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A MEDICINE THAT ACTUALLY RELIEVES TTS

Posted by Linda on 1/21/04 at 06:37 (142517)

LAST YEAR I WAS PUT ON A PRESCRIPTION MEDICATION CALLED 'NEURONTIN' FOR PAIN FROM TUMORS IN MY ARM. IT DIDN'T HELP MY ARM,BUT I WAS ACTUALLY 'PAIN FREE' FROM TARSAL TUNNEL SYNDROME. AS SOON AS I HAD SURGERY,I STOPPED TAKING THE 'NEURONTIN' AND THE TARSAL TUNNEL PAIN CAME BACK. I HAVE ALREADY HAD TTS RELEASE IN BOTH FEET,WHICH FAILED.
MY PODIATRIST HAS DECIDED TO PUT ME BACK ON THE 'NEURONTIN'
I JUST THOUGHT I'D SHARE THAT, AND HERE ARE THE FACTS ON NEURONTIN:

Gabapentin Pronunciation: ga bah PEN tin
Brand Name: Neurontin

What is the most important information I should know about gabapentin?
• If you are taking gabapentin for seizures, do not stop taking gabapentin even if you feel better. It is important to continue taking the medication to prevent seizures from recurring.
• Carry or wear a medical identification tag to let others know that you are taking this medicine in the case of an emergency.
• Use caution when driving, operating machinery, or performing other hazardous activities. Gabapentin may cause dizziness or drowsiness. If you experience dizziness or drowsiness, avoid these activities.

What is gabapentin?
• Gabapentin affects chemicals and nerves in the body that are involved in the cause of seizures and some types of pain. The exact way that it works is unknown.
• Gabapentin is used with other drugs in the treatment of some types of seizures and for the management of postherpetic neuralgia (nerve pain caused by the herpes virus or shingles).
• Gabapentin may also be used for purposes other than those listed in this medication guide.
What should I discuss with my healthcare provider before taking gabapentin?
• Before taking this medication, tell your doctor if you have any other medical conditions, especially kidney, liver, or heart disease. Also discuss any medicines that you take, including over-the-counter preparations.
• Gabapentin is in the FDA pregnancy category C. This means that it is not known whether gabapentin will be harmful to an unborn baby. Do not take gabapentin without first talking to your doctor if you are pregnant or could become pregnant during treatment.
• Gabapentin passes into breast milk. Do not take gabapentin without first talking to your doctor if you are breast-feeding a baby.
How should I take gabapentin?
• Take gabapentin exactly as directed by your doctor. If you do not understand these directions, ask your pharmacist, nurse, or doctor to explain them to you.
• Take each dose of gabapentin with a full glass of water.
• Gabapentin can be taken with or without food.
• To ensure you get the correct dose, measure the gabapentin oral solution with a dose-measuring cup or spoon, not a regular table spoon. If you do not have a dose-measuring device, ask your pharmacist where you can get one.
• Carry or wear a medical identification tag to let others know that you are taking this medicine in the case of an emergency.
• Do not stop taking gabapentin without talking to your doctor. Suddenly stopping gabapentin may cause side effects.
• If you are taking gabapentin for seizures, do not stop taking gabapentin even if you feel better. It is important to continue taking the medication to prevent seizures from recurring.
• Store gabapentin tablets and capsules at room temperature away from moisture and heat.
• Store the gabapentin oral solution in the refrigerator.

What happens if I miss a dose?
• Take the missed dose as soon as you remember. However, if several hours have passed and it is almost time for the next dose, skip the missed dose and take only the next regularly scheduled dose. Do not take a double dose of the medication to catch up.
What happens if I overdose?
• Seek emergency medical treatment.
• Symptoms of a gabapentin overdose include double vision, drowsiness, slurred speech, diarrhea, poor coordination, and difficulty breathing.

