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Pod Visit

Posted by Marty on 1/21/03 at 20:48 (106214)

Well, well, well ..... did I think it would be any differant at the pod's. Nope, Great guy and doctor but this waiting is going to kill me!!!! The pain is getting so bad so fast now! I told pod but he's right, he wants to send me for blood tests, MORE FRECKING TEST!!!!!!!!!! I had them all 7 years ago!!!!! I hope the test come back negative! He's going to talk to the Nuerologist that he sent me to. Seems he thinks I might have a neuroma of some sort because the burning is one the top of my foot mostly now. That nerve does not go under the Posterior Tibial Tendon. Great :(

How come I can't put my heels on the floor for then 30 seconds before I starts going crasy. Man this sucks. I'm to call him next thursday I he will let me know what to do. NEXT THURSDAY!!!!!! I know he will forget. He has told me before he was going to call this guy and never did. Do I go to another and start all over.

Man I'm RRRRRGGGGGGGG. I think I'm going to see if I can't get in to my MD and get these test going now... I did it 7 years ago I'll do it again. I sure hope I don't lose my job before I get some action here!!!

Re: Pod Visit

marie e on 1/21/03 at 21:14 (106217)

Marty,

What do you do for a living? Can you take a few days off so you can stop and think? Are you eligible for disability retirement? I was in your shoes last spring but I have to admit I haven't had this for 7 years. When I was going through all my testing my brother, who has multple sclerosis and has been through more tests and pain than anyone I know, gave me this advice. Doctors are only human, they simply don't have all the answeres. Sometimes you have to go through a million tests just to show that you don't have something so they CAN dx you with something. Tell your MD how stressed out you are...anyone would be.

marie

Re: Pod Visit

Sharon W on 1/21/03 at 22:50 (106224)

Marty,

I share your frustration -- sometimes I get so frustrated with all of this I just want to SCREAM! There are times when the process of SLOWLY collecting test results, each time having to go back and see the doctor again before doing anything else, can be VERY counterproductive.

I remember when they kept doing one medical test after another to my sister, when she was having trouble breathing, always short of breath. First they did lung function tests, then a chest x-ray which showed a problem with her heart. Then they spent almost TWO MONTHS doing tests of her heart functioning, ONE AT A TIME, each time making another appointment with a doctor to interperet the results of the last test before doing another one. (All this while she was gasping for air!) Meanwhile, my sister kept telling them about all the trouble she was having 'catching her breath,' and they KNEW the percentage of oxygen in her blood was low, but they wouldn't even prescribe OXYGEN for her until they were finished doing every single test!

THEN, after all that dilly-dallying they finally did a test that proved one of her main coronary arteries was 85% blocked. SUDDENLY, IT WAS AN EMERGENCY!! They kept her overnight that night in intensive care, and did bypass surgery in the morning.

Go figure...

Sharon

Re: You got to be kidding!

Marty on 1/22/03 at 05:07 (106246)

You got to be kidding!

Re: Pod Visit

Marty on 1/22/03 at 05:10 (106247)

Marie,

Got to admit I'm pretty stressed out, so frustrating because these doctors don't see how fast this is escalating. Anyway I'm a programmer and can stay off my feet for about 6 hours a day at work. There's always the fear that I will have on of those days where I have to put out big fires and would be running around with my head cut off.

I think I might have amp up on the Neurontin to fast. Things are really pretty fussy for me right now. To be honest I'm pretty embarrassed to be coming here in this condition and posting these disconjointed posts.

It's 3:30am got up can't sleep, bet the Pod's sleeping just fine. That wasn't fair nor nice. Sorry

Thanks so much,

Marty

Re: Question

Marty on 1/22/03 at 05:23 (106248)

Question,

I have made an appointment to see a Orthopedic foot and ankle specialist for this Thursday morning. I have not seen this guy and he will be basically starting from scratch with me. Do I cancel this for now and wait to hear back from Pod or go and see what he thinks? He's probably going to want to run the same test as well, maybe not though because I think I have TTS in the chronic stages so diagnosis might be difficult. Tapping on ankle doesn't really do much when the pain is this bad and I guess the Pod thinks the NCV test results are inconclusive even though it say's right on it TTS Syndrome of the tibial baa baa baa, cant remember wording. Who knows. LOL Anyway I've got to cancel today if I do? What you think!!!

Thanks so much,

Marty

Re: You got to be kidding!

