1 year post op; no goodPosted by AKC on 4/21/03 at 09:11 (116662)
Im 1 year post op from TTS/PF release. I am no better now than
1 year ago. Surgical foot slightly more pain than non-surg foot.
9 months after surg, I went to a good nerologist at a very good
teaching hospital who said I never had TTS. Prior to surgery,
a neuro said I had it, the podiatrist said I had it. (Does anyone
get it right in this buisiness?)
FYI: I had the 'Dr Dellon' procedure; my doc was trained by Dellon.
Dellon's Sensory machine said I had TTS.
I've had PF for 6 years. Currently (and for last 3 years) I have
not been able to walk around the block. I do my Grocery shopping
in the old-person's electric cart. I continue to stretch everyday
(can't get out of bed w/out it). ONly exercise I get is swimming,
and some biking.
I'm not depressed, or complaining, just giving you an update on my experience. Been living w/this long enough to manage it.
Re: 1 year post op; no goodLinda on 4/21/03 at 15:33 (116715)
I am over a year post-op on both feet for p/f and tts release. I am a little better. I now can go almost 15inutes without pain, but then the pain gets so bad it is almost crippling. i have been out of work since sept 2001 because i am a personal trainer,and i am on my feet the whole time i work. I have now come to realize it is definitely time to change my profession.
good luck in your recovery,and I hope you see a little more improvement. I have just finished physical therapy on April 1oth. Not by choice, my medical insurance was terminated. As soon as i stopped therapy, i dropped to 15 minutes pain free. I was almost 30 minutes pain free.
Re: 1 year post op; no goodkay on 4/21/03 at 19:13 (116742)
AKC, I too had tt/pf surgery last June and no better at all. I am now seeing a pain doc who only gives me ultrams and NSAID drugs.
ALSO I am wondering if I ever had tarsal tunnel. No test was given to me prior to my surgery. I recently talked to a guy who only had the pf surgery and he has real relief from his pain.
Why can't they fix this in my feet??????
MY dad has two new knees.
They give new hearts to people.
Re: 1 year post op; no goodPam S. on 4/21/03 at 22:42 (116767)
When you stop to think about it, this whole thing is so bizarre I cannot believe it. This really does not seem to be Rocket Science. I feel so totally upset. I am sorry all of you are still in pain. I am sure there are people out there with success stories. We are just people still in pain looking for answers. Are we in the minority? I do not understand why foot issues are so complicated?????
Re: The importance of an accurate and complete diagnosisSharon W on 4/21/03 at 23:47 (116772)
I think part of why foot issues are so complicated is the difficulty in diagnosing them properly. Often times the symptoms that you have may be from one of several causes, and the doctor has the responsibility to distinguish between them. If he makes a mistake, and calls it TTS when it was really PF, or calls it PF when the problem was really TTS, or calls it TTS when it was really peripheral neuropathy, or calls it TTS when it was really RSD, the patient may be trying to live with a painful condition WHILE BEING TREATED FOR THE WRONG THING!
It especially bothers me when doctors order surgery without doing any of the appropriate tests to make sure the diagnosis is really correct! PF surgery won't do you much good if what you really had TTS, and TTS surgery won't help if the problem was PF. No amount of surgical skill can make the procedure a success IF THE SURGERY WAS BEING DONE FOR THE WRONG THING!
I think it's horrible when doctors do TTS surgery without at least doing nerve conduction tests, and preferrably also a foot MRI or a diagnostic ultrasound of the foot and ankle. If ALL surgeons insisted that those tests had to be done before they would cut, I bet fewer people would be complaining that their surgery didn't work.
OK, that's my 2 cents... Probably about all it's worth, too, but making sure you've got an ACCURATE diagnosis is my current soapbox subject...
Re: NCV etcAKC on 4/22/03 at 07:47 (116777)
FYI: I had Nerve Conduction tests 3 or 4 years in a row (every Christmas!).
The last one, done by a reputable neuro (prior to 2nd surg), said I had TTS.
I had 2 MRI's done in the last 2 years. One before my TTS/PF surg,
and one done after. All it showed was 'chronic inflammation'.
I've had ultrasound, done by the Physical therapist, for MONTHS.
All this was done PRIOR to my TTS/PF surgery.
Belive me... I've done it all. My feeling... Doc's dont know
how to treat this. End of story.
Re: The importance of an accurate and complete diagnosiskay on 4/22/03 at 07:47 (116778)
When my doctor said I had tarsal tunnel I believed him. When he wanted to do surgery for it as well as the p.f. I had no reservations. If I knew what I knew today he would not have done that surgery without the nerve conduction test. After all they do that before carpal tunnel surgery don't they?