What should I avoid while taking gabapentin?
• Use caution when driving, operating machinery, or performing other hazardous activities. Gabapentin may cause dizziness or drowsiness. If you experience dizziness or drowsiness, avoid these activities.
• Avoid alcohol during treatment with gabapentin. Alcohol may increase the risk of having side effects while taking gabapentin
What are the possible side effects of gabapentin?
If you experience any of the following serious side effects, stop taking gabapentin and seek medical attention or contact your doctor immediately:
· an allergic reaction (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; or hives).
• Other, less serious side effects may be more likely to occur. Continue to take gabapentin and talk to your doctor if you experience
· dizziness, poor coordination, or drowsiness;
· blurred or double vision;
· irregular back-and- forth movements of the eyes;
· nausea and vomiting; or
· tremor.
• If children 3 to 12 years of age experience any of the following serious side effects, contact your doctor immediately
· emotional liability (anxiety, behavior problems, crying, false sense of well-being, mental depression, reacting too quickly, too emotionally, or overreacting, rapidly changing moods);
· hostility (aggressive behavior, suspiciousness, or distrust);
· restlessness, hyperactivity or increase in body movements;
· amnesia (loss of memory); or
· thought disorders (concentration problems and change in school performance).
• Side effects other than those listed here may also occur. Talk to your doctor about any side effect that seems unusual or that is especially bothersome.
What other drugs will affect gabapentin?
• Gabapentin does not interact with other commonly used antiseizure medications.
• Antacids will decrease the amount of gabapentin that is absorbed in the stomach. Do not take gabapentin for at least 2 hours after a dose of antacid.
• Gabapentin may increase the effects of other drugs that cause drowsiness, including antidepressants, alcohol, antihistamines, sedatives (used to treat insomnia), pain relievers, anxiety medicines, and muscle relaxants.
• Drugs other than those listed here may also interact with gabapentin or affect your condition. Talk to your doctor and pharmacist before taking any prescription or over-the-counter medicines, including herbal products.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

marie on 1/21/04 at 16:37 (142557)

Thanks Linda. So many new tts sufferers come here every day. This information will undoubtedly benefit them!!!!!

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Pam S. on 1/21/04 at 16:55 (142563)

Linda:
Thx for the information. I also take Neurontin, but only 400 mg at night. How much do you take? Can you tolerate it during the day? Thx for the informative post. Pam

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/22/04 at 05:46 (142611)

Your Welcome~! It really did work,so i thought i'd let everyone know it does relieve pain totally!

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/22/04 at 05:47 (142612)

My doctor prescribed it 3 times a day,but i only take it twice a day. Once in the morning with food,then at bedtime. It makes me kind of groggy at first,but after an hour,i'm ok

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Pam S. on 1/22/04 at 09:49 (142626)

Linda:
Sorry to bug you again but how many mg. do you take at one time. 300mg.? or 100mg? I am considering taking this during the day. I know we are all different but it is just interesting to hear what others take. I know another friend here takes 300mg. twice a day. Thx again. pam

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/22/04 at 10:02 (142628)

that's ok, no problem
i take 300mg twice a day

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Lari S. on 1/22/04 at 12:19 (142640)

Thanks for the info. I'm taking 300 mg 3 times a day. I don't seem to have any side effects at all. I also didn't notice a lot of relief from it either. It could also be that I have a high tolerance for medications. I was taking 2 Norco for pain after TTS surgery and it seemed to lower the pain to a dull roar. I didn't notice any side effects from it either.
Lari

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

marie on 1/22/04 at 16:07 (142653)

I take 300 mg 3x a day! It's made a huge difference. After a couple of weeks the grogginess went away.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Pam S. on 1/22/04 at 16:59 (142664)

Marie:
I am so fighting taking more Neurontin. I think I am going to have to, however. Do you have any memory loss at your level of doseage? Thx pam

Re: The thing about neurontin...