Sharon W on 1/22/03 at 09:50 (106279)

No joke, Marty; it really happened. Doctors can really take this 'let's do one more test and then we'll discuss the results at your next appointment' stuff to EXTREMES!

Of course, I do have to admit that my sister is definitely the stoic type. A lot of docors see a woman over 45 and just ASSUME that is is likely to the the 'nervous Nellie' type inclined to exaggerate her symptoms. In fact, I think doctors are GENERALLY inclined to assume that patients exaggerate their symptoms, even when they AREN'T menopausal or post-menopausal women! So, when they come across somone as stoic as my sister, who calmly says that she is short of breath and has been short of breath for months, that it has gotten worse, and that she can't walk up one flight of stairs without gasping for air, etc., they probably assume that she is exaggerating. I don't know. But it makes me VERY MAD just to think about it!!

Sharon

Re: Question

Sharon W on 1/22/03 at 10:39 (106286)

Go see the ortho. What do you have to LOSE, besides your co-pay?? Getting another opinion on this would be a GOOD thing, even if he doesn't agree with the pod or the neuro.

I admist that getting more information can be CONFUSING, sometimes, but it is better than listening to the wrong opinion the first time and never knowing the difference!

Sharon

Re: Question

marie e on 1/22/03 at 11:05 (106287)

Go see the surgeon. Ask your pod for copies of all your tests and dr visits. You need to keep copies of everything. You may need them for diasbility claims later. Send a set of copies to your surgeon ahead of time so he has time to go through them before you visit. It may save on additional tests. I go from one doctor to the next with my copies and MRIs. I have homework assignments for my GPs this week before I go back to see them on the 27th.

Can you get a scooter for work? I have friends that are programmers for Eli Lilly....they are great company to work for if you have disabilities.....Many employees have dogs that help them.

marie

Re: Getting a doctor to really take it seriously

Sharon W on 1/22/03 at 11:14 (106288)

Marty,

If you were a woman, I would tell you that next time you go to the doctor you need to be a real Drama Queen, to put on a big show of pain and frustration and tears.

Under the circumstances I won't use that phrase! But you DO need to SHOW the doctor how much worse you are feeling and how FAST is GETTING worse and how stressed out you are about that. And TELL the doctor that you don't know how much longer you can even keep your job! TELL him what is on the line for you. BEG him NOT TO DELAY in finding a solution for you --ask him to go ahead and do any tests that might apply, ALL AT ONCE, not one at a time. DO NOT say it in a calm, cool voice -- let him HEAR how you feel from the tone of your voice, and SEE it in your face and your gestures. The 'squeaky wheel' gets the grease!

For many people (myself definitely included) putting on a big show of pain and frustration like this really goes against the grain, and is very hard to do. But the truth is: most health professionals, when the WORDS they hear are telling them how bad it is and yet the tone of voice and body language seem calm and cool, will assume that the patient is EXAGGERATING (just as they probably did with my sister). It DOES NOT pay to be stoic!!

Sharon

Re: Question

Marty on 1/22/03 at 12:51 (106323)

thanks

Re: Getting a doctor to really take it seriously

Sharon W on 1/22/03 at 13:04 (106324)

Another thing: doctors are often taught that a patient who doesn't look them in the eyes is trying to deceive them. So LOOK THE DOCTOR IN THE EYES when telling him how much it hurts and how many major problems it is causing in your life. If you are a bit embarassed about talking about pain and so you avoid meeting the doctor's eyes when talking about this subject, he may take that for deceptiveness, not embarassment, and assume that you are probably exaggerating because you want him to sign for disability or some such.

Sharon

Re: Question

Marty on 1/22/03 at 13:36 (106329)

My work is great.... my boss is the best.

I have been battling the paper work trail all day! Seems my GP lost my blood test and urine tests because they moved! Can you believe it. Gave me a number where they should call but to no avail. Got to be some where but wont have them ready for tomorrow. I called the Orthopedics office last Friday and they got me in this Thursday so I couldn't turn it down. Someone cancelled, I told them I might not be able to get all my records and when I called them today and told them I haven't got my blood test they said to come on in anyway.

I sorry I haven't been any help to you or Sharon W. you 2 have really help me out so much!

