Bev, how are you?Posted by Suzanne D on 6/12/03 at 17:08 (121677)
Bev, I just now saw your post of three days ago on the Ask the Foot Doctors message board. I was so sorry to read that you did not have a good experience with Dr.#5! After you take such care to send all your records ahead, and once again they aren't even examined before your appointment, I can see how you would be frustrated. And not to know still what your diagnosis is...
I just wanted to let you know I am thinking of you! @};- I hope you can get some answers soon.
Re: Bev, how are you?Sharon W on 6/12/03 at 17:25 (121680)
Absolutely, Bev deserves to get some answers soon! Although her recent experience with Dr. #5 sounds like it was both frustrating and discouraging, he DID recommend she see a pain specialist and be evaluated for nerve problems -- that could turn out to be a GOOD thing, in the long run.
Anyway, I, too, have been thinking about Bev.
Bev, if you're reading this, I hope you're having a good day...
Re: Bev, how are you?marie on 6/12/03 at 19:57 (121693)
I know just how Bev feels since I was on the DX journey myself for two years. When you go undiagonosed for a long time with chronic pain you get your hopes up that the next doctor you see is finally going to be your hero and give you a dx and begin some type of treatment. Unfortunately doctors aren't heros on a white horse they are just human beings in a white coat. I learned to speak up, take someone with me to my appointments(I am like a cat in the headlights when i am in the doctor's office so I need someone who will ask questions and take notes), and most importantly realize that sometimes the doctor's advice is right on although it just wasn't what I had hoped for. I had to ask myself was I upset because he didn't tell me what I wanted him to say. I think when you're in chronic pain it's difficult to stay focused.
Bev....go to the pain specialist. Do what you need to do to feel better. And know that we all care alot about you here on the boards.
Re: Bev, how are you?BevN. on 6/13/03 at 08:16 (121736)
Thankyou for your concern, that really helps me to know someone cares. Yes, it is really frustrating going from dr. to dr. , however reading all of your stories out there, many of you have been through a whole lot more than I have . This last Dr. thinks I have RSD now and wants me evaluated at a pain clinic. He said that he can not do ESWT for my chronic PF at this time if I do have RSD as the ESWT would aggrivate the RSD. I really do not think I have RSD as my symptoms are not as severe as what I read RSD symptoms are , but the doctor thinks so(or he is just passing me on to get rid of me as all the other doctors have done to me) so I have an appointment on August 14th with the physiatrist. He did give me ultram for the pain though. I did have to resort to a cane though as I did not want rumors about the 'drunk that lives here' to get startd as I am pretty shaky walking now when I go anywhere.
I too am waiting for the nice weather so I can be outside and enjoy the sunshine. My daughter and I are hoping to plant flowers next week, it should be warm enough by then :> Your turtle pond sounds so nice, it is great that you are able to be out enjoying your yard. We have a beautiful yard too, I hope to be able to do a few little things , plant a few flowers, but hubby will have to keep all the hedges and trees trimmed , I will sit on the patio and serve the ice tea :) You have a nice day and thankyou for your concern :) Bev
Re: Bev, how are you?marie on 6/13/03 at 09:36 (121740)
I was using a cane just a short 6 months ago. Although I didn't need it to walk so much it was of great value whenever I had to stand for more than a minute or two. After about 3 minutes my legs would begin to shake and feel like jelly. I was lucky to have found an foot and ankle doctor that stepped up to the plate for me and nicely told my GPs to quit sending to every specialist under the sun and start treating me for my tts.
My hubby is about to wring my neck as I have planted so many new perrenials and have made so many plantors. I told him I was making up for last summer. I was lucky to walk 15 feet. I stoped down to pull a weed last summer and was on the sofa for a week trying to recover from that. I found a little gardening aide for handicap folks that allowed me to do a little work in the garden and not destroy my legs. It is like a kids scoot toy. Once my hubby found out how nice it was he bagan using it too.
