just finding out I have TTSPosted by Terri on 3/26/03 at 20:51 (114722)
Hi, I am just finding out that I have TTS. I just had the Nerve Conductive test and the doctor told me that I had it. My question is NOW What!! I have been in pain with my feet (mostly left foot, but some on the right) for a long time about 3 years. I work standing on my feet all day and I really have no choice. I have to work. I have had surgery for Plantar Facisitis(spck) already. I do have bone spurs also. My foot is a real mess. I can walk and work all day, but have pain all day long but at night is the worst. Is there anything that can be done to ease the pain without surgery? I am alergic to Anti-inflamitories and have already had 5 cortizone shots in my foot area for the plantar facisitis and bone spurs? Please tell me there is something I can do besides surgery. I am really scared to have surgery. Sorry this is so long. Thanks, Terri
Re: just finding out I have TTSBrianG on 3/26/03 at 21:24 (114726)
I would think long, and hard, about any future surgery. It's entirely possible that you now have TTS, as a result of the failed PF surgery. More failed surgery could lead to a lifetime of chronic pain!!!! If it was me, I'd get 2 or 3 more second opinions. There is a compassionate doctor out there waiting to treat your TTS without surgery. It's up to you to find him. If you do get more surgery, get the best surgeon you can afford!!!
And lastly, and probably most important is your job. If it contributed to your injury, and you coninue to do the same work, I don't see how you can expect a cure!!! Is there any way you can be re-trained in your company, to spend less time on your feet? If your at a stationary post, do you have a good quality mat to stand on?
Have you tried Neurontin, or Topomax, yet? It could help.
Re: just finding out I have TTSLara t on 3/26/03 at 21:25 (114727)
I was balking at surgery and my doctor 'gave' ( why do we say 'gave' - I paid for them) compression socks. They gave me back a life. Not everyone things they are magic socks like I do, but might be worth a try. As an added bonus, they are relatively inexpensive and non-invasive.
Re: just finding out I have TTSTerri on 3/27/03 at 06:59 (114744)
Thanks for your replies. I actually walk all day long up, and down isles. I work at a Staples and do there inventory control. There really isn't a job there where you are not standing. I make decent money and have benefits. Something that is really hard to get these days. My husband is retired and has a heart condititon so he can't work, we need the benefits. I really stuck working the job that I am working. I look in the paper all the time for a sit down job. But we need the salary that I make. I am going to ask about the compression socks. Do you know what the deal is with cortizone shots? Is it that you just can't have too many in one particular area? Or just two a year period. What are Neurontin and Topomax?
Are they anti-inflamatories or pain meds? Thanks again for your replies, Terri
Re: just finding out I have TTSjohn h on 3/27/03 at 09:48 (114756)
Lara I used compression socks after surgery and even before. If you think you have TTS then these socks might help. Vericose veins on the inside of the tarsal tunnel which you cannot view can press against a nerve mimicking PF. I had TTS surgery and the Doctor did say I had a vericose vein the tarsal tunnen which he removed.
Re: just finding out I have TTSmarie on 3/27/03 at 10:02 (114757)
Neurontin helps the nerves connect a little better. It has given me back my feet. Also try support hose and/or compression socks. I wear tights and that has really helped. Also you really need to get off your feet. I know your job is important I am in a similar situation....but you may end up much worse if you don't take care of yourself. Many of us here wear a shoe called Birkenstock. They are great...the only shoe I wear now. I am a teacher and am up down and all around. These shoes have also helped.
Re: just finding out I have TTSSharon W on 3/27/03 at 10:51 (114762)
Pain that's much worse at night is very typical of TTS.
The non-surgical treatments for TTS are very similar to the ones for PF: anti-inflammatories, orthotics, steroid injections, physical therapy. One thing that seems to be more often prescribed for TTS than PF is iontophoresis, a technique of using electrical stimulation to 'push' an ionically charged cream containing medication directly through the skin into the tarsal tunnel area. (Be careful, though; not all insurance companies will pay for it...)
Re: just finding out I have TTSLara t on 3/27/03 at 11:05 (114763)
In addition to Birkenstock, which a lot of people here like. DANSKO clogs are also very good.
Re: just finding out I have TTSjohn h on 3/27/03 at 12:10 (114766)
Terri: I have had TTS surgery and it is an out patient procedure. Takes about 30 minutes. About a 7' scar running from the bottom edge of the foot up the leg. Recovery and take several or more weeks. Stitches are usually out in 10 days and you would probably be on crutches.