Thanks,

Marty

Ps. I'm allot less groggy today, I think I'm getting use to the Neurontin increase. :0 Hope I have made some since with my post the last few days, couldn't even tell you if you told what you have and what you have done. I feel bad about that. Hmmmmm as I think for a minute it's coming back ;)

Re: Question

Sharon W on 1/22/03 at 14:36 (106339)

They can easily do more blood tests.

I know what you mean; the one thing that neuro did was tell me to take another dose of Neurontin every day. So, I'm groggy this last couple of days, and making extra typos. I do blame the Neurontin, but I'm sure that effect will pass. It did before.

Hang in there, Marty. A neuroma could actually be GOOD news: they can be successfully treated.

Sharon

Re: Question

Marty on 1/22/03 at 16:23 (106360)

thanks, I blame the Neurontin too :)

Re: Getting a doctor to really take it seriously

Marty on 1/22/03 at 18:25 (106375)

Really good advice once again Sharon! I'm view these post from 2 differant computers so I mess some. Glad I found this !

Thanks

Re: Sheesh I'm getting my coordinates back but?

Marty on 1/22/03 at 18:27 (106376)

I'm view these??? Man what a dope head I am LOL

Re: good luck

marie e on 1/22/03 at 18:48 (106380)

I am glad to hear that you have an understanding boss. I use a scooter occasionally during the day at work to give my feet a rest, it really has helped on those crazy days. The administrators in my building have been great...it was an adjustment for them. Aside from that I am the only one who knows how to work the equipment and software in my classroom. I have a great computer lab. I teach all kinds of computer graphics, animation, film, design, web page etc....they wouldn't know what buttons to push if something happened to me.

Best of luck to you at the docs. I go to my gp on Monday. I want a script for a scooter and a lift for my vehicle. I want to get out and do stuff. I feel so limited now. I cna only ride on those carts at walmart for so long. My doctors have a homework assignment on tts...and they better do it. Leave it to a teacher to give homework to the doctors.

marie

Re: what assignment??

Marty on 1/23/03 at 18:31 (106522)

Marie,

What grade you teach? Computers are my passion. Best of luck Monday at the doctors. My pod has home work too and I called and reminded him but I really don't think he'll remember. I gave the same assignment over a year ago and he forgot. I sure wish I would of pursued it back then! That was over a year ago and I would really be allot better off today if I wouldn't of just got fed up with things. I took the last year off from doctors and just concentrated on trying to work on the stuff I knew about. Ice, stretching, etc. My assignment was for him to call his friend down stairs, Neurologist. Seems that the road I'm going to traveling now. I will post about later.

I will not go to walmart, I love our super walmart so close and all but wow just to get it the store from the back of the parking lot is like climbing mount Everest! Well ok maybe not that bad but close. Being a man I guess it's a bit strange to like walmart but at the same time ain't now way this 6'2' ex-weight lifter going to get on one of those carts!!!!! LOL

Marty

Re: Pod Visit

marie e on 1/21/03 at 21:14 (106217)

Marty,

What do you do for a living? Can you take a few days off so you can stop and think? Are you eligible for disability retirement? I was in your shoes last spring but I have to admit I haven't had this for 7 years. When I was going through all my testing my brother, who has multple sclerosis and has been through more tests and pain than anyone I know, gave me this advice. Doctors are only human, they simply don't have all the answeres. Sometimes you have to go through a million tests just to show that you don't have something so they CAN dx you with something. Tell your MD how stressed out you are...anyone would be.

marie

Re: Pod Visit

Sharon W on 1/21/03 at 22:50 (106224)

Marty,

I share your frustration -- sometimes I get so frustrated with all of this I just want to SCREAM! There are times when the process of SLOWLY collecting test results, each time having to go back and see the doctor again before doing anything else, can be VERY counterproductive.

I remember when they kept doing one medical test after another to my sister, when she was having trouble breathing, always short of breath. First they did lung function tests, then a chest x-ray which showed a problem with her heart. Then they spent almost TWO MONTHS doing tests of her heart functioning, ONE AT A TIME, each time making another appointment with a doctor to interperet the results of the last test before doing another one. (All this while she was gasping for air!) Meanwhile, my sister kept telling them about all the trouble she was having 'catching her breath,' and they KNEW the percentage of oxygen in her blood was low, but they wouldn't even prescribe OXYGEN for her until they were finished doing every single test!

THEN, after all that dilly-dallying they finally did a test that proved one of her main coronary arteries was 85% blocked. SUDDENLY, IT WAS AN EMERGENCY!! They kept her overnight that night in intensive care, and did bypass surgery in the morning.