Well you do whatever you need to do to get well. Serving tea sounds wonderful to me!!!!
odios amiga, marie
Re: Bev, how are you?BevN. on 6/13/03 at 09:51 (121743)
I bet your beautiful victorian home would be easy to find now -- the one with the most beautiful flowers and planters blooming in all of Steuben county , right :)
Re: Bev, how are you?marie on 6/13/03 at 09:55 (121745)
Re: Bev, how are you?Kathy G on 6/13/03 at 10:22 (121747)
I hope the Ultram helps. If you read my post to Sharon below, you'll see how much it helped my brother-in-law. A definite diagnosis would be so nice for you. It must get so frustrating to have these problems and have no definitive reason. I hope the physiatrist helps you.
I didn't see your post on the Doctor's Board that Suzanne picked up on. I'll have to read it.
I planted my annuals on May 20th which was earlier than I should have. I usually wait until the 31st but there was so much rain in the forecast, I just wanted to get them in the ground. And that's about all they are - in the ground. With the terrible weather we've been having, they are getting no sun. They don't grow; they just stagnate. At least they aren't rotting, so far. What a terrible spring we've had!
I don't have a whole lot of perennials. I have a circle in my front yard that I used to mass plant with impatiens and I liked the impact it had. This year we had to cut down a tree so my circle is now in the sun. I planted it with Wave Petunias which make a big splash and need little care. Now if they would just take off! They're forecasting sun for Monday so it's just a few more days. On a positive note, my Clematis is huge and just covered with buds so I'm hoping for a good display this year. It took forever to come into its own but the last couple of years, it has been glorious!
Re: Bev, how are you?BevN. on 6/13/03 at 13:27 (121767)
Sounds like you have been busy planting too , everyone but me , I had better get caught up :) But it is still so gloomy here , no sun and cool out, can you believe this weather ? We have grandsons ball game tonight, hope it isn't too cool .
The stingy doctor only gave me 25 ultram and no refills, get that. What's with it? So I will only take one if I have to go anywhere I guess.
I have other stuff to take in between times. I don't even know if our insurance will cover this physiatrist I have an appointment with in August , however I am so tired of being shoved around for the last two years and treated like I have leprosy , that I am desperate to try about anything. I surely should not complain, you have been through a heck of a lot more than I have, that's for sure , I just don't like being disabled, I am used to being on the go 24/7 . Oh, well, that's life. You have a very nice day, Kathy :) Bev
Re: Bev, how are you?Sharon W on 6/13/03 at 13:39 (121769)
A lot of docs don't like to do refills on painkillers -- and I imagine this guy thought 25 Ultram should be enough to last you until you got to a pain specialist. (So little he knows about pain, it seems!) But Ultram is really good for nerve pain. Are you getting a lot of relief from it, when you do take it?
Be sure someone else is driving, after you take an Ultram!
Re: Bev, how are you?BevN. on 6/13/03 at 13:55 (121771)
I just picked it up the Rx yesterday . Usually if I have to go anywhere in the afternoon or evening I am in enough pain that I will need to take one , I always had to suffer through the pain but I am hoping this ultram will help me now, as nothing else would cut through the pain. Either my daughter or my hubby drives , I don't go many places on my own much anymore , I have pretty much become a hermit :( One of these days I will get out and go visit friends :) Bev
Re: Bev, how are you?Sharon W on 6/13/03 at 17:11 (121787)
I really hope that the Ultram will help you. But Ultram is usually prescribed for about Q6H, PRN. If you were taking 4 per day, you'd go through them in just 6 days -- and then you'd have no pain meds to help you at all! So, I guess you're wise to save them when you're going out and will be on your feet (and therefore in more pain) -- or when you can't get to sleep -- or when, for no reason whatsoever, the pain just becomes overwhelming.
Even then, for someone in as much pain as you're in, it would be VERY easy to go through 24 Tramadol in one month -- and it will probably take more than a month to get someone to figure out what's wrong so you can (hopefully!) get some REALLY effective treatment.
