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MOre evidence of lack of awareness

Posted by lara t on 4/09/03 at 11:14 (115762)

I was going to call it 'more complaining' but I guess I should be glad it is now recognized as a syndrome. That wasn't true for our parents. Nonetheless, I was trying to find more info on 'pulsed RFL' which someone mentioned, and came across a message board on neurological problems, run by Harvard something. There was a list of several dozen topics -but not TTS. I've included the URL in case anyone is looking for other neurological info - I think some people come looking looking for something and find out it isn't TTS, but probably nerve-related.


Re: MOre evidence of lack of awareness

Mar on 4/09/03 at 20:03 (115799)

Lara -

I was the one who posted about the pulsed RFL. I found several sites with info, but only as it is used for the back/spine not feet. the Pain Management doctor I saw has done it hundreds/thousands of times on the spine/back/neck/shoulder but never on the feet. he wants to do it on my feet. Saw pod today who does regular RFL and he doesn;t think it is a good idea to go into the tarsal tunnel to do it, which is where the Pain doc wants to go. So I don;t know anyone who has ever done it on feet and I don;t think I want to be the first!! I may opt for the regular RFL. Mar

Re: MOre evidence of lack of awareness

Pam S. on 4/09/03 at 20:53 (115801)

What is RFL?

Re: MOre evidence of lack of awareness

Mar on 4/10/03 at 08:39 (115834)

Pam --

Radio Frequency Lesioning -- here is the description from Dr Cozz's website -- http://drfoot.tv/html/technology-2.html#srftl Mar

Re: MOre evidence of lack of awareness

Sharon W on 4/10/03 at 22:17 (115918)


I think we've talked about this problem before -- it does seem really strange, doesn't it, that for most medical practicioners the human body almost seems to stop at the ankles?? Your example is a good one, but it's only one of MANY situations where it is obvious that feet are simply 'left out' when health issues are being considered. :(

Way too many people turn to their family doctors when their feet start to really hurt, and don't get referred to a foot & ankle specialist for FAR too long. It really isn't the fault of individual doctors, though; I don't think they are taught much about feet when they go to med school. Then they go out there in the real world, and discover they have all these patients coming to them with foot pain. ...What's a doctor to do? :-s

If they don't want to take the time to study up on feet, yet they also don't want to admit they don't really know how to treat the problem, some doctors will just 'wing it' (suggesting ibuprofen or ice or whatever) -- trying to SOUND like they know plenty about feet... Or else (worst case) some doctors actually 'blame the patient' x-( -- implying that her foot pain is probably wildly exaggerated or completely imaginary! =;

Oh, well........... 8-(PIPE) I'm just very glad that there ARE doctors out there who care enough to learn about treating people with TTS and other foot problems. (What would we do without them?) >:D<


Re: MOre evidence of lack of awareness

Pam S. on 4/10/03 at 23:15 (115919)

Great point, Sharon, when I was going through all this with the fibromyalgia I really learned alot about the whole field of medicine and how it truly is not an exact science and there is alot drs. do not know. I realize there is alot they DO know but I am one of those 'tough eggs to crack' as my internist has said to me.
I asked my internist recently about the PF and he said no one knows why it happens, take the neurontin and live my life. That is exactly what i do. Like it or not. I do like to UNDERSTAND things that are happening to my body. I know you are the same way.
Even the foot/ankle ortho who is so well known has nothing more to do or say to me unless I opt for the surgery. I have truly learned more on these posts than if I had gone to 5 different pods.
I just accept the fibro and have learned to manage it thru stretching and massage and meds. That is an such a long story. It is interesting , however, that the onset of the foot pain, nerve pain all of that happened at the same time. Maybe the surgery threw me into the fibro but before the surgery I was really struggling big time. I could go on and on but I need to go to bed. I am a night owl. Thanks. Hope all is well

Re: MOre evidence of lack of awareness

Sharon W on 4/16/03 at 18:49 (116345)


It seems many of us here are night owls! ~o)

Then, in the morning, we pay the price for it -- we're likely to feel half dead... 8-X