EMG TestPosted by Karole M on 5/11/04 at 16:30 (150417)
Neurologist set me up for an EMG. Anyone have one? Trying to locate where
in TTS. What is next
Re: EMG Testmarie on 5/11/04 at 20:39 (150441)
EMG's are uncomfortable but tolerable. It really is the best way to dx tts, in my opinion ....I'm not a doc.
Hope yours goes well....let us know what the results are. When are you having this done?
Re: TTS/EMG testKarole M on 5/12/04 at 09:27 (150456)
I am having an EMG test Thursday. If confirmed, as they feel it will, what is next? Do other alternatives work well or does all this lead to a diagnosis for surgery. I have been dealing with this for over two years and just about had enough.
Re: TTS/EMG testKaren C. on 5/13/04 at 08:57 (150509)
Karole - I'm anxious to hear more about your test. How exactly does it work? What is the difference in this test an a NCV?
As far as have had enough, I'm right up here with you so don't feel alone!
Re: TTS/EMG testMary on 5/13/04 at 16:31 (150525)
I had my 2nd EMG test on Tuesday, very different from the one I had 4 yrs. ago. I tested positive for TTS and now I also have Carpal tunnel syndrome. I am trying to get my disability since the surgeries were a failure. And I am unable to barely get around the house much less go anywhere. Don't mean to sound so down but who wouldn't be.
I wish ya'll luck with getting help. Maybe the dr. have learned more about it since it has been 4 yrs. ago.
Does anyone know of any support groups for the chronic pain sufferer and depressed?
Re: TTS/EMG testmarie on 5/13/04 at 18:08 (150531)
Don't let the pain influence your decision for surgery. It's best to make the decision once your pain is under control. Surgery for tts is risky. It's a 50/50 chance for recovery and in some cases it becomes worse and more painful. This is a list of things that has helped me.....
I was dx with tts in 2002. TTS symptoms began in 2000. My first symptom was tightness in my knees. I thought it may be arthritis so I ignored it. In the summer of 2001 my feet began to bother me. In August I had a major flare up that literally knocked me off my feet. Assuming it was arthritis I thought I better consult my GP. He prescribed some arthritic medications but there was no improvement.
I was referred to a Podiatrist. He is a wonderful doctor. His concern was that some of my symptoms were not typical of tts so I went through a battery of additional tests before they began to treat me. Recovering from tts is like having another full time job.
I went from a wheel chair and scooter to walking two miles in the Multiple Sclerosis walk. A cause dear to my heart.
My goal this year is to walk six miles. I may not break a record for speed but I know I can do this.
This is what has helped me.
Ice (frozen peas work well) for swelling. About 5-10 minutes per ankle. Two-three times a day as needed.
Light stretches......very light.
Medications: Neurontin 300 mg 3x daily, 50 mg elavil
Vitamins that I sware by: MSM, Glucosamine, Vitamin C, Magnesium. Some have had success with vitamin B6 and 12.
Compression socks and mens support socks.
Birkenstock shoes. I am especially fond of Arizona and other soft bed styles.
Progesterone cream on my ankles and knees twice daily.
My hubby massages my meta tarsals, ankles, calves and thighs. At first this was done twice a day. Now I only ask for a massage once or twice a week. NEVER massage the tarsal area vigorously. My PT and I found that out the hard way. It was a major setback.
Some have had success with Ibuprofin creams.
Light non weight bearing exercises.
Distraction from pain. My brother, who has MS, suggested emmersing myself in activities or projects that would take my mind off my feet. It helped me maintain my sanity.
Creating this site has been one of my projects.
Everyone is different. What has helped me may not help you. Please feel free to add what has helped you.
best wishes marie
Re: TTS/EMG testKaren C. on 5/14/04 at 09:26 (150574)
I was very interested to hear that you had tightening in the knee that was related to TTS. I had lateral release surgery on my knee in 2001 and just assumed that the tightness was related to my knee problem. The past few weeks I have had a tremendous amount of trouble with that knee. And when the knee hurts, the foot hurts at it's worse.
Re: TTS/EMG testKarole M on 5/17/04 at 11:32 (150703)
I wish I wasn't in constant pain and that is why I have endured 3 surgeries since I injured my heel 6/02. After doc. to doc. -diag. to diag.
fractured heel to P.F. shots, pills, etc.
l/22/03 lst surg. PF-at first better then worse than before-maybe neuroma
6/4/03 2nd surg. Open heel to remove neuroma-very tough-already down 8 months-not getting better-could not walk-severe pain.
ll/26/03 3rd surg. Open heel again-look see-remove some pad-wheelchair 3 months-crutches 2 months then cane
4/4/04 Dr. worried about recovery-now believes that I have TTS-refers me
to specialist POD/heel-he feels I have TTS-refers me to Neuro-he thinks I have TTS(now taking Zonegran and Lidodern patches)w/no relief.
I feel that part of my problem could be from scar tissue, is this possible? Has anyone felt a popping across the top from ankle to ankle?
I can't stand for more than 20 min. at a time, have not worn anything but
a surgical boot since l/22/03. The one thing that has kept me sane is a great understanding husband also a sweet brother who is retarded who lives with us and 'takes' care of me. I also have hand quilted a King sized quilt set and have started on another. Life is not that bad but could be better.
Re: EMG TestSun on 5/19/04 at 10:30 (150835)
Yes I had one......
They put a needle into the foot, but for me did not feel it. They will have to bend your toes until the test reads.
Going to the doctor and they poking tapping and moving hurts worse.
Re: TTS/EMG testmarie on 5/21/04 at 17:01 (150988)
All I know is that it felt like I had rubber bands around my knees. This is also a symptom of fibromyalgea. But the inside of my knees felt especially tight.
Re: TTS/EMG testPamela J. on 6/12/04 at 07:39 (152808)
Hello,I am having my test done today the EMG I have had one before but it is proble going to hurt worst because I am tender all over from the pain.well I have had enough to what happens after this test.