Pam S. on 1/22/04 at 17:06 (142666)

You know, what really bugs me is the Neurontin does not REALLY address or cure the problem. It just masks the pain. But I guess I should just get over it. I have already had one surgery and here I am again. The Neurontin does not rid the area of inflammation does it? I suppose we should count our blessings if this drug keeps us more comfortable with minor side effects. Any comments? Thx in advance. pam

Re: The thing about neurontin...

marie on 1/22/04 at 19:51 (142671)

Yeah it's frustrating. I hope that there is someone out there developing a real cure! Neurontin works for the pain but it'd be nice to be med free and pain free.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

ehren on 1/22/04 at 19:56 (142673)

i also take 300 mg twice a day. did anyone notice that it took awhile to take affect? meaning, after a few days of being on it, or more?
i understand vioxx shouldnt be expected to have any effect for at least a week, and then, maybe more.
of course, they're different medicines entirely, but i wonder if neurontin is the type of drug that needs to be fully in the system for awhile before it is entirely effective.

Re: The thing about neurontin...

Linda on 1/23/04 at 05:35 (142686)

i'm convinced the pain will never go away,so i don't mind if neurontin masks the pain. I'll take any relief i can get.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/23/04 at 05:36 (142687)

no memory loss yet.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/23/04 at 05:37 (142688)

it took about 4 days to start working for me. i think it does have to be fully in the system to work.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/23/04 at 05:39 (142689)

if you have a high tolerance,perhaps you should tell you doctor and he could up the dosage,or strength?

Re: neurontin and swollen ankles?

Debbie G. on 1/24/04 at 10:50 (142777)

My 23 yr. old daughter has TTS. (we think). We are still going from doctor to doctor. She has been on crutches for four months due to pain in the right foot. All tests(mri, bone scan, EMG, blood work) negative so far. RSD was discussed but not likely. She started Neurontin and Elavil three weeks ago. She now has swelling in both ankles. Anybody heard of that from those drugs? Also, anybody tried Accupunture? Please respond. Thanks, Debbie

Re: neurontin and swollen ankles?

ehren on 1/24/04 at 21:41 (142791)

hey. im 26 and was diagnosed with tts. i dont have any swelling,however. im wondering if everybody out there has swelling. one neurologist i saw disputed the diagnosis of tts. otherswise, i have many of the symptoms: pain mostly, cold sensations, and aching into the calf and sometimes back of the knee/ hamstring area.
mri's of back, blood tests, etc. have been negative.
also: is it common to have pain in both feet, anybody know?

ive never tried acupunture. im considering it, though. neurontin, and vioxx dont seem to be helping.

what is RSD?

sorry, anyway, no i dont have swollen ankles at all, but then again, they're not totally convinced i have tts (i almost prefer they knew for sure, cause its better at least when you know.)

Re: Not everyone's symptoms are identical

Terri on 1/24/04 at 22:33 (142795)

Hi Ehren. I'm new to the board too. I'm 44 now but have been having trouble all the way back to my late 20's. Just got really bad for me about 2+ years back.

I have it in both feet with cramping in all areas of the foot, ankle and calves. The muscles in my calves and feet will twitch like mad, looks like something out of the Alien movies. The neurontin does seem to help with the cramps, doesn't completely alleviate it but lessens the severity and frequency. I don't get the cold spots, I get hot spots. Never had any swelling. Cold seems to really aggravate it and when the cramps get too bad, really hot water is the only thing that relieves it. And absolutely no foot massages! I asked my dr about that and he said a lot of people with TTS can't tolerate a foot massage because you're directly putting pressure on the very nerves that are involved. I can't get up on my tiptoes or squat down, nor can I arch my foot to point my toes without setting off a major cramp. Maximum time up on my feet before excrutiating pain sets in is 45 mins on a good day, 15 mins any other time. Unlike a lot of people's experiences I've read on this site, my feet don't hurt if I stay off of them. But once I let them get to the point where they do hurt, I'm done for the day then I'm up most of the night dealing with the cramps.

