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bilateral foot pain,burning,tingling & swelling.

Posted by robin j. on 4/18/04 at 04:07 (149080)

i am 44 yo female,employed as r.n. in hospital, in 2000 i started having alot of pain in my foot arches.i was diagnosed with plantar fascitis and given anti-inflammatory meds, steroids by mouth and injection,physical therapy,night splints,and orthotics. i have tried many different styles of shoes. the end of 2000 i went back to see the orthopedic md and he sai d i had compression of the 1st branch of the lateral plantar nerve and fascitis. i had surgery in 1/2001 for fasciotomy and decompression of the lateral plantar nerve on my right foot. i was out of work and had a 4 month recovery period. since then i have had a continual increase in my pain,burning,tingling, swelling,of both feet and lower calves. i have been diagnosed with peripheral neuropathy (idiopathic) no known cause determined. i have been searching the internet for more information and read about tts and its symptoms sound like what i have.i would like to know if anyone else has had so much trouble getting a diagnosis?

Re: bilateral foot pain,burning,tingling & swelling.

Ann L on 4/18/04 at 11:32 (149089)

Hi Robin,
I am like you - an RN also. I actually had several problems at once - tts, plantar faciitis, a neuroma and a bunion. I was lucky, I have a very good local podiatrist who diagnosed me fairly quickly, after a few tests - XRays, MRI, bone scan, NCV/EMG - and had my diagnoses in 2 months. After reading on this board for over a year, I have to say my diagnosis was rather quick. Many have searched for years and with many doctors for a diagnosis before getting an accurate one. I had surgery on Feb 16 by a foot and ankle orthopedic specialist for bilateral tts release - five areas, bilateral partial plantar fascia release, neuroma excision and bunion repair. I am now going thru physical therapy to strengthen my feet and ankles. It is quite possible that not all of the areas of the nerve in the tarsal tunnel were released and are still being compressed. Good luck on your search for answers.

Re: bilateral foot pain,burning,tingling & swelling.

LARA on 4/21/04 at 07:31 (149275)

It took me three years to get a proper diagnosis, after being told it was PF, peripheral neuropathy as probably the first sign of impending diabetes (which I still don't have), and 'in my head'. Eventually I found a doctor who diagnosed it as TTS and confirmed with a NCV test. I live in a town with a Med School and teaching hospital, so it isn't that my community isn't aware of recent research, medicine and full of lots of good doctors.

One day I went to the med school book store to see what I could learn. I went to the section on orthopedic books, and found a book on foot & ankle orthopedics about 2-3 inches thick (and larger than 8-1/2 x 11) and looked in the index for Tarsal Tunnel Syndrome. In this book, specializing not just in orthopedics, but in foot and ankle problems, there was less than a page of information. AS I remember, the first surgery wasn't until the 1960's. It's just so new in recognition that I don't think the medical community has had time to develop proper diagnostic and treatment protocols. This is also party due to the fact that generally there aren't enough people in one place to create a critical mass of patients so that doctors get familiar wtih it. When I finally found a doctor who recognized it, it was a podiatrist who had a lot of week-end athletes, as well as professional and worth-class athletes. I imagine the doctors that treat the NBA are familiar with it too.

Of course there are doctors who are familiar with it (we are all very grateful for the doctors that help us out on this board, and I'm not sure any of them have focused on sports injuries), and if the idiot doctor who told me it was in my head had followed the symptoms that sure sounded a lot like nerve pain (surprise surprise) and given me the referral to the neurologist when I asked about it (instead of telling me to quit reading so much and worrying myself) I might have been discovered earlier. But alas. . .