Go figure...

Sharon

Re: You got to be kidding!

Marty on 1/22/03 at 05:07 (106246)

You got to be kidding!

Re: Pod Visit

Marty on 1/22/03 at 05:10 (106247)

Marie,

Got to admit I'm pretty stressed out, so frustrating because these doctors don't see how fast this is escalating. Anyway I'm a programmer and can stay off my feet for about 6 hours a day at work. There's always the fear that I will have on of those days where I have to put out big fires and would be running around with my head cut off.

I think I might have amp up on the Neurontin to fast. Things are really pretty fussy for me right now. To be honest I'm pretty embarrassed to be coming here in this condition and posting these disconjointed posts.

It's 3:30am got up can't sleep, bet the Pod's sleeping just fine. That wasn't fair nor nice. Sorry

Thanks so much,

Marty

Re: Question

Marty on 1/22/03 at 05:23 (106248)

Question,

I have made an appointment to see a Orthopedic foot and ankle specialist for this Thursday morning. I have not seen this guy and he will be basically starting from scratch with me. Do I cancel this for now and wait to hear back from Pod or go and see what he thinks? He's probably going to want to run the same test as well, maybe not though because I think I have TTS in the chronic stages so diagnosis might be difficult. Tapping on ankle doesn't really do much when the pain is this bad and I guess the Pod thinks the NCV test results are inconclusive even though it say's right on it TTS Syndrome of the tibial baa baa baa, cant remember wording. Who knows. LOL Anyway I've got to cancel today if I do? What you think!!!

Thanks so much,

Marty

Re: You got to be kidding!

Sharon W on 1/22/03 at 09:50 (106279)

No joke, Marty; it really happened. Doctors can really take this 'let's do one more test and then we'll discuss the results at your next appointment' stuff to EXTREMES!

Of course, I do have to admit that my sister is definitely the stoic type. A lot of docors see a woman over 45 and just ASSUME that is is likely to the the 'nervous Nellie' type inclined to exaggerate her symptoms. In fact, I think doctors are GENERALLY inclined to assume that patients exaggerate their symptoms, even when they AREN'T menopausal or post-menopausal women! So, when they come across somone as stoic as my sister, who calmly says that she is short of breath and has been short of breath for months, that it has gotten worse, and that she can't walk up one flight of stairs without gasping for air, etc., they probably assume that she is exaggerating. I don't know. But it makes me VERY MAD just to think about it!!

Sharon

Re: Question

Sharon W on 1/22/03 at 10:39 (106286)

Go see the ortho. What do you have to LOSE, besides your co-pay?? Getting another opinion on this would be a GOOD thing, even if he doesn't agree with the pod or the neuro.

I admist that getting more information can be CONFUSING, sometimes, but it is better than listening to the wrong opinion the first time and never knowing the difference!

Sharon

Re: Question

marie e on 1/22/03 at 11:05 (106287)

Go see the surgeon. Ask your pod for copies of all your tests and dr visits. You need to keep copies of everything. You may need them for diasbility claims later. Send a set of copies to your surgeon ahead of time so he has time to go through them before you visit. It may save on additional tests. I go from one doctor to the next with my copies and MRIs. I have homework assignments for my GPs this week before I go back to see them on the 27th.

Can you get a scooter for work? I have friends that are programmers for Eli Lilly....they are great company to work for if you have disabilities.....Many employees have dogs that help them.

marie

Re: Getting a doctor to really take it seriously

Sharon W on 1/22/03 at 11:14 (106288)

Marty,

If you were a woman, I would tell you that next time you go to the doctor you need to be a real Drama Queen, to put on a big show of pain and frustration and tears.

Under the circumstances I won't use that phrase! But you DO need to SHOW the doctor how much worse you are feeling and how FAST is GETTING worse and how stressed out you are about that. And TELL the doctor that you don't know how much longer you can even keep your job! TELL him what is on the line for you. BEG him NOT TO DELAY in finding a solution for you --ask him to go ahead and do any tests that might apply, ALL AT ONCE, not one at a time. DO NOT say it in a calm, cool voice -- let him HEAR how you feel from the tone of your voice, and SEE it in your face and your gestures. The 'squeaky wheel' gets the grease!