You said 'they' aren't totally convinced you have TTS. Have you been to a podiatrist? A definite test for nerve damage consists of electricity and needles (ugh!) but I don't remember the name of it. I was lucky that the 1st dr I finally saw about this knew exactly what it was within minutes of my exam and sent me for this test. It wasn't pleasant, but the dr that administered it was able to confirm the diagnosis right then and there. All in all, I had 2 diagnoses from 2 dr's within 1 week that confirmed each other without any doubts.

This really is a rare condition from what my dr has told me and what I've read on various websites so it's not surprising that some people have dealt with several dr's before one figured it out. I was very lucky to find the right one the 1st time. Good luck to you!

Re: Not everyone's symptoms are identical

ehren on 1/25/04 at 18:44 (142833)

hey terri- thanks for your response.
i did get the emg/ncs test (the needle and electric thing) that was where it was diagnosed as tts. the other neurologist, upon seeing the results and doing a basic evaluation, wasnt convinced, so i was annoyed, feeling like i was back at square one. my hope is that indeed it is tts, but a mild case.
basically, the most common feeling is the feeling that i have no flesh on the bottom of my feet. then, pain and throbbing when resting. some days worse than others, of course.

Re: Not everyone's symptoms are identical

marie on 1/25/04 at 18:48 (142834)

From my experience tts can present itself with non-typical symptoms. Don't give up on the elavil and neurontin yet. I did have alot of swelling at my worst stages. I went off every med I was on and slowly introduced myself to each one. I kept a journal of all my symptoms and medication. It seems that I was indeed affected by some of my medication when it came to swelling.

If your ankles are swollen ice daily with frozen peas. It works great and DO NOT stand any longer than you have too...resting those tootsies is important. I had alot of cramping and twitching and jerking. My hubby did daily massages to my calves and knees. Do not massage directly over the meta tarsals. Recovery time????Think in terms of a year or more.

if you have questions on how I recovered I would be happy to respond.

best wishes marie

PS: Give up alcoholic beverages

Re: Not everyone's symptoms are identical

marie on 1/25/04 at 18:58 (142837)

I can totally relate...tts feels like you're walking on your bones with no padding....or like walking on broken glass. It is an incredibly painful experience.

marie

Re: neurontin and swollen ankles?

Tammie on 1/25/04 at 21:58 (142841)

Hi, I want to get to u but cant sit tonight feet and body is acting up, but want to at least tell you this,I understood the neurontin takes some time to build up in your system and they keep raising it till they get the right amount, it might seem like a very large amount of the med. Do you have how much they have her on? You should really give it some time to help,It helps some types of pain I could not take it , did not agree with me and my system and other meds so changed and put me on topamax best thing he did I liked it much much better not as many nasty side effects for me!
I wish I could remember better but seriously I have a problem with my memeory and this is supposed to be temporary due to some of my meds.We are having a appt. to go over changes in treatment again soon and that is also on my list to address. I seem to remember about the swelling ankles I myself have them They have told me several times why but I am almost emabrrased to say I cant think why tonight.

Have heard some try accupuncture and like,I have not tryed.Have you taken her to a Pain management DR>? Might be a good next step? After many different Dr.s of sorts fianlly one sent me there and 2 had thought RSD but let it up to him to really give the dx. Believe me there are no ONE test to dx rsd or crps which my dr. uses both terms . I do know this My Mri and ct scan were ok the emg test however showed some nerve damage cant really remember all please try a search on my name Tammie I really went thru a lot of heck to find out what was happening to me. One thing also after I had the pf and spur surgery done the pain never lessoned it actually got worse when the blocks wore off.He kept telling me normal NOT really hearing that IT was NOT normal,after much help here and urgeing I fianlly gut to some other types of Dr.s and ended with the Pain management dr.s as that is where they treat my rsd.