Truthfully I feel like suing the jerk but how would that help me?
Where do I go from here?
When I saw a woman running on the beach on t.v the other night I couldn't help it,,,,,I started crying.
Re: NCV etcSharon W on 4/22/03 at 08:30 (116788)
Perhaps I left the impression that I think a wrong diagnosis is the ONLY thing that can go wrong with TTS or PF surgery... It isn't. But I do think it helps to at least get as accurate a diagnosis as possible (that means having the appropriate tests done & also probably getting a second opinion), before letting someone cut on your foot. I'm just APALLED at the number of posters here who have had surgery but DIDN'T ever get any of those tests done. But it isn't, and it SHOULDN'T be, the patient's responsibility to get those tests done -- it's a lack of thoroughness on the part of the doctor.
Re: NCV etckay on 4/22/03 at 08:41 (116791)
Right Sharon. Someone ask me once why I didn't get the test. I am not a doctor, I didn't know. He is the doctor.
AKC....Do you have any nerve pain from your tt surgery?
Re: NCV etcAKC on 4/22/03 at 12:43 (116818)
Thats the thing..... I never had true nerve pain before the surgery.
I dont have it post surg. What I had, and described to the doctor,
is extreme ache in the PF region, and at the time, I could barely walk.
I told the doc I never had burning/tingling. I did have occasions
of warm feet, especially in the middle of the night. I had mild
Tinel's sign (dont have it now).
Re: The importance of an accurate and complete diagnosisPam S. on 4/22/03 at 13:56 (116823)
But is just seems as you all have said before, TTS is just so hard to diagnose and there is no 'Gold Standard' test. I am noticing many posters saying they had positive nerve tests, had the surgery and are no better. That is scary but we do not know the skill of the surgeon etc. I have a feeling all of us go to the best surgeon we can find. It just seems getting the 'correct' diagnosis is really a challenge.
Re: NCV etcBev on 4/22/03 at 17:38 (116853)
Sharon & Kay, It is not our fault that we do not get adequate care , it is the uncaring doctors out there =:) . I was visiting with a girl at my sons church Sunday who fell in the parking lot at work and injured her foot and ankle (she worked at a hospital) , she was in a LOT of pain for a very long time :(( All this time she was continuing to work and going to doctors trying to get a diagnosis of her pain ( x-rays were o-kay) and they said all she was trying to do is get off work and onto workmans comp and they were not going to be a part of that. One doctor told her all she needed were orthotics and that 'her kind' never get better. She asked him what he meant by 'her Kind', and he said 'you comp people' never get better'. She went to SEVEN doctors and she BEGGED for an MRI and tests and all she got was the royal run-around . She finally found one in Grand Rapids who listened to her and did an MRI and found the problems and she required extensive reconstructive surgery to her ankle and foot . She was in a cast and completly off her feet all last summer. She said the same thing , that she saw people outside walking and she would just sit and cry. So often it is not our fault that we do not get good care --- we do try -- the doctors just do not care :( So there -- I said my peace :> Have a good evening everyone. Bev
Re: 1 year post op; no goodBev on 4/22/03 at 17:44 (116854)
Linda, One year post-op and only pain free 15 minutes at a time ??? OH how awful :(( . Is there ANY hope out there for the rest of us PF'ers :-/
Re: NCV etcSharon W on 4/22/03 at 18:00 (116855)
Sadly, I cannot disagree with anything you just wrote. I want to, but I can't.
I try to tell myself that at least there are SOME doctors who are in the health care business because it's a way that they can earn a good salary AND help other people. It is unfortunate that there are not more doctors who care about the '...AND help other people' part.
Re: 1 year post op; no goodPauline on 4/22/03 at 22:22 (116880)
Sorry to heal about your failed surgery. At any time did you ever consider seeing Dr. Dellon for an evualation? Like others who posted before me I have to agree the best surgical outcome only come from accurate diagonosis and competent doctors. Unfortunately you had neither.
If you didn't have TTS in the first place have you considered doing anything in court with your case? It's something you may want to consider.
If someone treated you for a retina tear that you didn't have and you suffered some sight loss you might 'see' things differently. Sometimes I think we don't feel our feet are as important as other parts of our body.
Re: 1 year post op; no goodLinda on 4/23/03 at 06:16 (116892)
Hopefully you guys will have better luck. My advice to you all is if you haven't had surgery yet,don't. If i could go back,i wouldn't have had either surgery.
