Home The Book Dr Articles Products Message Boards Journal Articles Search Our Surveys Surgery ESWT Dr Messages Find Good Drs video

Diagnosis, Coping, and San Francisco

Posted by Aimee C. on 6/07/04 at 00:49 (152192)

A few things:

Does anyone know if a positive nerve conduction study or EMG is a necessity for a TTS diagnosis?

Also, can anyone to recommend someone in the Bay Area who is an expert on TTS? I can recommend a couple of people in Berkeley who have helped me, but they're not experts on TTS.

Finally, in a former post I recommended Darlenecohen.net for help in coping with chronic pain. I just met Darlene Cohen yesterday for the first time and she's really great. Next Saturday in San Francisco she's giving a workshop on chronic pain, if anyone lives near there (her website has more information). In Darlene's group, people talked about their anger about having chronic pain. Darlene's idea is to feel more of the anger so that it can free up your life energy, and it will eventually dissipate. Also, she says that if you don't allow yourself to acknowledge what the pain is costing you, you won't be able to mobilize the resources to address the loss, whether it's making decisions to comfort yourself, or taking serious steps toward your own healing.

Re: Diagnosis, Coping, and San Francisco

LARA on 6/07/04 at 14:58 (152255)

The NCV test is a very sensitive test. It rarely gives a false positive. HOwever, false negatives are not uncommon. So NO, a postive NCV test is not a necessity for a TTS diagnosis.

If I had no where else to go, I'd find out who treats the Sacramento Kings. The doctors often have a regular practice with 'just us folks' and/or may be able to give a referral to someone who knows TTS.

I found a great podiatrist when I noticed he advertised as treating 'sports injuries' TTS is more common among active people.

Re: Diagnosis, Coping, and San Francisco

lauriel on 6/07/04 at 16:23 (152270)

Lara brought up a good point about sports physicians. There is the SOAR medical clinic in Menlo Park and they are the 49ers team Drs. I went to them years ago for a back injury. They may have experience with TTS. I wwas diagnosed with TTS by a podiatrist in Los Gatos, he gave me orthodics which helped for a long time, but then I delevloped PF and I think my rigid orthodics may have started it.

Just after that I moved out of the area and went to an orthodepic Dr because things started getting worse, he sent me for the nerve test which showed positive for TTS.

Laurie

Re: Diagnosis, Coping, and San Francisco

Aimee C. on 6/07/04 at 21:36 (152312)

Thanks, I'll keep this in mind!

Re: Diagnosis, Coping, and San Francisco

Donna SL on 6/08/04 at 14:53 (152434)

Hi Aimee,

I now live Pasadena in Los Angeles county, but lived in San Francisco for almost 15 years. I know most of the doctors in SF.

I used to see a doctor in San Francisco that is a godsend. He treated me for over a year for TTS, and some back problems. He is extremely knowledgeable about TTS, and all other foot pain. He's an expert in not only TTS, but many other areas. He also is very skilled in nerve conduction test, and emg's and performs them all himself. He has excellent credentials too. His office is centered in a large sports medicine practice, along with podiatrist, surgeons, etc.

He's an MD, and he's called a physiatrist. They specialize in physical medicine, rehab, diagnosing, and treating soft tissue injuries, etc. He's also a certified chronic pain specialist, and a certified medical acupucturist. He has an excellent knowledge of medications for chronic pain too.

He helped me tremendously. He's a very compassionate doctor, and will spend a lot of time with you. I don't know what I would have done without him. Anybody I talk to who has been treated by him loves him. The only other doc I saw for treatment was a chiropractor for ART treatment Both were involved with my treatment equally.

I don't think he would appreciate me putting his name on this board especially without his permission. His practice is pretty booked, and he's very hard to get an initial appt with but it's worth the wait.

If you want I can give you his name privately if you give me your email.

I used to be a regular poster on this board, so if you search under my name you may find some post I wrote about him.

Donna

Re: Diagnosis, Coping, and San Francisco

lauriel on 6/08/04 at 16:25 (152441)

Donna, the Soar clinic I went to in Menlo park were physiatrists too. I was wondernig because th type of Dr they are, if the dealt with TTS
laurie

Re: Diagnosis, Coping, and San Francisco

Vern S. on 6/08/04 at 17:31 (152447)

I would appreciate his name. I am: (email removed)
Here in SF I last saw Jay Bernard DPM and am waiting 2 months for a nerve conduction test with neurologist Eic Denys. Ring any bells? Thanks.

Re: Diagnosis, Coping, and San Francisco

Donna SL on 6/08/04 at 18:16 (152450)

Hi Vern,

I'm having some trouble with my email at the moment. As soon as my husband gets home, and fixes it, I'll send you the docs name. It should be tonight or tomorrow. Is Dr. Bernard on 450 Sutter street? I don't know him personally, but I might have seen one of the other docs in that practice.

Haven't heard of the neurologist. Physiatrist are as good if not better at doing NVC, and it's a big part of most of their training and practice. Also if you go to one experienced with TTS, feet, etc. he might know more things to test for.

Donna

Re: Diagnosis, Coping, and San Francisco

Donna SL on 6/08/04 at 18:21 (152451)

Hi Laurie,

Not all physiatrist are experienced, nor interested in TTS. A friend of mine went to many in New York City, and was very dissapointed. You have to ask if they have experience in this. Usually it helps if they are in a sports med clinic, but again always ask how experienced they are in this, their treatment plans, etc.

Donna

Re: Diagnosis, Coping, and San Francisco

Donna SL on 6/08/04 at 18:44 (152454)

Hi Laurie,

Not all physiatrist are experienced, nor interested in TTS. A friend of mine went to many in New York City, and was very dissapointed. You have to ask if they have experience in this. Usually it helps if they are in a sports med clinic, but again always ask how experienced they are in this, their treatment plans, etc.

Donna