There are a ton of symtoms and noone has the same always so dont think you have to have the same . I do know my foot was sensitive to touch I mean really sensitive, I had the hotknife poker feeling in my foot with alot of electrical like feelings later to which I described like bumble bees buzzing in there . It could be hot and sweaty one hour or so and freezing cold like it was in the bone and could not warm at all . This is my bad areas now the colddd feelings and the crunching of bones.Amoung others. Please there is a site to look at for more info on RSD it is Brain Talk punch in RSD or Nurology see if you can get to it I dont have it right at this min. Very good info.

I will say this, If you have any I mean any doubt about being tts and they want to do surgery DONT do it!!! See and research all you can till you are comfortable with your answer and your Dr. May I ask what type of Dr.s she has seen thus far?It is really important if it would be rsd to dx it soonest as can as the sooner the better chance of maintaining it to that area and perhaps bringing into a remission like state.(they have many ways of this blocks are there favorite,They are not to bad, but if they dont work they are not fun.

I just urge you to be careful before you have a surgery Dont be the next me, I never in a million worlds would have believed I could have been in the so percent but I am and here to prove it. I pray that your Daughter or noone else has to get this horrible stuff, but I am thank ful that I have adjusted to taking care of me MYSELF!!!!!!! aLSO THANKFUL that it is not something that is much worse as I do count my blessings it could be worse!Please if I can help let me know. I hope I got some of your answers! I cant seem to sit any longer so I will look in tomorrow.Good Luck and I will say a prayer for her!

Re: Debbie G. /any one else it may help

Tammie on 1/25/04 at 22:04 (142842)

Sorry about the area, I just had to finish this as I felt to important not to get the answers to you If I could be any help! I really hope It goes well for her Please let me know ! I will be interested!

Re: neurontin and swollen ankles?

Linda on 1/26/04 at 05:31 (142848)

I've never hear of that before,but i know it can cause depression in some people

Re: Not everyone's symptoms are identical

Linda on 1/26/04 at 05:38 (142849)

Terri,

I think the test your referring to might be an EMG?
For an EMG, a needle electrode is inserted through the skin into the muscle. The electrical activity detected by this electrode is displayed on an oscilloscope Because skeletal muscles are isolated and often large units, each electrode gives only an average picture of the activity of the selected muscle. Several electrodes may need to be placed at various locations to obtain an accurate study. After placement of the electrode(s), you may be asked to contract the muscle (for example, by bending your foot). The presence, size, and shape of the wave form -- the action potential -- produced on the oscilloscope provide information about the ability of the muscle to respond when the nerves are stimulated. Each muscle fiber that contracts will produce an action potential, and the size of the muscle fiber affects the rate (frequency) and size (amplitude) of the action potentials.
A nerve conduction velocity test is often done at the same time as an EMG.

I've had both these tests done. You can rule out RSD until all tests are done,and If Ehren's doc didn't test,how can he rule out a diagnosis? I'd get a second opinion.
Terri, I also have been dealing with foot problems since my 20's (1986)
I am going to be 42 this yr,and i'm sick of all the foot pain.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Don S. on 1/26/04 at 19:32 (142895)

I have been on Neurontin for about 2 years now. I take 300 mg tablets, 2 in the morning, 2 in the afternoon, 1 at supper time, and 2 at bedtime. If I forget to take any one of them, I know it in about 3 hours. So they do work.

Re: neurontin and swollen ankles?

ehren on 1/26/04 at 21:13 (142908)

some one please tell me: what is RSD?

Re: neurontin and swollen ankles?

Linda on 1/27/04 at 05:46 (142925)

Reflex Sympathetic Dystrophy
Reflex sympathetic dystrophy (RSD), also known as complex regional pain syndrome (CRPS), is a chronic progressive neurological condition that affects skin, muscles, joints, and bones. The syndrome usually develops in an injured limb, such as a broken leg. However, many cases of RSD involve only a minor, seemingly inconsequential injury, such as a sprain. And in some cases, no precipitating event can be identified. Pain may begin in one area or limb and then spread to other limbs. RSD/CRPS is characterized by various degrees of burning pain, excessive sweating, swelling, and sensitivity to touch. Symptoms of RSD/CRPS may recede for years and then reappear with a new injury.

