of quality you'll be getting. It's better than suicide, but not really worth the risk. Plus, if you get caught, you can forget about a legitimate pain clinic! Good luck

BrianG

PS: For additional information, go to a seach engine and type in 'pain management'

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Ed Davis, DPM on 8/03/02 at 14:01 (091484)

We often use a combination of Ultracet and Neurontin for 'nerve' pain.
Ed

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Sharon W on 7/29/02 at 19:08 (090935)

Ricky,

You're right, Darvocet is wimpy and almost worthless for any kind of real pain. For me it doesn't do any more than a couple of extra-strength Tylenol, and since it's more ADDICTIVE than Tylenol, it makes no sense at all to take it.

Hydrocodone 7.5 is much more effective, for pain relief, but it's really not a good medication to take long-term. Next time you see your Dr., try asking about Ultram, and Neurontin. Both of them are effective for nerve pain, and they are SAFER for long-term use.

Sharon

Re: PS: Ricky

Sharon W on 7/29/02 at 19:39 (090939)

You might ask about Elavil, too. It is a medication sometimes prescribed for depression, but at somewhat lower doses it is often prescribed for people with chronic pain, or nerve pain. Even methadone can be a very successful treatment, for some people, although that one pretty much DOES have to be prescribed by a pain management specialist. If your current Dr. is undertreating you for pain (and that appears to be the case) then you should consult with a pain management specialist. They are the real experts with pain.

Sharon

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

wendyn on 7/29/02 at 21:00 (090942)

Wow Ricky - I don't have a whole log of suggestions for you...I hope you get in to see a good doctor soon. Sharon is right about the Neurontin (sp?) - it's supposed to be very effective for nerve type pain.

Please keep in touch and come here for support, we tend to be a pretty sympathetic bunch.

Do the doctor's have any idea what's going on?

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Dr. Zuckerman on 7/29/02 at 21:06 (090943)

This is a case where Ricky needs a stronger pain medication. Neurontin is ok . Go up to 2400 mgs. daily. Tylenol #3 one or two every six hours for pain. Vicophen one every six hours is a very good pain medication.

Re: Logs

wendyn on 7/29/02 at 22:48 (090957)

Not only do I not have a whole log of suggestions, I don't have a whole lot of them either.

Duh.

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

KathyB on 7/30/02 at 08:15 (090969)

I am on Neurontin and Topamax and they are working great for me. I can acutally walk without pain for 30 - 45 minuets. I also use Hydrocodone 7.5 for flare ups.

Re: I feel your pain , have u ever//Brian , laurie,Janet , a friend needed here

Tammie on 7/30/02 at 12:05 (090998)

considered a pain management? My friend Brian here and Laurie and Janet have been verry helpful with finding a way to survive PAIN. I am not a medical person and am not sure of your dx. but I have recently been dx with RSD. It is painfull and I do not want t go into my pain this is for you!

My dear friends here have shown me how to find good pain relief and how to feel good about ME. Issues are hard to deal with for seeing a pain management doc many are the thoughts they make us junkies. I can say myself that PAIN is just as dangerous, I say this with the reading of your post saying about living and how you are to this area of not wanting to if u are always in pain! Been there know it and here is how to find a relief of sorts//

Find a pain management Doc foryourself, beware it sometimes takes months to get in , again been there , but if your dr. is not treating your pain enough and u are to a point that your life is in danger go quick to a hopital er tell them about your pain and what u are doing for yourself and how you are hurting not do to depression but because you have lived with pain long enough that pain has depressed you. They can help but if you can make it till you see a pain doc it is well worth it .

They do in fact take a history from you and any pre copies from other docs are very helpful of him not repeating unneeded tests.The first day with them they will look you all over and go over alot of paper work and sign contract about not buying narcotics and things. Not bad for your own protection. When you leave you will feel much better about yourself and the medication that you might need to help you fight the pain! I say fight as i believe it is.It is a fight for your life and finding a answer to living it with less or perhaps no pain at all. There are many here who know much more about this then me as they helped me get over my fear of this type of treatment,Yes I take many pills/ I take neurontin/elivil/oxycontin/percecet/ are from them I also have other pills for different things and by my primary/ I asked for a antidepressant and i also am on Paxil I like it and know that I need it for now. But it has worked well for me , there are many that work well for some and then there are some that dont. Take care and I hope that I have givin you some options to help, there is also the thougth about going in to a pin managemnt clinic and sitting in front of desk untill you are seen , dont know if it would work but that is how far I was getting , the waiting is the hardest.Keep searching you will find a light .

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Don S. on 7/30/02 at 19:33 (091031)

I was diagnosed with bilateral TTS about 18 months ago. Was put on a low dose of neurontin (gabapentin) before being diagnosed. Was ready for surgery but my doc went back to his home in Georgia so started anew with his partner. He takes things maore coservatively. He increased the neurontin and am now up to 600mg 3 times a day. It helped but I still had my bad days. He then added vioxx (25mg once daily) about 6 weeks ago and the relief has been tremendous. I went from a pain level of 6 to 7 down to a 3. Give it a try.

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

BrianG on 7/30/02 at 22:31 (091061)

Hi Ricky,

Most of your personal doctors are not going to provide you wth long lasting pain meds. Tammie is right, try to get in to a pain management clinic. You can ask your doctor for a referrel. If he can't help you, then start calling hospitals in your area. Most clinic's have a long waiting period, as there are not enough to go around at this time. Once you get an appointment, tell the recetionist, or nurse, that you'll be available to come in with little notice, if they have a cancellation. Have a copy of your records ready.

There are other ways to get pain meds on the internet, but they are expensive, illegle, and you never know what kind of quality you'll be getting. It's better than suicide, but not really worth the risk. Plus, if you get caught, you can forget about a legitimate pain clinic! Good luck

BrianG

PS: For additional information, go to a seach engine and type in 'pain management'

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Ed Davis, DPM on 8/03/02 at 14:01 (091484)

We often use a combination of Ultracet and Neurontin for 'nerve' pain.
Ed

Re: Immense Pain, Need advice on a good pain releiver for bilaterral TTS!

Virginia on 12/30/07 at 20:29 (241396)

I am 68 years old and have peripheral artery disease. I've had eleven surgeries on both legs (total) and that includes one amputation. I am in extreme pain but nobody can figure out why. I had a fall out of my wheelchair four years ago when I came home from the hospital from having the amputation. It tore open the whole iincision and the wound opened up about five inches across and two inches wide. It took 8 months to heal from the inside out, and being diabetic, I've been in awful pain ever since. I've had one bypsss surgery after another on my left leg that eventuated in the amputation and now my right leg is in danger too. I take 7.6 mg. of hydrocodone every 5 hours round the clock. I've been on 500 mg. for 3.5 years and just started this new dose of 7.5. But, the pain never really stope, just dulls it somewhat for only about 3 hours. I have just found out about Ultram Er and going to call myinternist as soon as the New Year is here and his office is open again. I have wonderful vascular surgeons in Dallas and my internist is there also, but neither have ever mentioned Ultram ER. I am going to the chiropractor for back pain, three veterbrae are bulging. The chiropractor mentioned Ultram ER to me last Friday, so it must have some validation. I hope you get some relief, as I certainly understand what you are going through.