Re: 1 year post op; no goodtrish e on 4/23/03 at 08:38 (116901)
hello everyone it has been awhile since i have posted, but after reading the first couple i felt i had to put my 2 cents in.I had a second surgery on the same foot on the 31st of dec, because of all the same reasons as you had severve pain unable to return to work, just always in pain so I went to pain clinic and the doc there sent me to who they call an expert foot surgeon, so he said he would try and fix the problem but could not garentee it would help. guess what (it didn't )i stay have pain when rising from a sitting or laying postion,swelling,the tingling like you are being shocked,very senitive to touch, even the sheets bother it my hushand now sleeps on the couch he says he can't sleep next to me because all night i moan and groan kick the surgery foot.well i could go on and on but this is to long now ,i went to the dr monday and he looked at my swollen fot said you need surgery,increased the neurontin and wants blood work done. iam so sorry i got this done i have lost my job,i now have to find another postion which at 50 i don't think will be easy. So just remember there are other ways to fix bad feet other than cutting on them. good luck to all of you.sorry its so long and the spelling is a mess.
Re: 1 year post op; no goodBev on 4/23/03 at 12:00 (116927)
trish e , Did you have any ESWT treatments done before having any surgery done at all ? I feel so badly for you , it is so hard for us being in this position and employers and doctors do not seem to understand nor do they seem to care to even try to understand either. Keep in touch, Bev
Re: 1 year post op; no goodLinda on 4/23/03 at 15:07 (116940)
I was supposed to start ESWT treatments,but couldn't because i am starting radiation treatments on a tumor i had removed from my arm on march 24. the doc says he wants to wait till i finish radiation
Re: You have rights !!BrianG on 4/23/03 at 18:04 (116955)
Pauline is right! I cringe when I read threads like this. Just remember, if there is malpractice, there is something you can do about it. One site I know of is:
I tried to access their web site tonight, but it seemed to be down. I think it's probably temporary, as they have been in business for quite a while now. They are Podiatrists, who also pracice law.
One last thing, don't wait too long, there are statute of limitations in all states. It's usually 2-3 years.
Re: 1 year post op; no goodtrish e on 4/24/03 at 07:00 (116978)
thank you Bev for the kind words and yes i agree about them not caring,and no i had no ESWT before my surgery. i start therapy tomorrow for the sensitivty,well stay in touch and again ty. have a great day.Trish
Re: 1 year post op; no goodAKC on 4/24/03 at 07:30 (116981)
Dellon and I emailed each other a few times. He asked that
I go see him if I were in the area. This was one year ago.
Currently, I'm doing OK (manageable) so I have no intentions of
I don't feel that I should be suing anyone. I wanted help, and
a doctor offered it to me. Some tests showed +TTS, so I honestly
belived he did try to help me. But I also belive that doctors
like willing guinea pigs (to try their latest techniques).
Re: 1 year post op; no goodSharon W on 4/25/03 at 00:15 (117046)
I agree 100% with your comment, 'Sometimes I think we don't feel our feet are as important as other parts of our body.' But it isn't just patients who feel that way; in fact, we are led to feel that way by the attitudes of many health professionals.
How many people who've eventually found their way to these boards, did so after many months, sometimes YEARS, of not even being referred to a foot and ankle specialist?? How many people in terrible pain from PF and other conditions have been told, sometimes by one doctor after another, that their foot problem 'should' go away on its own so just take some ibuprofen or whatever when it bothers them? How many people who've returned to their doctor to complain that the pain has gotten even worse, have heard 'that' tone in the doctor's voice, wordlessly implying that they are obviously hypochondriacs and they're just wasting the doctor's time?
I'm one of the lucky ones; it happened that my family doctor's MOTHER has PF, and she recognied that I needed to see a podiatrist right away. I wish everyone had the same good fortune, but it doesn't always happen that way. I think most doctors have probably never even THOUGHT about the fact that feet are the foundation of the body. If the foundation of a person's house is damaged, most people realize that is a VERY serious problem indeed! Well, if the foundation of a person's body is damaged, I that is an equally serious problem...
Re: 1 year post op; no goodBev on 4/25/03 at 08:24 (117057)
Sharon, My GP himself has PF and he said ' I have it to and I run around all day on concrete floors all day too, and I bought Rockport shoes and I have no problem working' (HAHA-- he sits on stools and sits in his office 90% of the time!!!!!!) SSO that did not help my case at all - - he still poo-poo'ed me off --- boo-hoo.