Types Two types of RSD/CRPS have been defined:
Type 1 - without nerve injury
Type 2 (formerly called causalgia) - with nerve injury
Both types express the same signs and symptoms.
Incidence and Prevalence
Millions of people in the United States may suffer from this chronic pain syndrome. RSD/CRPS affects both men and women, but is more common in women, and can occur at any age, but usually affects people between 40 and 60 years old.
The National Institute of Neurological Disorders and Strokes (NINDS) reports that 2% to 5% of peripheral nerve injury patients and 12% to 21% of patients with hemiplegia (paralysis on one side of the body) develop reflex sympathetic dystrophy as a complication. The Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA) reports that the condition appears after 1% to 2% of bone fractures.
Causes and Risk Factors
RSD/CRPS appears to involve the complex interaction of the sensory, motor, and autonomic nervous systems; and the immune system. It is thought that central nervous system (brain and spinal cord) control over these various processes is somehow changed as a result of the injury.
Conditions associated with the onset of RSD/CRPS include:
Trauma (e.g., bone fracture, gunshot and shrapnel wounds)
Spinal cord disorders Cerebral lesions Heart disease, heart attack
Hemiplegia (paralysis on one side of the body) Infection
Radiation therapy Repetitive motion disorder (e.g., carpal tunnel syndrome) Surgery
In 10% to 20% of cases, no direct cause can be found. Injury that precedes the onset of RSD/CRPS may or may not be significant.
Signs and Symptoms
The symptoms of RSD/CRPS may progress in three stages acute, dystrophic, and atrophic although this notion is subject to debate.
Acute: burning pain, swelling, increased sensitivity to touch, increased hair and nail growth in the affected region, joint pain, color and temperature changes; first 1-3 months
Dystrophic: constant pain and swelling, limb feels cool and looks bluish, muscle stiffness and atrophy (wasting of the muscles), early osteoporosis (bone loss), 3-6 months
Atrophic: cool and shiny skin, increased muscle stiffness and weakness, symptoms may spread to another limb
Characteristic signs and symptoms of sympathetic nervous system involvement are Burning pain Extreme sensitivity to touch
Skin color changes (red or bluish) Skin temperature changes (heat or cold) Pain is usually disproportionate to the degree of injury and can be triggered by using the affected limb or by stress and can be spontaneous or constant.
Symptoms associated with an immune reaction include:
Joint pain Redness Swelling Accumulated immune cells in the site
Frequent infections
Signs of motor system dysfunction include
Difficulty starting movement Increased muscle tone Muscle spasm
Tremor Weakness
Other symptoms include
Migraine headache Excessive sweating Fatigue Dermatitis, eczema
Complications
Patients with any chronic illness, including RSD/CRPS, often suffer from depression and anxiety. Skin, muscle, and bone atrophy (wasting) are possible complications of the syndrome. Atrophy may occur because of reduced function of the limb.
Diagnosis
RSD/CRPS can be difficult to diagnose and often requires excluding other conditions that produce similar symptoms. A thorough history and neurological examination is of utmost importance. During the exam, the clinician may notice that the response to mild sensory stimuli produces severe pain.
Physical examination involves observing the skin color and temperature, swelling, and vascular reactivity; overgrown and grooved nails; swollen and stiff joints; muscle weakness and atrophy (wasting).
Other conditions are ruled out with appropriate testing that may include MRI studies, a full laboratory panel, EMG/NCV (electrophysiological studies of the nerves and muscles), and a test known as a thermogram, which uses an infrared video camera to measure the emission of heat from the affected limb.
Treatment
The goal of treatment is pain control and as much mobilization of the affected limb as possible. An individualized treatment plan is designed, which often combines physical therapy, medications, nerve blocks, and psychosocial support.
Medication Medications are prescribed to control pain. The type of pain experienced by the patient determines the type of medication prescribed.
Constant pain caused by inflammation is treated with nonsteroidal anti-inflammatory drugs (e.g., aspirin, ibuprofen, naproxen, indomethacin).
Constant pain not caused by inflammation is treated with central acting agents such as tramadol (Ultram®).
Stabbing pain and pain that disrupts sleep are treated with antidepressants such as amytriptyline, doxepin, nortriptyline, and trazodone. Oral lidocaine, a somewhat experimental treatment for RSD/CRPS, also may be prescribed.
Sudden sharp pain may be treated with anticonvulsants (e.g., carbamazapine, gabapentin).
Generalized, severe pain that does not respond to other medications may be treated with opioids (e.g., propoxyphine, codeine, morphine).
Muscle cramps (spasms and dystonia) can be treated with clonazepam and baclofen.
Localized pain related to nerve injury may be treated with Capsaicin® cream, but its effectiveness has not been proven.
Medications that block selected actions of the sympathetic nervous system, such as clonidine (Catapres®, available in oral and patch formulations), can be useful in some cases.
Muscles stiffness may be treated with muscle relaxants such as
Tizanidine (Zanaflex®)
Baclofen
Clonazepam (Klonopin®)
Physical Therapy
Physical therapy should include daily range of motion exercises. Patients should be advised to avoid activities that could accelerate osteoporosis or joint injury.
Nerve Block
Sympathetic nerve block interrupts the transmission of pain signals from a group of nerve cell bodies (called a ganglion). When treating an upper extremity, it is called a stellate ganglion block. A small needle is used to inject an alpha adrenergic antagonist alongside the windpipe. When treating a lower extremity the nerve block is performed in the lower (lumbar).

