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any advice for tts, need some fast decisions

Posted by lilly on 7/18/04 at 16:33 (155775)

I recently had a TTS diagnosis after PF for years and am awaiting a second opinion but at the time of the appointment, had to wait 3 months to get in. My concern is, my health insurance will be changing or i may have a month without it. I'm worried the new one wont cover pre-existing condition, and or the coverage wont be good. I had a nerve study and foot Xray. Treatment has been anti-inflammatory med and tried casting for rest and recently got new orthotics. What should i ask for in the 4-5 weeks i have left with this insurance? The ortho that diagnosed me recommends surgery (hence waiting for the second opinion). I tried several times to get into the 'second opinion' doctor without success. Should i ask for an MRI?? trying physical therapy?? anything else??? thank you.

Re: any advice for tts, need some fast decisions

john h on 7/18/04 at 19:05 (155784)

Lilly I do not think an MRI will give you the tts diagnosis. There is no gold standard test and the nerve conduction study is really not definitive either. It is an indicator but not fool proof by any means. I had a positive nerve condution study and my orthopedic foot and ankle specialist said it would be my call on the surgery as you really never know for sure until surgery. I had the surgery. No tts but did find a vericose vein in the tarsal tunnen which was removed. This was not the problem however. Make sure your Doctor has a lot of experience in doing this surgery. Ask him how many he has done? You will find very few post here from people who were cured from tts with surgery although there are a couple. You will be in a cast and on crutches for a couple of weeks. Very little pain and should be no more than a 30 minute surgery. My scar is approximate 5' long and runs from the edge of the inside of my heel straight up and over the ankle bone.

Re: any advice for tts, need some fast decisions

LARA on 7/18/04 at 20:28 (155790)

An MRI is a good thing to do prior to surgery if you are going to have surgery. It can sometimes identify a mass, or varicose vein, that can, or cannot be removed so may help decide whether to proceed with surgery.

Have you tried compression socks? They work for some people and are easy and inexpensive to try. I noticed it helped within a few days although it was weeks/months before I stabilized where I've been.

Re: any advice for tts, need some fast decisions

Marty from SLC on 7/19/04 at 11:20 (155828)

What are your symtoms? Buring, pain, zingers?

Has there been a mass identified? If not an MRI will help with that I think.

What medication are you on for the pain? Have your tried neutontin? If your new insurance wont cover it you can get it in Generic form called Gabapentin from Canadadrugs.com

good luck keep us posted,

Marty

Re: any advice for tts, need some fast decisions

lilly on 7/19/04 at 14:46 (155845)

no ID'd mass. I just had a nerve study which the doctor said is indicative of TTS. I have not tried neurotin, i've been on celebrex then bextra (anti-inflammatories). I have burning pain worse the longer i stand around the arch area. thank you for your help :).

Re: LARA

lilly on 7/19/04 at 14:53 (155846)

Did you wear them 24 hours/day?? thanks and no i havent yet.

Re: any advice for tts, need some fast decisions

Marty from SLC on 7/19/04 at 16:32 (155867)

neurontin can help the burning. buring in the arch area is how mine started too.

Re: LARA

LARA on 7/21/04 at 08:20 (155955)

It depends. I have anklets and knee socks. When my feet were the worst I sometimes wore the anklets 24/7, but it was so long ago that my feet were the worst it's hard to remember. I knew very quickly the socks were helpful, and you can just decide as you go how long to keep them on. The knee socks have a very slightly annoying feel at first, although you get used to it - much better than the feeling of TTS! - but I never sleep with them - well maybe once.

I've never seen the anklets in the drug stores - got those from my doctor. Not sure why since knee socks are available OTC. Guess just not enough people buy anklets for the stores to stock.