Re: 1 year post op; no goodtrish e on 4/25/03 at 08:31 (117059)
question , i was informed yesterday from my attorney that i was released to return to work ! can i do damage to my foot walking on it 12,i can't beleive my dr did this i can just now walk about 2 hrs and than my foot swells,shooting pain, plus in me job you need your mind open and clear and the neurontin has taken over my memory,i don't feel prepaired to take on the risk of hurting someone,the neurontin does make my hands shake,i draw blood on patients, iam just really up set thanks for listening
Re: 1 year post op; no goodSharon W on 4/25/03 at 08:35 (117060)
That BITES! Probably the doctor knew that insurance (especially if it's workmen's comp) would never pay for longer than the time you've already been off since your surgery. Those 'allowed' recovery times are NEVER adequate for optimal healing.
Re: 1 year post op; no goodtrish e on 4/25/03 at 08:44 (117062)
yes it does bite,because i was on long term disabilty and my attorney said do the comp thing,i just called the dr's office and left a message saying there was no way i can stand for 12 hrs straight,thank you sharon for answering iam not suprized about the returning back to work as much as my doc saying full duty no restristions,so l will go now this 2rd foot is now 4 months post op.
Re: The problem with being a "chronic case"!Sharon W on 4/25/03 at 09:03 (117066)
You make a good point, another thing that people with painful, chronic PF are up against is the fact that a lot of patients have had a mild case that went away! There really ARE a lot of people out there who once suffered from PF but now can get by quite nicely by just wearing good shoes (or sometimes orthotics) and maybe swallowing a couple of Advil now and then. And of course, it's WONDERFUL that so many patients have recovered from PF (!) but it does cause people whose PF has taken a chronic course to be seen with more suspicion and skepticism (sometimes even contempt). :(
Your GP obviously had a much milder case of PF than you do. He is probably among the 90% of PF patients who had it bad enough at one point to require some treatment, but that treatment was successful and the PF pretty much went away. All he has to do now is wear his Rockports to prevent it from coming back. His situation clearly is NOT very similar to yours. (Besides, I'm sure you're right that he isn't on his feet as much as a nurse is!) 8-(PIPE)
Re: 1 year post op; no goodPauline on 4/25/03 at 12:47 (117101)
You certainly hit the nail on the head with your post. After dealing with many various Dr. for treatment of P.F. my conclusion is that in the world of medical problems P.F. is pretty low on the treatment scale.
Seeing an Othopedic Surgeon is like having acne and being treated by a specialist who removes noses due to cancer. We're a pimple looking for treatment when their looking for reconstructions jobs.
On the other hand the Podiatrist is glad you came, and will ask you to return as long as needed because he doesn't have those big remodeling jobs lined up. He's building residential homes, not mega malls.
The actual protocal for P.F. treatment usually end up the same, but I think in the overall scale of medical problems seen the in the world today we still look like pimples.
This is not to say we don't need treatment, we just don't have an emergency status.
Re: 1 year post op; no gooddave r on 4/25/03 at 13:41 (117108)
I use to be on my feey for 12 hours a day. On concrete with no breaks. I did that for 13 years. When i got pf i dealt with it for 2 years. My GP also had pf. He tried to help me but i only got worse and worse. It was very obvious that i would have to quit or find another position in our company. I lucked out i guess. It turned out that my vice president also had pf for 5 years. He knew exactly what i had and was pretty understanding. So i was offered a desk job with lower pay of coarse....
Re: 1 year post op; no goodPauline on 4/25/03 at 13:45 (117109)
A good example of 'you've got to have it to appreciate it'.
Re: 1 year post op; no gooddave r on 4/25/03 at 13:48 (117110)
How right you are Pauline. I still have 'it'. Probably will for a long time to. But at least i have adjusted to it and i am able to manage it the best that i can. Does pf still control my life? Yes!
Re: 1 year post op; no goodBev on 4/25/03 at 13:56 (117112)
Trish e, What kind of work do you do? Are you on workmans comp and they want you off now is that the problem?
Re: 1 year post op; no goodBev on 4/25/03 at 13:58 (117113)
What are you going to do now Trish?
Re: 1 year post op; no goodBev on 4/25/03 at 14:13 (117115)
Pauline, Does your post mean to say that there is really no real hope out there for us to really find the adequate help out there we all need and crave for our PF :((
Re: This gives me hopeSharon W on 4/25/03 at 14:42 (117119)
The doctors here on these boards are proof that there ARE some foot and ankle professionals out there who not only try to keep on top of all the latest developments for treating PF and TTS and PN etc. but these doctors also CARE enough to spend large amounts of their (limited) free time answering our questions here! They show both concern and compassion to people who post here, and they clearly do believe in being thorough and in obtaining an accurate diagnosis. I'll bet they are the same way with their 'real' patients. Doctors like these may be hard to find (understatement!) but they do exist...
Re: This gives me hopeBev on 4/25/03 at 15:32 (117126)
I know, I only wish wish we could clone them :D