Re: Hopelessness and frustration with PF and spurs
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Posted by Cindy on July 20, 1998 at 14:17:45:
Well, I am also in the same boat - going on 3 years now, with no end in sight. I can stand up for about 10 minutes at a time on a good day, then rest, and maybe do it a couple of more times. I really miss my old life, and I am still grieving for the losses I've had. It does help to have a wonderful spouse, but the other side of that coin is that I feel that I am ruining his life too (we can't do any of the fun things we love - he doesn't want to go without me - and I feel really guilty). I keep trying to find the "lesson" in all of this - why is this happening? What can I learn from it? Well, I have learned that being handicapped in our society is the pits - when I go out in the wheelchair, I might as well be invisible to most people. Cars actually try to make it across the cross walk before I slow them down! All we can do is hang in there, I guess! Best of luck to all of you.
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