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Posted by Bonnie on 10/09/03 at 01:03 (132999)

Is there a glossary on this website? Search hasn't helped me find what RSD and NCV stand for. Thanks

Re: glossary

Dorothy on 10/09/03 at 04:40 (133017)

A glossary is a great idea. I don't know if there is one. I usually just do a web search for something I don't know about, but I like your glossary idea for this site.

Re: glossary

Dorothy on 10/09/03 at 04:43 (133018)

Bonnie, I found this on an injury-lawyer's site because it was readily available, so take it with that source in mind. It's a definition anyway.

What is Reflex Sympathetic Dystrophy?
Reflex Sympathetic Dystrophy (RSD) is a pain syndrome caused by a dysfunction of the autonomic nervous system. Also known as Complex Regional Pain Syndrome, this disease normally begins in one hand or foot. Sadly, it tends to progress with time to other parts of the body. Furthermore, rather than getting less painful, as the disease progresses, it can become more painful. Our clients have described it to us as walking around with a nail stuck in your foot, or with your hand inside a glove filled with caustic acid. The pain is intense, burning, and not significantly reduced by normal pain medication.

RSD is generally caused by some trauma to the autonomic nervous system. Many of our clients contracted RSD after a crushing injury, long term nerve compression or unrelieved swelling. We've also had many clients complain of RSD after carpal tunnel surgery, knee surgery, and podiatric surgery. Doctors do not understand why some patients contract RSD while others do not. Generally, our clients who have suffered numerous fractures do not end up with RSD. However, an infiltrating I.V., leaking into an arm over a period of hours, or a displaced wrist fracture not set on a timely basis, have resulted in our clients developing RSD.

In our experience, many doctors do not recognize RSD. Neurologists, hand surgeons and pain specialists are most likely to be aware of the syndrome. Many general practitioners and specialists who do not see patients for hand or foot pain can misdiagnose the condition, and sometimes cause it to become worse.

What are the symptoms of RSD, and how is it diagnosed?
Not all patients have all the signs or symptoms. The first indication of RSD is pain that is more severe than would be expected by the injury that caused it. Patients generally describe a severe burning pain in the local area, change in the temperature of one hand or foot and sensitivity to even a light touch. Often times there is swelling, and skin can change colors. As the disease progresses, there tends to be increased pain and swelling. The skin may become affected to the point that even hair will not grow on it. A patient becomes unduly sensitive to trauma in other parts of the body. Even carefully done surgeries can cause the RSD to spread. A patient with RSD must take special precautions before having any surgery.

Unfortunately, there is no simple test to confirm the diagnosis of RSD. However, it is very important that the disease be diagnosed quickly. The medical literature is abundantly clear: Early treatment leads to better results.

Some days are better than others for RSD patients. The pain ebbs and flows in intensity, but at its worst it has been compared to the pain of a ruptured disc, or of childbirth. Some of our clients have told us they would gladly amputate their affected limb if it would make the pain go away. But amputation would only increase the pain.

For more information on RSD, visit http://www.rsdrx.com

Re: glossary

Dorothy on 10/09/03 at 04:45 (133019)

And NCV, from a non-lawyer site; this one from a neurological site:

Nerve conduction velocity (NCV) testing measures the speed of conduction of impulses through a nerve. This test is used to diagnose nerve damage or dysfunction. It can usually differentiate injury to the nerve fiber (axon) from injury to the myelin sheath surrounding the nerve.

Re: For Bonnie

Sharon W on 10/09/03 at 09:55 (133059)


RSD is 'reflex sympathetic dystrophy'. NCV is 'nerve conduction velocity'.

Marie did some research once and wrote a TERRIFIC post about the NCV and other nerve conduction tests... you should be able to find it with a 'search' but maybe you will have to type in the full name of the test.

Good luck!


Re: glossary

Aly on 10/09/03 at 10:01 (133064)

Good grief, I had no idea. I have new sympathy for those of you suffering from this horrible condition.

Re: Oops, sorry Dorothy

Sharon W on 10/09/03 at 10:28 (133075)

I thought you had triple-posted and now I see your info was much more complete than mine!

Marie's post about the NCV really WAS excellent, though, it would be worth looking up...


Re: glossary

Terry L on 10/09/03 at 18:37 (133279)

Dr Hooshmand gives a lot of information but also go to
http://www.rsdroundation.org . These two sites give tons of RSD info. Beware not to believe everything you read on the net so please keep that in mind because theres a lot of strange things out there. If you have RSD how long have you had it, if you don't mind me asking?


wendyn on 10/09/03 at 23:29 (133330)

It really sucks Aly. Fortunately, sort of, for me - my RSD is relatively under control now. It only 'flares up' at times.

When it does - my feet get puffy and red, and very very very hot. Hot to me, and actually hot to touch. They are EXTREMELY sensitive when this happens - and it can drive me right through the roof.

The most common thing to cause flare ups for me is actually just standing in the kitchen (which is too bad because I love to cook).

The evenings are often the worst, the mornings are always the best (for the RSD)


Bonnie on 10/10/03 at 00:10 (133338)

Thanks Dorothy and everyone. Sympathy to those with RSD. I've got a bunch of problems, but not that one. wndyn, cooking was one of the 1st things I gave up bacause I couldn't stand in the kitchen and chop, stir etc. Fortunately, I hate cooking.


Sharon W on 10/10/03 at 09:20 (133382)

By the way, Wendy, Terry (in the post below) does have RSD.