The procedure, usually performed by an anesthesiologist familiar with the technique, involves the insertion of a needle into the appropriate location and the injection of anesthesia into the ganglion. The effect is monitored over time.

Sympathectomy Patients who have a good but temporary response to nerve block may be candidates for sympathectomy. The goal of surgery is suppression of sympathetic nervous system activity in the affected area.

TENS Unit
A transcutaneous electrical nerve stimulation (TENS) unit may be used to treat the affected area. In some cases, spinal cord stimulators are implanted permanently to supply a low intensity impulse to a location in the spinal cord in an attempt to interrupt the pain signals that are being transmitted to the brain.

Psychosocial Support
RSD/CRPS patients often become depressed and anxious because of chronic pain and loss of physical ability. Counseling, support groups, and chronic pain center programs help patients learn coping strategies and provide emotional and psychological support.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/27/04 at 05:53 (142926)

I totally agree. I feel pain if i don't take mine a few hours later too.

Re: neurontin and swollen ankles?

Debbie G. on 1/27/04 at 06:44 (142927)

Ehren: RSD stands for Reflex Sympathetic Dystrophy. The new term is CRPS or Complex Regional Pain Syndrome. this condition seems to be poorly understood, and hars to diagnose. There does not seem to be one good test for it. Rather it is diagnosed by presentation of symptoms. Basically in a nutshell, it is a painful condition that sets in after a relatively minor injury usually to a hand, foot, arm, or leg. It is hard to get rid of, and can spread. Pain management seems to be the treatment of choice. I really don't know a whole lot, but I have been reading up on it. apparantly the reason that it can be hard to spot is that there are several stages. If you are in an early stage, it may be missed because all of the classic symptoms are not yet showing. Debbie G.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

ehren on 1/28/04 at 10:16 (143035)

Anybody not have success with neurontin? i dont seem to be getting any relief.

Re: A MEDICINE THAT ACTUALLY RELIEVES TTS

Linda on 1/28/04 at 10:26 (143040)

Have you told your doctor? You might need your dosage changed.