I guess knowing that there is someone out there with similar problems makes me feel that at least I'm not a freak. Every doctor I've been to in my three years of suffering say that they
have never seen anything like this in all their
years of practice. Of course, I wish no one would ever have to
go through this hell. I felt the same way when I had cancer 10 years
ago - I wouldn't want to wish the suffering I went through on my
So, X-country skiing did it for you, huh? I too was very active,
running, rollerblading, windsurfing, but I got it by walking around
in New York in bad shoes. The pain was in control for about a year,
but then I went in the summertime with no orthotics, wearing sandals,
and it got really bad. Then I got it in my other foot, couldn't walk,
and decided to get cortisone shots. I only got one in each foot, in
the side of the heel, but after a couple days noticed that I could
feel my heel bones right through the fat pad. There doesn't seem to
be any cure for this, just heel pads. I keep thinking, why can't they
just inject fat from another part of the body?
I've tried absolutely
everything, to no avail, but like you I don't want surgery. I hear
too many bad results. It's funny you mention amputation -- I think
about it all the time! I've gone so far as to browse the web for
prosthesis. Since I have such bad luck, I'll probably end up with
I've had the extreme touch sensitivity since the cortisone shots. I
guess with no fat pads, I can feel everything! Also, since I have
bursitis, palpation on that spot will send me screaming. There does
not seem to be a cure for reflex sympathetic dystrophy.
Also, I have thought of seeing Dr. Barret. I'm anxious to know how
it goes. I can relate to the fear of getting your hopes up. I try
to remain positive, it's just that I have tried everything except
surgery and have gotten no relief at all.
Hope to hear from you soon. Take care.