Re: AARRGGH!Sharon W on 6/13/03 at 17:14 (121788)
What I meant to say about the Ultram was:
'I guess you're wise to save them FOR when you're going out and will be on your feet (and therefore in more pain) -- or when you can't get to sleep -- or when, for no reason whatsoever, the pain just becomes overwhelming.
Re: Bev, how are you?Sharon W on 6/13/03 at 17:15 (121789)
By the way, Bev, I sent you an e-mail.
Sorry about the 'blooper'!
Re: for Bev...Suzanne D on 6/13/03 at 17:34 (121792)
I am glad to read that you are still 'hanging in there' and making plans for pretty flowers for your yard. It does help to keep interested in things and to keep doing things you enjoy, doesn't it?
I wasn't sure if you read the message board using the index (the only way that I can keep posts straight!) or the reverse order features, but I wanted to make sure you knew I was concerned, too. Not that I'm trying to take credit for starting the thread about you, but in case you didn't look from the index feature, you might not have seen how many of us were asking about you.
You are always positive and show such empathy for others; we want you to know we are concerned for you!
Re: for Bev...BevN. on 6/14/03 at 16:56 (121874)
Thankyou very much , it makes me feel so nice to know someone cares. I was a little 'down' today because I was offered a wheelchair and my hubby went and picked it up for me . He took it out side in the sunshine and scrubbed it till it sparkled . At least now I will be able to go to the 4th of July festivals and other things that come uo that require a lot of walking, instead of just staying home as I was doing, but it is kind of depressing too :( But my little grandson said 'that's okay, dramma, I will sit on your wap and we can ride together' so he made me feel better :) Between all of my friends on this board and my family, I will get through this okay, right :) Thankyou, Bev
Re: for Bev...Sharon W on 6/14/03 at 18:56 (121882)
Your little grandson sounds ADORABLE!! I'll bet he's the light of your life...
Re: for Bev...Suzanne D on 6/15/03 at 14:35 (121934)
Bev, your grandson does sound adorable! And he's got the right idea; he knows that for you to be with him is more important than how you have to get there. But I know it is depressing. Sometimes it seems that we'll always have foot problems no matter what we do, doesn't it? I am so much better, and yet, I took a 1 mile walk Thursday and another Friday, and I had pain yesterday which I hadn't had in a long time. So...I'll slack off on the walking and keep doing all the 'right' things for my feet. Wouldn't it be nice to be able to throw caution to the wind and just do what we wanted to do for once?!
I'm glad with the wheelchair that you'll have a way to go the places you want to go this summer. And I hope you'll soon have some answers to your foot problems, Bev. [-o<
Re: for Bev...BevN. on 6/16/03 at 10:03 (121988)
Are you enjoying your summer off so far? Being a teacher has it's benefits, summer and holidays off, right , but you surely deserve it as it is the toughest job there is . Any plans for the summer other than just sit back and enjoy ? We finally have nice weather so I have been outside reading and soaking up the sun too. Have a great day and don't go walking if those footsees of yours hurt, okay? :) Bev
Re: for Bev...Suzanne D on 6/17/03 at 07:46 (122086)
Thank you, Bev. I am holding off on any more walks for now. Hope you're feeling better!
Actually, my summer is rather busy this year. We're off for a little less than two months with our alternative calendar. My newly married daughter and her husband have bought a house, and so we've been helping them some in their move from the apartment. She's also been hired to teach fourth grade, and that's another job of setting up a room. Of course I'm letting her borrow some things! :) My 17-year old daughter is spending 5 weeks at GSP (Governor's Scholars Program) at a KY college (Tammie, if you're reading this, it's where your son goes to school!) So, she and I have been making lists and getting things together. My house is still full of things from the wedding which need to be put away somewhere, but of course all of this involves the FEET! (Doesn't it always?!)
Thanks for your messages.