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Neurontin and RSD

Posted by Jeff H. on 3/30/04 at 13:37 (148137)

Went to doctor. He put me on Neurontin. Requests have been put in for a three phase bone scan, hydrotherapy, and consult for pain specialist. Feel as though I am in a fog and like spinning in slow motion. Have already gained three pounds which is strange because I am on a diet. Have heard of people gaining from Neurontin.
Would like to know if others have had 3 phase bone scan or hydrotherapy. Also if you have had blocks.
Anyone experiencing fogginess or weight gain that is on Neurontin? I have seen that many of you were on this drug before surgery. I have never taken and it has been 12 weeks since TTS release.
Really would like to hear from y'all.

thanks..jeff

Re: Neurontin and RSD

Elaine T on 3/30/04 at 15:18 (148146)

Jeff, I'm so glad to hear from you, and that your RSD is being treated. I've taken Elavil for mine, but I think the side effects are similar. A little foginess, especially in the morning, and terrible dry mouth. But you know, the RSD is so horrible, that I'll take the side effects from the medication.

No, I never had the bone scan or hydrotherapy. The important thing is to start the medication as soon as possible. I have a cousin and a friend who both had RSD, and we all find that it's going to last a minimum of 2-3 months no matter what we do. They both went to pain specialists and had the blocks, because their cases were quite severe. Mine was caught early both times, so I didn't require that level of treatment.

My heart goes out to you, because I only remember both times I've had RSD as an excursion into hell. When I read your symptoms to my husband, his immediate reaction was 'RSD.' Living with an RSD patient is to join them in hell.

Jeff, do whatever your physician recommends, and be aggressive with your treatment because to do any less will only make it worse.

Re: Neurontin and RSD

JudyB on 3/30/04 at 17:15 (148155)

Elaine,
When and how did you get RSD?

Re: Neurontin and RSD

Elaine T on 3/30/04 at 17:30 (148156)

The first time was five years ago, it was caused by the TTS. The second time was 15 months ago, following hand, thumb and wrist surgeries. Once you've had RSD, any surgery or injury will probably bring it back.

My next hand surgery, five months ago, that surgeon put me on Elavil beginning the night before, and for the next five days; no RSD. This surgery, for TTS, Elavil the night before and then for ten days after - again no RSD. It is possible to have surgery without having to go through the hell of RSD.

Re: Neurontin and RSD

JudyB on 3/30/04 at 18:50 (148157)

I was under the impression that RSD is pretty rare, or is it not? Do you know if any of the doctors done surgery that surgery that resulted in RSD?

Re: Neurontin and RSD

Elaine T on 3/30/04 at 20:47 (148161)

I'm not sure it's all that rare, it's just taken many years for this condition to be recognized and diagnosed. I think just about any orthopedic surgeon would tell you they've had a lot of experience with RSD. It's a horrible condition, just horrible.

Re: Neurontin and RSD

Deb S. on 3/31/04 at 07:56 (148177)

Elaine: When you speak of RSD, is that repetitive stress disorder? I've had that in my neck and wonder if that is what has happened in my ankles.

Re: Neurontin and RSD

Elaine T on 3/31/04 at 08:48 (148178)

No,no --- Reflex Sympathetic Dystrophy

Re: Neurontin and RSD

HELEN M on 4/01/04 at 15:43 (148269)

I HAVE BEEN TAKING NEURONTIN FOR ALMOST 2 YEARS AND MY TARSAL TUNNEL IS GETTING WORSE. MY PODIATRIST WANTS TO OPERATE. I THINK I AM READY, BUT HE TELLS ME THAT IT WILL STILL BE PAINFUL FOR MAYBE ALMOST A YEAR. BECAUSE THE LONGER YOU WAIT THE LONGER IT WILL TAKE TO HEAL. HELEN M

Re: Helen, are you still around

Elaine T on 4/05/04 at 19:30 (148450)

Whatever you decide, we are here for you.

Re: Neurontin and RSD

jeanne w. on 4/05/04 at 21:56 (148458)

I have been diagnosed with tts and I'm condsidering surgery. My feet started to hurt after a hysterectomy 10 yrs ago. I also have a syrinyx that complicates my legs and life. the doctor cannot of course guarantee a
positive result but a decade of pain leaves with few options. I'm using twice the amount of Neurontin that he usually recommends. Did you get a second opinion, MRI or xray first. I'm finishing some PT for pain in my leg caused by pain relief compensation--- some bursitis in my hip. Also I'm working on adjusting my orthotics. Any ideas are welcome. thanks!!!