Having said this there is really no solid gold standard test for TTS. I also had the nerve velocity conduction test but as my surgeon said the only way you really know is to actually explore the tarsal tunnel. I did have a small vericose vein in the tunnel which he removed but this did not cure my problem. If you should decide on TTS Surgery I would recommend an Orthopedic Foot and Ankle Surgeon. Preferably one who has a Fellwoship in foot and ankle surgery who performs this surgery on a regular basis. There are some risk with this surgery as with any but they are woking around the nerves to your foot. I think one of our Doctors can answer this but if you have a shot for PF into the area of your pain (generally where the fascia attaches to the heel) and your pain stops for a day or even a few hours it might be an indication you do have PF . I have seen onlyy a few people post on this board who had what they believed to be TTS that were cured by surgery. It is most difficult to positively diagnose. Wendy was once our resident expert in this area. Put surgery further down on your list until you try some conservative treatments and also continue to treat for PF>
Re: just finding out I have TTSTerri on 3/28/03 at 07:14 (114811)
Thanks again for all your suggestions. I looked up those shoes. Wow, expensive. But I will see what I can do. I will be getting support hose. I plan on trying everything I can before surgery. Does this go away, or is it something that either stays the same or gets worse? Terri
Re: just finding out I have TTSSharon W on 3/28/03 at 08:58 (114813)
For most people, it does eventually go away, although it takes a while... The thing is, there's no one treatment that always works for TTS -- like PF, you just have to keep trying one thing after another until something finally works for you.
In the worst case, if surgery is necessary, I want you to know that TTS surgery IS often successful. There is a risk of getting worse, just as there is with PF surgery, and it takes a long time to fully recover from the surgery, but it turns out to be worth it for many of us who got no relief from other treatments (myself included).
Re: just finding out I have TTSMarty on 3/28/03 at 10:12 (114818)
Are you taking Neurontin?
Re: just finding out I have TTSTerri on 3/28/03 at 15:57 (114831)
Marty, No I am not taking Neurontin. I looked it up on the internet and is sounds like it is for seizures. What are the side effects. Have you had any problem taking it. Is it used for pain in this case or as an anti- inflamitory?
Sharon, Thanks for the more upbeat response. I sure hope that this gets better. It is good to know that that is possible. And good to know that somebody had a good response to surgery. Can I ask you how long your recovery was? I know I am not going to jump into any more surgery, but I would like to know how long it would be before I could work on my feet all day again, if I did opt for the surgery down the road. My doctor said 6 weeks. Terri
Re: just finding out I have TTSSharon W on 3/28/03 at 16:41 (114837)
It depends on what you mean by 'recovery'. Each surgeon has their own timetable they recommend to their patients. You may be able to drive a car after a couple of weeks. In general, if you have an job where you could temporarily do only office duties, you may be able to go back to work in a couple of weeks -- but if it's standing and walking, then yeah, 6 weeks is a lot more like it. It will probably take at least a month before you can even walk wearing a regular shoe on your surgery foot, without crutches or cane or anything. And it will probably take 3-6 months before you are really healed... in fact, sometimes it can even take as much as a year or two. It depends partly on the amount of damage the TTS itself has already done to your nerve, partly on the skill of your surgeon, and partly on how your body responds during the healing process (some people do form neuromas or excessive scar tissue around the nerve after a surgery like this).
That's why people who've been through it may tell you, don't have the surgery until you've tried EVERYTHING else!
In my case, it was about 7 months before my doctor 'discharged' me from the TTS surgery -- but it WAS successful, and that's what matters most...
Re: just finding out I have TTSmarie on 3/28/03 at 18:23 (114846)
When my doctor told me this might take a couple of years to go away I thought he was crazy. It does take time and it's difficult when your in pain to have any kind of normal lifestyle. I know that the birkenstock shoes are expensive but they are worth the investment. Try a simple pair of clogs or sandles to see if you like them. I also like easy spirit. When I was at my worst I really needed pilows under my feet. Also over the counter vitamins I take and many others are glucomyacin, MsM, and magnesium. Some doctor's also suggest B6 and B12. It takes about 3 mos before you may notice a difference . I noticed it fairly quickly. Best of luck to you. And don't forget to ice...I keep frozen peas in my freezer. Ice 2-3 times daily for about 5 minutes. Also get your hubby to massage your feet and calves daily for a couple of weeks. Absolutely do not massage directly over the tts site.
One other thing I do is I use a progesterone cream on my feet and knees...I am post menopause (very early) I don't know why but it has worked well can't do without it.