For many people (myself definitely included) putting on a big show of pain and frustration like this really goes against the grain, and is very hard to do. But the truth is: most health professionals, when the WORDS they hear are telling them how bad it is and yet the tone of voice and body language seem calm and cool, will assume that the patient is EXAGGERATING (just as they probably did with my sister). It DOES NOT pay to be stoic!!

Sharon

Re: Question

Marty on 1/22/03 at 12:51 (106323)

thanks

Re: Getting a doctor to really take it seriously

Sharon W on 1/22/03 at 13:04 (106324)

Another thing: doctors are often taught that a patient who doesn't look them in the eyes is trying to deceive them. So LOOK THE DOCTOR IN THE EYES when telling him how much it hurts and how many major problems it is causing in your life. If you are a bit embarassed about talking about pain and so you avoid meeting the doctor's eyes when talking about this subject, he may take that for deceptiveness, not embarassment, and assume that you are probably exaggerating because you want him to sign for disability or some such.

Sharon

Re: Question

Marty on 1/22/03 at 13:36 (106329)

My work is great.... my boss is the best.

I have been battling the paper work trail all day! Seems my GP lost my blood test and urine tests because they moved! Can you believe it. Gave me a number where they should call but to no avail. Got to be some where but wont have them ready for tomorrow. I called the Orthopedics office last Friday and they got me in this Thursday so I couldn't turn it down. Someone cancelled, I told them I might not be able to get all my records and when I called them today and told them I haven't got my blood test they said to come on in anyway.

I sorry I haven't been any help to you or Sharon W. you 2 have really help me out so much!

Thanks,

Marty

Ps. I'm allot less groggy today, I think I'm getting use to the Neurontin increase. :0 Hope I have made some since with my post the last few days, couldn't even tell you if you told what you have and what you have done. I feel bad about that. Hmmmmm as I think for a minute it's coming back ;)

Re: Question

Sharon W on 1/22/03 at 14:36 (106339)

They can easily do more blood tests.

I know what you mean; the one thing that neuro did was tell me to take another dose of Neurontin every day. So, I'm groggy this last couple of days, and making extra typos. I do blame the Neurontin, but I'm sure that effect will pass. It did before.

Hang in there, Marty. A neuroma could actually be GOOD news: they can be successfully treated.

Sharon

Re: Question

Marty on 1/22/03 at 16:23 (106360)

thanks, I blame the Neurontin too :)

Re: Getting a doctor to really take it seriously

Marty on 1/22/03 at 18:25 (106375)

Really good advice once again Sharon! I'm view these post from 2 differant computers so I mess some. Glad I found this !

Thanks

Re: Sheesh I'm getting my coordinates back but?

Marty on 1/22/03 at 18:27 (106376)

I'm view these??? Man what a dope head I am LOL

Re: good luck

marie e on 1/22/03 at 18:48 (106380)

I am glad to hear that you have an understanding boss. I use a scooter occasionally during the day at work to give my feet a rest, it really has helped on those crazy days. The administrators in my building have been great...it was an adjustment for them. Aside from that I am the only one who knows how to work the equipment and software in my classroom. I have a great computer lab. I teach all kinds of computer graphics, animation, film, design, web page etc....they wouldn't know what buttons to push if something happened to me.

Best of luck to you at the docs. I go to my gp on Monday. I want a script for a scooter and a lift for my vehicle. I want to get out and do stuff. I feel so limited now. I cna only ride on those carts at walmart for so long. My doctors have a homework assignment on tts...and they better do it. Leave it to a teacher to give homework to the doctors.

marie

Re: what assignment??

Marty on 1/23/03 at 18:31 (106522)

Marie,

What grade you teach? Computers are my passion. Best of luck Monday at the doctors. My pod has home work too and I called and reminded him but I really don't think he'll remember. I gave the same assignment over a year ago and he forgot. I sure wish I would of pursued it back then! That was over a year ago and I would really be allot better off today if I wouldn't of just got fed up with things. I took the last year off from doctors and just concentrated on trying to work on the stuff I knew about. Ice, stretching, etc. My assignment was for him to call his friend down stairs, Neurologist. Seems that the road I'm going to traveling now. I will post about later.

I will not go to walmart, I love our super walmart so close and all but wow just to get it the store from the back of the parking lot is like climbing mount Everest! Well ok maybe not that bad but close. Being a man I guess it's a bit strange to like walmart but at the same time ain't now way this 6'2' ex-weight lifter going to get on one of those carts!!!!! LOL

Marty