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On the lumps

Posted by wendyn on 6/17/03 at 20:39 (122179)

For any of those who are still curious..the continuing saga of the unexplained shin lumps continues...

Saw the orthopedic foot and ankle surgeon this morning. He was quite nice this time (so I have to take back all the nasty things I said about him).

He will not look at my bunions, he still wants me to see the ortho who did the surgery on them before (must be some doctor code - don't touch anyone else's bunions?) He will refer me back to her for those.

For the lumps - they have moved off my shin bone - onto the side where the muscle is. He thinks it may be a herniated muscle (nothing you can do about it). As for the ones I get over the bone - he doesn't know.

Suggested xrays of both of my tibias, and another bone scan (I've had 3 bone scans in the last 6 years already so I'll have to think about this), as well as more blood workup to rule out systemic causes (i.e. lupus...I've had all these tests at least once in my life time). He is sending me back to my family doctor with these suggestions (since it is not an orthopedic problem)

So - he has no answers...and we continue on!!!

Re: On the lumps

Sharon W on 6/17/03 at 23:21 (122193)


That all sounds SO very frustrating! I know how maddening it can be, when all the tests are coming back normal, and yet you KNOW something is wrong... At least, these lumps are something that your doctors can see and touch and document, so noone is likely to tell you it's all in your head -- that helps.


Re: On the lumps

BevN. on 6/18/03 at 07:14 (122203)


I too feel for you, having to go from dr. to dr. again with another problem. Those lumps are really strange , wonder what it is :-/ You will have to keep us informed as to what your GP has to say, okay . Have a nice day today :) Bev

Re: On the lumps

marie on 6/18/03 at 07:38 (122208)


It is so upsetting when the docs don't have answers. More tests. How many tests are out there? It always seems never ending. Well I hope you find the answers soon. I am very concerned about all these lumps...please let us know how you are doing. Good luck...we'll be thinking of you.


Re: On the lumps

Suzanne D on 6/18/03 at 18:00 (122283)

Sorry, Wendy, that no one can pin down the cause of these lumps. Hope before too long they can be resolved.

It seems in this age of specialists that you need to see someone for each thing wrong with you. I understand that for the most part, but I always think back on my friend's situation when she had a gravely ill baby who later died. They knew Emily's time was going to be short and tried so hard to be brave and take the best care of her possible.

Once, while she was hospitalized, the mother (who works for a pediatrician) told the cardiologist that she thought the baby was congested and asked if he could listen to her chest and perhaps prescribe an antibiotic. He said that the lung specialist would have to do that. He wouldn't/didn't come in, and so when they left the hospital and traveled an hour and a half home, then she had to take her to the pediatrician's office for the antibiotic. She said, 'The heart doctor takes care of her heart. The lung doctor takes care of her lungs. They all see a piece of her. Who is taking care of Emily?'

Of course she was understandably stressed and wasn't trying to criticize the doctors. But I felt so sorry for her. And your comments about your bunions only being seen by the dr. who did surgery on them made me think about Emily again. She died two years ago this week.

Take care,
Suzanne :)

Re: On the lumps

wendyn on 6/18/03 at 21:42 (122308)

That's sad about the baby Suzanne - but true. Doctor's often forget there's a person attached to a problem.

No pity for me though (from anyone please)!

I'm not overly concerned with the lumps...they've been coming and going for 6 years now - so they aren't going to kill me or do anything bizarre. I am annoyed with the lumps, and sometimes they hurt. I was happy to hear the doctor tell me I can keep biking (this is the only 'real' cardio that I have left, and I've learn to really enjoy it!)

I am also quite accustomed to doctors not knowing what is wrong with me.

I don't mind the tests so much - but I'm going to try to avoid the bone scan if possible. I've had enough of them, and if it's not likely to help pinpoint the problem - I don't see the point of just more radiation.

Got to go!

Re: On the lumps

Kathy G on 6/19/03 at 09:51 (122338)


Although it is frustrating to have no answer, I think you are wise to try to avoid another bone scan. When my son had a broken leg, they had to xray it every three weeks (as I remember). I refused to let him have dental xrays done during that period. The dental hygenist was quite disapproving but when the dentist came in, he commended me on my decision.

The thing is, a bone scan probably isn't going to show up anything that the others didn't show. You don't want to start to glow in the dark!

I'm glad that you and your lumps can at least still bicycle. It's a wonderful form of exercise, and fun besides!